Fueling hope: Stem cells in social media

Stem Cell Reviews and Reports

Volumn 11, Issue 4, 2015, Pages 540-546

  Robillard, Julie M ^a   Cabral, Emanuel ^a   Hennessey, Craig ^b   Kwon, Brian K ^c   Illes, Judy ^a  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^b BRITISH COLUMBIA INSTITUTE OF TECHNOLOGY   (Canada)

^c UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

Neuroethics; Parkinson disease; Social media; Spinal cord injury; Stem cells; Twitter

Indexed keywords

ARTICLE; CONTENT ANALYSIS; CROSS-SECTIONAL STUDY; HUMAN; INFORMATION DISSEMINATION; INTERNET; PARKINSON DISEASE; PRIORITY JOURNAL; SOCIAL MEDIA; SOCIAL NETWORK; SPINAL CORD INJURY; STEM CELL; STEM CELL RESEARCH; BIOLOGICAL THERAPY; CYTOLOGY; MEDICAL INFORMATION SYSTEM; PROCEDURES; SPINAL CORD INJURIES; STATISTICS AND NUMERICAL DATA;

CELL- AND TISSUE-BASED THERAPY; CROSS-SECTIONAL STUDIES; HEALTH INFORMATION EXCHANGE; HUMANS; INFORMATION DISSEMINATION; INTERNET; PARKINSON DISEASE; SOCIAL MEDIA; SPINAL CORD INJURIES; STEM CELLS;

EID: 84943352227     PISSN: 15508943     EISSN: 15586804     Source Type: Journal    
DOI: 10.1007/s12015-015-9591-y     Document Type: Article

References (36)

1. Ehnert, S., Glanemann, M., Schmitt, A., Vogt, S., Shanny, N., Nussler, N. C., & Nussler, A. (2009). The possible use of stem cells in regenerative medicine: dream or reality? Langenbeck’s Archives of Surgery/Deutsche Gesellschaft Für Chirurgie, 394(6), 985–997. doi:10.1007/s00423-009-0546-0.
2. McMahill, B.G., Borjesson, D. L., Sieber-Blum, M., Nolta, J. A., & Sturges, B. K. (2014). Stem cells in canine spinal cord injury - promise for regenerative therapy in a large animal model of human disease. Stem Cell Reviews. doi:10.1007/s12015-014-9553-9.
3. Liu, A. K. L. (2013). Stem cell therapy for Alzheimer’s disease: hype or hope? Bioscience Horizons, 6, hzt011.
4. Gage, F. H.,& Temple, S. (2013). Neural stem cells: generating and regenerating the brain. Neuron, 80(3), 588–601. doi:10.1016/j.neuron.2013.10.037.
5. Politis, M., & Lindvall, O. (2012). Clinical application of stem cell therapy in Parkinson’s disease. BMC Medicine, 10, 1. doi:10.1186/1741-7015-10-1.
6. Jensen, E. (2012). Mediating subpolitics in US and UK science news. Public Understanding of Science Bristol, England, 21(1), 68–83.
7. Reis, R. (2008). How Brazilian and North American newspapers frame the stem cell research debate. Science Communication, 29(3), 316–334. doi:10.1177/1075547007312394.
8. Bubela, T., Li, M. D., Hafez, M., Bieber, M., & Atkins, H. (2012). Is belief larger than fact: expectations, optimism and reality for translational stem cell research. BMC Medicine, 10, 133. doi:10.1186/1741-7015-10-133.
9. Scott, C. T., DeRouen, M. C., & Crawley, L. M. (2010). The language of hope: therapeutic intent in stem-cell clinical trials. AJOB Primary Research, 1(3), 4–11.
10. Caulfield, T., & McGuire, A. (2012). Athletes’ use of unproven stem cell therapies: adding to inappropriate media hype? Molecular Therapy: The Journal of the American Society of Gene Therapy, 20(9), 1656–1658. doi:10.1038/mt.2012.172.
11. Caulfield, T., & Rachul, C. (2011). Science spin: iPS cell research in the news. Clinical Pharmacology and Therapeutics, 89(5), 644–646. doi:10.1038/clpt.2010.309.
12. Kehn, M., & Kroll, T. (2011). Reporting trends of spinal cord injury research representation: a media content analysis. Disability and Health Journal, 4(2), 121–128. doi:10.1016/j.dhjo.2010.09.001.
13. Adams, A., Lomax, G., & Santarini, A. (2011). Social media & stem cell science: examining the discourse. Regenerative Medicine, 6(6s), 121–124.
14. Robillard, J.M., Whiteley, L., Johnson, T.W., Lim, J., Wasserman, W. W., & Illes, J. (2013). Utilizing social media to study information-seeking and ethical issues in gene therapy. Journal of Medical Internet Research, 15(3), e44. doi:10.2196/jmir.2313.
15. Robillard, J. M., Johnson, T. W., Hennessey, C., Beattie, B. L., & Illes, J. (2013). Aging 2.0: health information about dementia on twitter. PLoS ONE, 8(7), e69861. doi:10.1371/journal.pone.0069861.
16. Thurman, N. (2008). Forums for citizen journalists? Adoption of user generated content initiatives by online newsmedia. NewMedia & Society, 10(1), 139–157.
17. Chou, W. S., Hunt, Y. M., Beckjord, E. B., Moser, R. P., & Hesse, B. W. (2009). Social media use in the United States: implications for health communication. Journal of Medical Internet Research, 11(4), e48. doi:10.2196/jmir.1249.
18. Adams, S. A. (2010). Revisiting the online health information reliability debate in the wake of Bweb 2.0: an inter-disciplinary literature and website review. International Journal of Medical Informatics, 79(6), 391–400.
19. Moorhead, S. A., Hazlett, D. E., Harrison, L., Carroll, J. K., Irwin, A., & Hoving, C. (2013). A new dimension of health care: systematic review of the uses, benefits, and limitations of social media for health communication. Journal of Medical Internet Research, 15(4), e85. doi:10.2196/jmir.1933.
20. Petersen, A., & Seear, K. (2011). Technologies of hope: techniques of the online advertising of stem cell treatments. New Genetics and Society, 30(4), 329–346. doi:10.1080/14636778.2011.592003.
21. Prasad, A. (2014). Ambivalent journeys of hope: embryonic stem cell therapy in a clinic in India. Health. doi:10.1177/1363459314556906.
22. Thackeray, R., Crookston, B. T., & West, J. H. (2013). Correlates of health-related social media use among adults. Journal of Medical Internet Research, 15(1), e21. doi:10.2196/jmir.2297.
23. Hill, S., Merchant, R., & Ungar, L. (2013). Lessons learned about public health from online crowd surveillance. Big Data, 1(3), 160–167. doi:10.1089/big.2013.0020.
24. Laranjo, L., Arguel, A., Neves, A. L., Gallagher, A.M., Kaplan, R., Mortimer, N., & Lau, A. Y. S. (2014). The influence of social networking sites on health behavior change: a systematic review and meta-analysis. Journal of the American Medical Informatics Association: JAMIA. doi:10.1136/amiajnl-2014-002841.
25. Illes, J., Reimer, J. C., & Kwon, B. K. (2011). Stem cell clinical trials for spinal cord injury: readiness, reluctance, redefinition. Stem Cell Reviews, 7(4), 997–1005. doi:10.1007/s12015-011-9259-1.
26. Chew, C., & Eysenbach, G. (2010). Pandemics in the age of twitter: content analysis of tweets during the 2009 H1N1 outbreak. PLoS ONE, 5(11), e14118. doi:10.1371/journal.pone.0014118.
27. Scanfeld, D., Scanfeld, V., & Larson, E. L. (2010). Dissemination of health information through social networks: twitter and antibiotics. American Journal of Infection Control, 38(3), 182–188. doi: 10.1016/j.ajic.2009.11.004.
28. Lee, J. L., DeCamp, M., Dredze, M., Chisolm, M. S., & Berger, Z. D. (2014). What are health-related users tweeting? a qualitative content analysis of health-related users and their messages on twitter. Journal of Medical Internet Research, 16(10), e237. doi:10.2196/jmir.3765.
29. Bosslet, G. T., Torke, A. M., Hickman, S. E., Terry, C. L., & Helft, P. R. (2011). The patient-doctor relationship and online social networks: results of a national survey. Journal of General Internal Medicine, 26(10), 1168–1174. doi:10.1007/s11606-011-1761-2.
30. Lupiáñez-Villanueva, F., Mayer, M. A., & Torrent, J. (2009). Opportunities and challenges of Web 2.0 within the health care systems: an empirical exploration. Informatics for Health & Social Care, 34(3), 117–126. doi:10.1080/17538150903102265.
31. McGowan, B. S., Wasko, M., Vartabedian, B. S., Miller, R. S., Freiherr, D. D., & Abdolrasulnia, M. (2012). Understanding the factors that influence the adoption and meaningful use of social media by physicians to share medical information. Journal of Medical Internet Research, 14(5), e117. doi:10.2196/jmir.2138.
32. Keller, B., Labrique, A., Jain, K. M., Pekosz, A., & Levine, O. (2014). Mind the gap: social media engagement by public health researchers. Journal of Medical Internet Research, 16(1), e8. doi: 10.2196/jmir.2982.
33. Rowlands, I., Nicholas, D., Russell, B., Canty, N., & Watkinson, A. (2011). Social media use in the research workflow. Learned Publishing, 24(3), 183–195.
34. Hodges, R. J., Bardien, N., & Wallace, E. (2012). Acceptability of stem cell therapy by pregnant women. Birth (Berkeley, California), 39(2), 91–97. doi:10.1111/j.1523-536X.2012.00527.x.
35. Purcell-Davis, A. (2013). The representations of novel neurotechnologies in social media: five case studies. The New Bioethics: A Multidisciplinary Journal of Biotechnology and the Body, 19(1), 30–45.
36. Duggan, M., Ellison, N. B., Lampe, C., Am, Lenhart, A, & Madden, M. (n.d.). Demographics of Key Social Networking Platforms. Pew Research Center’s Internet & American Life Project. Retrieved from http://www.pewinternet.org/2015/01/09/demographics-of-key-social-networking-platforms-2/