Stigma and burden among relatives of persons with schizophrenia: Results from the Swedish COAST study

Psychiatric Services

Volumn 66, Issue 10, 2015, Pages 1020-1026

  Allerby, Katarina ^a   Sameby, Birgitta ^a   Brain, Cecilia ^a   Joas, Erik ^b   Quinlan, Patrick ^a   Sjöström, Nils ^a,b   Burns, Tom ^c   Waern, Margda ^a,b  

^a SAHLGRENSKA UNIVERSITY HOSPITAL   (Sweden)

^b UNIVERSITY OF GOTHENBURG   (Sweden)

^c UNIVERSITY OF OXFORD   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

NEUROLEPTIC AGENT;

ADULT; AGED; ARTICLE; FAMILY RELATION; FEMALE; GLOBAL ASSESSMENT OF FUNCTIONING; GROUP THERAPY; HUMAN; MAJOR CLINICAL STUDY; MALE; POSITIVE AND NEGATIVE SYNDROME SCALE; QUALITY OF LIFE; RELATIVE; SCHIZOPHRENIA; SELF ESTEEM; SOCIAL BEHAVIOR; STIGMA; STRUCTURED QUESTIONNAIRE; COST OF ILLNESS; MIDDLE AGED; PSYCHOLOGY; QUESTIONNAIRE; SOCIAL STIGMA; STATISTICAL MODEL; SWEDEN;

AGED; ANTIPSYCHOTIC AGENTS; COST OF ILLNESS; FEMALE; HUMANS; LOGISTIC MODELS; MALE; MIDDLE AGED; QUALITY OF LIFE; SCHIZOPHRENIA; SCHIZOPHRENIC PSYCHOLOGY; SOCIAL STIGMA; SURVEYS AND QUESTIONNAIRES; SWEDEN;

EID: 84943253865     PISSN: 10752730     EISSN: 15579700     Source Type: Journal    
DOI: 10.1176/appi.ps.201400405     Document Type: Article

References (34)

1. Thornicroft G, Brohan E, Rose D, et al: Global pattern of experienced and anticipated discrimination against people with schizophrenia: A cross-sectional survey. Lancet 373: 408-415, 2009
2. Goffman E: Stigma: Notes on the Management of Spoiled Identity. Englewood Cliffs, NJ, Prentice-Hall, 1963
3. Phelan JC, Bromet EJ, Link BG: Psychiatric illness and family stigma. Schizophrenia Bulletin 24: 115-126, 1998
4. Kadri N, Manoudi F, Berrada S, et al: Stigma impact on Moroccan families of patients with schizophrenia. Canadian Journal of Psychiatry 49: 625-629, 2004
5. Struening EL, Perlick DA, Link BG, et al: Stigma as a barrier to recovery: The extent to which caregivers believe most people devalue consumers and their families. Psychiatric Services 52: 1633-1638, 2001
6. McCann TV, Lubman DI, Clark E: Responding to stigma: First-time caregivers of young people with first-episode psychosis. Psychiatric Services 62: 548-550, 2011
7. Muhlbauer S: Experience of stigma by families with mentally ill members. Journal of the American Psychiatric Nurses Association 8: 76-83, 2002
8. Angermeyer MC, Schulze B, Dietrich S: Courtesy stigma-a focus group study of relatives of schizophrenia patients. Social Psychiatry and Psychiatric Epidemiology 38: 593-602, 2003
9. González-Torres MA, Oraa R, Arístegui M, et al: Stigma and discrimination towards people with schizophrenia and their family members: A qualitative study with focus groups. Social Psychiatry and Psychiatric Epidemiology 42: 14-23, 2007
10. Ostman M, Kjellin L: Stigma by association: Psychological factors in relatives of people with mental illness. British Journal of Psychiatry 181: 494-498, 2002
11. Wahl OF, Harman CR: Family views of stigma. Schizophrenia Bulletin 15: 131-139, 1989
12. Stuart H, Koller M, Milev R: Inventories to measure the scope and impact of stigma experiences from the perspective of those who are stigmatized: Consumer and family versions; in Understanding the Stigma of Mental Illness. New York, Wiley, 2008
13. Liberman RP, Kopelowicz A, Ventura J, et al: Operational criteria and factors related to recovery from schizophrenia. International Review of Psychiatry 14: 256-272, 2002
14. Phillips MR, Pearson V, Li F, et al: Stigma and expressed emotion: A study of people with schizophrenia and their family members in China. British Journal of Psychiatry 181: 488-493, 2002
15. Tsang HW, Tam PK, Chan F, et al: Sources of burdens on families of individuals with mental illness. International Journal of Rehabilitation Research 26: 123-130, 2003
16. Magaña SM, Ramírez García JI, Hernández MG, et al: Psychological distress among Latino family caregivers of adults with schizophrenia: The roles of burden and stigma. Psychiatric Services 58: 378-384, 2007
17. Magliano L, Fadden G, Economou M, et al: Family burden and coping strategies in schizophrenia: 1-year follow-up data from the BIOMED I study. Social Psychiatry and Psychiatric Epidemiology 35: 109-115, 2000
18. Roick C, Heider D, Toumi M, et al: The impact of caregivers' characteristics, patients' conditions and regional differences on family burden in schizophrenia: A longitudinal analysis. Acta Psychiatrica Scandinavica 114: 363-374, 2006
19. Malm U, Ivarsson B, Allebeck P, et al: Integrated care in schizophrenia: A 2-year randomized controlled study of two communitybased treatment programs. Acta Psychiatrica Scandinavica 107: 415-423, 2003
20. Malm UI, Ivarsson BA, Allebeck P: Durability of the efficacy of integrated care in schizophrenia: A five-year randomized controlled study. Psychiatric Services 65: 1054-1057, 2014
21. Hjärthag F, Helldin L, Norlander T: Psychometric properties of the burden inventory for relatives of persons with psychotic disturbances. Psychological Reports 103: 323-335, 2008
22. Brain C, Allerby K, Sameby B, et al: Drug attitude and other predictors of medication adherence in schizophrenia: 12 months of electronic monitoring (MEMS) in the Swedish COAST study. European Neuropsychopharmacology 23: 1754-1762, 2013
23. Brain C, Sameby B, Allerby K, et al: Stigma, discrimination and medication adherence in schizophrenia: Results from the Swedish COAST study. Psychiatry Research 220: 811-817, 2014
24. Hosmer DW, Lemeshow S: Applied Logistic Regression. New York, Wiley, 2004
25. Shi L, Ascher-Svanum H, Zhu B, et al: Characteristics and use patterns of patients taking first-generation depot antipsychotics or oral antipsychotics for schizophrenia. Psychiatric Services 58: 482-488, 2007
26. Beldie A, den Boer JA, Brain C, et al: Fighting stigma of mental illness in midsize European countries. Social Psychiatry and Psychiatric Epidemiology 47(suppl 1): 1-38, 2012
27. Hjärthag F, Helldin L, Karilampi U, et al: Illness-related components for the family burden of relatives to patients with psychotic illness. Social Psychiatry and Psychiatric Epidemiology 45: 275-283, 2010
28. Falloon IR, Held T, Roncone R, et al: Optimal treatment strategies to enhance recovery from schizophrenia. Australian and New Zealand Journal of Psychiatry 32: 43-49, 1998
29. Ziguras SJ, Stuart GW: A meta-analysis of the effectiveness of mental health case management over 20 years. Psychiatric Services 51: 1410-1421, 2000
30. Phillips SD, Burns BJ, Edgar ER, et al: Moving assertive community treatment into standard practice. Psychiatric Services 52: 771-779, 2001
31. Flyckt L, Löthman A, Jörgensen L, et al: Burden of informal care giving to patients with psychoses: A descriptive and methodological study. International Journal of Social Psychiatry 59: 137-146, 2013
32. Parabiaghi A, Lasalvia A, Bonetto C, et al: Predictors of changes in caregiving burden in people with schizophrenia: A 3-year followup study in a community mental health service. Acta Psychiatrica Scandinavica. Supplementum 437: 66-76, 2007
33. Magliano L, Fadden G, Fiorillo A, et al: Family burden and coping strategies in schizophrenia: Are key relatives really different to other relatives? Acta Psychiatrica Scandinavica 99: 10-15, 1999
34. Wancata J, Freidl M, Krautgartner M, et al: Gender aspects of parents' needs of schizophrenia patients. Social Psychiatry and Psychiatric Epidemiology 43: 968-974, 2008