Patient-reported outcomes across categories of Juvenile idiopathic arthritis

Journal of Rheumatology

Volumn 42, Issue 10, 2015, Pages 1914-1921

  Taxter, Alysha J ^a   Wileyto, E Paul ^b   Behrens, Edward M ^a   Weiss, Pamela F ^a  

^a CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

^b UNIVERSITY OF PENNSYLVANIA   (United States)

Author keywords

Juvenile arthritis; Pain; Patient outcome assessment; Pediatric; Quality of life; Rheumatology

Indexed keywords

NONSTEROID ANTIINFLAMMATORY AGENT; ANTIRHEUMATIC AGENT;

ADOLESCENT; ARTHRITIS; ARTICLE; CHILD; COHORT ANALYSIS; CONTROLLED STUDY; DISEASE ACTIVITY SCORE; ELECTRONIC MEDICAL RECORD; ENTHESITIS RELATED ARTHRITIS; FEMALE; HUMAN; JUVENILE RHEUMATOID ARTHRITIS; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; OUTCOME ASSESSMENT; PAIN; PAIN ASSESSMENT; PATIENT REPORTED OUTCOMES; PHYSICAL ACTIVITY; PRESCHOOL CHILD; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; RETROSPECTIVE STUDY; RHEUMATOLOGY; SCHOOL CHILD; SEX DIFFERENCE; TERTIARY HEALTH CARE; ARTHRITIS, JUVENILE; CHI SQUARE DISTRIBUTION; CHRONIC PAIN; CONFIDENCE INTERVAL; DAILY LIFE ACTIVITY; HOSPITAL; PAIN MEASUREMENT; PATHOPHYSIOLOGY; PENNSYLVANIA; PSYCHOLOGY; RISK ASSESSMENT; SELF REPORT; SEVERITY OF ILLNESS INDEX; TREATMENT OUTCOME;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; ANTIRHEUMATIC AGENTS; ARTHRITIS, JUVENILE; CHI-SQUARE DISTRIBUTION; CHILD; CHILD, PRESCHOOL; CHRONIC PAIN; COHORT STUDIES; CONFIDENCE INTERVALS; FEMALE; HOSPITALS, PEDIATRIC; HUMANS; LONGITUDINAL STUDIES; MALE; PAIN MEASUREMENT; PATIENT OUTCOME ASSESSMENT; PHILADELPHIA; QUALITY OF LIFE; RETROSPECTIVE STUDIES; RISK ASSESSMENT; SELF REPORT; SEVERITY OF ILLNESS INDEX; TREATMENT OUTCOME;

EID: 84943248927     PISSN: 0315162X     EISSN: 14992752     Source Type: Journal    
DOI: 10.3899/jrheum.150092     Document Type: Article

References (34)

1. Khanna D, Krishnan E, Dewitt EM, Khanna PP, Spiegel B, Hays RD. The future of measuring patient-reported outcomes in rheumatology: Patient-Reported Outcomes Measurement Information System (PROMIS). Arthritis Care Res 2011;63 Suppl 11:S486-90.
2. Garcia-Munitis P, Bandeira M, Pistorio A, Magni-Manzoni S, Ruperto N, Schivo A, et al. Level of agreement between children, parents, and physicians in rating pain intensity in juvenile idiopathic arthritis. Arthritis Rheum 2006;55:177-83.
3. Sztajnbok F, Coronel-Martinez DL, Diaz-Maldonado A, Novarini C, Pistorio A, Viola S, et al. Discordance between physician's and parent's global assessments in juvenile idiopathic arthritis. Rheumatology 2007;46:141-5.
4. Consolaro A, Vitale R, Pistorio A, Lattanzi B, Ruperto N, Malattia C, et al. Physicians' and parents' ratings of inactive disease are frequently discordant in juvenile idiopathic arthritis. J Rheumatol 2007;34:1773-6.
5. Luca NJ, Feldman BM. Health outcomes of pediatric rheumatic diseases. Best Pract Res Clin Rheumatol 2014;28:331-50.
6. Petty RE, Southwood TR, Manners P, Baum J, Glass DN, Goldenberg J, et al; International League of Associations for Rheumatology. International League of Associations for Rheumatology classification of juvenile idiopathic arthritis: second revision, Edmonton, 2001. J Rheumatol 2004;31:390-2.
7. Beukelman T, Patkar NM, Saag KG, Tolleson-Rinehart S, Cron RQ, DeWitt EM, et al. 2011 American College of Rheumatology recommendations for the treatment of juvenile idiopathic arthritis: initiation and safety monitoring of therapeutic agents for the treatment of arthritis and systemic features. Arthritis Care Res 2011;63:465-82.
8. Tynjälä P, Vähäsalo P, Tarkiainen M, Kröger L, Aalto K, Malin M, et al. Aggressive combination drug therapy in very early polyarticular juvenile idiopathic arthritis (ACUTE-JIA): a multicentre randomised open-label clinical trial. Ann Rheum Dis 2011;70:1605-12.
9. Wallace CA, Giannini EH, Spalding SJ, Hashkes PJ, O'Neil KM, Zeft AS, et al; Childhood Arthritis and Rheumatology Research Alliance. Trial of early aggressive therapy in polyarticular juvenile idiopathic arthritis. Arthritis Rheum 2012;64:2012-21.
10. Weiss PF, Beukelman T, Schanberg LE, Kimura Y, Colbert RA; CARRA Registry Investigators. Enthesitis-related arthritis is associated with higher pain intensity and poorer health status in comparison with other categories of juvenile idiopathic arthritis: the Childhood Arthritis and Rheumatology Research Alliance Registry. J Rheumatol 2012;39:2341-51.
11. Boiu S, Marniga E, Bader-Meunier B, Mouy R, Compeyrot-Lacassagne S, Quartier P, et al. Functional status in severe juvenile idiopathic arthritis in the biologic treatment era: an assessment in a French paediatric rheumatology referral centre. Rheumatology 2012;51:1285-92.
12. Flatø B, Hoffmann-Vold AM, Reiff A, Forre O, Lien G, Vinje O. Long-term outcome and prognostic factors in enthesitis-related arthritis: a case-control study. Arthritis Rheum 2006;54:3573-82.
13. Seid M, Opipari L, Huang B, Brunner HI, Lovell DJ. Disease control and health-related quality of life in juvenile idiopathic arthritis. Arthritis Rheum 2009;61:393-9.
14. Behrens EM, Beukelman T, Cron RQ. Juvenile idiopathic arthritis classification criteria: loopholes and diagnosis software. J Rheumatol 2007;34:234.
15. Price DD, Bush FM, Long S, Harkins SW. A comparison of pain measurement characteristics of mechanical visual analogue and simple numerical rating scales. Pain 1994;56:217-26.
16. Carlsson AM. Assessment of chronic pain. I. Aspects of the reliability and validity of the visual analogue scale. Pain 1983;16:87-101.
17. Bijur PE, Latimer CT, Gallagher EJ. Validation of a verbally administered numerical rating scale of acute pain for use in the emergency department. Acad Emerg Med 2003;10:390-2.
18. Filocamo G, Schiappapietra B, Bertamino M, Pistorio A, Ruperto N, Magni-Manzoni S, et al. A new short and simple health-related quality of life measurement for paediatric rheumatic diseases: initial validation in juvenile idiopathic arthritis. Rheumatology 2010;49:1272-80.
19. Weiss PF, Klink AJ, Faerber J, Feudtner C. The pediatric rheumatology quality of life scale: validation of the English version in a US cohort of juvenile idiopathic arthritis. Pediatr Rheumatol Online J 2013;11:43.
20. Singh G, Athreya BH, Fries JF, Goldsmith DP. Measurement of health status in children with juvenile rheumatoid arthritis. Arthritis Rheum 1994;37:1761-9.
21. Hirschfeld G, Zernikow B. Cut points for mild, moderate, and severe pain on the VAS for children and adolescents: what can be learned from 10 million ANOVAs? Pain 2013;154:2626-32.
22. Dempster H, Porepa M, Young N, Feldman BM. The clinical meaning of functional outcome scores in children with juvenile arthritis. Arthritis Rheum 2001;44:1768-74.
23. Fleiss JL. The design and analysis of clinical experiments. New York: Wiley; 1986.
24. Moltó A, Paternotte S, Claudepierre P, Breban M, Dougados M. Effectiveness of tumor necrosis factor α blockers in early axial spondyloarthritis: data from the DESIR cohort. Arthritis Rheumatol 2014;66:1734-44.
25. Spadaro A, Lubrano E, Marchesoni A, D'Angelo S, Ramonda R, Addimanda O, et al. Remission in ankylosing spondylitis treated with anti-TNF-α drugs: a national multicentre study. Rheumatology 2013;52:1914-9.
26. Otten MH, Prince FH, Twilt M, Ten Cate R, Armbrust W, Hoppenreijs EP, et al. Tumor necrosis factor-blocking agents for children with enthesitis-related arthritis-data from the Dutch arthritis and biologicals in children register, 1999-2010. J Rheumatol 2011;38:2258-63.
27. Donnithorne KJ, Cron RQ, Beukelman T. Attainment of inactive disease status following initiation of TNF-α inhibitor therapy for juvenile idiopathic arthritis: enthesitis-related arthritis predicts persistent active disease. J Rheumatol 2011;38:2675-81.
28. Wu Q, Inman RD, Davis KD. Neuropathic pain in ankylosing spondylitis: a psychophysics and brain imaging study. Arthritis Rheum 2013;65:1494-503.
29. Leegaard A, Lomholt JJ, Thastum M, Herlin T. Decreased pain threshold in juvenile idiopathic arthritis: a cross-sectional study. J Rheumatol 2013;40:1212-7.
30. Limenis E, Grosbein HA, Feldman BM. The relationship between physical activity levels and pain in children with juvenile idiopathic arthritis. J Rheumatol 2014;41:345-51.
31. Bromberg MH, Schechter NL, Nurko S, Zempsky WT, Schanberg LE. Persistent pain in chronically ill children without detectable disease activity. Pain Manag 2014;4:211-9.
32. Bromberg MH, Connelly M, Anthony KK, Gil KM, Schanberg LE. Self-reported pain and disease symptoms persist in juvenile idiopathic arthritis despite treatment advances: an electronic diary study. Arthritis Rheumatol 2014;66:462-9.
33. Ringold S, Ward TM, Wallace CA. Disease activity and fatigue in juvenile idiopathic arthritis. Arthritis Care Res 2013;65:391-7.
34. Cartwright T, Fraser E, Edmunds S, Wilkinson N, Jacobs K. Journeys of adjustment: the experiences of adolescents living with juvenile idiopathic arthritis. Child Care Health Dev 2014 Oct 6 (E-pub ahead of print).