메뉴 건너뛰기




Volumn 18, Issue 5, 2015, Pages 929-941

The use of haematopoietic stem cell transplantation in Fanconi anaemia patients: A survey of decision making among families in the US and Canada

Author keywords

Decision making; Fanconi anaemia; Genetics; Psychosocial factors; Stem cell transplantation

Indexed keywords

ADOLESCENT; ADULT; CANADA; CHILD; CROSS-SECTIONAL STUDY; DECISION MAKING; DOCTOR PATIENT RELATION; FAMILY; FANCONI ANEMIA; FEMALE; HEMATOPOIETIC STEM CELL TRANSPLANTATION; HUMAN; INFANT; MALE; PRESCHOOL CHILD; PSYCHOLOGY; QUALITATIVE RESEARCH; QUALITY OF LIFE; RISK FACTOR; UNITED STATES; YOUNG ADULT;

EID: 84942293857     PISSN: 13696513     EISSN: 13697625     Source Type: Journal    
DOI: 10.1111/hex.12066     Document Type: Article
Times cited : (7)

References (25)
  • 1
    • 77952674566 scopus 로고    scopus 로고
    • Pathophysiology and management of inherited bone marrow failure syndromes
    • Shimamura A, Alter BP. Pathophysiology and management of inherited bone marrow failure syndromes. Blood Reviews, 2010; 24: 101-122.
    • (2010) Blood Reviews , vol.24 , pp. 101-122
    • Shimamura, A.1    Alter, B.P.2
  • 2
    • 0037306904 scopus 로고    scopus 로고
    • Cancer incidence in persons with Fanconi anemia
    • Rosenberg PS, Greene MH, Alter BP. Cancer incidence in persons with Fanconi anemia. Blood, 2003; 101: 822-826.
    • (2003) Blood , vol.101 , pp. 822-826
    • Rosenberg, P.S.1    Greene, M.H.2    Alter, B.P.3
  • 3
    • 77954339095 scopus 로고    scopus 로고
    • Malignancies and survival patterns in the National Cancer Institute Inherited Bone Marrow Failure Syndromes Cohort Study
    • Alter BP, Giri N, Savage S, et al. Malignancies and survival patterns in the National Cancer Institute Inherited Bone Marrow Failure Syndromes Cohort Study. British Journal of Haematology, 2010; 150: 179-188.
    • (2010) British Journal of Haematology , vol.150 , pp. 179-188
    • Alter, B.P.1    Giri, N.2    Savage, S.3
  • 5
    • 77949392920 scopus 로고    scopus 로고
    • Haematopoeitic cell transplantation for Fanconi anemia- when and how?
    • MacMillan ML, Wagner JE. Haematopoeitic cell transplantation for Fanconi anemia- when and how? British Journal of Haematology, 2010; 149: 14-21.
    • (2010) British Journal of Haematology , vol.149 , pp. 14-21
    • MacMillan, M.L.1    Wagner, J.E.2
  • 7
    • 0035958352 scopus 로고    scopus 로고
    • Preimplantation diagnosis for Fanconi anemia combined with HLA matching
    • Verlinsky Y, Rechitsky S, Schoolcraft W, Strom C, Kuliev A. Preimplantation diagnosis for Fanconi anemia combined with HLA matching. JAMA, 2001; 285: 3130-3133.
    • (2001) JAMA , vol.285 , pp. 3130-3133
    • Verlinsky, Y.1    Rechitsky, S.2    Schoolcraft, W.3    Strom, C.4    Kuliev, A.5
  • 9
    • 33847349880 scopus 로고    scopus 로고
    • Unrelated donor bone marrow transplantation for the treatment of Fanconi anemia
    • Wagner JE, Eapen M, MacMillan ML, et al. Unrelated donor bone marrow transplantation for the treatment of Fanconi anemia. Blood, 2007; 109: 2256-2262.
    • (2007) Blood , vol.109 , pp. 2256-2262
    • Wagner, J.E.1    Eapen, M.2    MacMillan, M.L.3
  • 10
    • 3543119613 scopus 로고    scopus 로고
    • Patterns of distress in parents of children undergoing stem cell transplantation
    • Phipps S, Dunavant M, Lensing S, Rai SN. Patterns of distress in parents of children undergoing stem cell transplantation. Pediatric Blood & Cancer, 2004; 43: 267-274.
    • (2004) Pediatric Blood & Cancer , vol.43 , pp. 267-274
    • Phipps, S.1    Dunavant, M.2    Lensing, S.3    Rai, S.N.4
  • 11
    • 11144235579 scopus 로고    scopus 로고
    • Risk of head and neck squamous cell cancer and death in patients with Fanconi anemia who did and did not receive transplants
    • Rosenberg PS, Socie G, Alter BP, Gluckman E. Risk of head and neck squamous cell cancer and death in patients with Fanconi anemia who did and did not receive transplants. Blood, 2005; 105: 67-73.
    • (2005) Blood , vol.105 , pp. 67-73
    • Rosenberg, P.S.1    Socie, G.2    Alter, B.P.3    Gluckman, E.4
  • 12
    • 48349085754 scopus 로고    scopus 로고
    • Health-related quality of life in survivors of BMT for paediatric malignancy: a systematic review of the literature
    • Clarke SA, Eiser C, Skinner R. Health-related quality of life in survivors of BMT for paediatric malignancy: a systematic review of the literature. Bone Marrow Transplantation, 2008; 42: 73-82.
    • (2008) Bone Marrow Transplantation , vol.42 , pp. 73-82
    • Clarke, S.A.1    Eiser, C.2    Skinner, R.3
  • 13
    • 73349126721 scopus 로고    scopus 로고
    • Quality of life and psychosocial sequelae in children undergoing hematopoietic stem-cell transplantation: a review
    • Tremolada M, Bonichini S, Pillon M, Messina C, Carli M. Quality of life and psychosocial sequelae in children undergoing hematopoietic stem-cell transplantation: a review. Pediatric Transplantation, 2009; 13: 955-970.
    • (2009) Pediatric Transplantation , vol.13 , pp. 955-970
    • Tremolada, M.1    Bonichini, S.2    Pillon, M.3    Messina, C.4    Carli, M.5
  • 14
    • 33847048974 scopus 로고    scopus 로고
    • A process to facilitate decision making in pediatric stem cell transplantation: the Individualized Care Planning and Coordination Model
    • Baker JN, Barfield R, Hinds PS, Kane JR. A process to facilitate decision making in pediatric stem cell transplantation: the Individualized Care Planning and Coordination Model. Biology of Blood and Marrow Transplantion, 2007; 13: 245-254.
    • (2007) Biology of Blood and Marrow Transplantion , vol.13 , pp. 245-254
    • Baker, J.N.1    Barfield, R.2    Hinds, P.S.3    Kane, J.R.4
  • 15
    • 0028313399 scopus 로고
    • Bone marrow transplantation: support of the patient and his/her family
    • Lesko LM. Bone marrow transplantation: support of the patient and his/her family. Supportive Care in Cancer, 1994; 2: 35-49.
    • (1994) Supportive Care in Cancer , vol.2 , pp. 35-49
    • Lesko, L.M.1
  • 16
    • 84862880274 scopus 로고    scopus 로고
    • Shared decision making in pediatric allogeneic bone marrow transplantation: what if there is no decision to make?
    • Pentz R, Pelletier W, Alderfer M, Stegenga K, Fairclough DL, Hinds PS. Shared decision making in pediatric allogeneic bone marrow transplantation: what if there is no decision to make? Oncologist, 2012; 17: 881-885.
    • (2012) Oncologist , vol.17 , pp. 881-885
    • Pentz, R.1    Pelletier, W.2    Alderfer, M.3    Stegenga, K.4    Fairclough, D.L.5    Hinds, P.S.6
  • 17
    • 0033420462 scopus 로고    scopus 로고
    • The Beliefs About Medicines Questionnaire: the development and evaluation of a new method for assessing the cognitive representation of medication
    • Horne R, Weinman J, Hankins M. The Beliefs About Medicines Questionnaire: the development and evaluation of a new method for assessing the cognitive representation of medication. Psychology and Health, 1999; 14: 1-24.
    • (1999) Psychology and Health , vol.14 , pp. 1-24
    • Horne, R.1    Weinman, J.2    Hankins, M.3
  • 18
    • 0036004456 scopus 로고    scopus 로고
    • Self-regulation and self-management in asthma: exploring the role of illness perceptions and treatment beliefs in exploring non-adherence to preventer medication
    • Horne R, Weinman J. Self-regulation and self-management in asthma: exploring the role of illness perceptions and treatment beliefs in exploring non-adherence to preventer medication. Psychology and Health, 2009; 17: 17-32.
    • (2009) Psychology and Health , vol.17 , pp. 17-32
    • Horne, R.1    Weinman, J.2
  • 19
    • 34249080108 scopus 로고    scopus 로고
    • Cancer risk elicitation and communication: lessons from the psychology of risk perception
    • Klein WM, Stefanek ME. Cancer risk elicitation and communication: lessons from the psychology of risk perception.CA: A Cancer Journal for Clinicians, 2007; 57:147-167.
    • (2007) CA: A Cancer Journal for Clinicians , vol.57 , pp. 147-167
    • Klein, W.M.1    Stefanek, M.E.2
  • 21
    • 2442472242 scopus 로고    scopus 로고
    • Risk as analysis and risk as feelings: some thoughts about affect, reason, risk, and rationality
    • Slovic P, Finucane ML, Peters E, MacGregor DG. Risk as analysis and risk as feelings: some thoughts about affect, reason, risk, and rationality. Risk Analysis, 2004; 24: 311-322.
    • (2004) Risk Analysis , vol.24 , pp. 311-322
    • Slovic, P.1    Finucane, M.L.2    Peters, E.3    MacGregor, D.G.4
  • 23
    • 84942300130 scopus 로고    scopus 로고
    • World Wide Web 2011 [cited 2007 May 22];Available at:
    • QSR International. World Wide Web 2011 [cited 2007 May 22];Available at:http://www.qsrinternational.com
  • 25
    • 33744502623 scopus 로고    scopus 로고
    • A matter of perspective: choosing for others differs from choosing for yourself in making treatment decisions
    • Zikmund-Fisher BJ, Sarr B, Fagerlin A, Ubel PA. A matter of perspective: choosing for others differs from choosing for yourself in making treatment decisions. Journal of General Internal Medicine, 2006; 21: 618-622.
    • (2006) Journal of General Internal Medicine , vol.21 , pp. 618-622
    • Zikmund-Fisher, B.J.1    Sarr, B.2    Fagerlin, A.3    Ubel, P.A.4


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.