Voluntary Organizations and Community Groups as New Partners in Diabetes Self-management and Education: A Critical Interpretative Synthesis

The Diabetes Educator

Volumn 41, Issue 5, 2015, Pages 550-568

  Portillo, Mari Carmen ^a   Regaira, Elena ^b   Pumar Méndez, María J ^c   Mujika, Agurtzane ^c   Vassilev, Ivaylo ^a   Rogers, Anne ^a   Wensing, Michel ^d   Foss, Christina ^e   Knutsen, Ingrid Ruud ^j   Todorova, Elka ^f   Roukova, Poli ^g   Kennedy, Anne ^a   Serrano, Manuel ^h   Lionis, Christos ⁱ   Angelaki, Agapi ⁱ   Patelarou, Evridiki ^j   Koetsenruijter, Jan ^d  

^a UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

^b UNIVERSITY CLINIC OF NAVARRA   (Spain)

^c UNIVERSITY OF NAVARRA   (Spain)

^d RADBOUD UNIVERSITY MEDICAL CENTER   (Netherlands)

^e UNIVERSITY OF OSLO   (Norway)

^f UNIVERSITY OF NATIONAL AND WORLD ECONOMY   (Bulgaria)

^g BULGARIAN ACADEMY OF SCIENCES   (Bulgaria)

^h Murcia Region (FFIS)   (Spain)

ⁱ UNIVERSITY OF CRETE   (Greece)

^j KING'S COLLEGE LONDON   (United Kingdom)

more..

Author keywords

[No Author keywords available]

Indexed keywords

COMMUNITY CARE; DIABETES MELLITUS; HEALTH SERVICE; HUMAN; PATIENT EDUCATION; PROCEDURES; PSYCHOLOGY; SELF CARE;

COMMUNITY HEALTH SERVICES; DIABETES MELLITUS; HUMANS; PATIENT EDUCATION AS TOPIC; SELF CARE; VOLUNTARY HEALTH AGENCIES;

EID: 84942093311     PISSN: 01457217     EISSN: 15546063     Source Type: Journal    
DOI: 10.1177/0145721715594026     Document Type: Article

References (48)

1. Hu FB. Globalization of diabetes. The role of diet, lifestyle, and genes. Diabetes Care. 2011;34:1249-1257.
2. Elissen A, Nolte E, Knai C et al. Is Europe putting theory intro practice? A qualitative study of the level of self-management support in chronic care management approaches. BMC Health Serv Res. 2013;13:117.
3. Boyle FM, Muthch AJ, Dean JH et al. Consumer health organisations for people with diabetes and arthritis: who contacts them and why? Health Soc Care Comm. 2009;17(6):628-635.
4. Kennedy A, Reeves D, Bower P et al. The effectiveness and cost effectiveness of a national lay –led self care support programme for patients with long-term conditions: a pragmatic randomized controlled trial. J Epidemiol Community Health. 2007;61:254-261.
5. Evers A, Laville JL. The Third Sector in Europe. Globalization and Welfare. Boston: Edward Elgar Publishing, Inc; 2004.
6. Sandwell Metropolitan Borough Council. Voluntary and Community Sector (VCS) Support. http://www.sandwell.gov.uk/info/200176/business/434/voluntary_and_community_sector_vcs_support/4. Accessed November 1, 2014.
7. Barlow JH, Bancroft GV, Turner AP. Volunteer, lay tutors’ experiences of the Chronic Disease Self-Management Course: being valued and adding value. Health Educ Res. 2005;20(2):128-136.
8. Flanagan SM, Hancock B. “Reaching the hard to reach”—lessons learned from the VCS (voluntary and community sector). A qualitative study. BMC Health Serv Res. 2010;10:92.
9. Dixon-Woods M, Agarwal S, Jones D et al. Synthesising qualitative and quantitative evidence: are view of possible methods. J Health Serv Res Policy. 2005;10(1):45-53.
10. Dixon-Woods M, Bonas S, Booth A et al. How can systematic reviews incorporate qualitative research? A critical perspective. Qual Res. 2006;6(1):27-44.
11. Dixon-Woods M, Carvers D, Agarwal S et al. Conducting a critical interpretative synthesis of the literature on access to health care by vulnerable groups. BMC Med Res Methodol. 2006;6:35.
12. Chapman AL, Morgan LC, Gartlehner G. Semiautomating the manual literature search for systematic reviews increases efficiency. Health Info Lib J. 2009;27:22-27.
13. Noblit G, Hare R. Meta-ethnography: Synthesising Qualitative Studies. Newbury Park, CA: Sage; 1988.
14. Atkinson MJ, Boltri JM, Davis-Smith M et al. A qualitative inquiry into the community and programmatic dimensions associated with successful implementation of church-based diabetes prevention programs. J Public Health Manag Pract. 2009;15(3):264-273.
15. South J, Higgins TJ, Woodall J et al. Can social prescribing provide the missing link?. Prim Health Care Res Dev. 2008;9(4):310-318.
16. South J, Kinsella K, Meah A. Lay perspectives on lay health worker roles, boundaries and participation within three UK community-based health promotion projects. Health Educ Res. 2012;27(4):656-670.
17. Schutz A. Collected Papers, Volume 1. The Hague: Martinus Nijhoff; 1962.
18. Thomas J, Harden A. Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Med Res Methodol. 2008;8:45-54.
19. Cherrington A, Ayala GX, Amick H et al. Implementing the community health worker model within diabetes management: challenges and lessons learned from programs across the United States. Diabetes Educ. 2008;34(5):824-833.
20. Heisler M, Spencer M, Forman J et al. Participants’ assessments of the effects of a community health worker intervention on their diabetes self-management and interactions with health care providers. Am J Prev Med. 2009;37(suppl 1):S270-S279.
21. Torres E, Ingram M. Con el favour de Diós: the role of promotoras/community lay health workers as spiritual helpers in supporting diabetes self-management among Mexican Americans. Counselling and Spirituality. 2009;28(1):109-127.
22. McCloskey J, Tollestrup K, Sanders M. A community integration approach to social determinants of health in New Mexico. Fam Community Health. 2011;34:S79-S91.
23. Austin SA, Claiborne N. Faith wellness collaboration: a community-based approach to address type II diabetes disparities in an African-American community. Soc Work Health Care. 2011;50(5):360-375.
24. Collinsworth AW, Vulimiri M, Schmidt KL et al. Effectiveness of a community health worker–led diabetes self-management education program and implications for CHW involvement in care coordinations trategies. Diabetes Educ. 2013:39(6):792-799.
25. Kennedy A, Rogers A, Gately C. From patients to providers: prospects for self-care skills trainers in the National Health Service. Health Soc Care Comm. 2005;13(5):431-440.
26. Kennedy A, Rogers A, Sanders C et al. Creating “good” self-managers?: Facilitating and governing an online self care skills training course. BMC Health Serv Res. 2009;9:93.
27. Sukwatjanee A, Pongthavornkamol K, Low G et al. Benefits of a self-help group for rural Thai elders with type-2 diabetes. Pacific Rim Int J Nurs Res. 2011;15(3):220-232.
28. Ferrand C, Perrin C, Nasarre S. Motives for regular physical activity in women and men: aqualitative study in French adults with type2 diabetes, belonging to a patients’ association. Health Soc Care Comm. 2008;16(5):511-520.
29. Scarpello TJ, Murray NJ, Maisey S et al. A qualitative assessment of using lay trainers with type 2 diabetes in an intervention programme for people at risk of type 2 diabetes. Health Educ J. 2013;72(1):86-94.
30. Blickem C, Kennedy A, Vassilev I et al. Linking people with long-term health conditions to healthy community activities: Development of patient-led assessment for network support (PLANS). Health Expect. 2013;16(3):E48-E59.
31. Catalano T, Kendall E, Vandenberg A et al. The experiences of leaders of self-management courses in Queensland: exploring Health Professional and Peer Leaders’ perceptions of working together. Health Soc Care Comm. 2009;17(2):105-115.
32. Young CE, Mutch AJ, Boyle FM et al. Investigating referral pathways from primary care to consumer health organisations. Aus J Prim Health. 2010;16:260-267.
33. Boyle FM, Posner TN, Del Mar CB. Self-help organisations: a qualitative study of successful collaboration with general practice. Aus J Prim Health. 2003;9(3):75-79.
34. Hipwell A, Turner A, Barlow J. “We're not fully aware of their cultural needs”: tutors’ experiences of delivering the Expert Patients Programme to South Asian attendees. Diversity Health Soc Care. 2008;5(84):281-290.
35. Holmes WR, Joseph J. Social participation and healthy ageing: a neglected, significant protective factor for chronic non communicable conditions. Global Health. 2011;7:43.
36. Johnston S, Irving H, Mill K et al. The patient's voice: an exploratory study of the impact of a group self-management support program. BMC Fam Prac. 2012;13:65.
37. Hunt CW, Grant JS, Apple SJ An integrative review of community health advisors in type 2 diabetes. J Community Health. 2011;36(5):883-893.
38. Kelly J. Reforming public services in the UK: bringing the third sector. Public Adm. 2007;85(4):1003-1022.
39. Marmot M, Friel S, Bell R et al. Closing the gap in a generation: health equity through action on the social determinants of health. Lancet. 2008;372(9650):1661-1669.
40. Blas E, Gilson L, Kelly M et al. Addressing social determinants of health inequities: what can the state and civil society do? Lancet. 2008;372(9650):1684-1689.
41. Lewin S, Dick J, Pond P et al. Lay health workers in primary and community health care. Cochrane Db Syst Rev. 2005;25(1): CD004015.
42. South J, Meah A, Bagnall AM et al. Dimensions of lay health worker programmes: results of a scoping study and production of a descriptive framework. Global Health Promot. 2013;20(1):5-15.
43. Swider SM. Outcome effectiveness of community health workers: an integrative literature review. Public Health Nurs. 2002;19(1):11-20.
44. Cherrington A, Martin MY, Hayes M et al. Intervention mapping as a guide for the development of a diabetes peer support intervention in rural Alabama. Prev Chronic Dis. 2012;9:E:36.
45. Rhodes SD, Foley KL, Zometa CS et al. Lay health advisor interventions among hispanics/latinos a qualitative systematic review. Am J Prev Med. 2007;33(5):418-427.
46. Babamoto KS, Sey KA, Camilleri AJ et al. Improving diabetes care and health measures among hispanics using community health workers: results from a randomized controlled trial. Health EducBehav. 2009;36(1):113-126.
47. Thompson JR, Horton C, Flores C. Advancing diabetes selfmanagement in the Mexican American population: a community health worker model in a primary care setting. Diabetes Educ. 2007;33:159S-165S.
48. Pluye P, Potvin L, Denis JL et al. Program sustainability begins with the first events. Eval Program Plann. 2005;28(2): 123-137.