Consensus of the Spanish society of pediatric rheumatology for transition management from pediatric to adult care in rheumatic patients with childhood onset

Rheumatology International

Volumn 35, Issue 10, 2015, Pages 1615-1624

  Calvo, Inmaculada ^a   Antón, Jordi ^b   Bustabad, Sagrario ^c   Camacho, Marisol ^d   de Inocencio, Jaime ^e   Gamir, Mª Luz ^f   Graña, Jenaro ^g   La Cruz, Lucía ^h   Robledillo, Juan Carlos López ⁱ   Medrano, Marta ^j   Merino, Rosa ^k   Modesto, Consuelo ^l   Nuñez, Esmeralda ^m   Rua, Mª Jesús ⁿ   Torrente Segarra, Vicenç ^o   Vargas, Carmen ^p   Carmona, Loreto ^q   Loza, Estíbaliz ^q  

^a HOSPITAL UNIVERSITARIO LA FE   (Spain)

^b Servicio de Pediatría Hospital Militar   (Spain)

^c HU de Canarias   (Spain)

^d HOSPITAL UNIVERSITARIO VIRGEN DEL ROCÍO   (Spain)

^e HOSPITAL UNIVERSITARIO 12 DE OCTUBRE   (Spain)

^f Servicio de Cirugía General Hospital   (Spain)

^g CHU A Coruna   (Spain)

^h Son Dureta   (Spain)

ⁱ HOSPITAL INFANTIL UNIVERSITARIO NIÑO JESÚS   (Spain)

^j Servicio de Reumatología   (Spain)

^k HOSPITAL UNIVERSITARIO LA PAZ   (Spain)

^l Section of Neuroradiology   (Spain)

^m UNIVERSITY OF MÁLAGA   (Spain)

ⁿ HOSPITAL DE CRUCES   (Spain)

^o Servicio de Reumatología   (Spain)

^p HOSPITAL UNIVERSITARIO VIRGEN MACARENA   (Spain)

^q Instituto de Salud Musculoesquelética InMusc Calle Hilarión Eslava   (Spain)

more..

Author keywords

Adolescent; Pediatric rheumatology; Transitional care

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD CARE; CONSENSUS; CONTINUOUS PROCESS; DELPHI STUDY; EVIDENCE BASED MEDICINE; HEALTH CARE POLICY; HEALTH CARE SURVEY; HEALTH CARE SYSTEM; HEALTH PRACTITIONER; HUMAN; INFORMATION PROCESSING; MEDICAL DECISION MAKING; MEDICAL EDUCATION; MEDICAL SOCIETY; ONSET AGE; PATIENT CARE; PRIORITY JOURNAL; RHEUMATIC DISEASE; RHEUMATOLOGY; SYSTEMATIC REVIEW; TRANSFERENCE; TRANSITION TO ADULT CARE; YOUNG ADULT; PEDIATRICS; PRACTICE GUIDELINE; RHEUMATIC DISEASES; SPAIN;

ADOLESCENT; ADULT; CONSENSUS; HUMANS; PEDIATRICS; RHEUMATIC DISEASES; RHEUMATOLOGY; SPAIN; TRANSITION TO ADULT CARE; YOUNG ADULT;

EID: 84941994558     PISSN: 01728172     EISSN: 1437160X     Source Type: Journal    
DOI: 10.1007/s00296-015-3273-6     Document Type: Article

References (33)

1. Gurion R, Lehman TJ, Moorthy LN (2012) Systemic arthritis in children: a review of clinical presentation and treatment. Int J Inflam 2012:271569 Epub 2012/01/12
2. Kessler EA, Becker ML (2014) Therapeutic advancements in juvenile idiopathic arthritis. Best Pract Res Clin Rheumatol 28(2):293–313 Epub 2014/06/30
3. McDonagh JE, Shaw KL, Southwood TR (2006) Growing up and moving on in rheumatology: development and preliminary evaluation of a transitional care programme for a multicentre cohort of adolescents with juvenile idiopathic arthritis. J Child Health Care 10(1):22–42 Epub 2006/02/09
4. Rettig P, Athreya BH (1991) Adolescents with chronic disease. Transition to adult health care. Arthritis care and research. Off J Arthritis Health Prof Assoc 4(4):174–180 Epub 1991/12/01
5. Zack J, Jacobs CP, Keenan PM, Harney K, Woods ER, Colin AA et al (2003) Perspectives of patients with cystic fibrosis on preventive counseling and transition to adult care. Pediatr Pulmonol 36(5):376–383 Epub 2003/10/02
6. Steinkamp G, Ullrich G, Muller C, Fabel H, von der Hardt H (2001) Transition of adult patients with cystic fibrosis from paediatric to adult care–the patients’ perspective before and after start-up of an adult clinic. Eur J Med Res 6(2):85–92 Epub 2001/04/21
7. McDonagh JE, Southwood TR, Shaw KL (2007) The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis. Rheumatology (Oxford, England) 46(1):161–168 Epub 2006/06/23
8. Tucker LB, Cabral DA (2005) Transition of the adolescent patient with rheumatic disease: issues to consider. Pediatr Clin North Am 52(2):641–652 Epub 2005/04/12
9. Niewerth M, Minden K, Klotsche J, Horneff G (2014) [Therapy of juvenile idiopathic arthritis in early adulthood with biologics: transition from pediatric to adult care]. Zeitschrift fur Rheumatologie 73(6):532–40. Epub 2014/08/07. Biologikatherapie der juvenilen idiopathische Arthritis im jungen Erwachsenenalter: Ubergang von der padiatrischen in die Erwachsenenversorgung
10. Hartnett T (2007) Who will treat arthritis in 2025? Rheumatologist 1:12–13
11. Castrejon I (2012) [Transitional care programs for patients with rheumatic diseases: review of the literature]. Reumatologia clinica 8(1):20–6. Epub 2011/11/18. Unidades de transicion para pacientes con patologia reumatica: revision de la literatura
12. McDonagh JE, Southwood TR, Shaw KL (2004) Unmet education and training needs of rheumatology health professionals in adolescent health and transitional care. Rheumatology (Oxford, England) 43(6):737–743 Epub 2004/03/05
13. Shaw KL, Southwood TR, McDonagh JE (2004) Developing a programme of transitional care for adolescents with juvenile idiopathic arthritis: results of a postal survey. Rheumatology (Oxford, England) 43(2):211–219 Epub 2003/10/03
14. Chira P, Ronis T, Ardoin S, White P (2014) Transitioning youth with rheumatic conditions: perspectives of pediatric rheumatology providers in the United States and Canada. J Rheumatol 41(4):768–779 Epub 2014/03/04
15. Richards M, Vostanis P (2004) Interprofessional perspectives on transitional mental health services for young people aged 16–19 years. J Interprof Care 18(2):115–128 Epub 2004/06/19
16. Packham JC, Hall MA (2002) Long-term follow-up of 246 adults with juvenile idiopathic arthritis: social function, relationships and sexual activity. Rheumatology (Oxford, England) 41(12):1440–1443 Epub 2002/12/07
17. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics (2002) 110(6 Pt 2):1304–1306. Epub 2002/11/29
18. Leak AM (2000) Improving adolescent rheumatology services in the UK. Rheumatology (Oxford, England) 39(6):575–579 Epub 2000/07/11
19. McDonagh JE, Foster HE, Hall MA, Chamberlain MA (2000) Audit of rheumatology services for adolescents and young adults in the UK. British paediatric rheumatology group. Rheumatology (Oxford, England) 39(6):596–602 Epub 2000/07/11
20. Robertson LP, McDonagh JE, Southwood TR, Shaw KL (2006) Growing up and moving on. A multicentre UK audit of the transfer of adolescents with juvenile idiopathic arthritis from paediatric to adult centred care. Ann Rheum Dis 65(1):74–80 Epub 2005/07/05
21. Scal P, Ireland M (2005) Addressing transition to adult health care for adolescents with special health care needs. Pediatrics 115(6):1607–1612 Epub 2005/06/03
22. Lotstein DS, McPherson M, Strickland B, Newacheck PW (2005) Transition planning for youth with special health care needs: results from the National survey of children with special health care needs. Pediatrics 115(6):1562–1568 Epub 2005/06/03
23. McPherson M, Weissman G, Strickland BB, van Dyck PC, Blumberg SJ, Newacheck PW (2004) Implementing community-based systems of services for children and youths with special health care needs: how well are we doing? Pediatrics 113(5 Suppl):1538–1544 Epub 2004/05/04
24. Centre for evidence-based medicine. Oxford Centre for evidence-based medicine—levels of evidence (March 2009). [cited 2013]; Available from: http://www.cebm.net/index.aspx?o=1025
25. Churchill R, Allen J, Denman S, Williams D, Fielding K, von Fragstein M (2000) Do the attitudes and beliefs of young teenagers towards general practice influence actual consultation behaviour? Br J Gen Pract 50(461):953–957 Epub 2001/02/28
26. Lotstein DS, Ghandour R, Cash A, McGuire E, Strickland B, Newacheck P (2009) Planning for health care transitions: results from the 2005–2006 national survey of children with special health care needs. Pediatrics 123(1):e145–e152 Epub 2009/01/02
27. McDonagh JE (2005) Growing up and moving on: transition from pediatric to adult care. Pediatr Transpl 9(3):364–372 Epub 2005/05/25
28. PRINTO. Available from: http://www.printo.it/pediatric-rheumatology/pediatricrheumatology/index.asp?Lingua=Spain&Paese=Spain
29. Sociedad Española de Reumatología Pediátrica. Available from: http://www.reumaped.es/
30. McDonagh JE (2008) Young people first, juvenile idiopathic arthritis second: transitional care in rheumatology. Arthritis Rheum 59(8):1162–1170 Epub 2008/08/01
31. While A, Forbes A, Ullman R, Lewis S, Mathes L, Griffiths P (2004) Good practices that address continuity during transition from child to adult care: synthesis of the evidence. Child Care Health Dev 30(5):439–452 Epub 2004/08/24
32. Robertson L (2006) When should young people with chronic rheumatic disease move from paediatric to adult-centred care? Best Pract Res Clin Rheumatol 20(2):387–397 Epub 2006/03/21
33. British society of paediatric and adolescent rheumatology. Available from: http://www.bspar.org.uk/adolescent-rheumatology