Comorbidity, healthcare utilisation and process of care measures in patients with congenital heart disease in the UK: Cross-sectional, population-based study with case-control analysis

Heart

Volumn 94, Issue 9, 2008, Pages 1194-1199

  Billett, J ^a   Cowie, M R ^b   Gatzoulis, M A ^c   Vonder Muhll, I F ^d   Majeed, A ^a  

^a IMPERIAL COLLEGE LONDON   (United Kingdom)

^b NATIONAL HEART AND LUNG INSTITUTE   (United Kingdom)

^c ROYAL BROMPTON HOSPITAL   (United Kingdom)

^d UNIVERSITY OF ALBERTA   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CARDIOVASCULAR DISEASE; COMORBIDITY; CONGENITAL HEART DISEASE; CONTROLLED STUDY; DIABETES MELLITUS; EPILEPSY; FEMALE; HEALTH CARE UTILIZATION; HUMAN; HYPERTENSION; KIDNEY DISEASE; LIFESTYLE; MAJOR CLINICAL STUDY; MALE; OUTCOME ASSESSMENT; POPULATION RESEARCH; PREVALENCE; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; RISK FACTOR; SURVIVAL; UNITED KINGDOM;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; CHILD; CHILD, PRESCHOOL; DIABETES MELLITUS; EPILEPSY; FEMALE; GREAT BRITAIN; HEART DEFECTS, CONGENITAL; HUMANS; HYPERTENSION; INFANT; INFANT, NEWBORN; KIDNEY DISEASES; MALE; MEDICAL RECORDS; MIDDLE AGED; PATIENT ACCEPTANCE OF HEALTH CARE; PHYSICIAN'S PRACTICE PATTERNS; PRIMARY HEALTH CARE;

EID: 50349084061     PISSN: 13556037     EISSN: None     Source Type: Journal    
DOI: 10.1136/hrt.2007.122671     Document Type: Article

References (35)

1. Office for National Statistics. Congenital anomaly statistics: a statistical review of notifications of congenital anomalies received as part of the England and Wales National Congenital Anomaly System 2002. London: The Stationery Office, 2004.
2. Hoffman JIE. Congenital heart disease. Pediatr Clin North Am 1990 Feb;37:25-43.
3. Hoffman JIE, Kaplan S. The incidence of congenital heart disease. J Am Coll Cardiol 2002;39:1890-900.
4. Wren C, Richmond S, Donaldson L. Temporal variability in birth prevalence of cardiovascular malformations. Heart 2000;83:414-9.
5. Dastgiri S, Stone D, Le-Ha C, et al. Prevalence and secular trends of congenital anomalies in Glasgow, UK. Arch Dis Child 2002;86:257-63.
6. Dickinson DF, Arnold R, Wilkinson JL. Congenital heart disease among 160480 liveborn children in Liverpool 1960-1969. Implication for treatment. Br Heart J 1981;46:55-62.
7. Office for National Statistics. Mortality statistics 2003: cause. London: HMSO, 2004. [DH2, no 30.]
8. Deanfield J, Thaulow E, Warnes C, et al. Task Force on the Management of Grown Up Congenital Heart Disease, European Society of Cardiology; ESC Committee for Practice Guidelines. Eur Heart J 2003;24:1035- 84.
9. Bristol Royal Infirmary Inquiry. The inquiry into the management of care of children receiving complex heart surgery at the Bristol Royal Infirmary. Learning from Bristol: the report of the public inquiry into children's heart surgery at the Bristol Royal Infirmary 1984-1995. [CM 5207] Available at: http://www.bristol-inquiry.org.uk (accessed 25 June 2008).
10. Department of Health. Report of the Paediatric and Congenital Cardiac Services Review Group. London: Department of Health, 2003.
11. British Cardiac Society Working Party. Grown up congenital heart (GUCH) disease: current needs and provision of service for adolescents and adults with congenital heart disease in the UK. Heart 2002;88(Suppl 1):i1-14.
12. Gatzoulis M. Adult congenital heart disease; time for a national framework. Br J Cardiol 2002;9:65-7.
13. Department of Health. Adult congential heart disease: a commissioning guide for services for young people and Grown Ups with Congential Heart Disease (GUCH). London: Department of Health, 2006.
14. Knowles R, Griebsch I, Dezateux C, et al. Newborn screening for congenital heart defects: a systematic review and cost effectiveness analysis. Heath Technol Assess 2005;9:1-152, iii-iv.
15. Aylin P, Bottle A, Jarman B, et al. Paediatric cardiac surgical mortality in England after Bristol: descriptive analysis of hospital episode statistics 1991-2002. BMJ 2004;329:825-9.
16. Central Cardiac Audit Database. Procedures for congenital heart disease: annual report 2001-2002. Available at http://www.ccad.org.uk/ ccadweb.nsf (accessed 26 June 2008)..
17. Shirodaria C, Gwilt D, Gatzoulis M. Joint outpatient clinics for the adult with congenital heart disease at the district general hospital: an alternative model of care. Int J Cardiol 2005;103:47-50.
18. Freeman L, Wood S, Hardiman T, et al. Grown-up congenital heart disease - experience in a district general hospital. Br J Cardiol 2002;9:92-8.
19. Turnbull S, Ward A, Treasure J, et al. The demand for eating disorder care. An epidemiological study using the General Practice Research Database. Br J Psychiatry 1996;169:705-12.
20. Gaitatziz A, Carroll K, Majeed A, et al. The epidemiology of the comorbidity of epilepsy in the general population. Epilepsia 2004;45:1613-22.
21. Hippsley-Cox J, Pringle M, Crown N, et al. Sex inequalities in ischaemic heart disease in general practice: cross sectional survey BMJ 2001;322:832.
22. Hippisley-Cox J, Pringle M. Prevalence, care and outcomes for patients with diet-controlled diabetes in general practice: cross sectional survey. Lancet 2004;364:423-8.
23. Hippisley-Cox J, Coupland C. Effect of combinations of drugs on all cause mortality in patients with ischaemic heart disease: nested case control analysis. BMJ 330:1059-63.
24. Richardson D. An incidence density sampling program for nested case control analyses. Occup Environ Med 2004;61:e59.
25. Gatzoulis MA, Webb GD. Adults with congenital heart disease: a growing population. In: Gatzoulis MA, Webb GD, Daubeney P, eds. Diagnosis and management of adults with congenital heart disease. Philadelphia: Churchill Livingstone, 2003.
26. Hippisley Cox J, O'Hanlon S, Coupland C. Association of deprivation, ethnicity, and sex with quality indicators for diabetes: population based survey of 53,000 patients in primary care. BMJ 2004;329:1267-9.
27. Moller JH, Moodie DJ, Blees M, et al. Symptomatic heart disease in infants: comparison of three studies performed during 1969-87. Pediatr Cardiol 1995;16:216-22.
28. Perloff JK. Congenital heart disease in adults - a new cardiovascular subspecialty. Circulation 1991;84:1881-90.
29. The NHS Confederation. The new GMS contract. London: The NHS Confederation, 2003.
30. Department of Health. National Service Framework for diabetes - the delivery strategy. London: Department of Health, 2003.
31. Department of Health. National Service Framework for coronary heart disease - modern standards and service models. London: Department of Health, 2000.
32. Millett C, Gray J, Saxena S, et al. Ethnic disparities in diabetes management and pay-for-performance in the UK: The Wandsworth Prospective Diabetes Study. PLoS Med 2007;4:e191.
33. Gatzoulis M. Adult congenital heart disease: education, education, education. Nat Clin Pract Cardiovasc Med 2006;3:2-3.
34. Wren C, O'Sullivan J. Survival with congenital heart disease and the need for follow up in adult life. Heart 2001;85:438-43.
35. Department of Health. The National Service Framework for coronary heart disease: winning the war on heart disease, progress report 2004. London: Department of Health, 2004.