The impact of social media on dissemination and implementation of clinical practice guidelines: A longitudinal observational study

Journal of Medical Internet Research

Volumn 17, Issue 8, 2015, Pages

  Narayanaswami, Pushpa ^a   Gronseth, Gary ^b   Dubinsky, Richard ^b   Penfold Murray, Rebecca ^c   Cox, Julie ^c   Bever, Christopher ^d   Martins, Yolanda ^a   Rheaume, Carol ^c   Shouse, Denise ^c   Getchius, Thomas S D ^c  

^a HARVARD MEDICAL SCHOOL   (United States)

^b UNIVERSITY OF KANSAS SCHOOL OF MEDICINE   (United States)

^c AMERICAN ACADEMY OF NEUROLOGY   (United States)

^d UNIVERSITY OF MARYLAND SCHOOL OF MEDICINE   (United States)

Author keywords

Alternative medicine; Alternative therapies; Clinical practice guidelines; Complementary; Complementary medicine; Dissemination and implementation; Information dissemination; Medicine; Multiple sclerosis; Social media; Therapy

Indexed keywords

ALTERNATIVE MEDICINE; FEMALE; HUMAN; INFORMATION DISSEMINATION; LONGITUDINAL STUDY; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; PRACTICE GUIDELINE; PROCEDURES; SOCIAL MEDIA; UTILIZATION;

COMPLEMENTARY THERAPIES; FEMALE; HUMANS; INFORMATION DISSEMINATION; LONGITUDINAL STUDIES; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; PRACTICE GUIDELINES AS TOPIC; SOCIAL MEDIA;

EID: 84940645212     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.4414     Document Type: Article

References (45)

1. American Academy of Neurology. Clinical Practice Guideline Process Manual. St Paul, MN: The American Academy of Neurology; 2011. URL: https://www.aan.com/Guidelines/Home/Development [accessed 2015-03-13] [WebCite Cache ID 6X0aat9ev]
2. Institute of Medicine of the National Academies. Clinical Practice Guidelines We Can Trust: Standards for Developing Trustworthy Clinical Practice Guidelines. 2011. URL: http://iom.nationalacademies.org/Reports/2011/Clinical-Practice-Guidelines-We-Can-Trust.aspx [accessed 2015-08-07] [WebCite Cache ID 6abwjdhHw]
3. Kryworuchko J, Stacey D, Bai N, Graham ID. Twelve years of clinical practice guideline development, dissemination and evaluation in Canada (1994 to 2005). Implement Sci 2009;4:49 [FREE Full text] [doi: 10.1186/1748-5908-4-49] [Medline: 19656384]
4. Pew Research Center Internet Project. More information yields more learning and sharing. 2014. URL: http://www.pewinternet.org/2014/12/08/more-information-yields-more-learning-and-sharing/ [WebCite Cache ID 6WyaLbaag]
5. Nagendran M, Dimick JB. Disseminating research findings: preparing for Generation Y. JAMA Surg 2014 Jul;149(7):629-630. [doi: 10.1001/jamasurg.2013.5019] [Medline: 24849294]
6. Alas A, Sajadi KP, Goldman HB, Anger JT. The rapidly increasing usefulness of social media in urogynecology. Female Pelvic Med Reconstr Surg 2013;19(4):210-213. [doi: 10.1097/SPV.0b013e3182909872] [Medline: 23797519]
7. Bosley JC, Zhao NW, Hill S, Shofer FS, Asch DA, Becker LB, et al. Decoding twitter: Surveillance and trends for cardiac arrest and resuscitation communication. Resuscitation 2013 Feb;84(2):206-212 [FREE Full text] [doi: 10.1016/j.resuscitation.2012.10.017] [Medline: 23108239]
8. Camm CF, Sunderland N, Camm AJ. A quality assessment of cardiac auscultation material on YouTube. Clin Cardiol 2013 Feb;36(2):77-81. [doi: 10.1002/clc.22080] [Medline: 23172251]
9. Cavallo DN, Chou WS, McQueen A, Ramirez A, Riley WT. Cancer prevention and control interventions using social media: user-generated approaches. Cancer Epidemiol Biomarkers Prev 2014 Sep;23(9):1953-1956. [doi: 10.1158/1055-9965.EPI-14-0593] [Medline: 25103820]
10. Clerici CA, Veneroni L, Bisogno G, Trapuzzano A, Ferrari A. Videos on rhabdomyosarcoma on YouTube: an example of the availability of information on pediatric tumors on the web. J Pediatr Hematol Oncol 2012 Nov;34(8):e329-e331. [doi: 10.1097/MPH.0b013e31825886f8] [Medline: 22858570]
11. Ferguson C, Inglis SC, Newton PJ, Cripps PJS, MacDonald PS, Davidson PM. Social media: a tool to spread information: a case study analysis of twitter conversation at the Cardiac Society of Australia & New Zealand 61st annual scientific meeting 2013. Collegian 2014;21(2):89-93. [Medline: 25109206]
12. Finch CF, McCrory P, Ewing MT, Sullivan SJ. Concussion guidelines need to move from only expert content to also include implementation and dissemination strategies. Br J Sports Med 2013 Jan;47(1):12-14. [doi: 10.1136/bjsports-2012-091796] [Medline: 23060652]
13. George DD, Wainwright BD. Dermatology resources on the internet. Semin Cutan Med Surg 2012 Sep;31(3):183-190. [doi: 10.1016/j.sder.2012.06.002] [Medline: 22929356]
14. Harris JK, Moreland-Russell S, Tabak RG, Ruhr LR, Maier RC. Communication about childhood obesity on Twitter. Am J Public Health 2014 Jul;104(7):e62-e69 [FREE Full text] [doi: 10.2105/AJPH.2013.301860] [Medline: 24832138]
15. Househ M. The use of social media in healthcare: organizational, clinical, and patient perspectives. Stud Health Technol Inform 2013;183:244-248. [Medline: 23388291]
16. Jenkins WD, Wold B. Use of the Internet for the surveillance and prevention of sexually transmitted diseases. Microbes Infect 2012 May;14(5):427-437. [doi: 10.1016/j.micinf.2011.12.006] [Medline: 22207184]
17. Jones K, Baldwin KA, Lewis PR. The potential influence of a social media intervention on risky sexual behavior and Chlamydia incidence. J Community Health Nurs 2012;29(2):106-120. [doi: 10.1080/07370016.2012.670579] [Medline: 22536914]
18. Leveridge MJ. The emerging role of social media in urology. Rev Urol 2014;16(3):110-117. [Medline: 25337040]
19. Mukewar S, Mani P, Wu X, Lopez R, Shen B. YouTube and inflammatory bowel disease. J Crohns Colitis 2013 Jun;7(5):392-402. [doi: 10.1016/j.crohns.2012.07.011] [Medline: 22906403]
20. Savas JA, Huang KE, Tuchayi SM, Feldman SR. Understanding the influence of social media in medicine: lesson learned from Facebook. Dermatol Online J 2014 Sep;20(9):-. [Medline: 25244178]
21. Singh AG, Singh S, Singh PP. YouTube for information on rheumatoid arthritis - a wakeup call? J Rheumatol 2012 May;39(5):899-903. [doi: 10.3899/jrheum.111114] [Medline: 22467934]
22. Syed-Abdul S, Fernandez-Luque L, Jian W, Li Y, Crain S, Hsu M, et al. Misleading health-related information promoted through video-based social media: anorexia on YouTube. J Med Internet Res 2013;15(2):e30 [FREE Full text] [doi: 10.2196/jmir.2237] [Medline: 23406655]
23. Kerber KA, Burke JF, Skolarus LE, Callaghan BC, Fife TD, Baloh RW, et al. A prescription for the Epley maneuver: www.youtube.com? Neurology 2012 Jul 24;79(4):376-380 [FREE Full text] [doi: 10.1212/WNL.0b013e3182604533] [Medline: 22826542]
24. Grande D, Gollust SE, Pany M, Seymour J, Goss A, Kilaru A, et al. Translating research for health policy: researchers' perceptions and use of social media. Health Aff (Millwood) 2014 Jul;33(7):1278-1285. [doi: 10.1377/hlthaff.2014.0300] [Medline: 24907363]
25. Yadav V, Bever C, Bowen J, Bowling A, Weinstock-Guttman B, Cameron M, et al. Summary of evidence-based guideline: complementary and alternative medicine in multiple sclerosis: report of the guideline development subcommittee of the American Academy of Neurology. Neurology 2014 Mar 25;82(12):1083-1092 [FREE Full text] [doi: 10.1212/WNL.0000000000000250] [Medline: 24663230]
26. Schwartz CE, Laitin E, Brotman S, LaRocca N. Utilization of unconventional treatments by persons with MS: is it alternative or complementary? Neurology 1999 Feb;52(3):626-629. [Medline: 10025800]
27. Marrie RA, Hadjimichael O, Vollmer T. Predictors of alternative medicine use by multiple sclerosis patients. Mult Scler 2003 Oct;9(5):461-466. [Medline: 14582770]
28. Nayak S, Matheis RJ, Schoenberger NE, Shiflett SC. Use of unconventional therapies by individuals with multiple sclerosis. Clin Rehabil 2003 Mar;17(2):181-191. [Medline: 12625659]
29. Stuifbergen AK, Harrison TC. Complementary and alternative therapy use in persons with multiple sclerosis. Rehabil Nurs 2003;28(5):141-7, 158. [Medline: 14521002]
30. Apel A, Greim B, Zettl UK. How frequently do patients with multiple sclerosis use complementary and alternative medicine? Complement Ther Med 2005 Dec;13(4):258-263. [doi: 10.1016/j.ctim.2005.05.006] [Medline: 16338196]
31. Apel A, Greim B, König N, Zettl UK. Frequency of current utilisation of complementary and alternative medicine by patients with multiple sclerosis. J Neurol 2006 Oct;253(10):1331-1336. [doi: 10.1007/s00415-006-0217-9] [Medline: 16786211]
32. Schwarz S, Knorr C, Geiger H, Flachenecker P. Complementary and alternative medicine for multiple sclerosis. Mult Scler 2008 Sep;14(8):1113-1119. [doi: 10.1177/1352458508092808] [Medline: 18632773]
33. Pucci E, Cartechini E, Taus C, Giuliani G. Why physicians need to look more closely at the use of complementary and alternative medicine by multiple sclerosis patients. Eur J Neurol 2004 Apr;11(4):263-267. [doi: 10.1046/j.1468-1331.2003.00758.x] [Medline: 15061828]
34. Marrie RA, Salter AR, Tyry T, Fox RJ, Cutter GR. Preferred sources of health information in persons with multiple sclerosis: degree of trust and information sought. J Med Internet Res 2013;15(4):e67 [FREE Full text] [doi: 10.2196/jmir.2466] [Medline: 23635393]
35. Schillinger D. An introduction to effectiveness, dissemination and implementation research. University of California: From the series: UCSF clinical and translational science institute (CTSI) resource manuals and guides to community- engaged research. Fleischer P (ed) Published by Clinical Translational Science Institute Community Engagement Program, URL: https://accelerate.ucsf.edu/files/CE/edi-introguide.pdf [accessed 2015-07-12] [WebCite Cache ID 6ZyLeLjRn]
36. Albrecht L, Archibald M, Arseneau D, Scott SD. Development of a checklist to assess the quality of reporting of knowledge translation interventions using the Workgroup for Intervention Development and Evaluation Research (WIDER) recommendations. Implement Sci 2013;8:52 [FREE Full text] [doi: 10.1186/1748-5908-8-52] [Medline: 23680355]
37. American Association of Public Opinion Research. Best practices for research URL: http://www.aapor.org/AAPORKentico/ Standards-Ethics/Best-Practices.aspx [accessed 2015-03-12] [WebCite Cache ID 6WyaZZ8IP]
38. Kuhl J, Beckmann J. A theory of planned behavior. In: Action control, from cognition to behavior. Berlin: Springer-Verlag; 1985:11-39.
39. Cabana MD, Rand CS, Powe NR, Wu AW, Wilson MH, Abboud PA, et al. Why don't physicians follow clinical practice guidelines? A framework for improvement. JAMA 1999 Oct 20;282(15):1458-1465. [Medline: 10535437]
40. National Information Center on Heath Services Research and Health Care Technology. URL: http://www.nlm.nih.gov/hsrinfo/implementation-science.html [accessed 2015-03-12] [WebCite Cache ID 6WyadWzYV]
41. Petrella RJ, Speechley M, Kleinstiver PW, Ruddy T. Impact of a social marketing media campaign on public awareness of hypertension. Am J Hypertens 2005 Feb;18(2 Pt 1):270-275. [doi: 10.1016/j.amjhyper.2004.09.012] [Medline: 15752956]
42. Rogers E. Diffusion of innovations. New York: Free Press; 2003.
43. Lillie SE. Diffusion of innovation in the age of YouTube. Am J Prev Med 2008 Mar;34(3):267. [doi: 10.1016/j.amepre.2007.11.009] [Medline: 18312819]
44. O'Reilly T. What is Web 2.0: design patterns and business models for the next generation of software. Sebastopol, CA: O'Reilly Media, Inc; 2005. URL: http://www.oreilly.com/pub/a/web2/archive/what-is-web-20.html [accessed 2015-03-12] [WebCite Cache ID 6WyahmtCL]
45. Metzger MJ, Flanagin AJ. Using Web 2.0 technologies to enhance evidence-based medical information. J Health Commun 2011;16 Suppl 1:45-58. [doi: 10.1080/10810730.2011.589881] [Medline: 21843095]