The U.S. National Biobank and (No) Consensus on Informed Consent

American Journal of Bioethics

Volumn 15, Issue 9, 2015, Pages 63-65

  Master, Zubin ^a  

^a Alden March Bioethics Institute   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

BIOBANK; CONSENSUS; HUMAN; INFORMED CONSENT; MEDICAL RESEARCH;

BIOLOGICAL SPECIMEN BANKS; BIOMEDICAL RESEARCH; CONSENSUS; HUMANS; INFORMED CONSENT;

EID: 84940109895     PISSN: 15265161     EISSN: 15360075     Source Type: Journal    
DOI: 10.1080/15265161.2015.1062170     Document Type: Note

References (10)

1. T.Caulfield, 2007. Biobanks and blanket consent: The proper place of the public good and public perception rationales. King's Law Journal 18(2): 209–26.
2. C.Grady,, L.Eckstein, B.Berkman, et al. 2015. Broad consent for research with biological samples: Workshop conclusions. American Journal of Bioethics 15(9): 34–42.
3. J.Kaiser, 2015. NIH plots million-person megastudy. Science 347: 817.
4. Z.Master,, L.Campo-Engelstein, and T.Caulfield. 2014. Scientists' perspectives on consent in the context of biobanking research. European Journal of Human Genetics 23(5): 569–74.
5. Z.Master,, E.Nelson, B.Murdoch, and T.Caulfield. 2012. Biobanks, consent, and claims of consensus. Nature Methods 9(9): 885–88.
6. Z.Master,, and D.B.Resnik. 2013. Incorporating exclusion clauses into informed consent for biobanking. Cambridge Quarterly of Healthcare Ethics 22(2): 203–12.
7. A.D.Miller,, and R.Perry. 2012. The reasonable person. New York University Law Review 87(2): 323–92.
8. J.Murphy,, J.Scott, D.Kaufman, G.Geller, L.LeRoy, and K.Hudson. 2009. Public perspectives on informed consent for biobanking. American Journal of Public Health 99(12): 2128–34.
9. C.Rachul,, A.McGuire, and T.Caulfield. 2012 Public perceptions and biobanking: What does the research really say? Studies in Ethics, Law, and Technology 6(1): article 3.
10. D.B.Resnik, 2011. Scientific research and the public trust. Science and Engineering Ethics 17(3): 399–409.