Surveillance for hemophilia and inherited hematologic disorders

Genetics and Public Health in the 21st Century: Using Genetic Information to Improve Health and Prevent Disease

Volumn , Issue , 2009, Pages

  Soucie, J Michael ^a   Rickles, Frederick R ^b   Evatt, Bruce L ^a  

^a NATL CENTER FOR INFECTIOUS DISEASES   (United States)

^b GEORGE WASHINGTON UNIVERSITY MEDICAL CENTER   (United States)

Author keywords

Hemophilia surveillance programs; Popultion data collection; Public health

Indexed keywords

EID: 84940013105     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1093/acprof:oso/9780195128307.003.0008     Document Type: Chapter

References (7)

1. Soucie JM, Evatt B, Jackson D, and the Hemophilia Surveillance System Project Investigators. The occurrence of hemophilia in the United States. Am J Hematol 1998;59:288-294.
2. Montgomery RR, Coller BS. Von Willebrand disease. In: Colman RW, Hirsh J, Marder VJ, Salzman EW (eds). Hemostasis and thrombosis: basic principles and clinical practice (2nd ed). Philadelphia Lippincott, 1994, pp. 134-168.
3. Rick ME. Diagnosis and management of von Willebrand's syndrome. Med Clin North Am 1994;78:609-623.
4. Miller CH, Lenzi R, Breen C. Prevalence of von Willebrand's disease among US adults. Blood (abstract). 1987;70(Supp l):377a.
5. Chorba TL, Holman RC, Strine TW, Clarke MJ, Evatt BL. Changes in longevity and causes of death among persons with hemophilia A. Am J Hematol 1994;45:112-121.
6. Eyster ME, Schaefer JH, Ragni MV, et al. Changing causes of death in Pennsylvania's hemophiliacs 1976-1991: impact of liver disease and acquired immunodeficiency syndrome (letter). Blood 1992;79:2494-2495.
7. Smith PS, Teutsch SM, Shaffer PA, Rolka H, Evatt BL. Episodic versus prophylactic infusions for hemophilia A: a cost-effectiveness analysis. J Pediatr 1996; 129: 424-431.