The Heterogeneity in Financial and Time Burden of Caregiving to Children with Chronic Conditions

Maternal and Child Health Journal

Volumn 19, Issue 3, 2015, Pages 615-625

  Zan, Hua ^a,b   Scharff, Robert L ^c  

^a UNIVERSITY OF HAWAII   (United States)

^b UNIVERSITY OF MISSOURI   (United States)

^c OHIO STATE UNIVERSITY   (United States)

Author keywords

Caregiving; Children with chronic conditions; Financial burden; Time burden

Indexed keywords

ADOLESCENT; CHILD; CHILD HEALTH CARE; CHRONIC DISEASE; COST OF ILLNESS; ECONOMICS; EMPLOYMENT; FAMILY SIZE; FEMALE; HANDICAPPED CHILD; HEALTH CARE COST; HUMAN; MALE; SOCIOECONOMICS; STATISTICS AND NUMERICAL DATA;

ADOLESCENT; CHILD; CHILD HEALTH SERVICES; CHRONIC DISEASE; COST OF ILLNESS; DISABLED CHILDREN; EMPLOYMENT; FAMILY CHARACTERISTICS; FEMALE; HEALTH CARE COSTS; HEALTH EXPENDITURES; HUMANS; MALE; SOCIOECONOMIC FACTORS;

EID: 84939876855     PISSN: 10927875     EISSN: 15736628     Source Type: Journal    
DOI: 10.1007/s10995-014-1547-3     Document Type: Article

References (44)

1. Van Cleave, J., Gortmaker, S. L., & Perrin, J. M. (2010). Dynamics of obesity and chronic health conditions among children and youth. JAMA, the Journal of the American Medical Association,303(7), 623–630.
2. Perrin, J. M., Bloom, S. R., & Gortmaker, S. L. (2007). The increase of childhood chronic conditions in the United States. JAMA, the Journal of the American Medical Association,297(24), 2755–2759.
3. Lukemeyer, A., Meyers, M. K., & Smeeding, T. (2000). Expensive children in poor families: out-of-pocket expenditures for the care of disabled and chronically ill chilldren in welfare families. Journal of Marriage and Family,62(2), 399–415.
4. Schene, A. H. (1990). Objective and subjective dimensions of family burden. Social Psychiatry and Psychiatric Epidemiology,25(6), 289–297.
5. Clark, R. E., & Drake, R. E. (1994). Expenditures of time and money by families of people with severe mental illness and substance use disorders. Community Mental Health Journal,30(2), 145–163.
6. McManus, B. M., Carle, A., Acevedo-Garcia, D., Ganz, M., Hauser-Cram, P., & McCormick, M. (2011). Modeling the social determinants of caregiver burden among families of children with developmental disabilities. American Journal on Intellectual and Developmental Disabilities,116(3), 246–260.
7. Anderson, D., Dumont, S., Jacobs, P., & Azzaria, L. (2007). The personal costs of caring for a child with a disability: A review of the literature. Public Health Reports,122(1), 3.
8. Coffey, J. S. (2006). Parenting a child with chronic illness: A metasynthesis. Pediatric Nursing,32(1), 51–60.
9. Busch, S. H., & Barry, C. L. (2007). Mental health disorders in childhood: Assessing the burden on families. Health Affairs,26(4), 1088–1095.
10. Jacobs, P., & McDermott, S. (1989). Family caregiver costs of chronically ill and handicapped children: Method and literature review. Public Health Reports,104(2), 158.
11. Burton, P., & Phipps, S. (2009). Economic costs of caring for children with disabilities in Canada. Canadian Public Policy,35(3), 269–290.
12. Sharpe, D. L., & Baker, D. L. (2007). Financial issues associated with having a child with autism. Journal of Family and Economic Issues,28(2), 247–264.
13. Kuhlthau, K., Hill, K. S., Yucel, R., & Perrin, J. M. (2005). Financial burden for families of children with special health care needs. Maternal and Child Health Journal,9(2), 207–218.
14. Aitken, M. E., McCarthy, M. L., Slomine, B. S., Ding, R., Durbin, D. R., Jaffe, K. M., et al. (2009). Family burden after traumatic brain injury in children. Pediatrics,123(1), 199–206.
15. Magaña, S., & Smith, M. J. (2006). Health outcomes of midlife and older Latina and Black American mothers of children with developmental disabilities. Mental Retardation,44(3), 224–234.
16. Raina, P., O’Donnell, M., Schwellnus, H., Rosenbaum, P., King, G., Brehaut, J., et al. (2004). Caregiving process and caregiver burden: conceptual models to guide research and practice. BMC Pediatrics,4(1), 1.
17. Powers, E. T. (2003). Children’s Health and Maternal Work Activity Estimates under Alternative Disability Definitions. Journal of Human Resources,38(3), 522–556.
18. Loprest, P., & Davidoff, A. (2004). How children with special health care needs affect the employment decisions of low-income parents. Maternal and Child Health Journal,8(3), 171–182.
19. Feng, P., & Reagan, P. B. (2004). The Child Asthma Epidemic: Consequences for Women’s Labor Market Behavior. Ohio State University, Department of Economics.
20. Leonard, B., Brust, J. D., & Sapienza, J. J. (1992). Financial and time costs to parents of severely disabled children. Public Health Reports,107(3), 302.
21. Center for Disease Control and Prevention. (2013). About the National Health Interview Survey. http://www.cdc.gov/nchs/nhis/about_nhis.htm.
22. Ezzati-Rice, T. M., Rohde, F., & Greenblatt, J. (2008). Sample design of the Medical Expenditure Panel Survey household component, 1998-2007. US Department of Health & Human Services, Agency for Healthcare Research and Quality. http://www.meps.ahrq.gov/mepsweb/data_files/publications/mr22/mr22.shtml
23. Centers for Disease Control and Prevention. National Health Interview Survey. National Health Interview Survey and Medical Expenditure Panel Survey Linkage Files. 2014. http://meps.ahrq.gov/mepsweb/data_stats/more_info_download_data_files.jsp#hc-nhis.
24. Newacheck, P. W., & Kim, S. E. (2005). A national profile of health care utilization and expenditures for children with special health care needs. Archives of Pediatrics and Adolescent Medicine,159(1), 10.
25. U.S. Bureau of Labor Statistics. (2011). Consumer Price Index. http://www.bls.gov/cpi/#data.
26. Jones, A. M., Rice, N., d’Uva, T. B., & Balia, S. (2013). Applied health economics. London: Routledge.
27. Cook, B. L., & Manning, W. G. (2009). Measuring racial/ethnic disparities across the distribution of health care expenditures. Health Services Research,44(5p1), 1603–1621.
28. Cantoni, E., & Ronchetti, E. (2006). A robust approach for skewed and heavy-tailed outcomes in the analysis of health care expenditures. Journal of Health Economics,25(2), 198–213.
29. Deb, P., & Trivedi, P. K. (1997). Demand for medical care by the elderly: A finite mixture approach. Journal of Applied Econometrics,12(3), 313–336.
30. Deb, P., & Trivedi, P. K. (2002). The structure of demand for health care: Latent class versus two-part models. Journal of Health Economics,21(4), 601–625.
31. Bago d’Uva, T. (2006). Latent class models for utilisation of health care. Health Economics,15(4), 329–343.
32. Shattuck, P. T., & Parish, S. L. (2008). Financial burden in families of children with special health care needs: Variability among states. Pediatrics,122(1), 13–18.
33. Forry, N. D. (2009). The impact of child care subsidies on low-income single parents: An examination of child care expenditures and family finances. Journal of Family and Economic Issues,30(1), 43–54.
34. Chan, E., Zhan, C., & Homer, C. J. (2002). Health care use and costs for children with attention-deficit/hyperactivity disorder: National estimates from the medical expenditure panel survey. Archives of Pediatrics and Adolescent Medicine,156(5), 504.
35. Leibson, C. L., Katusic, S. K., Barbaresi, W. J., Ransom, J., & O’Brien, P. C. (2001). Use and costs of medical care for children and adolescents with and without attention-deficit/hyperactivity disorder. JAMA, the Journal of the American Medical Association,285(1), 60–66.
36. Croen, L. A., Najjar, D. V., Ray, G. T., Lotspeich, L., & Bernal, P. (2006). A comparison of health care utilization and costs of children with and without autism spectrum disorders in a large group-model health plan. Pediatrics,118(4), e1203–e1211.
37. Gould, E. (2004). Decomposing the effects of children’s health on mother’s labor supply: Is it time or money? Health Economics,13(6), 525–541.
38. Brown, B. J., Okereke, J. O., Lagunju, I. A., Orimadegun, A. E., Ohaeri, J. U., & Akinyinka, O. O. (2010). Burden of health-care of carers of children with sickle cell disease in Nigeria. Health and Social Care in the Community,18(3), 289–295.
39. Yoon, D., Frick, K. D., Carr, D. A., & Austin, J. K. (2009). Economic impact of epilepsy in the United States. Epilepsia,50(10), 2186–2191.
40. Liptak, G. S., Stuart, T., & Auinger, P. (2006). Health care utilization and expenditures for children with autism: Data from US national samples. Journal of Autism and Developmental Disorders,36(7), 871–879.
41. Bethell, C. D., Read, D., Blumberg, S. J., & Newacheck, P. W. (2008). What is the prevalence of children with special health care needs? Toward an understanding of variations in findings and methods across three national surveys. Maternal and Child Health Journal,12(1), 1–14.
42. Looman, W. S., O’Conner-Von, S. K., Ferski, G. J., & Hildenbrand, D. A. (2009). Financial and employment problems in families of children with special health care needs: Implications for research and practice. Journal of Pediatric Health Care,23(2), 117–125.
43. Case, A., Lubotsky, D., & Paxson, C. (2001). Economic status and health in childhood: The origins of the gradient (No. w8344). National Bureau of Economic Research.
44. Kuo, D. Z., Mac Bird, T., & Tilford, J. M. (2011). Associations of family-centered care with health care outcomes for children with special health care needs. Maternal and Child Health Journal,15(6), 794–805.