Caregiver distress in first-episode psychosis: the role of subjective appraisal, over-involvement and symptomatology

Social Psychiatry and Psychiatric Epidemiology

Volumn 50, Issue 3, 2015, Pages 371-378

  Jansen, Jens Einar ^a,b   Haahr, Ulrik Helt ^a,b   Harder, Susanne ^b   Trauelsen, Anne Marie ^b,c   Lyse, Hanne Grethe ^a   Pedersen, Marlene Buch ^a   Simonsen, Erik ^b,c  

^a Early Psychosis Intervention Center   (Denmark)

^b UNIVERSITY OF COPENHAGEN   (Denmark)

^c Psychiatric Res Unit   (Denmark)

Author keywords

Caregivers; Distress; Emotional over involvement; First episode psychosis

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; AGED; CAREGIVER; CROSS-SECTIONAL STUDY; EMOTION; FEMALE; HUMAN; MALE; MENTAL STRESS; MIDDLE AGED; PSYCHOLOGY; PSYCHOSIS; QUESTIONNAIRE; VERY ELDERLY; YOUNG ADULT;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; CROSS-SECTIONAL STUDIES; EMOTIONS; EXPRESSED EMOTION; FEMALE; HUMANS; MALE; MIDDLE AGED; PSYCHOTIC DISORDERS; QUESTIONNAIRES; STRESS, PSYCHOLOGICAL; YOUNG ADULT;

EID: 84939871591     PISSN: 09337954     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00127-014-0935-8     Document Type: Article

References (50)

1. Van Os J, Marcelis M, Germeys I, Graven S, Delespaul P (2001) High expressed emotion: marker for a caring family? Compr Psychiatry 42:504–507
2. Kuipers E, Bebbington P, Barrowclough B (2005) Research on burden and coping strategies in families of people with mental disorders: problems and perspectives. In: Leff J, Lopez J, Maj M, Okasha A (eds) Sartorius N. Families and mental disorder. From Burden to Empowerment, Wiley, pp 217–234
3. Addington J, Coldham EL, Jones B, Ko T, Addington D (2003) The first episode of psychosis: the experience of relatives. Acta Psychiatr Scand 108:285–289
4. Szmukler GI, Burgess P, Herrman H, Benson A, Colusa S, Bloch S (1996) Caring for relatives with serious mental illness: the development of the Experience of Caregiving Inventory. Soc Psychiatry Psychiatr Epidemiol 31:137–148
5. Martens L, Addington J (2001) The psychological well-being of family members of individuals with schizophrenia. Soc Psychiatry Psychiatr Epidemiol 36:128–133
6. Zubin J, Spring B (1977) Vulnerability: a new view of schizophrenia. J Abnorm Psychol 86:103–126
7. Leff J, Kuipers L, Berkowitz R, Eberlein-Vries R, Sturgeon D (1982) A controlled trial of social intervention in the families of schizophrenic patients. Br J Psychiatry 141:121–134
8. Kuipers E (2010) Time for a separate psychosis caregiver service? J Ment Health 19:401–404
9. Lazarus R, Folkman S (1984) Stress, appraisal, and coping. Springer, New York
10. Kuipers E, Onwumere J, Bebbington P (2010) Cognitive model of caregiving in psychosis. Br J psychiatry J Ment Sci 196:259–265
11. Barrowclough C, Lobban F, Hatton C, Quinn J (2001) An investigation of models of illness in carers of schizophrenia patients using the Illness Perception Questionnaire. Br J Clin Psychol 40:371–385
12. Wearden AJ, Tarrier N, Barrowclough C, Zastowny TR, Rahill AA (2000) A review of expressed emotion research in health care. Clin Psychol Rev 20:633–666
13. Hooley JM (2007) Expressed emotion and relapse of psychopathology. Annu Rev Clin Psychol 3:329–352
14. Butzlaff RL, Hooley JM (1998) Expressed emotion and psychiatric relapse: a meta-analysis. Arch Gen Psychiatry 55:547–552
15. Gleeson JFM, Cotton SM, Alvarez-Jimenez M, Wade D, Crisp K, Newman B, Spiliotacopoulos D, McGorry PD (2010) Family outcomes from a randomized control trial of relapse prevention therapy in first-episode psychosis. J Clin Psychiatry 71:475–483
16. Bird V, Premkumar P, Kendall T, Whittington C, Mitchell J, Kuipers E (2010) Early intervention services, cognitive-behavioural therapy and family intervention in early psychosis: systematic review. Br J psychiatry J Ment Sci 197:350–356
17. Linszen D, Dingemans P, Van der Does JW, Nugter A, Scholte P, Lenior R, Goldstein MJ (1996) Treatment, expressed emotion and relapse in recent onset schizophrenic disorders. Psychol Med 26:333–342
18. Breitborde NJK, López SR, Chang C, Kopelowicz A, Zarate R (2009) Emotional over-involvement can be deleterious for caregivers’ health: Mexican Americans caring for a relative with schizophrenia. Soc Psychiatry Psychiatr Epidemiol 44:716–723
19. Boye B, Munkvold OG, Bentsen H, Notland TH, Lersbryggen AB, Oskarsson KH, Uren G, Ulstein I, Lingjaerde O, Malt UF (1998) Pattern of emotional over involvement in relatives of patients with schizophrenia: a stress syndrome analogue? Nord J Psychiatry 52:493–499
20. Alvarez-Jiménez M, Gleeson JF, Cotton SM, Wade D, Crisp K, Yap MBH, McGorry PD (2010) Differential predictors of critical comments and emotional over-involvement in first-episode psychosis. Psychol Med 40:63–72
21. Patterson P, Birchwood M, Cochrane R (2005) Expressed emotion as an adaptation to loss: prospective study in first-episode psychosis. Br J Psychiatry Suppl 48:s59–s64
22. Raune D, Kuipers E, Bebbington PE (2004) Expressed emotion at first-episode psychosis: investigating a carer appraisal model. Br J Psychiatry 184:321–326
23. Petersen L, Jeppesen P, Thorup A, Abel M-B, Øhlenschlaeger J, Christensen TØ, Krarup G, Jørgensen P, Nordentoft M (2005) A randomised multicentre trial of integrated versus standard treatment for patients with a first episode of psychotic illness. BMJ 331:602
24. McGuffin P (1991) A polydiagnostic application of operational criteria in studies of psychotic illness. Arch Gen Psychiatry 48:764
25. Goldberg D, Williams P (1988) A user’s guide to the General Health Questionnaire. NFER-Nelson, Windsor
26. Huppert FA, Walters DE, Day NE, Elliott BJ (1989) The factor structure of the General Health Questionnaire (GHQ-30). A reliability study on 6317 community residents. Br J Psychiatry 155:178–185
27. Joyce J, Leese M, Szmukler G (2000) The experience of caregiving inventory: further evidence. Soc Psychiatry Psychiatr Epidemiol 35:185–189
28. Wiedemann G, Rayki O, Feinstein E, Hahlweg K (2002) The Family Questionnaire: development and validation of a new self-report scale for assessing expressed emotion. Psychiatry Res 109:265–279
29. Vaughn CE, Leff J (1976) The measurement of expressed emotion in the families of psychiatric patients. Br J Soc Clin Psychol 15:157–165
30. Magaña AB, Goldstein MJ, Karno M, Miklowitz DJ, Jenkins J, Falloon IRH (1986) A brief method for assessing expressed emotion in relatives of psychiatric patients. Psychiatry Res 17:203–212
31. Kay SR, Fiszbein A, Opler LA (1987) The positive and negative syndrome scale (PANSS) for schizophrenia. Schizophr Bull 13:261–276
32. Santor DA, Ascher-Svanum H, Lindenmayer J-P, Obenchain RL (2007) Item response analysis of the Positive and Negative Syndrome Scale. BMC Psychiatry 7:66
33. Peralta V, Cuesta MJ (1994) Psychometric properties of the positive and negative syndrome scale (PANSS) in schizophrenia. Psychiatry Res 53:31–40
34. Bentsen H, Munkvold OG, Notland TH (1996) The interrater reliability of the Positive and Negative Syndrome Scale (PANSS). Int J Methods Psychiatr Res 6:227–235
35. APA (1987) Diagnostic and statistical manual of mental disorders (DSM-III-R). Washington DC
36. Leucht S, Kane JM, Kissling W, Hamann J, Etschel E, Engel RR (2005) What does the PANSS mean? Schizophr Res 79:231–238
37. Addington J, McCleery A, Addington D (2005) Three-year outcome of family work in an early psychosis program. Schizophr Res 79:107–116
38. Szmukler GI, Herrman H, Bloch S, Colusa S, Benson A (1996) A controlled trial of a counselling intervention for caregivers of relatives with schizophrenia. Soc Psychiatry Psychiatr Epidemiol 31:149–155
39. Tennakoon L, Fannon D, Doku V, O’Ceallaigh S, Soni W, Santamaria M, Kuipers E, Sharma T (2000) Experience of caregiving: relatives of people experiencing a first episode of psychosis. Br J Psychiatry 177:529–533
40. Barrowclough C, Parle M (1997) Appraisal, psychological adjustment and expressed emotion in relatives of patients suffering from schizophrenia. Br J Psychiatry 171:26–30
41. Hooley JM, Campbell C (2002) Control and controllability: beliefs and behaviour in high and low expressed emotion relatives. Psychol Med 32:1091–1099
42. Hooley JM, Hiller JB (2000) Personality and expressed emotion. J Abnorm Psychol 109:40–44
43. Jansen JE, Lysaker PH, Harder S, Haahr UH, Lyse H-G, Pedersen MB, Trauelsen AM, Simonsen E (2013) Positive and negative caregiver experiences in first-episode psychosis: emotional overinvolvement, wellbeing and metacognition. Psychol Psychother. doi:10.1111/papt.12014
44. Patterson P, Birchwood M, Cochrane R (2000) Preventing the entrenchment of high expressed emotion in first episode psychosis: early developmental attachment pathways. Aust N Z J Psychiatry 34:S191–S197
45. Heikkilä J, Karlsson H, Taiminen T et al (2002) Expressed emotion is not associated with disorder severity in first-episode mental disorder. Psychiatry Res 111:155–165
46. McNab C, Haslam N, Burnett P (2007) Expressed emotion, attributions, utility beliefs, and distress in parents of young people with first episode psychosis. Psychiatry Res 151:97–106
47. Jansen JE, Harder S, Haahr UH, Lyse H-G, Pedersen MB, Trauelsen AM, Simonsen E (2014) The role of metacognitions in expressed emotion and distress: a study on caregivers of persons with first-episode psychosis. Clin Psychol Psychother. doi:10.1002/cpp.1907
48. Bentsen H, Boye B, Munkvold OG et al (1996) Emotional overinvolvement in parents of patients with schizophrenia or related psychosis: demographic and clinical predictors. Br J Psychiatry 169:622–630
49. Cotton SM, McCann TV, Gleeson JF, Crisp K, Murphy BP, Lubman DI (2013) Coping strategies in carers of young people with a first episode of psychosis. Schizophr Res 146:118–124
50. Onwumere J, Kuipers E, Bebbington P, Dunn G, Freeman D, Fowler D, Garety P (2011) Coping styles in carers of people with recent and long-term psychosis. J Nerv Ment Dis 199:423–424