Self-reported psychosocial needs and health-related quality of life of colorectal cancer survivors

European Journal of Oncology Nursing

Volumn 19, Issue 4, 2015, Pages 336-342

  Santin, Olinda ^a   Murray, Liam ^b   Prue, Gillian ^a   Gavin, Anna ^c   Gormley, Gerard ^c   Donnelly, Michael ^b  

^a QUEEN'S UNIVERSITY BELFAST   (United Kingdom)

^b QUEEN'S UNIVERSITY BELFAST   (United Kingdom)

^c QUEEN'S UNIVERSITY BELFAST   (United Kingdom)

Author keywords

Colorectal cancer survivors; Quality of life; Unmet needs

Indexed keywords

AGED; COLORECTAL TUMOR; FEMALE; HEALTH SERVICE; HUMAN; MALE; NORTHERN IRELAND; PSYCHOLOGY; QUALITY OF LIFE; QUESTIONNAIRE; REGISTER; SURVIVOR;

AGED; COLORECTAL NEOPLASMS; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; NORTHERN IRELAND; QUALITY OF LIFE; REGISTRIES; SURVEYS AND QUESTIONNAIRES; SURVIVORS;

EID: 84939776114     PISSN: 14623889     EISSN: 15322122     Source Type: Journal    
DOI: 10.1016/j.ejon.2015.01.009     Document Type: Article

References (48)

1. Anderson A.S., Steele R., Coyle J. Lifestyle issues for colorectal cancer survivors - perceived needs, beliefs and opportunities. Supportive Care in Cancer 2013, 21:35-42.
2. Armes J., Crowe M., Richardson A. Patients' supportive care needs beyond the end of cancer treatment: a prospective, longitudinal survey. Journal of Clinical Oncology 2009, 27:6172-6179. 10.1200/jco.2009.22.5151.
3. Avis N., Ip E., Long Foley K. Evaluation of the Quality of Life in Adult Cancer Survivors (QLACS) Scale for long-term cancer survivors in a sample of breast cancer survivors. Health and Quality of Life Outcomes 2006, 4. 10.1186/1477-7525-4-92.
4. Barg F., Cronholm P., Straton J., Keddem S., Knott K., Grater J., et al. Unmet psychosocial needs of Pennsylvanians with cancer: 1986-2005. Cancer 2007, 11:631-639. 10.1002/cncr.22820.
5. Beaver K., Latif S., Williamson S., Procter D., Sheridan J., Heath J., et al. An exploratory study of the follow-up care needs of patients treated for colorectal cancer. Journal of Clinical Nursing 2010, 19:3291-3300. 10.1111/j.1365-2702.2010.03407.x.
6. Beesley V., Eakin E., Steginga S., Aiken J., Dunn J., Battistutta D. Unmet needs of gynaecological cancer survivors: implications for developing community support services. Psycho-oncology 2007, 17:392-400. 10.1002/PON.1249.
7. Bonevski B., Sanson-Fisher R., Girgis A., Burton L., Cook P., Boyes A. Evaluation of an instrument to assess the needs of patients with cancer. Cancer 2000, 88:217-225.
8. Bray F., Ren J., Masyer E., Ferlay J. Global estimates of cancer prevalence for 27 sites in the adult population in 2008. International Journal of Cancer 2013, 132:1133-1145.
9. Cancer Research UK Bowel Cancer, Cancer Statistics Facts 2014, http://publications.cancerresearchuk.org/downloads/Product/CS_KF_BOWEL.pdf.
10. Deimling G., Sterns S., Bowman K., Kahana B. The health of older-adult long-term cancer survivors. Cancer Nursing 2005, 28:415-424.
11. Department of Health, Macmillan Cancer Support, National Health Service Improvement National Cancer Survivorship Vision 2010.
12. Department of Health Quality of Life of Cancer Survivors in England Report on a Pilot Survey Using Patient Reported Outcome Measures 2011, Department of Health.
13. Eakin E., Yourdon D., Baade P., Lawler S., Reeves M., Heyworth J., et al. Health behaviours of Cancer Survivors: data from a population based Australian Survey. Cancer Causes Control 2007, 18:881-894. 10.1007/s 1007/s10552-0079033-5.
14. Elliott J., Fallows A., Staetsky L., Smith P., Foster C., Maher J., et al. The health and well-being of cancer survivors in the United Kingdom: findings from a population-based survey. British Journal of Cancer 2011, 105:S11-S20.
15. Färkkilä N., Sintonen H., Saarto T., Järvinen H., Hänninen J., Taari K., et al. Health-related quality of life in colorectal cancer 2013, 15(5):e215-e222.
16. Gotay C., Pagano I. Assessment of survivors concerns (ASC): a newly proposed brief questionnaire. Quality of Life Outcomes 2007, 5:15-26. 10.1186/1477-7525-5.
17. Harrison S., Watson E., Ward A., Khan N., Turner D., Adams E., et al. Primary health and supportive care needs of long-term cancer survivors: a questionnaire survey. Journal of Clinical Oncology 2011, 29:2091-2098.
18. Hewitt M., Rowland J., Yancik R. Cancer survivors in the United States: age health and disability. The Journals of Gerontology Series A: Biological Sciences and Medical Sciences 2003, 58:82-91. 10.1093/Gerona/58.1.
19. Hodgkinson K., Butow P., Hunt G. The development and evaluation of a measure to assess cancer survivors unmet supportive care needs: the cancer survivors unmet needs Measure. Psycho-Oncology 2007, 16:796-804. 10.1002/pon.1137.
20. Hodgkinson K., Butow P., Hunt G., Pendlebury S., Hobbs K., Wain G. Breast cancer survivors' supportive care needs 2-10 years after diagnosis. Supportive Care Cancer 2007, 15(5):515-523. 10.1007/s00520-006-0170-2.
21. Horner M., Ries L., Krapcho M. SEER Cancer Statistics Review 1975-2006 2008, National Cancer Institute, Bethesda, MD.
22. Keating N., Norredam M., Landrum M., Huskamp H., Meara E. Physical and mental health status of older long-term cancer survivors. Journal of the American Geriatrics Society 2005, 53:2145-2152. 10.1111/j.1532-5415.2005.00507.x.
23. Kondapalli L., Dillon K., Sammel M., Ray A., Prewitt M., Ginsberg J., et al. Quality of life in female cancer survivors: is it related to ovarian reserve. Quality of Life Research 2013, 1-8.
24. Lai X., Wong F., Ching S. Review of bowel dysfunction of rectal cancer patients during the first five years after sphincter-preserving surgery: a population in need of nursing attention. European Journal of Oncology Nursing 2013, 17:681-692.
25. Maddams J., Moller H., Brewster D., Gavin A., Steward J., Elliot J., et al. Cancer prevalence in the United Kingdom: estimates for 2008. British Journal Cancer 2009, 101:541-547. 10.1038/sj.bjc.6605148.
26. Mc Caughan E., Mc Sorley O., Prue G., Parahoo K., Bunting B., O Sullivan J., et al. Quality of life in men receiving radiotherapy and neo-adjuvant androgen deprivation for prostate cancer: results from a prospective longitudinal study. Journal of Advanced Nursing 2013, 69:53-65.
27. McCaughan E., Prue G., Parahoo K., McIlfatrick S., McKenna H. Exploring and comparing the experience and coping behaviour of men and women with colorectal cancer at diagnosis and during surgery. Journal of Advanced Nursing 2011, 67:1591-1600.
28. McDowell M., Occhipinti, Ferguson M., Dunn J., Chambers S. Predictors of change in unmet supportive care needs in cancer. Psychoonclogy 2010, 5:508-516. 10.1002/PON.1604.
29. Mehta S., Lubeck D., Pasta D., Litwin M. Fear of cancer recurrence in patients undergoing definitive treatment for prostate cancer: results from CaPSure. The Journal of Urology 2003, 170:1931-1933. 10.1097/01.JU.0000091993.73842.9b.
30. Molassiotis A., Blair S., Wilson B. Unmet supportive care needs, psychological well-being and quality of life in patients living with multiple myeloma and their partners. Psycho-Oncology 2010, 20:88-97. 10.1002/PON.2710.
31. Newell S., Sanson-Fisher R., Girgis A., Ackland S. The physical and psycho-social experiences of patients attending an outpatient medical oncology department: a cross sectional study. European Journal of Cancer 1999, 8:73-82. 10.1046/J.1365-2354.1999.00125.X.
32. Nord C., Mykletun A., Thorsen L., Bjoro T., Fossa S. Self-reported health and use of health services in long term survivors. International Journal of Cancer 2005, 114:307-316. 10.1002/ijc.20713.
33. Pearce N., Sanson-Fisher R., Campbell H. Measuring quality of life in cancer survivors: a methodological review of existing scales. Psycho-Oncology 2008, 17:629-640. 10.1002/PON.1281.
34. Quality Health Wales Cancer Patient Experience Survey, National Report 2014.
35. Rauch P., Miny J., Conroy T., Neyton L., Guillemin F. Quality of life among disease-free survivors of rectal cancer. Journal of Clinical Oncology 2004, 22:354-360.
36. Reeve B., Potosky A., Wilder Smith A., et al. Impact of cancer on health-related quality of life of older Americans. Journal of the National Cancer Institute 2009, 101:860-868. 10.1093/jnci/djp.
37. Richards M., Corner J., Maher J. The National Cancer Survivorship Initiative: new and emerging evidence on the ongoing needs of cancer survivors. British Journal of Cancer 2011, 105:S1-S4. 10.1038/bjc.2011.416.
38. Rowland J., Kent E., Forsythe L., Harvard Loge J., Hjorth L., Glaser A., et al. Cancer Survivorship Research in Europe and the United States: where have we been, where are we going, and what can we learn from each other?. Cancer 2013, 119:2094-2108.
39. Santin O., Mills M., Treanor C., Donnelly M. A comparative analysis of the health and well-being of cancer survivors to the general population. Supportive Care in Cancer 2012, 20:2545-2552.
40. Santin O., Mills M., Treanor C., Donnelly M. The health status and health service needs of primary caregivers of cancer survivors: a mixed methods approach. European Journal of Cancer Care 2013, Article first published online: 9 DEC 2013. 10.1111/ecc.12157.
41. Schultz P.N., Beck M.L., Stava C., Vassilopoulou-Sellin R. Health profiles in 5386 long-term cancer survivors. International Journal of Cancer 2003, 104:488-495. 10.1002/IJC.10981.
42. Shun S.-C., Yeh K.-H., Liang J.-T., Huang J., Chen S.-C., Lin B.-R., et al. Unmet supportive care needs of patients with colorectal cancer: significant differences by type D personality. Oncology Nursing Forum 2014, 41:E3-E11.
43. Soerjomataram I., Thong M., Ezzati M., Lamont E., Nusselder W., van de Poll-Franse L. Most colorectal cancer survivors live a large proportion of their remaining life in good health. Cancer Causes & Control 2012, 23:1421-1428.
44. Thewes B., Butow P., Girgis A., Pendlebury S. Assessment of unmet needs among survivors of breast cancer. Journal of Psychosocial Oncology 2004, 22:51-73.
45. Thewes B., Brebach R., Dzidowska M., Rhodes P., Sharpe L., Butow P. Current approaches to managing fear of cancer recurrence; a descriptive survey of psychosocial and clinical health professionals. Psycho-Oncology 2014, 23:390-396.
46. Wilson T.R., Birks Y.F., Alexander D.J. A qualitative study of patient perspectives of health related quality of life in colorectal cancer: comparison with disease specific evaluation tools. Colorectal Disease 2010, 12:762-769.
47. Yabroff R., Lawrence W., Clauser S., Davis W.W., Brown M.L. Burden of illness in cancer survivors: findings from a population-based national sample. Journal of the National Cancer Institute 2004, 96:1322-1330. 10.1093/JNCI/djh255.
48. Zebrack B., Mills J., Weitzman T. Health and supportive care needs of young adult cancer survivors. Journal of Cancer Survivorship 2007, 1:137-145. 10.1007/s11764-007-0015-0.