The health status and health service needs of primary caregivers of cancer survivors: A mixed methods approach

European Journal of Cancer Care

Volumn 23, Issue 3, 2014, Pages 333-339

  Santin, O ^a   Treanor, C ^b   Mills, M ^c   Donnelly, M ^b  

^a QUEEN'S UNIVERSITY BELFAST   (United Kingdom)

^b QUEEN'S UNIVERSITY BELFAST   (United Kingdom)

^c ANTRIM AREA HOSPITAL   (United Kingdom)

Author keywords

Cancer; Carers; Health; Oncology; Supportive care; Unmet needs

Indexed keywords

CAREGIVER; FEMALE; HEALTH PERSONNEL ATTITUDE; HEALTH SERVICE; HEALTH STATUS; HUMAN; MALE; MIDDLE AGED; NEOPLASM; NURSING; QUALITATIVE RESEARCH; QUESTIONNAIRE; SURVIVOR; UNITED KINGDOM;

ATTITUDE OF HEALTH PERSONNEL; CAREGIVERS; FEMALE; GREAT BRITAIN; HEALTH SERVICES NEEDS AND DEMAND; HEALTH STATUS; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; QUALITATIVE RESEARCH; QUESTIONNAIRES; SURVIVORS;

EID: 84899477740     PISSN: 09615423     EISSN: 13652354     Source Type: Journal    
DOI: 10.1111/ecc.12157     Document Type: Article

References (30)

1. Campbell S., Sanson-Fisher R., Taylor-Brown J., Hayward L., Wang S. & Turner D. (2009) The cancer support person unmet needs survey. Cancer 115, 3351-3359.
2. Daly B., Douglas S., Lipson A. & Foley H. (2009) Needs of older caregivers of patients with advanced cancer. Journal of the American Geriatrics Society 57, 293-295.
3. Department of Health and Ageing (2008) The National Palliative Care Programme. Australian Government.
4. Department of Health England (2007) Cancer Reform Strategy.
5. Donnelly M., Anderson L. & Murray L. (2008) Oesophageal cancer: caregiver mental health and strain. Psycho-oncology 17, 1196-1201.
6. Elliott J., Fallows A., Staetsky L., Smith P.W.F., Foster C.L., Maher E.J. & Corner J. (2011) The health and well-being of cancer survivors in the UK: findings from a population-based survey. British Journal of Cancer 105, 11-20.
7. Girgis A., Lambert S. & Lacathelincus C. (2010) The supportive care needs survey for partners and caregivers of cancer survivors: development and psychometric evaluation. Psycho-oncology 20, 387-393.
8. Hagedoorn M., Buunk B., Kuijer R., Wobbes T. & Sanderman R. (2000) Couples dealing with cancer: role and gender difference regarding psychological distress and quality of life. Psycho-oncology 17, 63-74.
9. Harding R. & Higginson J. (2003) What is the best way to help caregivers in cancer in palliative care? A systematic literature review of interventions and their effectiveness. Palliative Medicine 17, 63-74.
10. Hodges L., Humphris G. & Macfarlane G. (2004) A meta-analytic investigation of the relationship between the psychological distress of cancer patients and their carers. Social Science and Medicine 60, 1-12.
11. Hodgkinson K., Butow P., Hobbs K., Hunt G., Lo S. & Wain G. (2007) Assessing unmet supportive care needs in partners of cancer survivors: the development and evaluation of the Cancer Survivors Partners Unmet Need Measure (CaPSUN). Psycho-oncology 9, 805-813.
12. Horner M., Ries L., Krapcho M., Neyman N., Aminou R. & Howlader N. (2006) SEER Cancer Statistics Review 1975-2006. National Cancer Institute. Bethesda, MD.
13. Jenkinson C., Layte R., Wright L. & Coulter A. (1996) The UK SF-36: an analysis and interpretation manual. Oxford: Health Services Research Unit.
14. Kim Y. & Given B. (2008) Quality of life of family caregivers of cancer survivors. Cancer 112, 2556-2568.
15. Kim Y., Kashy D., Spillers R. & Evans T. (2010) Needs assessment of family caregivers of cancer survivors: three cohort comparisons. Psycho-oncology 6, 573-582.
16. Li T., Lee Y., Lin C. & Amidon R. (2004) Quality of life of primary caregivers of elderly with cerebrovascular disease or diabetes hospitalised for acute care: assessment of wellbeing and functioning using the SF-36 health questionnaire. Quality of Life Research 13, 1081-1088.
17. Maddams J., Moller H., Brewster D., Gavin A., Steward J., Elliot J. & Utley M. (2009) Cancer prevalence in the United Kingdom: estimates for 2008. British Journal of Cancer 101, 541-547.
18. Mellon S., Northouse L. & Weiss L. (2006) A population based study of the quality of life of cancer survivors and their family caregivers. Cancer Nursing 29, 120-131.
19. Minaya P., Baumstarck K., Berbis J., Goncalves A., Barlesi F., Michel G., Salas S., Chinot O., Grob J.J., Seitz J.F., Bladou F., Clement A., Mancini J., Simeoni M.C. & Auquier P. (2012) The CareGiver Oncology Quality of Life questionnaire (CarGOQoL): development and validation of an instrument to measure the quality of life of the caregivers of patients with cancer. European Journal of Cancer Care 48, 904-911.
20. Northouse L., Modd D., Templin T., Mellon S. & George T. (2000) Couples' patterns of adjustment to colon cancer. Social Science and Medicine 50, 271-284.
21. Patti F., Amato M., Battaglia M., Pitaro M., Russo P., Solaro C. & Trojano M. (2007) Caregiver quality of life in multiple sclerosis a multi-centre Italian study. Journal of Multiple Sclerosis 20, 44-52.
22. Rhee Y., Yun Y., Park S., Shin D.O., Lee K.M., Yoo H.J., Kim J.H., Kim S.O., Lee R., Lee Y.O. & Kim N.S. (2008) Depression in family caregivers of cancer patients: the feeling of burden as a predictor of depression. Journal of Clinical Oncology 36, 5890-5895.
23. Santin O., Mills M., Treanor C. & Donnelly M. (2012) A comparative analysis of the health and well-being of cancer survivors to the general population. Supportive Care in Cancer 20, 2545-2552.
24. Stenberg U., Ruland C. & Miaskowski C. (2010) Review of the literature on the effects of caring for a patient with cancer. Psycho-oncology 19, 1013-1025.
25. US Department of Health and Human Services (2003) National Family Caregiver Support Program.
26. Van de Mortel T.F. (2008) Faking it: social desirability response bias in self-report research. Australian Journal of Advanced Nursing 25, 40-48.
27. Van Ryn M., Sanders S., Kahn K., van Houtven C., Griffin J.M., Martin M., Atienza A.A., Phelan S., Finstad D. & Rowland J. (2011) Objective burden, resources, and other stressors among informal cancer caregivers: a hidden quality issue? Psycho-oncology 20, 44-52.
28. Ware E., Kosinski M. & Keller S.D. (1994) Physical and mental health summary scales: a user's manual. Boston: The Health Institute, New England Medical Centre.
29. Ware J.E. & Kosinski M.A. (2001) SF-36® physical and mental health summary scales: a manual for users of version 1. 2. Lincoln: Quality Metric Inc.
30. Weitzner M., Mcmillan S. & Jacobsen P. (1999) Family caregiver quality of life: differences between curative and palliative cancer treatment settings. Journal of Pain and Symptom Management 17, 418-428.