Barriers and facilitators to recruitment in mental health services: Care coordinators' expectations and experience of referring to a psychosis research trial

Psychology and Psychotherapy: Theory, Research and Practice

Volumn 88, Issue 3, 2015, Pages 335-350

  Bucci, Sandra ^a   Butcher, Isabelle ^a   Hartley, Samantha ^a   Neil, Sandra T ^b   Mulligan, John ^c   Haddock, Gillian ^a  

^a UNIVERSITY OF MANCHESTER   (United Kingdom)

^b GREATER MANCHESTER MENTAL HEALTH NHS FOUNDATION TRUST   (United Kingdom)

^c MERSEY CARE NHS TRUST   (United Kingdom)

Author keywords

care coordinators; case managers; gatekeeping; psychosis; randomized controlled trial; recruitment

Indexed keywords

ADULT; CASE MANAGEMENT; CLINICAL TRIAL (TOPIC); COGNITIVE THERAPY; FEMALE; HEALTH PERSONNEL ATTITUDE; HUMAN; MALE; MENTAL HEALTH SERVICE; MIDDLE AGED; PATIENT REFERRAL; PATIENT SELECTION; PROCEDURES; PSYCHOTIC DISORDERS; QUALITATIVE RESEARCH; STANDARDS;

ADULT; ATTITUDE OF HEALTH PERSONNEL; CASE MANAGEMENT; CLINICAL TRIALS AS TOPIC; COGNITIVE THERAPY; FEMALE; HUMANS; MALE; MENTAL HEALTH SERVICES; MIDDLE AGED; PATIENT SELECTION; PSYCHOTIC DISORDERS; QUALITATIVE RESEARCH; REFERRAL AND CONSULTATION;

EID: 84939501465     PISSN: 14760835     EISSN: 20448341     Source Type: Journal    
DOI: 10.1111/papt.12042     Document Type: Article

References (32)

1. Braun, V., &, Clarke, V., (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77-101.
2. Bury, C., Raval, H., &, Lyon, L., (2007). Young people's experiences of individual psychoanalytic psychotherapy. Psychology and Psychotherapy: Theory, Research and Practice, 80, 79-96.
3. Department of Health (2012). Liberating the NHS: No decision about me, without me.
4. Department of Health (2013). The NHS constitution: The NHS belongs to us all.
5. Fletcher, B., Gheorghe, A., Moore, D., Wilson, S., &, Damery, S., (2012). Improving the recruitment activity of clinicians in randomised controlled trials: A systematic review. BMJ Open, 2 (1). doi: 10.1136/bmjopen-2011-000496
6. Fletcher, K., Mant, J., Roalfe, A., &, Hobbs, F. D. R., (2010). Impact of study design on recruitment of patients to a primary care trial: An observational time series analysis of the Birmingham Atrial Fibrillation Treatment of the Aged (BAFTA) Study. Family Practice, 27, 691-697.
7. Free Access to Involvement in Research (FAIR) system. (2012). Retrieved from http://www.gmw.nhs.uk/fair
8. Furimsky, I., Cheung, A. H., Deaw, C. S., &, Zipursky, R. B., (2008). Strategies to enhance patient recruitment and retention in research involving patients with a first episode of mental illness. Contemporary Clinical Trials, 29, 862-866.
9. Hopkins, J. B., Wright, D. N., &, Corner, J. L., (2005). Seeking new methodology for palliative care research: Challenging assumptions about studying people who are approaching the end of life. Palliative Medicine, 19, 532-537.
10. Howard, L., de Salis, I., Tomlin, Z., Thornicroft, G., &, Donovan, J., (2009). Why is recruitment to trials difficult? An investigation into recruitment difficulties in an RCT of supported employment in patients with severe mental illness. Contemporary Clinical Trials, 30, 40-46.
11. INVOLVE (2010). Payment for involvement: A guide for making payments to members of the public actively involved in NHS, public health and social care research. Eastleigh, UK: Author.
12. Lienard, J. L., Quinaux, E., &, Fabre-Guillevin, E., (2006). Impact of on-site initiation visits on patient recruitment and data quality in a randomised controlled trial of adjuvant chemotherapy for breast cancer. Clinical Trials, 3, 486-492.
13. Lovato, L. C., Hill, K., Hertert, S., Hunninghake, D. B., &, Probstfield, J. L., (1997). Recruitment for controlled clinical trials: Literature summary and annotated bibliography. Controlled Clinical Trials, 18, 328-352.
14. Mason, V. L., Shaw, A., Wiles, N. J., Mulligan, J., Peters, T. J., Sharp, D., &, Lewis, G., (2007). GPs' experiences of primary care mental health research: A qualitative study of the barriers to recruitment. Family Practice, 24 (5), 518-525. doi: 10.1093/fampra/cmm047
15. McDaid, C., Hodges, Z., Fayter, D., Stirk, L., &, Eastwood, A., (2006). Increasing participation of cancer patients in randomised controlled trials: A systematic review. Trials, 7, 16. doi: 10.1186/1745-6215-7-16
16. National Institute for Health Research (NIHR) (2010). Primary care research recruitment: A practical guide. Manchester, UK: National Health Service.
17. NVivo qualitative data analysis software (2012). QSR International Pty Ltd. Version 10.
18. Patterson, S., Kramo, K., Soteriou, T., &, Crawford, M. J., (2010). The great divide: A qualitative investigation of factors influencing researcher access to potential randomised controlled trial participants in mental health settings. Journal of Mental Health, 19, 532-541.
19. Patterson, S., Mairs, H., &, Borschmann, R., (2011). Successful recruitment to trials: A phased approach to opening gates and building bridges. BMC Medical Research Methodology, 11, 73.
20. Pitt, L., Kilbride, M., Nothard, S., Welford, M., &, Morrison, A. P., (2007). Researching recovery from psychosis: A user-led project. Psychiatric Bulletin, 31, 55-60.
21. Pringle, M., &, Churchill, R., (1995). Randomised controlled trials in general practice. BMJ: British Medical Journal, 311 (7017), 1382.
22. Rengerink, K. O., Opmeer, B. C., Logtenberg, S. L. M., Hooft, L., Bloemenkamp, K. W. M., Haak, M. C.,..., Mo, B. W. J., (2010). IMproving PArticipation of patients in Clinical Trials-Rationale and design of IMPACT. BMC Medical Research Methodology, 10, 85.
23. Ross, S., Grant, A., Counsell, C., Gillespie, W., Russell, I., &, Prescott, R., (1999). Barriers to participation in randomised controlled trials: A systematic review. Journal of Clinical Epidemiology, 52, 1143-1156.
24. Simpson, A., (2005). Community psychiatric nurses and the care co-ordinator role: Squeezed to provide 'limited nursing'. Journal of Advanced Nursing, 52, 689-699.
25. Smith, J. A., (1995). Semi-structured interview and qualitative analysis. In, J. A. Smith, R. Harre, &, L. V. Langenhove, (Eds.), Rethinking methods in psychology (pp. 9-26), London, UK: Sage.
26. Sumner, K., Haddock, G., Hartley, S., Kilbride, M., McCusker, M., Pitt, L.,..., Barrowclough, C., (2014). Preferences for psychological therapy in psychosis: Trial participation, mode of treatment, and willingness to be randomised. Journal of Mental Health, 23, 67-71. doi:10(3109/09638237).2013.841865
27. Tan, H., Grief, M., Couns, P. C., Wilson, A., Olver, I., &, Barton, C., (2010). Recruiting palliative patients for a large qualitative study: Some ethical considerations and staff dilemmas. EXPLORE: The Journal of Science and Healing, 6, 159-165.
28. Turpin, G., Barley, V., Beail, N., Scaife, J., Slade, P., Smith, J. A., &, Walsh, S., (1997). Standards for research projects and theses involving qualitative methods: Suggested guidelines for trainees and courses. Clinical Psychology Forum, 108, 3-7.
29. White, C., Gilshenan, K., &, Hardy, J., (2008). A survey of the views of palliative care healthcare professionals towards referring cancer patients to participate in randomized controlled trials in palliative care. Supportive Care in Cancer, 16, 1397-1405.
30. Willig, C., (2008). Introducing qualitative research in psychology: Adventures in theory and method. Maidenhead, UK: Open University Press/McGraw-Hill.
31. Woodall, A., Howard, L., &, Morgan, C., (2011). Barriers to participation in mental health research: Findings from the Genetics and Psychosis (GAP) Study. International Review of Psychiatry, 23, 31-40.
32. Zullinno, D., Conus, P., Borgeat, F., &, Bonsack, C., (2003). Readiness to participate in psychiatric research. Canadian Journal of Psychiatry, 48, 480-484.