Health-related quality of life among patients with primary sclerosing cholangitis

Liver International

Volumn 35, Issue 9, 2015, Pages 2194-2201

  Haapamäki, Johanna ^a   Tenca, Andrea ^a,b   Sintonen, Harri ^c   Barner Rasmussen, Nina ^a   Färkkilä, Martti A ^a,c  

^a HELSINKI UNIVERSITY CENTRAL HOSPITAL   (Finland)

^b UNIVERSITY OF MILAN   (Italy)

^c UNIVERSITY OF HELSINKI   (Finland)

Author keywords

Endoscopic retrograde cholangiography; Health related quality of life; Inflammatory bowel disease; Primary sclerosing cholangitis

Indexed keywords

15D SCORE; ADULT; AGED; ARTICLE; CONTROLLED STUDY; DEPRESSION; DIGESTIVE SYSTEM DISEASE ASSESSMENT; DISTRESS SYNDROME; ENDOSCOPIC RETROGRADE CHOLANGIOPANCREATOGRAPHY; FEMALE; FOLLOW UP; HUMAN; INFLAMMATORY BOWEL DISEASE; MAJOR CLINICAL STUDY; MALE; MENTAL FUNCTION; POPULATION; PRIMARY SCLEROSING CHOLANGITIS; PSYCHOLOGICAL WELL BEING; QUALITY OF LIFE; ADOLESCENT; BIOPSY; CHOLANGIOGRAPHY; CHOLANGITIS, SCLEROSING; COMPARATIVE STUDY; INFLAMMATORY BOWEL DISEASES; MAGNETIC RESONANCE CHOLANGIOPANCREATOGRAPHY; MIDDLE AGED; PROSPECTIVE STUDY; QUESTIONNAIRE; SEVERITY OF ILLNESS INDEX; YOUNG ADULT;

ADOLESCENT; ADULT; AGED; BIOPSY; CHOLANGIOGRAPHY; CHOLANGIOPANCREATOGRAPHY, MAGNETIC RESONANCE; CHOLANGITIS, SCLEROSING; FEMALE; HUMANS; INFLAMMATORY BOWEL DISEASES; MALE; MIDDLE AGED; PROSPECTIVE STUDIES; QUALITY OF LIFE; SEVERITY OF ILLNESS INDEX; SURVEYS AND QUESTIONNAIRES; YOUNG ADULT;

EID: 84938963546     PISSN: 14783223     EISSN: 14783231     Source Type: Journal    
DOI: 10.1111/liv.12775     Document Type: Article

References (31)

1. Maggs JR, Chapman RW. An update on primary sclerosing cholangitis. Curr Opin Gastroenterol 2008; 24: 377-83.
2. Ponsioen CY. Recent insights in primary sclerosing cholangitis. J Dig Dis 2012; 13: 337-41.
3. Talwalkar JA, Lindor KD. Primary sclerosing cholangitis. Inflamm Bowel Dis 2005; 11: 62-72.
4. LaRusso NF, Shneider BL, Black D, et al. Primary sclerosing cholangitis: summary of a workshop. Hepatology 2006; 44: 746-64.
5. Molodecky NA, Kareemi H, Parab R, et al. Incidence of primary sclerosing cholangitis: a systematic review and meta-analysis. Hepatology 2011; 53: 1590-9.
6. Boonstra K, Weersma RK, van Erpecum J, et al. Population-based epidemiology, malignancy risk, and outcome of primary sclerosing cholangitis. Hepatology 2013; 58: 2045-55.
7. www.scandiatransplant.org. (accessed September 15th, 2014).
8. Charatcharoenwitthaya P, Lindor KD. Primary sclerosing cholangitis: diagnosis and management. Curr Gastroenterol Reports 2006; 8: 75-82.
9. Sokol H, Cosnes J, Chazouilleres O, et al. Disease activity and cancer risk in inflammatory bowel disease associated with primary sclerosing cholangitis. World J Gastroenterol 2008; 14: 3497-503.
10. Mitchell A, Guyatt G, Singer J, et al. Quality of life in patients with IBD. J Clin Gastroenterol 1988; 10: 306-10.
11. Irvine EJ, Feagan B, Rochon J, et al. Quality of life: a valid and reliable measure of therapeutic efficacy in the treatment of inflammatory bowel disease. Gastroenterology 1994; 106: 287-96.
12. Casellas F, Arenas JI, Baudet JS, et al. Impairment of health-related quality of life in patients with inflammatory bowel disease: a Spanish multicenter study. Inflamm Bowel Dis 2005; 11: 488-96.
13. Gross CR, Malinchoc M, Evans RW, et al. Quality of life before and after liver transplantation for cholestatic liver disease. Hepatology 1999; 29: 356-64.
14. Younossi ZM, Kiwi ML, Boparai N, Price LL, Guyatt G. Cholestatic liver disease and health-related quality of life. Am J Gastroenterol 2000; 95: 497-502.
15. Björnsson E, Simren M, Olsson R, Chapman RW. Fatigue in patients with primary sclerosing cholangitis. Scand J Gastroenterol 2004; 39: 961-8.
16. Ananthakrishnan AN, Beaulieu DB, Ulitsky A, et al. Does primary sclerosing cholangitis impact quality of life in patients with inflammatory bowel disease? Inflamm Bowel Dis 2010; 16: 494-500.
17. Halme L, Arola J, Numminen K, et al. Biliary dysplasia in patients with primary sclerosing cholangitis: additional value of DNA ploidity. Liver Int 2012; 32: 783-9.
18. Weber C, Kuhlencordt R, Grotelueschen R, et al. Magnetic resonance cholangiopancreatography in the diagnosis of primary sclerosing cholangitis. Endoscopy 2008; 40: 739-45.
19. Haapamäki J, Roine RP, Sintonen H, et al. Health-related quality of life in inflammatory bowel disease measured with the generic 15D instrument. Qual Life Res 2010; 19: 919-28.
20. Koskinen S, Lundqvist A, Ristiluoma N (eds) Health, Functional Capacity and Welfare in Finland in 2011. National Institute for Health and Welfare (THL), Report 68/2012. Helsinki 2012. Available at: http://urn.fi/URN:ISBN:978-952-245-769-1.
21. Sintonen H. Outcome measurement in acid-related diseases. Pharmacoeconomics 1994; 5: 17-26.
22. Sintonen H. The 15D-measure of health-related quality of life. Reliability, validity and sensitivity of its health state descriptive system. National Centre for Health Program Evaluation, Working Paper 41, Melbourne 1994 Available at: http://www.buseco.monash.edu.au/centres/che/pubs/wp41.pdf. (Accessed September 15th, 2014).
23. Ponsioen CY, Reitsma JB, Boberg KM, et al. Validation of a cholangiographic prognostic model in primary sclerosing cholangitis. Endoscopy 2010; 42: 742-7.
24. Benito de Valle M, Rahman M, Lindkvist B, et al. Factors that reduce health-related quality of life in patients with primary sclerosing cholangitis. Clin Gastroenterol Hepatol 2012; 10: 769-75.
25. Benito de Valle M, Björnsson E, Lindkvist B. Mortality and cancer risk related to primary sclerosing cholangitis in a Swedish population-based cohort. Liver Int 2012; 32: 441-8.
26. Bambha K, Kim WR, Talwalkar J, et al. Incidence, clinical spectrum, and outcomes of primary sclerosing cholangitis in a United States community. Gastroenterology 2003; 125: 1364-9.
27. Kaplan GG, Laupland KB, Butzner D, Urbanski J, Lee SS. The burden of large and small duct primary sclerosing cholangitis in adults and children: a population-based analysis. Am J Gastroenterol 2007; 102: 1042-9.
28. van Os E, van den Broek WW, Mulder PGH, et al. Depression in patients with primary biliary cirrhosis and primary sclerosing cholangitis. J Hepatol 2007; 46: 1099-103.
29. Jørgensen KK, Grzyb K, Lundin KE, et al. Inflammatory bowel disease in patients with primary sclerosing cholangitis: clinical characterization in liver transplanted and nontransplanted patients. Inflamm Bowel Dis 2012; 18: 536-45.
30. Otley AR, Griffiths AM, Hale S, et al. Health-related quality of life in the first year after diagnosis of pediatric inflammatory bowel disease. Inflamm Bowel Dis 2006; 12: 684-91.
31. Tischendorf J, Meier PN, Strassburg CP, et al. Characterization and clinical course of hepatobiliary carcinoma in patients with primary sclerosing cholangitis. Scand J Gastroenterol 2006; 41: 1227-34.