메뉴 건너뛰기




Volumn 23, Issue 9, 2015, Pages 2613-2621

The patients’ active role in managing a personal electronic health record: a qualitative analysis

Author keywords

Chronic care; Colorectal cancer; Patient empowerment; Personal electronic health record

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE; CLINICAL ARTICLE; CLINICAL TRIAL; COLORECTAL CANCER; CONTENT ANALYSIS; ELECTRONIC MEDICAL RECORD; FEMALE; HEALTH CARE PERSONNEL; HUMAN; INFORMATION PROCESSING; MALE; PATIENT CARE; PHYSICIAN; PILOT STUDY; PRIORITY JOURNAL; QUALITATIVE ANALYSIS; QUALITATIVE RESEARCH; RESPONSIBILITY; ROLE PLAYING; SUPPORT GROUP; VIDEORECORDING; COLORECTAL NEOPLASMS; MIDDLE AGED; ORGANIZATION AND MANAGEMENT; PATIENT PARTICIPATION; PROCEDURES; PROSPECTIVE STUDY;

EID: 84938417182     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-015-2620-1     Document Type: Article
Times cited : (30)

References (45)
  • 2
    • 84888117622 scopus 로고    scopus 로고
    • Can’t see the forest for the care plan: a call to revisit the context of care planning
    • PID: 23796989
    • Parry C, Kent EE, Forsythe LP et al (2013) Can’t see the forest for the care plan: a call to revisit the context of care planning. J Clin Oncol 31(21):2651–2653. doi:10.1200/JCO.2012.48.4618
    • (2013) J Clin Oncol , vol.31 , Issue.21 , pp. 2651-2653
    • Parry, C.1    Kent, E.E.2    Forsythe, L.P.3
  • 3
    • 79951817650 scopus 로고    scopus 로고
    • Self-management: enabling and empowering patients living with cancer as a chronic illness
    • PID: 21205833
    • McCorkle R, Ercolano E, Lazenby M et al (2011) Self-management: enabling and empowering patients living with cancer as a chronic illness. CA Cancer J Clin 61(1):50–62. doi:10.3322/caac.20093
    • (2011) CA Cancer J Clin , vol.61 , Issue.1 , pp. 50-62
    • McCorkle, R.1    Ercolano, E.2    Lazenby, M.3
  • 5
    • 84877027342 scopus 로고    scopus 로고
    • Evaluating the quality of colorectal cancer care across the interface of healthcare sectors
    • COI: 1:CAS:528:DC%2BC3sXnsVKgu7g%3D, PID: 23658684
    • Ludt S, Urban E, Eckardt J et al (2013) Evaluating the quality of colorectal cancer care across the interface of healthcare sectors. PLoS One 8(5):e60947. doi:10.1371/journal.pone.0060947
    • (2013) PLoS One , vol.8 , Issue.5 , pp. 60947
    • Ludt, S.1    Urban, E.2    Eckardt, J.3
  • 6
    • 1342343185 scopus 로고    scopus 로고
    • Complexity in caring for patients with advanced cancer
    • PID: 14756836
    • Tishelman C, Bernhardson B, Blomberg K et al (2004) Complexity in caring for patients with advanced cancer. J Adv Nurs 45(4):420–429. doi:10.1046/j.1365-2648.2003.02925.x
    • (2004) J Adv Nurs , vol.45 , Issue.4 , pp. 420-429
    • Tishelman, C.1    Bernhardson, B.2    Blomberg, K.3
  • 7
    • 34547844151 scopus 로고    scopus 로고
    • Complexity of care needs and unstaged cancer in elders: a population-based study
    • PID: 17658225
    • Koroukian SM, Xu F, Beaird H et al (2007) Complexity of care needs and unstaged cancer in elders: a population-based study. Cancer Detect Prev 31(3):199–206. doi:10.1016/j.cdp.2007.04.002
    • (2007) Cancer Detect Prev , vol.31 , Issue.3 , pp. 199-206
    • Koroukian, S.M.1    Xu, F.2    Beaird, H.3
  • 8
    • 78650326276 scopus 로고    scopus 로고
    • The quality of cancer patient experience: perspectives of patients, family members, providers and experts
    • PID: 21127109
    • Wagner EH, Bowles A, Erin J, Greene SM et al (2010) The quality of cancer patient experience: perspectives of patients, family members, providers and experts. Qual Saf Health Care 19(6):484–489. doi:10.1136/qshc.2010.042374
    • (2010) Qual Saf Health Care , vol.19 , Issue.6 , pp. 484-489
    • Wagner, E.H.1    Bowles, A.2    Erin, J.3    Greene, S.M.4
  • 10
    • 79952779358 scopus 로고    scopus 로고
    • The values and value of patient-centered care
    • PID: 21403134
    • Epstein RM, Street RL (2011) The values and value of patient-centered care. Ann Fam Med 9(2):100–103. doi:10.1370/afm.1239
    • (2011) Ann Fam Med , vol.9 , Issue.2 , pp. 100-103
    • Epstein, R.M.1    Street, R.L.2
  • 11
    • 33847645393 scopus 로고    scopus 로고
    • Patient empowerment in theory and practice: polysemy or cacophony?
    • PID: 17084059
    • Aujoulat I, d’Hoore W, Deccache A (2007) Patient empowerment in theory and practice: polysemy or cacophony? Patient Educ Couns 66(1):13–20. doi:10.1016/j.pec.2006.09.008
    • (2007) Patient Educ Couns , vol.66 , Issue.1 , pp. 13-20
    • Aujoulat, I.1    d’Hoore, W.2    Deccache, A.3
  • 12
    • 0035511799 scopus 로고    scopus 로고
    • Chronic disease self-management program: 2-year health status and health care utilization outcomes
    • COI: 1:STN:280:DC%2BD3Mnmt1alsw%3D%3D, PID: 11606875
    • Lorig KR, Ritter P, Stewart AL et al (2001) Chronic disease self-management program: 2-year health status and health care utilization outcomes. Med Care 39(11):1217–1223. doi:10.1097/00005650-200111000-00008
    • (2001) Med Care , vol.39 , Issue.11 , pp. 1217-1223
    • Lorig, K.R.1    Ritter, P.2    Stewart, A.L.3
  • 13
    • 0041853622 scopus 로고    scopus 로고
    • A systematic review of psychosocial outcomes following education, self-management and psychological interventions in diabetes mellitus
    • PID: 12915275
    • Steed L, Cooke D, Newman S (2003) A systematic review of psychosocial outcomes following education, self-management and psychological interventions in diabetes mellitus. Patient Educ Couns 51(1):5–15. doi:10.1016/S0738-3991(02)00213-6
    • (2003) Patient Educ Couns , vol.51 , Issue.1 , pp. 5-15
    • Steed, L.1    Cooke, D.2    Newman, S.3
  • 14
    • 19444364708 scopus 로고    scopus 로고
    • Patient empowerment: reflections on the challenge of fostering the adoption of a new paradigm
    • PID: 15911187
    • Anderson RM, Funnell MM (2005) Patient empowerment: reflections on the challenge of fostering the adoption of a new paradigm. Patient Educ Couns 57(2):153–157. doi:10.1016/j.pec.2004.05.008
    • (2005) Patient Educ Couns , vol.57 , Issue.2 , pp. 153-157
    • Anderson, R.M.1    Funnell, M.M.2
  • 15
    • 0026566658 scopus 로고
    • Four models of the physician-patient relationship
    • COI: 1:STN:280:DyaK383htFOrug%3D%3D, PID: 1556799
    • Emanuel EJ, Emanuel LL (1992) Four models of the physician-patient relationship. JAMA 267(16):2221–2226. doi:10.1001/jama.267.16.2221
    • (1992) JAMA , vol.267 , Issue.16 , pp. 2221-2226
    • Emanuel, E.J.1    Emanuel, L.L.2
  • 16
    • 58149213735 scopus 로고    scopus 로고
    • Paternalism, participation and partnership—the evolution of patient centeredness in the consultation
    • PID: 18930624
    • Taylor K (2009) Paternalism, participation and partnership—the evolution of patient centeredness in the consultation. Patient Educ Couns 74(2):150–155. doi:10.1016/j.pec.2008.08.017
    • (2009) Patient Educ Couns , vol.74 , Issue.2 , pp. 150-155
    • Taylor, K.1
  • 17
    • 0037615168 scopus 로고    scopus 로고
    • Mediated consumer-provider communication in cancer care: the empowering potential of new technologies
    • PID: 12767594
    • Street RL (2003) Mediated consumer-provider communication in cancer care: the empowering potential of new technologies. Patient Educ Couns 50(1):99–104. doi:10.1016/S0738-3991(03)00089-2
    • (2003) Patient Educ Couns , vol.50 , Issue.1 , pp. 99-104
    • Street, R.L.1
  • 18
    • 84868052274 scopus 로고    scopus 로고
    • How patients use access to their full health records: a qualitative study of patients in general practice
    • PID: 19966130
    • Fisher B, Bhavnani V, Winfield M (2009) How patients use access to their full health records: a qualitative study of patients in general practice. J R Soc Med 102(12):539–544. doi:10.1258/jrsm.2009.090328
    • (2009) J R Soc Med , vol.102 , Issue.12 , pp. 539-544
    • Fisher, B.1    Bhavnani, V.2    Winfield, M.3
  • 19
    • 79951684102 scopus 로고    scopus 로고
    • Use of a shared medical record with secure messaging by older patients with diabetes
    • PID: 20739686
    • Weppner WG, Ralston JD, Koepsell TD et al (2010) Use of a shared medical record with secure messaging by older patients with diabetes. Diabetes Care 33(11):2314–2319. doi:10.2337/dc10-1124
    • (2010) Diabetes Care , vol.33 , Issue.11 , pp. 2314-2319
    • Weppner, W.G.1    Ralston, J.D.2    Koepsell, T.D.3
  • 20
    • 70449384409 scopus 로고    scopus 로고
    • Group health cooperative’s transformation toward patient-centered access
    • PID: 19549993
    • Ralston JD, Martin DP, Anderson ML et al (2009) Group health cooperative’s transformation toward patient-centered access. Med Care Res Rev 66(6):703–724. doi:10.1177/1077558709338486
    • (2009) Med Care Res Rev , vol.66 , Issue.6 , pp. 703-724
    • Ralston, J.D.1    Martin, D.P.2    Anderson, M.L.3
  • 21
    • 79955936017 scopus 로고    scopus 로고
    • The value of personal health records for chronic disease management: what do we know?
    • PID: 21557106
    • Tenforde M, Jain A, Hickner J (2011) The value of personal health records for chronic disease management: what do we know? Fam Med 43(5):351–354
    • (2011) Fam Med , vol.43 , Issue.5 , pp. 351-354
    • Tenforde, M.1    Jain, A.2    Hickner, J.3
  • 22
    • 84888221063 scopus 로고    scopus 로고
    • Electronic patient portals: evidence on health outcomes, satisfaction, efficiency, and attitudes: a systematic review
    • PID: 24247673
    • Goldzweig CL, Orshansky G, Paige NM et al (2013) Electronic patient portals: evidence on health outcomes, satisfaction, efficiency, and attitudes: a systematic review. Ann Intern Med 159(10):677–687. doi:10.7326/0003-4819-159-10-201311190-00006
    • (2013) Ann Intern Med , vol.159 , Issue.10 , pp. 677-687
    • Goldzweig, C.L.1    Orshansky, G.2    Paige, N.M.3
  • 23
    • 77956495111 scopus 로고    scopus 로고
    • The anxious wait: assessing the impact of patient accessible EHRs for breast cancer patients
    • PID: 20809950
    • Wiljer D, Leonard KJ, Urowitz S et al (2010) The anxious wait: assessing the impact of patient accessible EHRs for breast cancer patients. BMC Med Inform Decis Mak 10(1):46. doi:10.1186/1472-6947-10-46
    • (2010) BMC Med Inform Decis Mak , vol.10 , Issue.1 , pp. 46
    • Wiljer, D.1    Leonard, K.J.2    Urowitz, S.3
  • 24
    • 84877299233 scopus 로고    scopus 로고
    • A systematic review of web-based interventions for patient empowerment and physical activity in chronic diseases: relevance for cancer survivors
    • PID: 23425685
    • Kuijpers W, Groen WG, Aaronson NK et al (2013) A systematic review of web-based interventions for patient empowerment and physical activity in chronic diseases: relevance for cancer survivors. J Med Internet Res 15(2):e37. doi:10.2196/jmir.2281
    • (2013) J Med Internet Res , vol.15 , Issue.2 , pp. 37
    • Kuijpers, W.1    Groen, W.G.2    Aaronson, N.K.3
  • 25
    • 84971585775 scopus 로고
    • Qualitative research. Introducing focus groups
    • COI: 1:STN:280:DyaK2MzlvFOrug%3D%3D, PID: 7633241
    • Kitzinger J (1995) Qualitative research. Introducing focus groups. BMJ 311(7000):299–302. doi:10.1136/bmj.311.7000.299
    • (1995) BMJ , vol.311 , Issue.7000 , pp. 299-302
    • Kitzinger, J.1
  • 27
    • 84860764889 scopus 로고    scopus 로고
    • Qualitative Inhaltsanalyse
    • Beltz, Weinheim
    • Mayring P (2010) Qualitative Inhaltsanalyse. Grundlagen und Techniken. Beltz, Weinheim
    • (2010) Grundlagen und Techniken
    • Mayring, P.1
  • 28
    • 83755178586 scopus 로고    scopus 로고
    • Inviting patients to read their doctors’ notes: patients and doctors look ahead: patient and physician surveys
    • PID: 22184688
    • Walker J, Leveille SG, Ngo L et al (2011) Inviting patients to read their doctors’ notes: patients and doctors look ahead: patient and physician surveys. Ann Intern Med 155(12):811–819. doi:10.7326/0003-4819-155-12-201112200-00003
    • (2011) Ann Intern Med , vol.155 , Issue.12 , pp. 811-819
    • Walker, J.1    Leveille, S.G.2    Ngo, L.3
  • 29
    • 84868327628 scopus 로고    scopus 로고
    • Inviting patients to read their doctors’ notes: a quasi-experimental study and a look ahead
    • PID: 23027317
    • Delbanco T, Walker J, Bell SK et al (2012) Inviting patients to read their doctors’ notes: a quasi-experimental study and a look ahead. Ann Intern Med 157(7):461–470. doi:10.7326/0003-4819-157-7-201210020-00002
    • (2012) Ann Intern Med , vol.157 , Issue.7 , pp. 461-470
    • Delbanco, T.1    Walker, J.2    Bell, S.K.3
  • 30
    • 79955616048 scopus 로고    scopus 로고
    • Many physicians are willing to use patients’ electronic personal health records, but doctors differ by location, gender, and practice
    • Wynia MK, Torres GW, Lemieux J (2011) Many physicians are willing to use patients’ electronic personal health records, but doctors differ by location, gender, and practice. Health Aff (Millwood) 30(2):266–273. doi:10.1377/hlthaff.2010.0342
    • (2011) Health Aff (Millwood) , vol.30 , Issue.2 , pp. 266-273
    • Wynia, M.K.1    Torres, G.W.2    Lemieux, J.3
  • 31
    • 29144525027 scopus 로고    scopus 로고
    • Expectations of patients and physicians regarding patient-accessible medical records
    • PID: 15914460
    • Ross SE, Todd J, Moore LA et al (2005) Expectations of patients and physicians regarding patient-accessible medical records. J Med Internet Res 7(2):e13. doi:10.2196/jmir.7.2.e13
    • (2005) J Med Internet Res , vol.7 , Issue.2 , pp. 13
    • Ross, S.E.1    Todd, J.2    Moore, L.A.3
  • 32
    • 83755183870 scopus 로고    scopus 로고
    • Patient interest in sharing personal health record information: a web-based survey
    • PID: 22184687
    • Zulman DM, Nazi KM, Turvey CL et al (2011) Patient interest in sharing personal health record information: a web-based survey. Ann Intern Med 155(12):805–810. doi:10.7326/0003-4819-155-12-201112200-00002
    • (2011) Ann Intern Med , vol.155 , Issue.12 , pp. 805-810
    • Zulman, D.M.1    Nazi, K.M.2    Turvey, C.L.3
  • 33
    • 78449293106 scopus 로고    scopus 로고
    • Adoption, non-adoption, and abandonment of a personal electronic health record: case study of HealthSpace
    • PID: 21081595
    • Greenhalgh T, Hinder S, Stramer K et al (2010) Adoption, non-adoption, and abandonment of a personal electronic health record: case study of HealthSpace. BMJ 341(16 1):c5814. doi:10.1136/bmj.c5814
    • (2010) BMJ , vol.341 , Issue.161 , pp. 5814
    • Greenhalgh, T.1    Hinder, S.2    Stramer, K.3
  • 34
    • 79955130331 scopus 로고    scopus 로고
    • The digital divide in adoption and use of a personal health record
    • PID: 21444847
    • Yamin CK, Emani S, Williams DH et al (2011) The digital divide in adoption and use of a personal health record. Arch Intern Med 171(6):568–574. doi:10.1001/archinternmed.2011.34
    • (2011) Arch Intern Med , vol.171 , Issue.6 , pp. 568-574
    • Yamin, C.K.1    Emani, S.2    Williams, D.H.3
  • 35
    • 79953146489 scopus 로고    scopus 로고
    • How patients use access to their electronic GP record—a quantitative study
    • PID: 21084568
    • Bhavnani V, Fisher B, Winfield M et al (2011) How patients use access to their electronic GP record—a quantitative study. Fam Pract 28(2):188–194. doi:10.1093/fampra/cmq092
    • (2011) Fam Pract , vol.28 , Issue.2 , pp. 188-194
    • Bhavnani, V.1    Fisher, B.2    Winfield, M.3
  • 36
    • 37349067420 scopus 로고    scopus 로고
    • Interest in the use of computerized patient portals: role of the provider-patient relationship
    • PID: 18095039
    • Zickmund SL, Hess R, Bryce CL et al (2008) Interest in the use of computerized patient portals: role of the provider-patient relationship. J Gen Intern Med 23(Suppl 1):20–26. doi:10.1007/s11606-007-0273-6
    • (2008) J Gen Intern Med , vol.23 , pp. 20-26
    • Zickmund, S.L.1    Hess, R.2    Bryce, C.L.3
  • 37
    • 33644682163 scopus 로고    scopus 로고
    • Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption
    • COI: 1:CAS:528:DC%2BD2sXhtVersL3J, PID: 16357345
    • Tang PC, Ash JS, Bates DW et al (2006) Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption. J Am Med Inform Assoc 13(2):121–126. doi:10.1197/jamia.M2025
    • (2006) J Am Med Inform Assoc , vol.13 , Issue.2 , pp. 121-126
    • Tang, P.C.1    Ash, J.S.2    Bates, D.W.3
  • 38
    • 34548166799 scopus 로고    scopus 로고
    • Potential of electronic personal health records
    • PID: 17703042
    • Pagliari C, Detmer D, Singleton P (2007) Potential of electronic personal health records. BMJ 335(7615):330–333. doi:10.1136/bmj.39279.482963.AD
    • (2007) BMJ , vol.335 , Issue.7615 , pp. 330-333
    • Pagliari, C.1    Detmer, D.2    Singleton, P.3
  • 39
    • 54449097962 scopus 로고    scopus 로고
    • Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patients
    • PID: 18755989
    • Bourgeois FC, Taylor PL, Emans SJ et al (2008) Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patients. J Am Med Inform Assoc 15(6):737–743. doi:10.1197/jamia.M2865
    • (2008) J Am Med Inform Assoc , vol.15 , Issue.6 , pp. 737-743
    • Bourgeois, F.C.1    Taylor, P.L.2    Emans, S.J.3
  • 40
    • 4544349667 scopus 로고    scopus 로고
    • Use of a patient-accessible electronic medical record in a practice for congestive heart failure: patient and physician experiences
    • PID: 15187074
    • Earnest MA, Ross SE, Wittevrongel L et al (2004) Use of a patient-accessible electronic medical record in a practice for congestive heart failure: patient and physician experiences. J Am Med Inform Assoc 11(5):410–417. doi:10.1197/jamia.M1479
    • (2004) J Am Med Inform Assoc , vol.11 , Issue.5 , pp. 410-417
    • Earnest, M.A.1    Ross, S.E.2    Wittevrongel, L.3
  • 41
    • 78649979358 scopus 로고    scopus 로고
    • Transforming patient and family access to medical information: utilisation patterns of a patient-accessible electronic health record
    • PID: 20456816
    • Burke RP, Rossi AF, Wilner BR et al (2010) Transforming patient and family access to medical information: utilisation patterns of a patient-accessible electronic health record. Cardiol Young 20(5):477–484. doi:10.1017/S1047951110000363
    • (2010) Cardiol Young , vol.20 , Issue.5 , pp. 477-484
    • Burke, R.P.1    Rossi, A.F.2    Wilner, B.R.3
  • 42
    • 79960951886 scopus 로고    scopus 로고
    • Patient empowerment by electronic health records: first results of a systematic review on the benefit of patient portals
    • PID: 21685587
    • Ammenwerth E, Schnell-Inderst P, Hoerbst A (2011) Patient empowerment by electronic health records: first results of a systematic review on the benefit of patient portals. Stud Health Technol Inform 165:63–67. doi:10.3233/978-1-60750-735-2-63
    • (2011) Stud Health Technol Inform , vol.165 , pp. 63-67
    • Ammenwerth, E.1    Schnell-Inderst, P.2    Hoerbst, A.3
  • 43
    • 34547652416 scopus 로고    scopus 로고
    • Empowering patients undergoing in vitro fertilization by providing Internet access to medical data
    • PID: 17416366
    • Tuil WS, Verhaak CM, Braat DDM et al (2007) Empowering patients undergoing in vitro fertilization by providing Internet access to medical data. Fertil Steril 88(2):361–368. doi:10.1016/j.fertnstert.2006.11.197
    • (2007) Fertil Steril , vol.88 , Issue.2 , pp. 361-368
    • Tuil, W.S.1    Verhaak, C.M.2    Braat, D.D.M.3
  • 44
    • 84865095930 scopus 로고    scopus 로고
    • Personal health records and hypertension control: a randomized trial
    • PID: 22234404
    • Wagner PJ, Dias J, Howard S et al (2012) Personal health records and hypertension control: a randomized trial. J Am Med Inform Assoc 19(4):626–634. doi:10.1136/amiajnl-2011-000349
    • (2012) J Am Med Inform Assoc , vol.19 , Issue.4 , pp. 626-634
    • Wagner, P.J.1    Dias, J.2    Howard, S.3
  • 45
    • 66749104315 scopus 로고    scopus 로고
    • Acceptability of a personally controlled health record in a community-based setting: implications for policy and design
    • PID: 19403467
    • Weitzman ER, Kaci L, Mandl KD (2009) Acceptability of a personally controlled health record in a community-based setting: implications for policy and design. J Med Internet Res 11(2):e14. doi:10.2196/jmir.1187
    • (2009) J Med Internet Res , vol.11 , Issue.2 , pp. 14
    • Weitzman, E.R.1    Kaci, L.2    Mandl, K.D.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.