Breaking bad news, the diagnosis of cystic fibrosis in childhood

Journal of Cystic Fibrosis

Volumn 14, Issue 4, 2015, Pages 540-546

  Havermans, Trudy ^a   Tack, Jessica ^b   Vertommen, Anneke ^a   Proesmans, Marijke ^a   de Boeck, Kris ^a  

^a UNIVERSITY HOSPITALS LEUVEN   (Belgium)

^b UNIVERSITY OF LEUVEN   (Belgium)

Author keywords

Bad news; Communication; Coping; Cystic fibrosis diagnosis; Parents

Indexed keywords

ARTICLE; ATTITUDE TO ILLNESS; CHILD; CLINICAL ARTICLE; COPING BEHAVIOR; CYSTIC FIBROSIS; DISEASE SEVERITY; EMOTION; FEMALE; HUMAN; INFERTILITY; MALE; OSTEOPOROSIS; PARENTAL ATTITUDE; PHYSICIAN ATTITUDE; PRESCHOOL CHILD; PSEUDOMONAS AERUGINOSA; SEMI STRUCTURED INTERVIEW; SOCIAL SUPPORT; THINKING; ADAPTIVE BEHAVIOR; ADULT; INFANT; INTERPERSONAL COMMUNICATION; PARENT; PSYCHOLOGY; YOUNG ADULT;

ADAPTATION, PSYCHOLOGICAL; ADULT; CHILD; CHILD, PRESCHOOL; CYSTIC FIBROSIS; EMOTIONS; FEMALE; HUMANS; INFANT; MALE; PARENTS; TRUTH DISCLOSURE; YOUNG ADULT;

EID: 84937541123     PISSN: 15691993     EISSN: 18735010     Source Type: Journal    
DOI: 10.1016/j.jcf.2014.12.005     Document Type: Article

References (30)

1. Ptacek J., Eberhardt T. The patient-physician relationship: breaking bad news-a review of the literature. JAMA 1996, 276:496-502.
2. Fallowfield L., Jenkins V. Communicating sad, bad and difficult news in medicine. Lancet 2004, 363:312-319.
3. Jedlicka-Köhler I., Götz M., Eichler I. Parents' recollection of the initial communication of the diagnosis of cystic fibrosis. Pediatrics 1996, 97:204-209.
4. De Monestrol I., Brucefors A.B., Sjöberg B., Hjelte L. Parental experiences of a clinical cystic fibrosis diagnosis and impact on siblings and relatives http://www.dissertations.se.
5. Mack J.W., Grier H.E. The day one talk. J Clin Oncol 2004, 22(3):563-566.
6. Borrowitz D., Robinson K.A., Rosenfield M., Davis S.D., Sabadosa K.A., Spear S.L., et al. Cystic Fibrosis Foundation evidence-based guidelines for management of infants with cystic fibrosis. J Pediatr 2009, 155:S73-S93. 10.1016/j.jpeds.2009.09.001.
7. Smyth A.R., Bell S.C., Bojcin S., Bryon M., Duff A., Flume P., et al. European Cystic Fibrosis Society Standards of Care: best practice guidelines. J Cyst Fibros May 2014, 13(Suppl. 1):S23-S42. 10.1016/ j.jcf.2014.03.010.
8. Compas B.E., Connor-Smith J.K., Saltzman H., Thomsen A.H., Wadsworth M. Coping with stress during childhood and adolescence: progress, problems and potential. Psychol Bull 2001, 127:87-127.
9. Abbott J. Coping with cystic fibrosis. J R Soc Med 2003, 96:42-50.
10. Schreurs P.J.G., van de Willige G., Tellegen B., Brosschot J.F. De Utrechtse Coping Lijst: UCL-handleiding 1988, Lisse Swets & Zeitlinger.
11. Weiten W., Lloyd M.A. Psychology applied to modern life 2008, Wadsworth Cengage Learning. 9th ed.
12. Carver C.S., Connor-Smith J. Personality and coping. Annu Rev Psychol 2010, 61:679-704. (Review). 10.1146/ annurev.psych.093008.100352.
13. Marin T.J., Chen E., Munch T., Miller G. Double exposure to acute stress and chronic family stress is associated with immune changes in children with asthma. Psychosom Med 2009, 71:378-384. 10.1097/PSY.0b013e318199dbc3.
14. Wong M.G., Heriot S.A. Parents of children with CF: how they hope, cope and despair. Child Care Health 2008, 34(4):344-354. 10.1111/j.1365-2214.2007.00804.x.
15. Sheehan J., Hisock H., Massie J., Jaffe A., Hay M. Caregiver coping, mental health and child problem behavior in cystic fibrosis: a cross-sectional study. Int Soc Behav Med 2014, 21(2):211-220. 10.1007/s12529-013-9289-y.
16. Hodkova P., Abbott J., Mala I., Chladova H. Coping with cystic fibrosis-CF adults and parents of a child with CF in Czech Republic. J Cyst Fibros 2008, 7(2):110.
17. Compas B.E., Jaser S.S., Dunn M.J., Rodriguez E.M. Coping with chronic illness in childhood and adolescence. Annu Rev Clin Psychol 2012, 8:455-480. 10.1146/annurev-clinpsy-032511-143108.
18. Abbott J., Dodd M., Gee L., Webb K. Ways of coping with cystic fibrosis: implications for treatment adherence. Disabil Rehabil May 2001, 23(8):315-324.
19. Oshea J., Smith O., O'Marcaigh A., McMahon C., Geoghegan R., Cotter M. Breaking bad news: parents' experience of learning that their child has leukemia. Ir Med J 2007, 100(9):588-590.
20. Cohen J. Statistical power analysis for the behavioral sciences 1988, Lawrence Earlbaum Associates, Hillsdale NJ. 2nd ed.
21. Jurkovich G.J., Pierce B., Pananen L., Rivara F.P. Giving bad news: the family perspective. J Trauma Inj Infect Crit Care May 2000, 48(5):865-873.
22. Price Dillard J., Shen Lijiang, Robinson Jeffrey D., Farrell Phillip M. Parental information seeking following a positive newborn screening for cystic fibrosis. J Health Commun Int Perspect 2010, 15(8):880-894.
23. Hummelinck A., Pollock K. Parents' information needs about the treatment of their chronically ill child: a qualitative study. Patient Educ Couns 2006, 62:228-234.
24. Rosenbaum M.E., Ferguson K.J., Lobas J.G. Teaching medical students and residents skills for delivering bad news: a review of strategies. Acad Med 2004, 79(2):107-117.
25. Ptacek J.T., McIntosh E.G.J. Physician challenges in communicating bad news. Behav Med 2009, 32(4):380-387. 10.1007/s10865-009-9213-8.
26. Meert K.L., Eggly S., Pollack M., Anand K.J., Zimmerman J., Carcillo J., et al. Parents' perspectives on physician-parent communication near the time of a child's death in the pediatric intensive care unit. Pediatr Crit Care Med 2004, 9(1):2-7.
27. Tluczek A., Koscik R.L., Modaff P., Pfeil D., Rock M.J., Farrell P.M., et al. Newborn screening for cystic fibrosis: parents' preferences regarding counseling at the time of infants' sweat test. J Genet Couns 2006, 15(4):277-291.
28. Henry B., Moffitt T.E., Caspi A., Langley J., Silva P.A. On the "remembrance of things past": a longitudinal evaluation of the retrospective method. Psychol Assess 1994, 6:92-101.
29. Todd R.M., Talmi D., Schmitz T.W., Susskind J., Anderson A.K. Psychophysical and neural evidence for emotion-enhanced perceptual vividness. J Neurosci 2012, 32:11201-11212. 10.1523/JNEUROSCI. 0155-12.2012.
30. Castellani C., Southern K.W., Brownlee K., Dankert Roelse J., Duff A., Farrell M., et al. European best practice guidelines for cystic fibrosis neonatal screening. J Cyst Fibros 2009, 8(3):153-173. 10.1016/j.jcf.2009.01.004.