Who does not participate in telehealth trials and why? A cross-sectional survey

Trials

Volumn 16, Issue 1, 2015, Pages

  Foster, Alexis ^a   Horspool, Kimberley A ^a   Edwards, Louisa ^b   Thomas, Clare L ^b   Salisbury, Chris ^b   Montgomery, Alan A ^c   O'Cathain, Alicia ^a  

^a UNIVERSITY OF SHEFFIELD   (United Kingdom)

^b UNIVERSITY OF BRISTOL   (United Kingdom)

^c UNIVERSITY OF NOTTINGHAM   (United Kingdom)

Author keywords

Declines; Non participation; Recruitment; Refusers; Telehealth; Trials

Indexed keywords

ACCESS TO INFORMATION; ADULT; AGE; AGED; ARTICLE; CARDIOVASCULAR RISK; CROSS-SECTIONAL STUDY; DEPRESSION; ETHNIC DIFFERENCE; FEMALE; GENERAL PRACTICE; HEALTH BEHAVIOR; HEALTH CARE NEED; HUMAN; INTERNET; MAJOR CLINICAL STUDY; MALE; MIDDLE AGED; PATIENT PARTICIPATION; RANDOMIZED CONTROLLED TRIAL (TOPIC); TELEHEALTH; ATTITUDE TO COMPUTERS; ATTITUDE TO HEALTH; CONTROLLED STUDY; HEALTH CARE DELIVERY; PATIENT ATTITUDE; PATIENT SELECTION; PERCEPTION; POVERTY; PSYCHOLOGY; QUESTIONNAIRE; RANDOMIZED CONTROLLED TRIAL; RESEARCH SUBJECT; TELEMEDICINE; TIME FACTOR;

ADULT; AGED; ATTITUDE TO COMPUTERS; FEMALE; GENERAL PRACTICE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH SERVICES ACCESSIBILITY; HUMANS; MALE; MIDDLE AGED; PATIENT ACCEPTANCE OF HEALTH CARE; PATIENT SELECTION; PERCEPTION; POVERTY; RESEARCH SUBJECTS; SURVEYS AND QUESTIONNAIRES; TELEMEDICINE; TIME FACTORS;

EID: 84934945315     PISSN: None     EISSN: 17456215     Source Type: Journal    
DOI: 10.1186/s13063-015-0773-3     Document Type: Article

References (28)

1. Telecare Services Association. What is telehealth? http://www.telecare.org.uk/consumer-services/what-is-telehealth .
2. Mair FS, Goldstein P, Shiels C, Roberts C, Angus R, O'Connor J, et al. Recruitment difficulties in a home telecare trial. J Telemed and Telecare. 2006;12:26-8.
3. Subramanian U, Hopp F, Lowery J, Woodbridge P, Smith D. Research in home-care telemedicine: Challenges in patient recruitment. Telemed J E Health. 2004;10:155-61.
4. Gorst S, Armitage C, Brownsell S, Hawley M. Home telehealth uptake and continued use among heart failure and chronic obstructive pulmonary disease patients: A systematic review. Ann Behav Med. 2014;45(3):323-36.
5. Hughes-Morley A, Young B, Bower P. Factors affecting recruitment into depression trials: systematic review and meta-synthesis of qualitative evidence. Trials. 2013;14:82.
6. Sully B, Julious S, Nicholl J. A reinvestigation of recruitment to randomised, controlled, multicenter trials: a review of trials funded by two UK funding agencies. Trials. 2013;14:166.
7. Jones R, Jones RO, McCowan C, Montgomery A, Fahey T. The external validity of published randomized controlled trials in primary care. BMC Fam Practice. 2009;10:5.
8. Sanders C, Rogers A, Bowen R, Bower P, Hirani S, Cartwright M, et al. Exploring barriers to participation and adoption of telehealth and telecare within the Whole System Demonstrator trial: a qualitative study. BMC Health Serv Res. 2012;12:220.
9. Edwards L, Thomas C, Gregory A, Yardley L, O'Cathain A, Montgomery AA, et al. Are people with chronic diseases interested in using telehealth? A cross-sectional postal survey. J Med Internet Res. 2014;16(5):e123.
10. Newman S, Rixon L, Hirani SP, Cartwright M, Benyon M, Silva L, et al. Whole System Demonstrator Trial. Evaluation of Telehealth and Telecare: Who accepts and rejects the equipment and why. 2011. 2020 Annual Health Summit.
11. Mancini J, Nogues C, Adenis C, Berthet P, Bonadona V, Chompret A, et al. Patients' characteristics and rate of internet use to obtain cancer information. J of Public Health. 2006;28:235-7.
12. Herzog AR, Rodgers WL. Age and response rates to interview sample surveys. J Gerontol. 1988;43:200.
13. Williams B, Irvine L, McGinnis AR, McMurdo MET, Crombie IK. When "no" might not quite mean "no" the importance of informed and meaningful non-consent: results from a survey of individuals refusing participation in a health-related research project. BMC Health Serv Res. 2007;7:59.
14. Hardiker NR, Grant MJ. Factors that influence public engagement with eHealth: A literature review. Int J Med Inform. 2011;80(1):1-12.
15. Ekholm O, Gundgaard J, Rasmussen NKR, Hansen EH. The effect of health, socio-economic position, and mode of data collection on non-response in health interview surveys. Scand J Public Health. 2010;38:699-706.
16. Harald K, Salomaa V, Jousilahti P, Koskinen S, Vartiainen E. Non-participation and mortality in different socioeconomic groups: the FINRISK population surveys in 1972-92. J Epidemiol Commun H. 2007;61:449-54.
17. Hussain-Gambles M. Ethnic minority under-representation in clinical trials: Whose responsibility is it anyway? J Health Organization Management. 2003;17(2):138-43.
18. Palmas W, Teresi J, Morin PL, Wolf T, Field L, Eimicke JP, et al. Recruitment and enrollment of rural and urban medically underserved elderly into a randomized trial of telemedicine case management for diabetes care. Telemedicine and e-Health. 2006;12(5):601-7.
19. Bentley C, Mountain G, Thompson J, Fitzsimmons DA, Lowrie K, Parker S, et al. A pilot randomised controlled trial of a telehealth intervention in patients with chronic obstructive pulmonary disease: challenges of clinician-led data collection. Trials. 2014;15:313.
20. Lakerveld J, IJzelenberg W, van Tulder W, Hellemans I, Rauwerda J, van Rossum A, et al. Motives for (not) participating in a lifestyle intervention trial. BMC Med Res Methodol. 2008;8:17.
21. Jenkins V, Farewell V, Farewell D, Darmanin J, Wagstaff J, Langridge C, et al. Drivers and barriers to patient participation in RCTs. British J Cancer. 2013;108(7):1402-7.
22. Barnes M, Wiles N, Morrison J, Kessler D, Williams C, Kuyken W, et al. Exploring patients' reasons for declining contact in a cognitive behavioural therapy randomised controlled trial in primary care. Brit J Gen Pract. 2012;62.
23. Thomas CL, Man M, O'Cathain A, Hollinghurst S, Large S, Edwards E, et al. Effectiveness and cost-effectiveness of a telehealth intervention to support the management of long-term conditions: study protocol for two linked randomized controlled trials. Trials. 2014;15:36.
24. Public Health England: National General Practice Profiles. http://fingertips.phe.org.uk/profile/general-practice/data .
25. Cox K, McGarry J. Why patients don't take part in cancer clinical trials: an overview of the literature. Eur J Cancer Care. 2003;12(2):114-22.
26. Parker Oliver D, Demiris G, Wittenberg-Lyles E, Washington K, Porock D. Recruitment challenges and strategies in a home-based telehealth study. Telemedicine Journal and e-Health. 2010;16(7):839-43.
27. Kessler D, Lewis G, Kaur S, Wiles N, King M, Weich S, et al. Therapist-delivered internet psychotherapy for depression in primary care: a randomised controlled trial. Lancet. 2009;374(9690):628-34.
28. McLean S, Protti D, Sheikh A. Telehealthcare for long term conditions. BMJ. 2011;342:120.