Impact of the mobile health promise platform on the quality of care and quality of life in patients with inflammatory bowel disease: Study protocol of a pragmatic randomized controlled trial

JMIR Research Protocols

Volumn 4, Issue 1, 2015, Pages

  Atreja, Ashish ^a   Khan, Sameer ^a   Rogers, Jason D ^a   Otobo, Emamuzo ^a   Patel, Nishant P ^a   Ullman, Thomas ^a   Colombel, Jean Fred ^a   Moore, Shirley ^b   Sands, Bruce E ^a  

^a MOUNT SINAI SCHOOL OF MEDICINE   (United States)

^b CASE WESTERN RESERVE UNIVERSITY   (United States)

Author keywords

Engagement; Medical informatics; MHealth; Patient reported outcome

Indexed keywords

EID: 84932153741     PISSN: None     EISSN: 19290748     Source Type: Journal    
DOI: 10.2196/resprot.4042     Document Type: Article

References (30)

1. Cohen RD. The quality of life in patients with Crohn's disease. Aliment Pharmacol Ther 2002 Sep; 16(9):1603-1609 [FREE Full text] [Medline: 12197839]
2. Irvine EJ. Quality of life issues in patients with inflammatory bowel disease. Am J Gastroenterol 1997 Dec; 92(12 Suppl):18S-24S. [Medline: 9395348]
3. Atreja A, Bahuva R, Achkar JP, Brzezinski A, Shen B, Kandiel A, et al. Can patients reliably report quality indicators and disease phenotype? Proceedings of the 11th Advances in Inflammatory Bowel Diseases, Crohn's & Colitis Foundation's Clinical and Research Conference; 2011 Dec 1-3; Hollywood Florida. 2011 Dec Presented at: Advances in Inflammatory Bowel Diseases, Crohn's & Colitis Foundation's Clinical and Research Conference; 2011; Hollywood, FL.
4. De Feo J, Barnard W. Juran Institute's Six Sigma Breakthrough and Beyond: Quality Performance Breakthrough Methods. New York: McGraw-Hill; 2004.
5. McGlynn EA, Asch SM, Adams J, Keesey J, Hicks J, DeCristofaro A, et al. The quality of health care delivered to adults in the United States. N Engl J Med 2003 Jun 26; 348(26):2635-2645. [doi: 10.1056/NEJMsa022615] [Medline: 12826639]
6. Centers for Medicare & Medicaid Services (CMS) HHS. Medicare program; payment policies under the physician fee schedule, five-year review of work relative value units, clinical laboratory fee schedule: Signature on requisition, and other revisions to part B for CY 2012. Final rule with comment period. Fed Regist 2011 Nov 28; 76(228):73026-73474 [FREE Full text] [Medline: 22145186]
7. Kappelman MD, Dorn SD, Peterson E, Runge T, Allen JI. Quality of care for gastrointestinal conditions: A primer for gastroenterologists. Am J Gastroenterol 2011 Jul; 106(7):1182-1187. [doi: 10.1038/ajg.2011.118] [Medline: 21731014]
8. Wu SY, Green A. Projection of chronic illness prevalence and cost inflation. Santa Monica, CA: RAND Health 2000.
9. DeVol R, Bedroussian A, Charuworn A, Chatterjee A, Kim IK, Kim S, et al. Santa Monica, CA; Milken Institute. 2007. An unhealthy America: The economic burden of chronic disease & amp; #8212; charting a new course to save lives and increase productivity and economic growthURL: http://www.milkeninstitute.org/publications/view/321 [accessed 2015-01-24] [WebCite Cache ID 6Vpchmn0w]
10. Kappelman MD, Palmer L, Boyle BM, Rubin DT. Quality of care in inflammatory bowel disease: A review and discussion. Inflamm Bowel Dis 2010 Jan; 16(1):125-133. [doi: 10.1002/ibd.21028] [Medline: 19572335]
11. Reddy SI, Friedman S, Telford JJ, Strate L, Ookubo R, Banks PA. Are patients with inflammatory bowel disease receiving optimal care? Am J Gastroenterol 2005 Jun; 100(6):1357-1361. [doi: 10.1111/j.1572-0241.2005.40849.x] [Medline: 15929770]
12. HealthPROMISE. URL: http://www.healthpromise.org/[accessed 2015-01-23] [WebCite Cache ID 6Vnz6tNLa]
13. Sinai AppLab. URL: http://sinaiapplab.org/[accessed 2015-01-24] [WebCite Cache ID 6VpYjfzAE]
14. Guyatt GH, Feeny DH, Patrick DL. Measuring health-related quality of life. Ann Intern Med 1993 Apr 15; 118(8):622-629. [Medline: 8452328]
15. Patient Reported Outcomes Measurement Information System. URL: http://www.nihpromis.org/?AspxAutoDetectCookieSupport=1 [accessed 2015-01-29] [WebCite Cache ID 6VwoOV3St]
16. Project HealthDesign. URL: http://www.projecthealthdesign.org/[accessed 2015-01-29] [WebCite Cache ID 6VwooyhRQ]
17. Cretin S, Shortell SM, Keeler EB. An evaluation of collaborative interventions to improve chronic illness care. Framework and study design. Eval Rev 2004 Feb; 28(1):28-51. [doi: 10.1177/0193841X03256298] [Medline: 14750290]
18. Chen LM, Rein MS, Bates DW. Costs of quality improvement: A survey of four acute care hospitals. Jt Comm J Qual Patient Saf 2009 Nov; 35(11):544-550. [Medline: 19947330]
19. Wagner EH. Chronic disease management: what will it take to improve care for chronic illness? Eff Clin Pract 1998; 1(1):2-4 [FREE Full text] [Medline: 10345255]
20. Irvine EJ, Zhou Q, Thompson AK. The Short Inflammatory Bowel Disease Questionnaire: A quality of life instrument for community physicians managing inflammatory bowel disease. CCRPT Investigators. Canadian Crohn's Relapse Prevention Trial. Am J Gastroenterol 1996 Aug; 91(8):1571-1578. [Medline: 8759664]
21. Rabin R, de Charro F. EQ-5D: A measure of health status from the EuroQol Group. Ann Med 2001 Jul; 33(5):337-343. [Medline: 11491192]
22. Norman CD, Skinner HA. eHEALS: The eHealth Literacy Scale. J Med Internet Res 2006; 8(4):e27 [FREE Full text] [doi: 10.2196/jmir.8.4.e27] [Medline: 17213046]
23. Hibbard JH, Mahoney ER, Stockard J, Tusler M. Development and testing of a short form of the patient activation measure. Health Serv Res 2005 Dec; 40(6 Pt 1):1918-1930 [FREE Full text] [doi: 10.1111/j.1475-6773.2005.00438.x] [Medline: 16336556]
24. Allen, JI, Dassopoulos T. American Gastroenterology Association. Adult inflammatory bowel disease physician performance measures setURL: http://www.gastro.org/practice/quality-initiatives/IBD_Measures.pdf [accessed 2014-12-17] [WebCite Cache ID 6UtODYrqT]
25. The physician quality reporting system. American Gastroenterology AssociationURL: http://www.gastro.org/practice/quality-initiatives/cms-physician-qualitative-report-initiative [accessed 2014-12-17] [WebCite Cache ID 6UtOQyLtX]
26. Cebul RD, Love TE, Jain AK, Hebert CJ. Electronic health records and quality of diabetes care. N Engl J Med 2011 Sep 1; 365(9):825-833. [doi: 10.1056/NEJMsa1102519] [Medline: 21879900]
27. Kanwal F, Schnitzler MS, Bacon BR, Hoang T, Buchanan PM, Asch SM. Quality of care in patients with chronic hepatitis C virus infection: A cohort study. Ann Intern Med 2010 Aug 17; 153(4):231-239. [doi: 10.7326/0003-4819-153-4-201008170-00005] [Medline: 20713791]
28. Riippa I, Linna M, Rönkkö I. The effect of a patient portal with electronic messaging on patient activation among chronically ill patients: Controlled before-and-after study. J Med Internet Res 2014; 16(11):e257 [FREE Full text] [doi: 10.2196/jmir.3462] [Medline: 25413368]
29. Kuijpers W, Groen WG, Aaronson NK, van Harten WH. A systematic review of web-based interventions for patient empowerment and physical activity in chronic diseases: Relevance for cancer survivors. J Med Internet Res 2013; 15(2):e37 [FREE Full text] [doi: 10.2196/jmir.2281] [Medline: 23425685]
30. Eysenbach G, CONSORT-EHEALTH Group. CONSORT-EHEALTH: Improving and standardizing evaluation reports of Web-based and mobile health interventions. J Med Internet Res 2011; 13(4):e126 [FREE Full text] [doi: 10.2196/jmir.1923] [Medline: 22209829]