Burden of illness in hereditary angioedema: A conceptual model

Acta Dermato-Venereologica

Volumn 95, Issue 6, 2015, Pages 706-710

  Bygum, Anette ^a   Aygören Pürsün, Emel ^b   Beusterien, Kathleen ^c   Hautamaki, Emily ^d   Sisic, Zlatko ^e   Wait, Suzanne ^f   Boysen, Henrik B ^g   Caballero, Teresa ^h  

^a ODENSE UNIVERSITY HOSPITAL   (Denmark)

^b UNIVERSITY HOSPITAL FRANKFURT   (Germany)

^c Outcomes Research Strategies in Health   (United States)

^d ICON PLC   (United Kingdom)

^e ViroPharma Chatsworth House   (United Kingdom)

^f SHW Health Ltd   (United Kingdom)

^g HAEi International Patient Organization for C1 Inhibitor Deficiencies   (Denmark)

^h HOSPITAL UNIVERSITARIO LA PAZ   (Spain)

Author keywords

Burden of illness; C1 inhibitor deficiency; Conceptual model; HAE; Health related quality of life; Hereditary angioedema

Indexed keywords

ACADEMIC ACHIEVEMENT; ADOLESCENT; ADULT; AGED; ANGIONEUROTIC EDEMA; ANXIETY; ARTICLE; AWARENESS; CAREER; CAREGIVER BURDEN; CLINICAL ARTICLE; CONCEPTUAL FRAMEWORK; CROSS-SECTIONAL STUDY; DELAYED DIAGNOSIS; DENMARK; DISEASE SEVERITY; DISEASES; ECONOMIC ASPECT; EMOTIONAL STRESS; FEAR; FEMALE; GERMANY; HEALTH CARE UTILIZATION; HEREDITARY ANGIOEDEMA BURDEN OF ILLNESS STUDY IN EUROPE; HUMAN; LONG TERM CARE; MALE; MIDDLE AGED; OPEN ENDED QUESTIONNAIRE; OUTCOME ASSESSMENT; PRIORITY JOURNAL; PRODUCTIVITY; QUALITATIVE ANALYSIS; QUALITATIVE RESEARCH; QUALITY OF LIFE; QUALITY OF LIFE ASSESSMENT; SEMI STRUCTURED INTERVIEW; SOCIAL INTERACTION; SOCIAL PSYCHOLOGY; SPAIN; YOUNG ADULT; CAREGIVER; COST OF ILLNESS; EDUCATIONAL STATUS; EMPLOYMENT; ETIOLOGY; INTERVIEW; PSYCHOLOGICAL MODEL; PSYCHOLOGY; UNNECESSARY PROCEDURE;

ADOLESCENT; ADULT; AGED; ANGIOEDEMAS, HEREDITARY; ANXIETY; CAREGIVERS; COST OF ILLNESS; DENMARK; EDUCATIONAL STATUS; EMPLOYMENT; FEMALE; GERMANY; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; MODELS, PSYCHOLOGICAL; QUALITATIVE RESEARCH; QUALITY OF LIFE; SPAIN; UNNECESSARY PROCEDURES; YOUNG ADULT;

EID: 84932082455     PISSN: 00015555     EISSN: 16512057     Source Type: Journal    
DOI: 10.2340/00015555-2014     Document Type: Article

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