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Volumn 35, Issue 1, 2014, Pages 47-53

The humanistic burden of hereditary angioedema: Results from the Burden of Illness Study in Europe

Author keywords

[No Author keywords available]

Indexed keywords

ABDOMEN; ADULT; ANGIONEUROTIC EDEMA; ANXIETY; CONFERENCE PAPER; CONTROLLED STUDY; DAILY LIFE ACTIVITY; DEPRESSION; DISEASE SEVERITY; EUROPE; FEMALE; HEALTH CARE QUALITY; HOSPITAL ANXIETY AND DEPRESSION SCALE; HUMAN; LIMB; MAJOR CLINICAL STUDY; MALE; PAIN; SWELLING; WELLBEING; ARTICLE; CHILD; CLINICAL FEATURE; CROSS-SECTIONAL STUDY; DISEASE CLASSIFICATION; DISEASE DURATION; EMOTIONALITY; HEALTH IMPACT ASSESSMENT; PAIN ASSESSMENT; PAIN INTENSITY; POPULATION RESEARCH; PSYCHOLOGICAL WELL-BEING; QUALITY OF LIFE; SOCIAL PSYCHOLOGY; SYMPTOMATOLOGY;

EID: 84987657462     PISSN: 10885412     EISSN: 15396304     Source Type: Journal    
DOI: 10.2500/aap.2013.34.3685     Document Type: Conference Paper
Times cited : (154)

References (32)
  • 1
    • 0026645882 scopus 로고
    • Hereditary and acquired c1-inhibitor deficiency: Biological and clinical characteristics in 235 patients
    • Agostoni A, and Cicardi M. Hereditary and acquired C1-inhibitor deficiency: Biological and clinical characteristics in 235 patients. Medicine 71:206-215, 1992.
    • (1992) Medicine , vol.71 , pp. 206-215
    • Agostoni, A.1    Cicardi, M.2
  • 2
    • 0017077229 scopus 로고
    • Hereditary angioedema: The clinical syndrome and its management
    • Frank MM, Gelfand JA, and Atkinson JP. Hereditary angioedema: The clinical syndrome and its management. Ann Intern Med 84:580-593, 1976.
    • (1976) Ann Intern Med , vol.84 , pp. 580-593
    • Frank, M.M.1    Gelfand, J.A.2    Atkinson, J.P.3
  • 3
    • 80051740953 scopus 로고    scopus 로고
    • Consensus statement on the diagnosis management and treatment of angioedema mediated by bradykinin. Part i. Classification epidemiology pathophysiology genetics clinical symptoms and diagnosis
    • Caballero T, Baeza ML, CabañasR, et al. Consensus statement on the diagnosis, management, and treatment of angioedema mediated by bradykinin. Part I. Classification, epidemiology, pathophysiology, genetics, clinical symptoms, and diagnosis. J Investig Allergol Clin Immunol 21:333-347, 2011.
    • (2011) J Investig Allergol Clin Immunol , vol.21 , pp. 333-347
    • Caballero, T.1    Baeza, M.L.2    Cabañas, R.3
  • 4
    • 32844469701 scopus 로고    scopus 로고
    • Hereditary angioedema: New findings concerning symptoms, affected organs, and course
    • Bork K, Meng G, Staubach P, and Hardt J. Hereditary angioedema: New findings concerning symptoms, affected organs, and course. Am J Med 119:267-274, 2006.
    • (2006) Am J Med , vol.119 , pp. 267-274
    • Bork, K.1    Meng, G.2    Staubach, P.3    Hardt, J.4
  • 5
    • 71949124734 scopus 로고    scopus 로고
    • Hereditary angio-oedema in denmark: A nationwide survey
    • Bygum A. Hereditary angio-oedema in Denmark: A nationwide survey. Br J Dermatol 161:1153-1158, 2009.
    • (2009) Br J Dermatol , vol.161 , pp. 1153-1158
    • Bygum, A.1
  • 6
    • 50949089029 scopus 로고    scopus 로고
    • Clinical practice. Hereditary angioedema
    • Zuraw BL. Clinical practice. Hereditary angioedema. N Engl J Med 359:1027-1036, 2008.
    • (2008) N Engl J Med , vol.359 , pp. 1027-1036
    • Zuraw, B.L.1
  • 7
    • 0037906201 scopus 로고    scopus 로고
    • Clinical studies of sudden upper airway obstruction in patients with hereditary angioedema due to c1 esterase inhibitor deficiency
    • Bork K, Hardt J, Schicketanz KH, and Ressel N. Clinical studies of sudden upper airway obstruction in patients with hereditary angioedema due to C1 esterase inhibitor deficiency. Arch Intern Med 163:1229-1235, 2003.
    • (2003) Arch Intern Med , vol.163 , pp. 1229-1235
    • Bork, K.1    Hardt, J.2    Schicketanz, K.H.3    Ressel, N.4
  • 8
    • 84865676871 scopus 로고    scopus 로고
    • Fatal laryngeal attacks and mortality in hereditary angioedema due to c1-inh deficiency
    • Bork K, Hardt J, and Witzke G. Fatal laryngeal attacks and mortality in hereditary angioedema due to C1-INH deficiency. J Allergy Clin Immunol 130:692-697, 2012.
    • (2012) J Allergy Clin Immunol , vol.130 , pp. 692-697
    • Bork, K.1    Hardt, J.2    Witzke, G.3
  • 9
    • 84862565650 scopus 로고    scopus 로고
    • Current options for prophylactic treatment of hereditary angioedema in the united states: Patient-based considerations
    • Gower RG, Lumry WR, Davis-Lorton MA, et al. Current options for prophylactic treatment of hereditary angioedema in the United States: Patient-based considerations. Allergy Asthma Proc 33:235-240, 2012.
    • (2012) Allergy Asthma Proc , vol.33 , pp. 235-240
    • Gower, R.G.1    Lumry, W.R.2    Davis-Lorton, M.A.3
  • 10
    • 17444402829 scopus 로고    scopus 로고
    • Hereditary angioedema due to c1 inhibitor deficiency: Patient registry and approach to the prevalence in spain
    • Roche O, Blanch A, Caballero T, et al. Hereditary angioedema due to C1 inhibitor deficiency: Patient registry and approach to the prevalence in Spain. Ann Allergy Asthma Immunol 94:498-503, 2005.
    • (2005) Ann Allergy Asthma Immunol , vol.94 , pp. 498-503
    • Roche, O.1    Blanch, A.2    Caballero, T.3
  • 11
    • 4444225379 scopus 로고    scopus 로고
    • Hereditary and acquired angioedema: Problems and progress: Proceedings of the third c1 esterase inhibitor deficiency workshop and beyond
    • Agostoni A, Aygören-Pr̈sün E, Binkley KE, et al. Hereditary and acquired angioedema: Problems and progress: Proceedings of the third C1 esterase inhibitor deficiency workshop and beyond. J Allergy Clin Immunol 114:S51-S131, 2004.
    • (2004) J Allergy Clin Immunol , vol.114
    • Agostoni, A.1    Aygören-Pr̈sün, E.2    Binkley, K.E.3
  • 12
    • 78650897413 scopus 로고    scopus 로고
    • 2010 International consensus algorithm for the diagnosis, therapy and management of hereditary angioedema
    • Bowen T, Cicardi M, Farkas H, et al. 2010 International consensus algorithm for the diagnosis, therapy and management of hereditary angioedema. Allergy Asthma Clin Immunol 6:24, 2010.
    • (2010) Allergy Asthma Clin Immunol , vol.6 , pp. 24
    • Bowen, T.1    Cicardi, M.2    Farkas, H.3
  • 13
    • 84855779242 scopus 로고    scopus 로고
    • Evidence-based recommendations for the therapeutic management of angioedema owing to hereditary c1 inhibitor deficiency: Consensus report of an international working group
    • Cicardi M, Bork K, Caballero T, et al. Evidence-based recommendations for the therapeutic management of angioedema owing to hereditary C1 inhibitor deficiency: Consensus report of an International Working Group. Allergy 67:147-157, 2012.
    • (2012) Allergy , vol.67 , pp. 147-157
    • Cicardi, M.1    Bork, K.2    Caballero, T.3
  • 14
    • 80054010067 scopus 로고    scopus 로고
    • Consensus statement on the diagnosis, management, and treatment of angioedema mediated by bradykinin. Part ii. Treatment, followup, and special situations
    • Caballero T, Baeza ML, Cabanas R, et al. Consensus statement on the diagnosis, management, and treatment of angioedema mediated by bradykinin. Part II. Treatment, followup, and special situations. J Investig Allergol Clin Immunol 21:422-441, 2011.
    • (2011) J Investig Allergol Clin Immunol , vol.21 , pp. 422-441
    • Caballero, T.1    Baeza, M.L.2    Cabanas, R.3
  • 16
    • 84872302853 scopus 로고    scopus 로고
    • Wao guideline for the management of hereditary angioedema
    • Craig T, Pü rsün EA, Bork K, et al. WAO guideline for the management of hereditary angioedema. World Allergy Organ J 5:182-199, 2012.
    • (2012) World Allergy Organ J , vol.5 , pp. 182-199
    • Craig, T.1    Pürsün, E.A.2    Bork, K.3
  • 17
    • 84856500063 scopus 로고    scopus 로고
    • International consensus and practical guidelines on the gynecologic and obstetric management of female patients with hereditary angioedema caused by c1 inhibitor deficiency
    • Caballero T, Farkas H, Bouillet L, et al. International consensus and practical guidelines on the gynecologic and obstetric management of female patients with hereditary angioedema caused by C1 inhibitor deficiency. J Allergy Clin Immunol 129:308-320, 2012.
    • (2012) J Allergy Clin Immunol , vol.129 , pp. 308-320
    • Caballero, T.1    Farkas, H.2    Bouillet, L.3
  • 18
    • 77958102578 scopus 로고    scopus 로고
    • The humanistic burden of hereditary angioedema: Impact on health-related quality of life, productivity, and depression
    • Lumry WR, Castaldo AJ, Vernon MK, et al. The humanistic burden of hereditary angioedema: Impact on health-related quality of life, productivity, and depression. Allergy Asthma Proc 31:407-414, 2010.
    • (2010) Allergy Asthma Proc , vol.31 , pp. 407-414
    • Lumry, W.R.1    Castaldo, A.J.2    Vernon, M.K.3
  • 19
    • 84866153807 scopus 로고    scopus 로고
    • Health-related quality of life in adult patients with hereditary angioedema due to c1. Inhibitor deficiency (hae-c1-inh) assessed by sf-36v2: Preliminary results of an international study
    • 30th Congress of the European Academy of Allergy and Clinical Immunology Istanbul Turkey Conference June 11-25
    • Caballero T, Caminoa M, Prior N, et al. Health-related quality of life in adult patients with hereditary angioedema due to C1. inhibitor deficiency (HAE-C1-INH) assessed by SF-36v2: Preliminary results of an international study. Allergy: European Journal of Allergy and Clinical Immunology Conference, 30th Congress of the European Academy of Allergy and Clinical Immunology Istanbul Turkey Conference June 11-25, 2012.
    • (2012) Allergy: European Journal of Allergy and Clinical Immunology Conference
    • Caballero, T.1    Caminoa, M.2    Prior, N.3
  • 20
    • 65449188723 scopus 로고    scopus 로고
    • Self-administration of intravenous c1-inhibitor therapy for hereditary angioedema and associated quality of life benefits
    • Bygum A, Andersen KE, and Mikkelsen CS. Self-administration of intravenous C1-inhibitor therapy for hereditary angioedema and associated quality of life benefits. Eur J Dermatol 19:147-151, 2009.
    • (2009) Eur J Dermatol , vol.19 , pp. 147-151
    • Bygum, A.1    Andersen, K.E.2    Mikkelsen, C.S.3
  • 21
    • 69249189438 scopus 로고    scopus 로고
    • C1-inhibitor concentrate for individual replacement therapy in patients with severe hereditary angioedema refractory to danazol prophylaxis
    • Kreuz W, Martinez-Saguer I, Aygören-Pü rsün E, et al. C1-inhibitor concentrate for individual replacement therapy in patients with severe hereditary angioedema refractory to danazol prophylaxis. Transfusion 49:1987-1995, 2009.
    • (2009) Transfusion , vol.49 , pp. 1987-1995
    • Kreuz, W.1    Martinez-Saguer, I.2    Aygören-Pürsün, E.3
  • 22
    • 84866772079 scopus 로고    scopus 로고
    • C1-inhibitor therapy for hereditary angioedema attacks: Prospective patient assessments of health-related quality of life
    • Bewtra AK, Levy RJ, Jacobson KW, et al. C1-inhibitor therapy for hereditary angioedema attacks: Prospective patient assessments of health-related quality of life. Allergy Asthma Proc 33:427-431, 2012.
    • (2012) Allergy Asthma Proc , vol.33 , pp. 427-431
    • Bewtra, A.K.1    Levy, R.J.2    Jacobson, K.W.3
  • 23
    • 84862220879 scopus 로고    scopus 로고
    • The hereditary angioedema burden of illness study in europe (hae-boiseurope): Background and methodology
    • Bygum A, Aygören-Pü rsün E, Caballero T, et al. The hereditary angioedema burden of illness study in Europe (HAE-BOISEurope): Background and methodology. BMC Dermatol 12:4, 2012.
    • (2012) BMC Dermatol , vol.12 , pp. 4
    • Bygum, A.1    Aygören-Pürsün, E.2    Caballero, T.3
  • 24
    • 0020527558 scopus 로고
    • The hospital anxiety and depression scale
    • Zigmond AS, and Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand 67:361-370, 1983.
    • (1983) Acta Psychiatr Scand , vol.67 , pp. 361-370
    • Zigmond, A.S.1    Snaith, R.P.2
  • 25
    • 29244491996 scopus 로고    scopus 로고
    • The hospital anxiety and depression rating scale: A cross-sectional study of psychometrics and case finding abilities in general practice
    • Olsson I, Mykletun A, and Dahl AA. The hospital anxiety and depression rating scale: A cross-sectional study of psychometrics and case finding abilities in general practice. BMC Psychiatry 5:46, 2005.
    • (2005) BMC Psychiatry , vol.5 , pp. 46
    • Olsson, I.1    Mykletun, A.2    Dahl, A.A.3
  • 26
    • 79960467702 scopus 로고    scopus 로고
    • Normative values for the hospital anxiety and depression scale (hads) in the general german population
    • Hinz A, and Brahler E. Normative values for the hospital anxiety and depression scale (HADS) in the general german population. J Psychosom Res 71:74-78, 2011.
    • (2011) J Psychosom Res , vol.71 , pp. 74-78
    • Hinz, A.1    Brahler, E.2
  • 27
    • 2442532954 scopus 로고    scopus 로고
    • Results of an on-line survey of patients with hereditary angioedema
    • Huang SW. Results of an on-line survey of patients with hereditary angioedema. Allergy Asthma Proc 25:127-131, 2004.
    • (2004) Allergy Asthma Proc , vol.25 , pp. 127-131
    • Huang, S.W.1
  • 28
    • 35949002406 scopus 로고    scopus 로고
    • The emotional effects of genetic diseases: Implications for clinical genetics
    • McAllister M, Davies L, Payne K, et al. The emotional effects of genetic diseases: Implications for clinical genetics. Am J Med Genet 143:15, 2007.
    • (2007) Am J Med Genet , vol.143 , pp. 15
    • McAllister, M.1    Davies, L.2    Payne, K.3
  • 29
    • 34547673154 scopus 로고    scopus 로고
    • The cycle of migraine: Patients' quality of life during and between migraine attacks
    • Freitag FG. The cycle of migraine: Patients' quality of life during and between migraine attacks. Clin Ther 29:939-949, 2007.
    • (2007) Clin Ther , vol.29 , pp. 939-949
    • Freitag, F.G.1
  • 30
    • 84873508381 scopus 로고    scopus 로고
    • Hereditary angioedema attacks resolve faster and are shorter after early icatibant treatment
    • Maurer M, Aberer W, Bouillet L, et al. Hereditary angioedema attacks resolve faster and are shorter after early icatibant treatment. PLoS ONE 8:e53773, 2013.
    • (2013) PLoS ONE , vol.8
    • Maurer, M.1    Aberer, W.2    Bouillet, L.3
  • 31
    • 3142748608 scopus 로고    scopus 로고
    • Patterns of consent in epidemiologic research: Evidence from over 25,000 responders
    • Dunn KM, Jordan K, Lacey RJ, et al. Patterns of consent in epidemiologic research: Evidence from over 25,000 responders. Am J Epidemiol 159:1087-1094, 2004.
    • (2004) Am J Epidemiol , vol.159 , pp. 1087-1094
    • Dunn, K.M.1    Jordan, K.2    Lacey, R.J.3
  • 32
    • 84874334318 scopus 로고    scopus 로고
    • Hae update: Epidemiology and burden of disease
    • Bernstein JA. HAE update: Epidemiology and burden of disease. Allergy Asthma Procs 34:3-6, 2013.
    • (2013) Allergy Asthma Procs , vol.34 , pp. 3-6
    • Bernstein, J.A.1


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