'You can't say, "what about me?" I'm not the one with cancer': Information and support needs of relatives

Psycho-Oncology

Volumn 24, Issue 6, 2015, Pages 705-711

  Foster, Claire ^a   Myall, Michelle ^a   Scott, Isobel ^a   Sayers, Mary ^a   Brindle, Lucy ^a   Cotterell, Phil ^a   Addington Hall, Julia ^a   Hopkinson, Jane ^b   Payne, Sheila ^c   Robinson, Judith ^a  

^a UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

^b CARDIFF UNIVERSITY   (United Kingdom)

^c LANCASTER UNIVERSITY   (United Kingdom)

Author keywords

cancer; information needs; information sharing; oncology; relatives of cancer patients; support

Indexed keywords

ADULT; AGED; ARTICLE; CANCER PATIENT; CLINICAL ARTICLE; CONFUSION (UNCERTAINTY); CONTROLLED STUDY; CROSS-SECTIONAL STUDY; EMOTION; FAMILY COPING; FEMALE; HUMAN; INFORMATION SEEKING; INTERPERSONAL COMMUNICATION; MALE; PATIENT CARE; PATIENT PREFERENCE; PERSONAL EXPERIENCE; RELATIVE; SEMI STRUCTURED INTERVIEW; SOCIAL NETWORK; SOCIAL SUPPORT; SUPPORT GROUP; THEMATIC ANALYSIS; WELLBEING; FAMILY; INFORMATION DISSEMINATION; MIDDLE AGED; NEEDS ASSESSMENT; NEOPLASM; PSYCHOLOGY; QUALITATIVE RESEARCH; SPOUSE;

ADULT; AGED; COMMUNICATION; CROSS-SECTIONAL STUDIES; DISCLOSURE; FAMILY; FEMALE; HUMANS; INFORMATION DISSEMINATION; MALE; MIDDLE AGED; NEEDS ASSESSMENT; NEOPLASMS; QUALITATIVE RESEARCH; SOCIAL SUPPORT; SPOUSES;

EID: 84930947360     PISSN: 10579249     EISSN: 10991611     Source Type: Journal    
DOI: 10.1002/pon.3716     Document Type: Article

References (19)

1. Macmillan Cancer Support. Two Million Reasons-The Cancer Survivorship Agenda: Why We Need to Support People with or beyond Cancer. Macmillan Cancer Support: London, UK, 2008.
2. Caughlin JP, Mikcucki-Enyart SL, et al,. Being open without talking about it: a rhetorical/normative approach to understanding topic avoidance in families after a lung cancer diagnosis. Commun Monogr 2011; 78 (4): 409-436.
3. Miller L,. Uncertainty management and information seeking in cancer survivorship. Health Commun 2014; 29 (3): 233-243.
4. Given CW, Given BA,. The home care of a patient with cancer: the midlife crisis. In Family Caregiving Across the Lifespan, Kahana E, Biegel DE, Wykle ML, (eds.). Thousand Oaks: CA: Sage, 1994; 240-261.
5. Wilkinson S, Kitzinger C,. Thinking differently about thinking positive: a discursive approach to cancer patients' talk. Soc Sci Med 2000; 50: 797-811.
6. Pitceathly C, Maguire P,. The psychological impact of cancer on patients' partners and other key relatives: a review. Eur J Cancer 2003; 39: 1517-1524.
7. Brashers DE, Goldsmith DJ, Hsieh E,. Information seeking and avoiding in health contexts. Health Commun Res 2002; 28 (2): 258-271.
8. Brashers DE, Neidig JL, Haas SM, Dobbs LK, Cardillo LW, Russell JA,. Communication in the management of uncertainty: the case of persons living with HIV or AIDS. Commun Monogr 2000; 67: 63-84.
9. Case DO, Andrews JE, Johnson JD, Allard SL,. Avoidance versus seeking: the relationship of information seeking to avoidance, blunting, coping, dissonance and related concepts. J Med Libr Assoc 2005; 93: 353-362.
10. Goldsmith DJ,. A normative approach to the study of uncertainty and communication. J Commun 2001; 51: 514-533.
11. Goldsmith DJ,. Managing conflicting goals in supportive interaction: an integrative theoretical framework. Commun Res 1992; 19: 264-286.
12. Ritchie J, Spencer E,. Qualitative data analysis for applied policy research. In Analyzing Qualitative Data, Bryman, A, Burgess RG, (eds.), Routledge: London, 1993, 173-194.
13. Kenen R, Ardern-Jones A, Eeles R,. We are talking. But are they listening? Communication patterns in families with a history of breast/ovarian cancer (HBOC). Psycho-Oncology 2004; 13: 335-345.
14. Kristjanson LJ,. Caring from families of people with cancer evidence and interventions. Cancer Forum 2004; 28: 123-128.
15. Ussher J, Kirsten L, Butow P, Sandoval M,. What do cancer support groups provide which other supportive relationships do not? The experience of peer support groups for people with cancer. Soc Sci Med 2006; 62: 2565-2576.
16. Northouse L, Katapodi M, Song L, et al,. Interventions with family caregivers of cancer patients: meta-analysis of randomised trials, CA Cancer J Clin 2010; 60: 317-319.
17. Wright K,. Social support within an on-line cancer community: an assessment of emotional support, perceptions of advantages and disadvantages, and motives for using the community from a communication perspective. J Appl Commun Res 2002; 30; 195-209.
18. James N, Daniels H, Rahman R, et al,. A study of information seeking by cancer patients and their carers. Clin Oncol (R Coll Radiol) 2007; 19: 356-362.
19. Eriksson E, Lauri S,. Informational and emotional support for cancer patients' relatives. Eur J Cancer Care 2000; 1: 8-15.