Determining research priorities for adolescent and young adult cancer in Australia

European Journal of Cancer Care

Volumn 24, Issue 4, 2015, Pages 590-599

  Medlow, S ^a   Patterson, P ^a,b  

^a CanTeen Australia ^*  (Australia)

^b UNIVERSITY OF SYDNEY   (Australia)

Author keywords

Adolescents; Biomedical research; Cancer; Clinical medicine; Health services; Young adults

Indexed keywords

ADOLESCENT; ADULT; FEMALE; HUMAN; MALE; NEEDS ASSESSMENT; NEOPLASMS; ONCOLOGY; QUESTIONNAIRE; RESEARCH; YOUNG ADULT;

ADOLESCENT; ADULT; FEMALE; HUMANS; MALE; MEDICAL ONCOLOGY; NEEDS ASSESSMENT; NEOPLASMS; RESEARCH; SURVEYS AND QUESTIONNAIRES; YOUNG ADULT;

EID: 84930930866     PISSN: 09615423     EISSN: 13652354     Source Type: Journal    
DOI: 10.1111/ecc.12291     Document Type: Article

References (26)

1. Anderson B., Fagan P., Woodnutt T. & Chamorro-Premuzic T. (2012) Facebook psychology: popular questions answered by research. Psychology of Popular Media Culture 1, 23-37.
2. Arora R.S., Alston R.D., Eden T.O.B., Geraci M. & Birch J.M. (2012) The contrasting age-incidence patterns of bone tumours in teenagers and young adults: implications for aetiology. International Journal of Cancer 131, 1678-1685.
3. Australian Institute of Health and Welfare (AIHW) (2011) Cancer in Adolescents and Young Adults in Australia. Cancer Series No. 62. Cat. No. CAN 59. AIHW, Canberra, Australia.
4. Bleyer A. (2007) Young adult oncology: the patients and their survival challenges. CA: A Cancer Journal for Clinicians 57, 242-255.
5. Bleyer A. (2009) Adolescent and young adult (AYA) cancers: distinct biology, different therapy? Cancer Forum 33, 4-10.
6. Child R.J.H., Mentes J.C., Pavlish C. & Phillips L.R. (2014) Using Facebook and participant information clips to recruit emergency nurses for research. Nurse Researcher 21, 16-21.
7. Clinton-McHarg T., Paul C., Sanson-Fisher R., D'Este C. & Williamson A. (2010) Determining research priorities for young people with haematological cancer: a value-weighting approach. European Journal of Cancer 46, 3263-3270.
8. Collins M., Wilhelm M., Conyers R., Herschtal A., Whelan J., Bielack S., Kager L., Kühne T., Sydes M., Gelderblom H., Ferrari S., Picci P., Smeland S., Eriksson M., Petrilli A.S., Bleyer A. & Thomas D.M. (2013) Benefits and adverse events in younger versus older patients receiving neoadjuvant chemotherapy for osteosarcoma: findings from a meta-analysis. Journal of Clinical Oncology 31, 2303-2312.
9. Crawshaw M.A. & Sloper P. (2010) 'Swimming against the tide' - the influence of fertility matters on the transition to adulthood or survivorship following adolescent cancer. European Journal of Cancer Care 19, 610-620.
10. D'Agostino N.M. & Edelstein K. (2013) Psychosocial challenges and resource needs of young adult cancer survivors: implications for program development. Journal of Psychosocial Oncology 31, 585-600.
11. Fern L. & Whelan J. (2013) National Cancer Research Institute Teenage and Young Adult Clinical Studies Group: the United Kingdom approach to research. International perspectives on AYAO, Part 4. Journal of Adolescent and Young Adult Oncology 2, 161-166.
12. Fernandez C., Fraser G.A.M., Freeman C., Grunfeld E., Gupta A., Mery L.S., De Pauw S. & Schacter B. (2011) Principles and recommendations for the provision of healthcare in Canada to adolescent and young adult-aged cancer patients and survivors. Journal of Adolescent and Young Adult Oncology 1, 53-59.
13. George R. & Craig F. (2009) Palliative care for young people with cancer. Cancer Forum 33, 28-33. Available at: https://www.icrpartnership.org/CSO.cfm
14. International Cancer Research Partnership (2012) Cancer Research Funding from an International Perspective. ICRP, Canada.
15. McGoldrick D., Neal C. & Whiteson M. (2008) Advocacy and adolescent/young adult cancer survivors. Pediatric Blood and Cancer 50, 1109-1111.
16. Padhye B. & Gabriel M. (2013) Cancer in adolescents and young adults. In: A Clinical Handbook in Adolescent Medicine: A Guide for Health Professionals Who Work with Adolescents and Young Adults (eds Steinbeck K. & Kohn M.), World Scientific, Hackensack, New Jersey, USA.
17. Palmer S., Patterson P. & Thompson K. (2014) A national approach to improving adolescent and young adult (AYA) oncology psychosocial care: the development of AYA-specific psychosocial assessment and care tools. Palliative and Supportive Care 12, 183-188.
18. Parsons H.M., Harlan L.C., Lynch C.F., Hamilton A.S., Wu X., Kato I., Schwartz S.M., Smith A.W., Keel G. & Keegan T.H.M. (2012) Impact of cancer on work and education among adolescent and young adult cancer survivors. Journal of Clinical Oncology 30, 2393-2400.
19. Patterson P., McDonald F.E.J. & Orchard P. (2014) A new Australian online and phone mental health support service for young people living with cancer. Australasian Psychiatry 22, 165-169.
20. Patterson P.P., Millar B.B.A., Desille N.M. & McDonald F.P. (2012) The unmet needs of emerging adults with a cancer diagnosis: a qualitative study. Cancer Nursing 35, E32-E40.
21. Paul C.L., Sanson-Fisher R., Douglas H.E., Clinton-McHarg T., Williamson A. & Barker D. (2011) Cutting the research pie: a value-weighting approach to explore perceptions about psychosocial research priorities for adults with haematological cancers. European Journal of Cancer Care 20, 345-353.
22. Reaves A.C. & Bianchi D.W. (2013) The role of social networking sites in medical genetics research. American Journal of Medical Genetics. Part A 161A, 951-957.
23. Soliman H. & Agresta S.V. (2008) Current issues in adolescent and young adult survivorship. Cancer Control: Journal of the Moffitt Cancer Center 15, 55-62.
24. Soliman H., Ferrari A. & Thomas D. (2009) Sarcoma in the young adult population: an international view. Seminars in Oncology 36, 227-236. Available at: http://surveymonkey.com
25. Thomas D.M. (2007) Adolescents and young adults with cancer: the challenge. Palliative and Supportive Care 5, 173-174.
26. Yeo M.S.-M. & Sawyer S.M. (2009) Psychosocial assessment for adolescents and young adults with cancer. Cancer Forum 33, 18-22.