Resistiveness to care during assistance with activities of daily living in non-institutionalized persons with dementia: associations with informal caregivers’ stress and well-being

Aging and Mental Health

Volumn 20, Issue 9, 2016, Pages 888-898

  Fauth, Elizabeth Braungart ^a   Femia, Elia E ^b   Zarit, Steven H ^b  

^a UTAH STATE UNIVERSITY   (United States)

^b PENNSYLVANIA STATE UNIVERSITY   (United States)

Author keywords

caregiving; challenging behavior; dementia; functional status; psychological and behavioral symptoms; psychological and social aspects; stress burden

Indexed keywords

CAREGIVER; DAILY LIFE ACTIVITY; DEMENTIA; DEPRESSION; FEMALE; HUMAN; MALE; MENTAL STRESS; NURSING; PSYCHOLOGY; QUESTIONNAIRE; SATISFACTION; SELF REPORT;

ACTIVITIES OF DAILY LIVING; CAREGIVERS; DEMENTIA; DEPRESSION; FEMALE; HUMANS; MALE; PERSONAL SATISFACTION; SELF REPORT; STRESS, PSYCHOLOGICAL; SURVEYS AND QUESTIONNAIRES;

EID: 84930907065     PISSN: 13607863     EISSN: 13646915     Source Type: Journal    
DOI: 10.1080/13607863.2015.1049114     Document Type: Article

References (55)

1. Alzheimer's Association. (2014). Bathing. Retrieved from http://www.alz.org/care/alzheimers-dementia-bathing.asp.
2. G.Andresen, (1995). Caring for people with Alzheimer's disease. Baltimore, MD: Health Professions Press.
3. C.S.Aneshensel,, L.I.Pearlin,, J.T.Mullan,, S.H.Zarit,, & C.J.Whitlatch, (1995). Profiles in caregiving: The unexpected career. San Diego, CA: Academic Press.
4. S.Argüelles,, D.A.Loewenstein,, C.Eisdorfer,, & T.Argüelles, (2001). Caregivers' judgments of the functional abilities of the Alzheimer's disease patient: impact of caregivers' depression and perceived burden. Journal of Geriatric Psychiatry and Neurology, 14(2), 91–98.
5. M.B.Aselage, (2010). Measuring mealtime difficulties: eating, feeding and meal behaviours in older adults with dementia. Journal of Clinical Nursing, 19(5–6), 621–631.
6. Center for Telehealth and Healthcare Communications, University of Florida. (2003). Alzheimer's caregiver support online reading room: Bathing, dressing, and grooming. Retrieved from http://www.alzonline.net/en/reading/index.php#Bathing
7. J.Cohen-Mansfield,, & B.Jensen, (2006). Do interventions bringing current self-care practices into greater correspondence with those performed premorbidly benefit the person with dementia? A pilot study. American Journal of Alzheimer's Disease and Other Dementias, 21(5), 312–317.
8. J.L.Conde-Sala,, R.Reñé-Ramírez,, O.Turró-Garriga,, J.Gascón-Bayarri,, M.Juncadella-Puig,, L.Moreno-Cordón,, … J.Garre-Olmo, (2013). Factors associated with the variability in caregiver assessments of the capacities of patients with Alzheimer disease. Journal of Geriatric Psychiatry and Neurology, 26(2), 86–94.
9. E.M.Cotter,, L.D.Burgio,, A.B.Stevens,, D.L.Roth,, & L.N.Gitlin, (2002). Correspondence of the functional independence measure (FIM) self-care subscale with real-time observations of dementia patients' ADL performance in the home. Clinical Rehabilitation, 16(1), 36–45.
10. J.DeAjuriaguerra,, A.Rego,, J.Richard,, & R.Tissot, (1967). On several aspects of difficulties in dressing in senile degenerative dementia or diffuse vascular lesions. Annales Medico-Psychologiques (Paris), 125(2), 189–218.
11. M.M.Farrell (1997). Physical aggressive resident behavior during hygienic care. Journal of Gerontological Nursing, 23(5), 24–39.
12. E.B.Fauth,, & A.Gibbons, (2014). Which behavioral and psychological symptoms of dementia are the most problematic? Variability by prevalence, intensity, distress ratings, and associations with caregiver depressive symptoms. International Journal of Geriatric Psychiatry, 29(3), 263–271.
13. E.B.Fauth,, S.H.Zarit,, E.E.Femia,, S.M.Hofer,, & M.A.P.Stephens, (2006). Behavioral and psychological symptoms of dementia and caregivers’ stress appraisals: Intra-individual stability and change over short-term observations. Aging and Mental Health, 10(6), 563–573.
14. P.Feyeresien,, M.Gendron,, & X.Seron, (1999). Disorders of everyday actions in subjects suffering from Senile Dementia of Alzheimer's Type: An analysis of dressing performance. Neuropsychological Rehabilitation, 9(2), 169–188.
15. J.E.Fisher,, C.M.Fink,, & C.C.Loomis (1994). Frequency and management difficulty of behavioral problems among dementia patients in long-term care facilities. Clinical Gerontologist, 13(1), 3–12.
16. M.F.Folstein,, S.E.Folstein,, & P.R.McHugh, (1975). “Mini-mental state”: A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189–198.
17. J.E.Gaugler,, A.Davey,, L.I.Pearlin,, & S.H.Zarit, (2000). Modeling caregiver adaptation over time: the longitudinal impact of behavior problems. Psychology and aging, 15(3), 437.
18. L.N.Gitlin,, M.Corcoran,, L.Winter,, A.Boyce,, & W.W.Hauck, (2001). A randomized, controlled trial of a home environmental intervention effect on efficacy and upset in caregivers and on daily function of persons with dementia. The Gerontologist, 41(1), 4–14.
19. L.N.Gitlin,, H.C.Kales,, & C.G.Lyketsos, (2012). Managing behavioral symptoms in dementia using nonpharmacologic approaches: An overview. Journal of the American Medical Association, 308(19), 2020.
20. W.E.Haley,, S.Brown,, & E.G.Levine, (1987). Family caregiver appraisals of patient behavioral disturbance in senile dementia. Clinical Gerontologist, 6(4), 25–34.
21. W.E.Haley, & K.M.Pardo, (1989). Relationship of severity of dementia to caregiving stressors. Psychology and Aging, 4(4), 389–392.
22. I.Hartigan, (2007). A comparative review of the Katz ADL and the Barthel Index in assessing the activities of daily living of older people. International Journal of Older People Nursing, 2, 204–212.
23. T.Hope,, J.Keene,, C.Fariburn,, R.McShane,, & R.Jacoby, (1997). Behaviour changes in dementia 2: Are there behavioural syndromes? International Journal of Geriatric Psychiatry, 12(11), 1074–1078.
24. M.A.Jackson,, E.B.Fauth,, & C.Geiser, (2014). Comparing the neuropsychiatric inventory and the revised memory and behavior problems checklist for associations with caregiver burden and depressive symptoms. International Psychogeriatrics, 26(06), 1021–1031.
25. A.Kable,, M.Guest,, & M.McLeod, (2013). Resistance to Care: contributing factors and associated behaviours in healthcare facilities. Journal of Advanced Nursing, 69(8), 1747–1760.
26. S.Katz,, A.B.Ford,, R.W.Moskowitz,, B.A.Jackson,, & M.W.Jaffe, (1963). Studies of illness and the aged. The index of ADL: A standardized measure of biological and psychosocial function. Journal of the American Medical Association, 185, 914–923.
27. J.Keene,, T.Hope,, C.G.Fariburn,, R.Jacoby,, K.Gedling, & C.J.G.Ware, (1999). Natural history of aggressive behaviour in dementia. International Journal of Geriatric Psychiatry, 14(7), 541–548.
28. J.M.Kinney, & M.A.P.Stephens, (1989). Hassles and uplifts of giving care to a family member with dementia. Psychology and Aging, 4(4), 402–408.
29. T.Kitwood, (1998). The technical, the personal, and the framing of dementia. Social Behaviour, 3, 161–179.
30. R.S.Lazarus,, & S.Folkman, (1984). Stress, appraisal, and coping. New York, NY: Springer.
31. Lifeview Resources (Producer). (2004). Family guide to Alzheimer's disease: volume 4 - family caregiving. [Video].
32. E.K.Mahoney,, A.C.Hurley,, L.Volicer,, M.Bell,, P.Gianotis,, M.Hartshorn,, … V.Warden, (1999). Development and testing of the Resistiveness to Care Scale. Research in Nursing & Health, 22(1), 27–38.
33. E.Moniz-Cook,, G.Stokes,, & S.Agar, (2003). Difficult behaviour and dementia in nursing homes: Five cases of psychosocial intervention. Clinical Psychology and Psychotherapy, 10(3), 197–208.
34. I.Nagatomo,, Y.Akasaki,, M.Tominaga,, W.Hashiguchi,, M.Uchida,, & M.Takigawa, (2001). Abnormal behavior of residents in a long-term care facility and the associated stress of care staff members. Archives of Gerontology and Geriatrics, 33, 203–210.
35. L.E.Norton,, P.F.Malloy,, & S.Salloway, (2001). The impact of behavioral symptoms on activities of daily living in patients with dementia. American Journal of Geriatric Psychiatry, 9(1), 41–48.
36. P.A.O'Leary,, W.E.Haley,, & P.B.Paul, (1993). Behavioral assessment in Alzheimer's disease: Use of a 24-hr log. Psychology and Aging, 8(2), 139–143.
37. T.Palmstierna, & B.Wistedt, (1987). Staff observation aggression scale, SOAS: Presentation and evaluation. Acta Psychiatrica Scandanavica, 76(6), 657–663.
38. L.I.Pearlin,, J.T.Mullan,, S.J.Semple, & M.M.Skaff, (1990). Caregiving and the stress process: An overview of concepts and their measures. Gerontologist, 30, 583–594.
39. K.W.Piercy,, E.B.Fauth,, M.C.Norton,, R.Pfister,, C.D.Corcoran,, P.V.Rabins,, … J.T.Tschanz, (2013). Predictors of dementia caregiver depressive symptoms in a population: The Cache county Dementia progression study. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 68(6), 921–926.
40. M.Pinquart,, & S.Sörensen, (2006). Gender differences in caregiver stressors, social resources, and health: An updated meta-analysis. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 61(1), P33–P45.
41. S.F.Radloff, (1977). The CES-D Scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385–401.
42. A.S.Schreiner, (2001). Aggressive behaviors among demented nursing home residents in Japan. International Journal of Geriatric Psychiatry, 16(2), 209–215.
43. R.Schulz,, A.T.O'Brien,, J.Bookwala,, & K.Fleissner, (1995). Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes. The Gerontologist, 35(6), 771–791.
44. P.D.Sloane,, B.Hoeffer,, C.M.Mitchell,, D.A.McKenzie,, A.L.Barrick,, J.Rader,, … G.G.Koch, (2004). Effect of Person‐centered showering and the towel bath on bathing‐associated aggression, agitation, and discomfort in nursing home residents with dementia: A randomized, controlled trial. Journal of the American Geriatrics Society, 52(11), 1795–1804.
45. P.D.Sloane,, J.Rader,, A.Barrick,, B.Hoeffer,, S.Dwyer,, D.McKenzie,, M.Lavelle,, K.Buckwalter,, L.Arrington,, & T.Pruitt, (1995) Bathing persons with dementia. The Gerontologist, 35(5), 672–678.
46. J.Son,, A.Erno,, D.G.Shea,, E.E.Femia,, S.H.Zarit,, & M.A.P.Stephens, (2007). The caregiver stress process and health outcomes. Journal of Aging and Health, 19, 871–887.
47. G.Stokes, (2000). Challenging behaviour in dementia: A person-centred approach. Richmond Hill, ON: Psycan Corporation.
48. J.A.Teresi,, D.Holmes,, E.Dichter,, M.Koren,, M.Ramirez,, & S.Fairchild, (1997). Prevalence of behavior disorder and disturbance to family and staff in a sample of adult day health care clients. Gerontologist, 37(5), 629–639.
49. L.Teri,, P.Truax,, R.Logsdon,, J.Uomoto,, S.H.Zarit,, & P.P.Vitaliano, (1992). Assessment of behavioral problems in dementia: The revised memory and behavior problems checklist. Psychology and Aging, 7, 622–631.
50. L.Volicer,, E.A.Bass,, & S.Luther, (2007). Agitation and resistiveness to care are two separate behavioral syndromes of dementia. Journal of the American Medical Directors Association, 8(8), 527–532.
51. L.Volicer, & A.C.Hurley, (2003). Management of behavioral symptoms in progressive degenerative dementias. Journals of Gerontology Series A: Biological Sciences and Medical Sciences, 58A(9), 837–845.
52. C.J.Ware,, C.G.Fairburn,, & R.A.Hope, (1990). A community-based study of aggressive behaviour in dementia. International Journal of Geriatric Psychiatry, 5(5), 337–342.
53. Z.R.Wolf,, & K.E.Czekanski, (2015). Bathing disability and bathing persons with dementia. MEDSURG Nursing, 24(1), 9–22.
54. Z.J.Wynn,, & J.L.Cummings, (2003). Cholinesterase inhibitor therapies and neuropsychiatric manifestations of Alzheimer's disease. Dementia and Geriatric Cognitive Disorders, 17(1-2), 100–108.
55. S.H.Zarit,, K.Kim,, E.E.Femia,, D.M.Almeida,, J.Savla,, & P.C.Molenaar, (2011). Effects of adult day care on daily stress of caregivers: A within-person approach. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 66(5), 538–546.