How outpatient palliative care teleconsultation facilitates empathic patient-professional relationships: A qualitative study

PLoS ONE

Volumn 10, Issue 4, 2015, Pages

  Van Gurp, Jelle ^a   Van Selm, Martine ^b   Vissers, Kris ^a   Van Leeuwen, Evert ^a   Hasselaar, Jeroen ^a  

^a RADBOUD UNIVERSITY MEDICAL CENTER   (Netherlands)

^b UNIVERSITY OF AMSTERDAM   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER; CLINICAL ARTICLE; COMPUTER; DOCTOR PATIENT RELATION; FEMALE; GENERAL PRACTITIONER; HEALTH CARE QUALITY; HOME CARE; HOSPITAL CARE; HUMAN; HUMAN COMPUTER INTERACTION; INTERVIEW; MALE; MEDICAL SPECIALIST; MIDDLE AGED; OUTPATIENT CARE; PALLIATIVE THERAPY; PATIENT ATTITUDE; QUALITATIVE RESEARCH; TABLET COMPUTER; TELECONSULTATION; EMPATHY; HOSPITAL; HUMAN RELATION; OUTPATIENT; TECHNOLOGY; VERY ELDERLY; YOUNG ADULT;

ADULT; AGED; AGED, 80 AND OVER; EMPATHY; FEMALE; HOSPITALS; HUMANS; MALE; MIDDLE AGED; OUTPATIENTS; PALLIATIVE CARE; PROFESSIONAL-PATIENT RELATIONS; QUALITATIVE RESEARCH; REMOTE CONSULTATION; TECHNOLOGY; YOUNG ADULT;

EID: 84930683524     PISSN: None     EISSN: 19326203     Source Type: Journal    
DOI: 10.1371/journal.pone.0124387     Document Type: Article

References (39)

1. Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 2000;284:2476-82. PMID: 11074777
2. Bruera E, Yennurajalingam S. Palliative care in advanced cancer patients: how and when. Oncologist 2012;17:267-73. doi: 10.1634/theoncologist.2011-0219 PMID: 22252934
3. Pivodic L, Pardon K, Van Den Block L, Van Casteren V, Miccinesi G, Donker GA, et al. Palliative care service use in four European countries: a cross-national retrospective study via representative networks of general practitioners. PLoSOne 2013;8:e84440. doi: 10.1371/journal.pone.0084440 PMID: 24386381
4. Abarshi E, Echteld ME, Van Den Block L, Donker G, Bossuyt N, Meeussen K, et al. Use of Palliative Care Services and General Practitioner Visits at the End of Life in The Netherlands and Belgium. J Pain Symptom Manage 2011;41:436-48. doi: 10.1016/j.painsymman. 2010.04.016 PMID: 20832983
5. Quill TE, Abernethy AP. Generalist plus specialist palliative care-creating a more sustainable model. N EnglJ Med 2013;368:1173-1175. doi: 10.1056/NEJMp1215620 PMID: 23465068
6. Collis E, Al-Qurainy R. Care of the dying patient in the community. BMJ 2013;347:f4085. doi: 10.1136/bmj.f4085 PMID: 23823993
7. Worldwide Palliative Care Alliance. Global Atlas of Palliative Care at the End of Life, January 2014. Available: http://www.who.int/nmh/Global Atlas of Palliative Care.pdf. Accessed 2014 Oct. 11.
8. Kendall M, Boyd K, Campbell C, Cormie P, Fife S, Thomas K, et al. How do people with cancer wish to be cared for in primary care? Serial discussion groups of patients and carers. Fam Pract 2006;23:644-650. PMID: 16837479
9. Pols J. Care At A Distance. On the Closeness of Technology. Amsterdam: Amsterdam University Press, 2012.
10. Kroenke K, Theobald D, Wu J, Norton K, Morrison G, Carpenter J, et al. Effect of telecare management on pain and depression in patients with cancer: a randomized trial. JAMA 2010;304:163-171. doi: 10.1001/jama.2010.944 PMID: 20628129
11. Whitten P, Doolittle G, Mackert M. Telehospicein Michigan: use and patient acceptance. Am J Hosp Palliat Care 2004;21:191-5. PMID: 15188918
12. Pols J. Wonderful Webcams: About Active Gazes and Invisible Technologies. SciTechnol Hum Val 2011;36:451-473. doi: 10.1177/0162243910366134
13. Demiris G, Oliver DP, Courtney KL. Ethical considerations for the utilization of tele-health technologies in home and hospice care by the nursing profession. Nurs AdmQ 2006;30:56-66.
14. Esterle L, Mathieu-Fritz A. Teleconsultation in geriatrics: impact on professional practice. Int J Med Inform 2013;82:684-695. doi: 10.1016/j.ijmedinf.2013.04.006 PMID: 23746716
15. Matusitz J, Breen GM. Telemedicine: its effects on health communication. Health Commun 2007;21:73-83. PMID: 17461754
16. Van Gurp J, Van Selm M, Van Leeuwen E, Hasselaar J. Transmural palliative care by means of teleconsultation: a window of opportunities and new restrictions. BMC Med Ethics 2013;14:12. doi: 10.1186/1472-6939-14-12 PMID: 23497307
17. Sandman L. A good death: on the value of death and dying. Maidenhead: Open University Press, 2005.
18. Clark D. Between hope and acceptance: the medicalisation of dying. BMJ 2002;324:905-907. PMID: 11950744
19. Floriani CA, Schramm FR. Routinization and medicalization of palliative care: Losses, gains and challenges. Palliat Support Care 2012;10:295-303. doi: 10.1017/S1478951511001039 PMID: 22583780
20. Randall F, Downie RS. The philosophy of palliative care: critique and reconstruction. Oxford: Oxford University Press, 2006.
21. Kidd L, Cayless S, Johnston B, Wengstrom Y. Telehealth in palliative care in the UK: a review of the evidence. J Telemed Telecare. 2010;16:394-402. doi: 10.1258/jtt.2010.091108 PMID: 20813893
22. Watanabe SM, Fairchild A, Pituskin E, Borgersen P, Hanson J, Fassbender K. Improving access to specialist multidisciplinary palliative care consultation for rural cancer patients by videoconferencing: report of a pilot project. Support Care Cancer 2013;21:1201-1207. doi: 10.1007/s00520-012-1649-7 PMID: 23161339
23. Charmaz K. Constructing grounded theory. A practical guide through qualitative analysis. London: Sage Publications, 2009.
24. Karnofsky DA, Burchenal JH. The clinical evaluation of chemotherapeutic agents in cancer. In: McLeod CM, ed. Evaluation of Chemotherapeutic Agents in Cancer. New York: Columbia University Press; 1949:191.
25. GOLDCOPD.org. Global Strategy for the Diagnosis, Management and Prevention of COPD. Available: www.goldcopd.org/uploads/users/files/GOLD Report 2013 Feb20.pdf. Accessed 2014 Jan 16.
26. Murray SA, Kendall M, Boyd K, Sheikh A. Illness trajectories and palliative care. BMJ 2005;330:1007-1011. PMID: 15860828
27. Corbin JM, Strauss AL. Basics of qualitative research. Techniques and procedures for developing grounded theory. 3rded. Thousand Oaks: Sage Publications, Inc, 2008.
28. Guba EG. Criteria for Assessing the Trustworthiness of Naturalistic Inquiries. Ectj-Educational Communication and Technology Journal 1981;29:75-91.
29. Mays N, Pope C. Qualitative research in health care. Assessing quality in qualitative research. BMJ 2000;320:50-52. PMID: 10617534
30. Peterson MA. Anthropology & mass communication. Media and myth in the new millennium. New York: Berghahn Books, 2003.
31. Kendall M, Murray SA, Carduff E, Worth A, Harris F, Lloyd A, et al. Use of multiperspective qualitative interviews to understand patients' and carers' beliefs, experiences, and needs. BMJ 2009;339:b4122. doi: 10.1136/bmj.b4122 PMID: 19828645
32. Murray SA, Kendall M, Carduff E, Worth A, Harris F, Lloyd A, et al. Use of serial qualitative interviews to understand patients' evolving experiences and needs. BMJ 2009;339:b3702. doi: 10.1136/bmj.b3702 PMID: 19786485
33. Turkle S. Alone Together: Why We Expect More from Technology and Less from Each Other. New York: Basic Books, 2012.
34. Ihde D. Technics and praxis. A Philosophy of Technology. Dordrecht: D. Reidel Publishing Company, 1979.
35. Seymour JE. Revisiting medicalisation and 'natural' death. Soc Sci Med 1999;49:691-704. PMID: 10452423
36. Lopez D, Domenech M. Embodying autonomy in a Home Telecare Service. Sociol Rev 2009;56:181-195. doi: 10.1111/j.1467-954X.2009.00822.x
37. Van Gurp J, Hasselaar J, Van Leeuwen E, Hoek P, Vissers K, Van Selm M. Connecting with patients and instilling realism in an era of emerging communication possibilities: A review on palliative care communication heading to telecare practice. Patient EducCouns 2013;93:504-514. doi: 10.1016/j.pec.2013.07.002 PMID: 23906650
38. Gysels M, Shipman C, Higginson IJ. Is the qualitative research interview an acceptable medium for research with palliative care patients and carers? BMC Med Ethics 2008;9:7. doi: 10.1186/1472-6939-9-7 PMID: 18435846
39. Frank AW. Can we research suffering? Qual Health Res 2001;11:353. doi: 10.1177/104973201129119154 PMID: 11339079