Ethical considerations for the utilization of telehealth technologies in home and hospice care by the nursing profession

Nursing Administration Quarterly

Volumn 30, Issue 1, 2006, Pages 56-66

  Demiris, George ^a,b   Oliver, Debra Parker ^b   Courtney, Karen L ^a,b  

^a University of Missouri   (United States)

^b UNIVERSITY OF MISSOURI   (United States)

Author keywords

Ethics; Information technology; Nursing practice; Telemedicine; Videoconferencing

Indexed keywords

ARTICLE; COMPUTER INTERFACE; CONFIDENTIALITY; ETHICS; HEALTH CARE DELIVERY; HOME CARE; HOSPICE CARE; HUMAN; INFORMED CONSENT; METHODOLOGY; NURSE PATIENT RELATIONSHIP; TELEMEDICINE; UNITED STATES;

CONFIDENTIALITY; HEALTH SERVICES ACCESSIBILITY; HOME CARE SERVICES; HOSPICE CARE; HUMANS; INFORMED CONSENT; NURSE-PATIENT RELATIONS; TELEMEDICINE; UNITED STATES; USER-COMPUTER INTERFACE;

EID: 33646183251     PISSN: 03639568     EISSN: None     Source Type: Journal    
DOI: 10.1097/00006216-200601000-00009     Document Type: Review

References (50)

1. National Association for Home Care. Basic statistics about home care. Available at: http://www.nahc.org/Consumer/hcstats.html. Accessed May 18, 2005.
2. U.S. Department of Commerce Economics and Statistics Administration. How We're Changing. Demographic State of the Nation: 1997. Washington, DC: Bureau of the Census. Series P23-193.
3. Institute of Medicine. Approaching Death: Improving Care at the End of Life. Washington, DC: National Academies Press; 1997.
4. Sparks KE, Shaw DK, Eddy D, Hanigosky P, Vantrese J. Alternatives for cardiac rehabilitation patients unable to return to a hospital-based program. Heart Lung. 1993;22:298-303.
5. Turnin MC, Bolzonella-Pene C, Dumoulin S, et al. Multicenter evaluation of the Nutri-Expert Telemeatic System in diabetic patients. Diabetes Metab. 1995;21:26-33.
6. Friedman RH, Kazis LE, Jette A, et al. A telecommunications system for monitoring and counseling patients with hypertension: impact on medication adherence and blood pressure control. Am J Hypertens. 1996;9:285-292.
7. Johnston B, Wheeler L, Deuser J, Sousa KH. Outcomes of the Kaiser Permanent Tele-Home Health Research Project. Arch Fam Med. 2000;9:40-45.
8. Finkelstein J, O'Connor G, Friedmann RH. Development and implementation of the Home Asthma Telemonitoring (HAT) system to facilitate asthma self-care. MEDINFO Proc. 2001;10(pt 1):810-814.
9. Baker AM, Lafata JE, Ward RE, Whitehouse F, Divine G. A Web-based diabetes care management support system. Jt Comm J Qual Improv. 2001;27(4):179-190.
10. Riva A, Bellazzi R, Stefanelli M. A Web-based system for the intelligent management of diabetic patients. MD Comput. 1997;14(5):360-364.
11. Demiris G, Speedie SM, Finkelstein SM. The nature of communication in virtual home care visits. In: Proceedings of the American Medical Informatics Association Symposium. Philadelphia, PA; Hanley & Belfus, Inc. 2001:135-138.
12. Poon WS, Leung CH, Lam MK, Wai S, Ng CP, Kwok S. The comparative impact of video-consultation on neurosurgical health services. Int J Med Inform. 2001;62:175-180.
13. Bai J, Zhang Y, Shen D, Wen L, et al. A portable ECG and blood pressure telemonitoring system. IEEE Eng Med Biol Mag. 1999;18(4):63-70.
14. Barbaro V, Bartolini P, Bernarducci R. A portable unit for remote monitoring of pacemaker patients. J Telemed Telecare. 1997;3(2):96-102.
15. Dahlberg NL, Blazek D, Wikoff B, Tuckwell BL, Koloroutis M. High-tech, high-touch perinatal home care. Caring. 1995;14(5):36-39.
16. Riano D, Prado S, Pascual A, Martin S. A multi-agent system model to support palliative care units. In: Proceedings of the 15th IEEE Symposium on Computer-based Medical Systems: CBMS, Maribor, Slovenia, 4-7 June 2002. Los Alamitos, Calif; IEEE Computer Society Press. 2002:35-40.
17. Regnard C. Using videoconferencing in palliative care. Palliat Med. 2000;14(6):519-528.
18. Lloyd-Williams M. Out of hours palliative care advice line. Br J Gen Pract. 2001;51(469):677.
19. Elsey B, McIntyre J. Assessing a support and learning network for palliative care workers in a country area of South Australia. Aust J Rural Health. 1996;4(3):159-164.
20. Oyama H, Wakao F, Okamura H. Virtual reality support system in palliative medicine. Stud Health Technol Inform. 1997;39:60-63.
21. Coyle N, Khojainova N, Francavilla JM, Gonzales GR. Audio-visual communication and its use in palliative care. J Pain Symptom Manage. 2002;23(2):171-175.
22. Doolittle GC. A cost measurement study for a home-based telehospice service. J Telemed Telecare. 2000;6(suppl 1):S193-S195.
23. U.S. Department of Health & Human Services, Office of the Secretary. Standards for privacy of individually identifiable health information; proposed rule. Fed Reg. 1999;64(212):59917-60016.
24. Meisel A, Roth LH. Informed consent. N Engl J Med. 1980;303:459-460.
25. Gilmore PD, Bambas A, Stone TH. Legal and ethical issues in telemedicine. In: Viegas SF, Dunn K, eds. Telemedicine: Practicing in the Information Age. New York: Lippincott-Raven Publishers; 1998.
26. Demiris G, Speedie S, Finkelstein SM. A questionnaire for the assessment of patients' impressions of the risks and benefits of home telecare. J Telemed Telecare. 2000;6(5):278-284.
27. Bosma L, Balen RM, Davidson E, Jewesson PJ. Point of care use of a personal digital assistant for patient consultation management: experience of an intravenous resource nurse team in a major Canadian teaching hospital. Comput Inform Nurs. 2003;21(4):179-185.
28. Bourne RB, Sibbald WJ, Doig G, et al. The Southwestern Ontario Joint Replacement Pilot Project: electronic point-of-care data collection. Southwestern Ontario Study Group. Can J Surg. 2001;44(3):199-202.
29. Caro JJ Sr, Caro I, Caro J, Wouters F, Juniper EF. Does electronic implementation of questionnaires used in asthma alter responses compared to paper implementation? Qual Life Res. 2001;10(8):683-691.
30. Fletcher LA, Erickson DJ, Toomey TL, Wagenaar AC. Handheld computers. A feasible alternative to paper forms for field data collection. Eval Rev. 2003;27(2):165-178.
31. Tsang MW, Mok M, Kam G, et al. Improvement in diabetes control with monitoring. J Telemed Telecare. 2001;7(1):47-50.
32. Demiris G, Oliver DR, Porock D, Courtney K. The Missouri Telehospice Project: background and next steps. Home Health Care Technol Rep. 2004;1(4):49-55.
33. Fox S. Older Americans and the Internet. Pew Internet & American Life Project. Available at: http://www.pewinternet.org/pdfs/PIP_Seniors_Online_2004. pdf. Accessed May 27, 2005.
34. Bell P, Reddy P, Rainie L. Rural areas and the Internet. Pew Internet & American Life Project. Available at: http://www.pewinternet.org/pdfs/ PIP_Rural_Report.pdf. Accessed May 27, 2005.
35. Moran R. The electronic home: social and spatial aspects. Dublin, Ireland: European Foundation for the Improvement of Living and Working Conditions; 1993.
36. Ziembroski J, Gilbert N, Bossarte R, Guldberg M. Healing touch and hospice care: examining outcomes at the end of life. J Altern Complement Ther. 2003;9(3):146-151.
37. Wright DJ. A Focused Ethnography of Hospice Nurses in a Community Based Hospice Agency [unpublished dissertation]. Chester, Pa: Widener University; 2000.
38. Messenger T, Roberts K. The terminally ill: serenity nursing interventions for hospice clients. J Gerontol Nurs. 1994;20(11):17-22.
39. Gardner DL. Presence. In: Bulecheck GM, McCloskey JC, eds. Nursing Interventions: Essential Nursing Treatments. 2nd ed. Philadelphia, Pa: WB Saunders; 1992:191-200.
40. Sandelowski M. Visible humans, vanishing bodies, and virtual nursing: complications of life, presence, place and identity. Adv Nurs Sci. 2002;24(3):58-70.
41. Wyschogrod E. Empathy and sympathy as tactile encounter. J Med Philos. 1981;6:25-43.
42. Liaschenko J. Knowing the patient. In: Thorne SE, Hayes VE, eds. Nursing Praxis: Knowledge and Action. Thousand Oaks, Calif: Sage; 1997:23-38.
43. Liaschenko J. Ethics and the geography of the nurse-patient relationship: spatial vulnerabilities and gendered space. Sch Inq Nurs Pract. 1997;11:45-59.
44. Doolittle GC, Whitten P, McCartney M, Cook D, Nazir N. An empirical chart analysis of the suitability of telemedicine for hospice visits. Telemed J E Health. 2005;11(1):90-97.
45. Conrad P, Schneider J. Medicine as an institution of social control. In: Deviance and Medicalization. Philadelphia, PA: Temple University Press; 1992:241-259.
46. Arras JD, Neveloff-Dubler N. Ethical and social implications of high-tech home care. In: Arras JD, ed. Bringing the Hospital Home. Baltimore, Md: Johns Hopkins University Press; 1995:1-31.
47. Telecommunications Industry Association. Resource guide for accessible design of consumer electronics - linking product design to the needs of people with functional limitations: a joint venture of the electronic industries alliance and the electronic industries foundations. Available at: http://www.tiaonline.org/access/acessguid12.pdf. Accessed May 27, 2005.
48. Bellazzi R, Montani S, Riva A, Stefanelli M. Web-based telemedicine systems for home-care: technical issues and experiences. Comput Methods Programs Biomed 2001;64(3):175-187.
49. Demiris G, Finkelstein SM, Speedie SM. Considerations for the design of a Web-based clinical monitoring and educational system for elderly patients. J Am Med Inform Assoc. 2001;8(5):468-472.
50. American Telemedicine Association. ATA adopts telehomecare clinical guidelines. Available at: http://www.americantelemed.org/icot/ hometelehealthguidelines. htm. Accessed May 26, 2005.