A comparison of the discursive practices of perception of patient participation in haemodialysis units

Nursing Ethics

Volumn 22, Issue 3, 2015, Pages 341-351

  Aasen, Elin Margrethe ^a  

^a NORWEGIAN UNIVERSITY OF SCIENCE AND TECHNOLOGY   (Norway)

Author keywords

Comparison; critical discourse analysis; haemodialysis; next of kin; Norwegian law; nurses; older patients; patient participation

Indexed keywords

DECISION MAKING; ETHICS; HEALTH PERSONNEL ATTITUDE; HEMODIALYSIS; HUMAN; NORWAY; PATIENT CARE PLANNING; PATIENT PARTICIPATION; PERCEPTION; PROCEDURES; QUALITY OF LIFE; STANDARDS;

ATTITUDE OF HEALTH PERSONNEL; DECISION MAKING; HEMODIALYSIS UNITS, HOSPITAL; HUMANS; NORWAY; PATIENT CARE PLANNING; PATIENT PARTICIPATION; PERCEPTION; QUALITY OF LIFE;

EID: 84930402066     PISSN: 09697330     EISSN: 14770989     Source Type: Journal    
DOI: 10.1177/0969733014533240     Document Type: Article

References (44)

1. HOD (Helse og omsorgsdepartementet). LOV 1999-07-02 nr 63 (lov om pasientrettigheter) [Law on patients’ rights], http://www.lovdata.no/(1999, accessed 21 December 2013).
2. HOD (Helse og omsorgsdepartementet). LOV 1999-07-02 nr 64 (Lov om helsepersonell) [Health care personal act], http://www.lovdata.no/(1999, accessed 21 December 2013).
3. HOD (Helse og omsorgsdepartementet). Mestring, muligheter og mening[White paper no. 25. Coping, possibility and meaning]. St.meld.nr.25, 2005–2006, http://www.regjeringen.no/nb/dep/hod/dok/regpubl/stmeld/20052006/stmeld-nr-25-2005-2006-.html?id=200879
4. Patient participation in health care consultations. Qualitative perspectives. Collins SBritten NRuusuvuori J, ed. New York: Open University Press; 2007:
5. Beauchamp TL,Childress JFPrinciples of biomedical ethics. 6th ed. New York: Oxford University Press, 2009.New York: Oxford University Press; 2009:
6. McCann K,Boore JRP.Fatigue in persons with renal failure who require maintenance haemodialysis.J Adv Nurs. 2000;32 (5): 1132-1142
7. Logan SM,Pelletier-Hibbert M,Hodgins M.Stressors and coping of in-hospital haemodialysis patients aged 65 years and over.J Adv Nurs. 2006;56 (4): 382-391
8. Brown WW.Hemodialysis in elderly patients.Int Urol Nephrol. 2000;32 (1): 127-135
9. Kimmel P.Depression in patients with chronic renal disease: what we know and what we need to know.J Psychosom Res. 2002;53 (4): 951-956
10. Fazekas G,Fazekas F,Schmidt R, Brain MRI findings and cognitive impairment in patients undergoing chronic hemodialysis treatment.J Neurol Sci. 1995;134:83-88
11. Murray AM,Pederson SL,Tupper DE, Acute variation in cognitive function in hemodialysis patients: a cohort study with repeated measures.Am J Kidney Dis. 2007;50 (2): 270-278
12. Belasco AG,Sesso R.Burden and quality of life of caregivers for hemodialysis patients.Am J Kidney Dis. 2002;39 (4): 805-812
13. Ziegert K,Fridlund B,Lidell E.Health in everyday life among spouses of haemodialysis patients: a content analysis.Scand J Caring Sci. 2006;20 (2): 223-228
14. Byers D,Beard TH,Wicks MN.African-American women’s perceived health status while caring for a relative with end stage renal disease.Nephrol Nurs J. 2009;36 (6): 599 609 632-604 612
15. Bevan MT.Dialysis as ‘deus ex machina’: a critical analysis of haemodialysis.J Adv Nurs. 2000;31 (2): 437-443
16. Bevan MT.Nursing in the dialysis unit: technological enframing and a declining art, or an imperative for caring.J Adv Nurs. 1998;27 (4): 730-736
17. Halvorsen K,Slettebø A,Nortvedt P, Priority dilemmas in dialysis: the impact of old age.J Med Ethics. 2008;34 (8): 585-589
18. Tsay SL,Hung LO.Empowerment of patients with end-stage renal disease–a randomized controlled trial.Int J Nurs Stud. 2004;41 (1): 59-65
19. Davison SN,Simpson C.Hope and advance care planning in patients with end stage renal disease: qualitative interview study.BMJ. 2006;333 (7574): 886
20. Ziegert K,Fridlund B,Lidell E.Professional support for next of kin of patients receiving chronic haemodialysis treatment: a content analysis study of nursing documentation.J Clin Nurs. 2007;16 (2): 353-361
21. Lane P,McKenna H,Ryan A, The experience of the family caregivers’ role: a qualitative study.Res Theory Nurs Pract. 2003;17 (2): 137-151
22. Davison SN.Quality end-of-life care in dialysis units.Semin Dial. 2002;15 (1): 41-44
23. Silén M,Svantesson M,Ahlström G.Nurses’ conceptions of decision making concerning life-sustaining treatment.Nurs Ethics. 2008;15 (2): 160-173
24. Aasen EM,Kvangarsnes M,Heggen K.Perceptions of patient participation amongst elderly patients with end-stage renal disease in a dialysis unit.Scand J Caring Sci. 2012;26 (1): 61-69
25. Aasen EM,Kvangarsnes M,Heggen K.Nurses’ perceptions of patient participation in hemodialysis treatment.Nurs Ethics. 2012;19 (3): 419-430
26. Aasen EM,Kvangarsnes M,Wold B, The next of kin of older people undergoing haemodialysis: a discursive perspective on perceptions of participation.J Adv Nurs. 2012;68 (8): 1716-1725
27. Gadow S.Relational narrative: the postmodern turn in nursing ethics.Sch Inq Nurs Pract. 1999;13 (1): 57-70
28. Fairclough NAnalysing discourse: textual analysis for social research. New York: Routledge; 2003:
29. Fairclough NLanguage and power. 2nd ed. Edinburgh: Longman, 2001, pp. 1–117.Edinburgh: Longman; 2001:1-117.
30. Fairclough NDiscourse and social change. Cambridge: Polity Press; 1992:
31. Kvale S,Brinkmann SInterViews: learning the craft of qualitative research interviewing. 2nd ed. Los Angeles, CA: Sage, 2009.Los Angeles, CA: Sage; 2009:
32. Polkinghorne DENarrative knowing and the human sciences. Albany, NY: State University of New York Press; 1988:
33. Fontana A,Frey JHHandbook of qualitative research. Denzin NLincoln Y, ed. Thousand Oaks, CA: Sage; 2000:645-673.
34. Fairclough NDiscourse as data: a guide for analysis. Wetherell MTaylor SYates SJ, ed. London: Sage and The Open University; 2001:229-267.
35. Vagle W.Tilnærming til TEKST – modeller for språklig tekstanalyse. Svenning JSandvik MVagle W, ed. Oslo: Cappelen Akademisk forlag; 2005:123-235.
36. Orsino A,Cameron JI,Seidl M, Medical decision-making and information needs in end-stage renal disease patients.Gen Hosp Psychiatry. 2003;25 (5): 324-331
37. Cleary J,Drennan J.Quality of life of patients on haemodialysis for end-stage renal disease.J Adv Nurs. 2005;51 (6): 577-586
38. Alvarez-Ude F,Valdés C,Estébanez C, Health-related quality of life of family caregivers of dialysis patients.J Nephrol. 2004;17 (6): 841-850
39. Eldh AC,Ehnfors M,Ekman I.The meaning of patient participation for patients and nurses at a nurse-led clinic for chronic heart failure.Eur J Cardiovasc Nurs. 2006;5 (1): 45-53
40. Thompson AG.The meaning of patient involvement and participation in health care consultations: a taxonomy.Soc Sci Med. 2007;64 (6): 1297-1310
41. Nærhetsetikk. Vetlesen AJ, ed. Oslo: Ad Notam Gyldendal; 1996:
42. Løgstrup KE.Closeness. An Ethics. Vetlesen AJJodalen H, ed. Oslo: Universitetsforlaget; 1997:71-89.
43. Allen D.Wainwright M and Hutchinson T. ‘Non-compliance’ as illness management: hemodialysis patients’ descriptions of adversarial patient-clinician interactions.Soc Sci Med. 2011;73 (1): 129-134
44. Gadow SPerspectives on nursing theory. 4th ed. London: Lippincott Williams & Wilkins, 2004.PG ReedNC ShearerLH Nicoll, ed. London: Lippincott Williams & Wilkins; 2004: