End-of-life issues in advanced dementia - Part 1: Goals of care, decision-making process, and family education;Enjeux de fin de vie dans les cas de démence avancée: 1re partie: Objectifs des soins, processus de prise de décision et éducation des proches

Canadian Family Physician

Volumn 61, Issue 4, 2015, Pages

  Arcand, Marcel ^a,b  

^a UNIVERSITY OF SHERBROOKE   (Canada)

^b UNIVERSITY INSTITUTE OF GERIATRICS OF SHERBROOKE   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ADVANCED DEMENTIA; DECISION MAKING; DEMENTIA; HOSPITAL PATIENT; HUMAN; LIFE SUSTAINING TREATMENT; MEDICAL INFORMATION; PALLIATIVE THERAPY; PATIENT CARE; PATIENT TRANSPORT; PHYSICIAN; PROGNOSIS; QUALITY OF LIFE; RESUSCITATION; REVIEW; TERMINAL CARE; TERMINAL DISEASE; CASE REPORT; DOCTOR PATIENT RELATION; ETHICS; FAMILY; FEMALE; HUMAN RELATION; NURSING; PATIENT CARE PLANNING; PROCEDURES; PSYCHOLOGY; VERY ELDERLY;

AGED, 80 AND OVER; DECISION MAKING; DEMENTIA; FAMILY; FEMALE; HUMANS; PALLIATIVE CARE; PATIENT CARE PLANNING; PHYSICIAN-PATIENT RELATIONS; PROFESSIONAL-FAMILY RELATIONS; TERMINAL CARE;

EID: 84930401413     PISSN: 0008350X     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Review

References (27)

1. Mitchell SL, Teno JM, Miller SC, Mor V. A national study of the location of death for older persons with dementia. J Am Geriatr Soc 2005;53(2):299-305. Erratum in : J Am Geriatr Soc 2005;53(4):741.
2. Houttekier D, Cohen J, Bilsen J, Addington-Hall J, Onwuteaka-Philipsen BD, Deliens L. Place of death of older persons with dementia. A study in five European countries. J Am Geriatr Soc 2010;58(4):751-6.
3. Hertogh CM. Advance care planning and the relevance of a palliative care approach in dementia. Age Ageing 2006;35(6):553-5.
4. e partie : prise en charge de l'apport nutritionnel insuffisant, de la déshydratation et de la pneumonie. Can Fam Physician 2015;61:337-41 (ang), e183-88 (fr).
5. Goldberg TH, Botero A. Causes of death in elderly nursing home residents. J Am Med Dir Assoc 2008;9(8):565-7. Pub. en ligne du 7 sept. 2008.
6. Sachs GA, Shega JW, Cox-Hayley D. Barriers to excellent end-of-life care for patients with dementia. J Gen Intern Med 2004;19(10):1057-63.
7. Mitchell SL, Miller SC, Teno JM, Kiely DK, Davis RB, Shaffer ML. Prediction of 6-month survival of nursing homes residents with advanced dementia using ADEPT vs hospice eligibility guidelines. JAMA 2010;304(17):1929-35.
8. Van der Steen JT, Mitchell SL, Frijters DH, Kruse RL, Ribbe MW. Prediction of 6-month mortality in nursing home residents with advanced dementia: validity of a risk score. J Am Med Dir Assoc 2007;8(7):464-8. Pub. en ligne du 13 août 2007.
9. Hertogh CM. Advance care planning and palliative care in dementia: a view from the Netherlands. In : Hughes JC, Lloyd-Williams M, Sachs GA, rédacteurs. Supportive care for the person with dementia. Oxford, RU : Oxford University Press; 2010. p. 271-81.
10. Givens JL, Kiely DK, Carey K, Mitchell S. Healthcare proxies of nursing home residents with advanced dementia: decisions they confront and their satisfaction with decision-making. J Am Geriatr Soc 2009;57(7):1149-55. Pub. en ligne du 21 mai 2009.
11. Gessert CE, Forbes S, Bern-Klug M. Planning end-of-life care for patients with dementia: roles of families and health professionals. Omega (Westport) 2000;42(4):273-91.
12. Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Soc Sci Med 1997;44(5):681-92.
13. Caron C, Arcand M, Griffith J. Creating a partnership with families in decision-making for end-of-life care in Alzheimer disease: the perspective of family caregivers. Dementia 2005;4:113-36.
14. Caron C, Griffith J, Arcand M. Decision making at the end of life in dementia: how family caregivers perceive their interactions with health care providers in long-term-care settings. J Appl Gerontol 2005;24(3):231-47.
15. Geriatric Cultural Navigator [app]. New York, NY : American Geriatrics Society; 2013.
16. Mitchell SL, Teno JM, Kiely DK, Schaffer ML, Jones RN, Prigerson HG et coll. The clinical course of advanced dementia. N Engl J Med 2009;361(16):1529-38.
17. Van der Steen JT. Dying with dementia: what we know after more than a decade of research. J Alzheimers Dis 2010;22(1):37-55.
18. Kruse RL, Mehr DR, van der Steen JT, Ooms ME, Madsen RW, Sherman AK et coll. Antibiotic treatment and survival of nursing home patients with lower respiratory tract infection : a cross-national analysis. Ann Fam Med 2005;3(5):422-9.
19. Lamberg JL, Person CJ, Kiely DK, Mitchell SL. Decisions to hospitalize nursing home residents dying with advanced dementia. J Am Geriatr Soc 2005;53(8):1396-401.
20. Ebell MH, Becker LA, Barry HC, Hagen M. Survival after in-hospital cardiopulmonary resuscitation. A meta-analysis. J Gen Intern Med 1998;13(12):805-16.
21. Ghusn HF, Teasdale TA, Pepe PE, Ginger VF. Older nursing home residents have a cardiac arrest survival rate similar to that of older persons living in the community. J Am Geriatr Soc 1995;43(5):520-7.
22. Alzheimer's Association - Greater Illinois Chapter. Encouraging comfort care. A guide for families of people with dementia living in care facilities. Chicago, IL : Alzheimer's Association - Greater Illinois Chapter; 2010. Accessible à : www.alzheimers-illinois.org/pti/downloads/Encouraging%20Comfort%20Care-DOUBLE.pdf. Réf. du 23 févr. 2015.
23. Arcand M, Caron C. Les soins de confort en fin de vie dans la maladie d'Alzheimer et les autres maladies dégénératives du cerveau : un guide pour les proches. Sherbrooke, QC : Centre de santé et de services sociaux - Institut universitaire de gériatrie de Sherbrooke; 2005. Accessible à : http://expertise-sante.myshopify.com/products/les-soins-de-confort-en-fin-de-vie-dans-la-maladie-dalzheimer-et-les-autres-maladies-degeneratives-du-cerveau-un-guide-pour-les-proches. Réf. du 3 mars 2015.
24. Van der Steen JT, Arcand M, Toscani F, de Graas T, Finetti S, Beaulieu M et coll. A family booklet about comfort care in advanced dementia: three-country evaluation. J Am Med Dir Assoc 2012;13(4):368-75.
25. Arcand M, Monette J, Monette M, Sourial N, Fournier L, Gore B et coll. Educating nursing home staff about the progression of dementia and the comfort care option: impact on family satisfaction with end-of-life care. J Am Med Dir Assoc 2009;10(1):50-5.
26. Van der Steen JT, Toscani F, de Graas T, Finetti S, Nakanishi M, Nakashima T, et coll. Physicians' and nurses' perceived usefulness and acceptability of a family information booklet about comfort care in advanced dementia. J Palliat Med 2011;14(5):614-22. Pub. en ligne du 12 avr. 2011.
27. Hall S, Petkova H, Tsouros AD, Costantini M, Higginson IJ, rédacteurs. Palliative care for older people: better practices. Copenhagen, Dan: World Health Organization Regional Office for Europe; 2011. Accessible à : www.euro.who.int/-data/assets/pdf-file/0017/143153/e95052.pdf. Réf.du 23 févr. 2015.