Living with economic hardship at the end of life

BMJ Supportive and Palliative Care

Volumn 5, Issue 2, 2015, Pages 129-137

  Essue, Beverley M ^a,b   Beaton, Angela ^c   Hull, Catherine ^a   Belfrage, John ^d   Thompson, Shannon ^d   Meachen, Michele ^d   Gillespie, James A ^a  

^a University of Sydney   (Australia)

^b GEORGE INSTITUTE FOR GLOBAL HEALTH   (Australia)

^c WAIKATO INSTITUTE OF TECHNOLOGY   (New Zealand)

^d Calvary Health Care Bethlehem   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

AUSTRALIA; CAREGIVER; COST OF ILLNESS; ECONOMICS; FAMILY; FEMALE; HEALTH CARE COST; HEALTH SERVICE; HUMAN; MALE; PALLIATIVE THERAPY; PROSPECTIVE STUDY; SOCIOECONOMICS; TERMINAL CARE;

AUSTRALIA; CAREGIVERS; COST OF ILLNESS; FAMILY; FEMALE; HEALTH EXPENDITURES; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; PALLIATIVE CARE; PROSPECTIVE STUDIES; SOCIOECONOMIC FACTORS; TERMINAL CARE;

EID: 84930388541     PISSN: 2045435X     EISSN: 20454368     Source Type: Journal    
DOI: 10.1136/bmjspcare-2013-000460     Document Type: Article

References (19)

1. Xu Ke, Evans DB, Carrin G, et al. Protecting households from catastrophic health spending. Health Affairs 2007;26:972-83.
2. Himmelstein DU, Thorne D, Warren E, et al. Medical bankruptcy in the United States, 2007: results of a national study. Am J Med 2009;122:741-6.
3. Insolvency and Trustee Service Australia. Australian Government. Profiles of Debtors 2007. Canberra: Commonwealth of Australia, 2008. http://www.itsa.gov.au/dir228/itsaweb.nsf/docindex/About%20Us-%3EPublications-%3EDebtor%20Profile%20document/$FILE/ITSA_DEBTOR_PROFILE_2007.pdf?OpenElement (cited: 26 Jun 2012).
4. McGarry K, Schoeni RF. Widow(er) poverty and out-of-pocket medical expenditures near the end of life. J Gerontol Soc Sci 2005;60B:S160-8.
5. Nosowska G. A delay they can ill afford: delays in obtaining Attendance Allowance for older, terminally ill cancer patients, and the role of health and social care professionals in reducing them. Health Soc Care Community 2004;12:283-7.
6. Hanratty B, Holland P, Jacoby A, et al. Review article: financial stress and strain associated with terminal cancer-a review of the evidence. Palliat Med 2007;21:595-607.
7. Holtslander L, Duggleby W. The psychosocial context of bereavement for older women who were caregivers for a spouse with advanced cancer. J Women Aging 2010; 22:109-24.
8. Gomes B, Higginson IJ. Factors influencing death at home in terminally ill patients with cancer: systematic review. BMJ 2006;332:515-21.
9. Beaton A, Essue B, Hull C, et al. Travelling alongside': patients', carers' and health care professionals' experiences of the Calvary Health Care Bethlehem model of specialist palliative care. Sydney: Menzies Centre for health Policy, 2011. http://www.menzieshealthpolicy.edu.au/media/doc/CHCBreportFinal.pdf (accessed Dec 2012).
10. Abernethy AP, Shelby-James T, Fazekas BS, et al. The Australia-modified Karnofsky Performance Status (AKPS) scale: a revised scale for contemporary palliative care clinical practice. BMC Palliat Care 2005;4:7.
11. McRae I, Yen L, Jeon YH, et al. Multimorbidity is associated with higher out-of-pocket spending: a study of older Australians with multiple chronic conditions. Aust J Prim Health 2013;19:144-9.
12. Emanuel EJ, Fairclough DL, Slutsman J, et al. Understanding economic and other burdens of terminal illness: the experience of patients and their caregivers. Ann Intern Med 2000;132:451-9.
13. Macmillan Cancer Support Citizens Advice Bureau. Failed by the system: why the Employment and Support Allowance isn't working for people living with cancer. London: Macmillan Cancer Support, 2009.
14. Covinsky KE, Landefeld CS, Teno J, et al. Is Economic hardship on the families of the seriously ill associated with patient and surrogate care preferences? Arch Intern Med 1996;156:1737-41.
15. Silveira MJ, Kabeto MU, Langa KM. Net worth predicts symptom burden at the end of life. J Palliat Med 2005;8:827-37.
16. Lewis JM, DiGiacomo M, Currow DC, et al. Dying in the margins: understanding palliative care and socioeconomic deprivation in the developed world. J Pain Symptom Manage 2011;42:105-18.
17. Jan S, Essue BM, Leeder SR. Falling through the cracks: the hidden economic burden of chronic illness and disability on Australian households. Med J Aust 2011;196:1-3.
18. Moffatt S, Noble E, White M. Addressing the financial consequences of cancer: qualitative evaluation of a welfare rights advice service. PLoS ONE 2012;7:e42979.
19. Australian Institute of Health and Welfare: Health expenditure Australia: 464 2010-11. Health and welfare expenditure series no. 47. Cat. no. HWE 56.465. Canberra: AIHW, 2012.