Addressing the financial consequences of cancer: Qualitative evaluation of a welfare rights advice service

PLoS ONE

Volumn 7, Issue 8, 2012, Pages

  Moffatt, Suzanne ^a   Noble, Emma ^a   White, Martin ^a  

^a NEWCASTLE UNIVERSITY   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; AGED; ANXIETY; ARTICLE; CHILD; FEMALE; FUNCTIONAL STATUS; HEALTH CARE COST; HEALTH ECONOMICS; HEALTH INSURANCE; HEALTH SERVICE; HUMAN; INCOME; INDEPENDENCE; MAJOR CLINICAL STUDY; MALE; NEOPLASM; PRESCHOOL CHILD; QUALITATIVE ANALYSIS; QUALITY OF LIFE; RESOURCE ALLOCATION; SCHOOL CHILD; SOCIOECONOMICS; STRESS; WELFARE RIGHTS ADVICE; WELLBEING;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; CHILD; CHILD, PRESCHOOL; DELIVERY OF HEALTH CARE; ENGLAND; FEMALE; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; QUALITATIVE RESEARCH; QUESTIONNAIRES; SOCIAL WELFARE; SOCIOECONOMIC FACTORS; YOUNG ADULT;

EID: 84864967991     PISSN: None     EISSN: 19326203     Source Type: Journal    
DOI: 10.1371/journal.pone.0042979     Document Type: Article

References (55)

1. Francoeur RB, ((2007)) The influence of age on perceptions of anticipated financial inadequacy by palliative radiation outpatients. Patient Education and Counseling 69:: 84--92.
2. Wilson K, Amir Z, ((2008)) Cancer and disability benefits: a synthesis of qualitative findings on advice and support. Psycho-Oncology 17:: 421--429.
3. Pearce S, Kelly D, Stevens W, ((1999)) 'More than just money'- widening the understanding of the costs involved in cancer care. Journal of Advanced Nursing 33:: 317--379.
4. Francoeur RB, ((2001)) Reformulating financial problems and interventions to improve psychosocial and functional outcomes in cancer patients and their families. Journal of Psychosocial Oncology 19:: 1--20.
5. Hanratty B, Holland P, Jacoby A, Whitehead M, ((2007)) Review article: Financial stress and strain associated with terminal cancer- a review of the evidence. Palliative Medicine 21:: 595.
6. Wright EP, Kiely MA, Lynch P, Cull A, Selby PJ, ((2002)) Social problems in oncology. British Journal of Cancer 87:: 1099--1104.
7. Syse A, Tretli S, Kravdal O, ((2008)) Cancer's impact on employment and earnings- a population-based study from Norway. Journal of Cancer Survivorship 2:: 149--158.
8. Lauzier S, Maunsell E, Drolet M, Coyle D, Hebert-Croteau N, et al. ((2008)) Wage losses in the year after breast cancer: Extent and determinants among Canadian women. J Natl Cancer Inst 100:: 321--332.
9. de Boer AGEM, Taskila T, Ojajarvi A, van Dijk FJH, Verbeek JHAM, ((2009)) Cancer survivors and unemployment: A meta-analysis and meta-regression. JAMA 301:: 753--762.
10. Himmelstein DU, Warren E, Thorne E, Woolhandler S (2005) Illness and injury as contributors to bankruptcy. Health Affairs. doi: 10.1377/hlthaff.w5.63.
11. Macmillan Cancer Relief (2004) The Unclaimed Millions. Available: www.macmillan.org.uk.showdocument.asp?id=443. Accessed 2008 Oct 1.
12. Quinn MJ, Babb P, Brock A, Kirby L, Jones J (2001) Cancer trends in England and Wales, 1950-1999. Studies on Medical and Population Subjects No. 66. London: The Stationery Office.
13. Shack L, Jordan C, Thomson CS, Mak V, Møller H, et al. ((2008)) Variation in incidence of breast, lung and cervical cancer and malignant melanoma of skin by socioeconomic group in England. BMC Cancer 8:: 271--281.
14. Kogevinas M, Porta M (1997) Socio-economic differences in cancer survival: a review of the evidence. In: Kogevinas M, Pearce M, Susser M, Boffetta p, editors. Social Inequalities and Cancer: International Agency for Research on Cancer, WHO 177-206.
15. Singh GK, Miller BA, Hankey BF, Edwards BK (2003) Area socioeconomic variations in the US, cancer incidence, mortality, stage, treatment and survival, 1975-1999. National Cancer Institute. 03-5417 03-5417.
16. Ward E, Jemal A, Cokkinides V, Singh GK, Cardinez C, et al. ((2004)) Cancer disparities by race/ethnicity and socioeconomic status. Cancer Journal for Clinicians 54:: 78--93.
17. Rosengren A, Wilhelmsen L, ((2004)) Cancer incidence, mortality from cancer and survival in men of different occupational classes. European Journal of Epidemiology 19:: 533--540.
18. The Marmot Review (2010) Fair Society, Healthy Lives. London: UCL. ISBN 978-0-9564870-0-1 1-242.
19. National Audit Office (2005) Department of Work and Pensions: Dealing with the Complexity of the Benefits System. London: The Stationery Office.
20. Chapple A, Ziebland S, McPherson A, Summerton N, ((2004)) Lung cancer patients' perceptions of access to financial benefits: A qualitative study. British Journal of General Practice 54:: 589--594.
21. National Institute for Health and Clinical Excellence (2004) Improving Supportive and Palliative Care for People with Cancer (The Manual). London: National Institute for Clinical Excellence.
22. Department of Health (2010) National Cancer Patient Experience Survey. Available: http://www.dh.gov.uk/en/publicationsandstatistics/publications/publicationsstatistics/DH_122516. Accessed 2011 Jan 18.
23. Paris JAG, Player D, ((1993)) Citizens advice in general practice. BMJ 306:: 1518--1520.
24. Acheson D (1998) Independent Inquiry into Inequalities in Health. London: HMSO.
25. Fraser of Allander Institute (2003) The impact of welfare spending on the Glasgow economy. Glasgow: University of Strathclyde.
26. Moffatt S, Scambler G, ((2008)) Can welfare-rights advice targeted at older people reduce social exclusion? Ageing and Society 28:: 875--899.
27. Adams J, White M, Moffatt S, Howel D, Mackintosh J, ((2006)) A systematic review of the health, social and financial impacts of welfare rights advice delivered in health care settings. BMC Public Health 6:: 81.
28. Association of Public Health Observatories and Department of Health (2009) Health summary for County Durham UA. Available: http://www.apho.org.uk/default.aspx?QN=HP_METADATA&AreaID=71130. Accessed 2010 Jan 21.
29. Northern and Yorkshire Cancer Registry and Information Service (2008) County Durham PCT Factsheet. Available: http://www.nycris.nhs.uk/uploads/doc576_109_PCT%20Factsheet%20NECN%20-%2010%205ND%20County%20Durham%20PCT.pdf. Accessed 2010 Jan 21.
30. Indices of deprivation (2007) Available: http://www.communities.gov.uk/communities/neighbourhoodrenewal/deprivation/deprivation07/.Accessed 2009 May 6.
31. Statistical Package for Social Science (2009) V17.0 for Windows 17.0 ed. Chicago, Illinois.
32. Green J, Thorogood N (2009) Qualitative Methods for Health Researchers. London: Sage.
33. Coyne IT, ((1997)) Sampling in qualitative research. Purposeful and theoretical sampling: merging or clear boundaries? J Advanced Nursing 26:: 623--630.
34. Denzin NK (1978) The Research Act. New York: McGraw-Hill Book Company.
35. QSR International (2007) NVivo 7: Computer Assisted Software for Qualitative Analysis. Available: http://www.qsrinternational.com/support_resource-articles_detail.aspx?view=88. Accessed 2012 Jul 18.
36. Ritchie J, Lewis J, editors (2003) Qualitative Research Practice. A Guide for Social Scientists. London: Sage.
37. Glaser B, Strauss A (1967) The Discovery of Grounded Theory. Chicago: Aldine.
38. Silverman D (2000) Doing qualitative research. London: Sage.
39. Clayman SE, Maynard DW (1995) Ethnomethodology and Conversation Analysis. In: ten Have P, Psathas G, editors. Situated Order: Studies in the Social Organisation of Talk and Embodied Activities. Washington, D.C.: University Press of America. 1-30.
40. Barbour RS, ((2001)) Checklists for improving rigour in qualitative research: the case of the tail wagging the dog? British Medical Journal 322:: 1115--1117.
41. Cook K, Dranove D, Sfekas A, ((2010)) Does major illness cause financial catastrophe? Health Services Research 45:: 418--436.
42. Arber S, Ginn J, editors (1995) Connecting gender and ageing. Buckingham: OUP.
43. Men's Health Forum (2009) Challenges and Choices. Improving health services to save men's lives. Available: http://www.menshealthforum.org.uk/content/nmhw-2009-policy-webpdf. Accessed 2010 Apr 4.
44. Moffatt S, Mackintosh J, ((2009)) Older people's experience of proactive welfare rights advice: qualitative study of a South Asian community. Ethnicity and Health 14:: 5--25.
45. Welch LC, Teno JM, Mor V, ((2005)) End of life care in black and white: race matters for medical care of dying patients and their families. Journal of the American Geriatric Society 53:: 1145--1153.
46. Mayer DK, Reiner A, ((2009)) The costs of cancer. Clinical Journal of Oncology Nursing 13:: 255--256.
47. Eikemo TA, Bambra C, ((2008)) The welfare state: a glossary for public health. Journal of Epidemiology and Community Health 62:: 3--6.
48. Brennenstuhl S, Quesnel-Vallee A, McDonough P (2011) Welfare regimes, population health and health inequalities: a research synthesis. JECH Online First: 1-13.
49. Soothill K, Morris SM, Harman J, Francis B, Thomas C, et al. ((2001)) The significant unmet needs of cancer patients: probing psychosocial concerns. Support Care Cancer 9:: 597--605.
50. Nosowska G, ((2004)) A delay they can ill afford: delays in obtaining Attendance Allowance for older, terminally ill cancer patients, and the role of health and social care professionals in reducing them. Health & Social Care in the Community 12:: 283--287.
51. National Cancer Action Team (2007) Holistic common assessment of supportive and palliative care needs for adults with cancer. King's College London.
52. Argyle E, ((2001)) Poverty, disability and the role of older carers. Disability and Society 16:: 585--595.
53. Smith R, Sim J, Scharf T, Philipson C, ((2004)) Determinants of quality of life amongst older people in deprived neighbourhoods. Ageing & Society 24:: 793--814.
54. McKee M, Stuckler M (2011) The assualt on universalism: how to destroy the welfare state. BMJ 343.
55. Wintour P (2011) Welfare bill "will penalise cancer patients". The Guardian, 1.