Personal electronic health records: Understanding user requirements and needs in chronic cancer care

Journal of Medical Internet Research

Volumn 17, Issue 5, 2015, Pages

  Baudendistel, Ines ^a   Winkler, Eva ^b   Kamradt, Martina ^a   Langst, Gerda ^a   Eckrich, Felicitas ^b   Heinze, Oliver ^a   Bergh, Bjoern ^a   Szecsenyi, Joachim ^a   Ose, Dominik ^a  

^a UNIVERSITY HOSPITAL HEIDELBERG   (Germany)

^b GERMAN CANCER RESEARCH CENTER DKFZ   (Germany)

Author keywords

Chronic Care; Colorectal Cancer; Functions; Personal Electronic Health Record; User Requirements

Indexed keywords

AGED; COLORECTAL TUMOR; ELECTRONIC HEALTH RECORD; FEMALE; GERMANY; HUMAN; INFORMATION PROCESSING; LONG TERM CARE; MALE; MIDDLE AGED; NEEDS ASSESSMENT; PROSPECTIVE STUDY; QUALITATIVE RESEARCH; STANDARDS;

AGED; COLORECTAL NEOPLASMS; ELECTRONIC HEALTH RECORDS; FEMALE; FOCUS GROUPS; GERMANY; HUMANS; LONG-TERM CARE; MALE; MIDDLE AGED; NEEDS ASSESSMENT; PROSPECTIVE STUDIES; QUALITATIVE RESEARCH;

EID: 84930332851     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.3884     Document Type: Article

References (43)

1. Street RL. Mediated consumer-proviDer communication in cancer care: the empowering potential of new technologies. Patient Educ Couns 2003 May;50(1):99-104
2. Archer N, Fevrier-Thomas U, Lokker C, McKibbon KA, Straus SE. Personal health records: a scoping review. J Am Med Inform Assoc 2011;18(4):515-522] [10.1136/amiajnl-2011-000105
3. Fisher B, Bhavnani V, Winfield M. How patients use access to their full health records: a qualitative study of patients in general practice. J R Soc Med 2009 Dec;102(12):539-544] [10.1258/jrsm.2009.090328
4. Weppner WG, Ralston JD, Koepsell TD, Grothaus LC, Reid RJ, Jordan L, et al. Use of a shared medical record with secure messaging by olDer patients with diabetes. Diabetes Care 2010 Nov;33(11):2314-2319] [10.2337/dc10-1124
5. Ralston JD, Martin DP, AnDerson ML, Fishman PA, Conrad DA, Larson EB, et al. Group health cooperative's transformation toward patient-centered access. Med Care Res Rev 2009 Dec;66(6):703-724. [10.1177/1077558709338486
6. Tang PC, Ash JS, Bates DW, Overhage JM, Sands DZ. Personal health records: Definitions, benefits, and strategies for overcoming barriers to adoption. J Am Med Inform Assoc 2006;13(2):121-126] [10.1197/jamia.M2025
7. TenforDe M, Jain A, Hickner J. The value of personal health records for chronic disease management: what do we know? Fam Med 2011 May;43(5):351-354
8. Goldzweig CL, Orshansky G, Paige NM, Towfigh AA, Haggstrom DA, Miake-Lye I, et al. Electronic patient portals: eviDence on health outcomes, satisfaction, efficiency, and attituDes: a systematic review. Ann Intern Med 2013 Nov 19;159(10):677-687. [10.7326/0003-4819-159-10-201311190-00006
9. Greenhalgh T, HinDer S, Stramer K, Bratan T, Russell J. Adoption, non-Adoption, and abandonment of a personal electronic health record: case study of HealthSpace. BMJ 2010;341:c5814
10. Patel VN, Abramson E, Edwards AM, Cheung MA, Dhopeshwarkar RV, Kaushal R. Consumer attituDes toward personal health records in a beacon community. Am J Manag Care 2011 Apr;17(4):e104-e120
11. Wen KY, Kreps G, Zhu F, Miller S. Consumers' perceptions about and use of the internet for personal health records and health information exchange: analysis of the 2007 Health Information National Trends Survey. J Med Internet Res 2010;12(4):e73] [10.2196/jmir.1668
12. Honeyman A, Cox B, Fisher B. Potential impacts of patient access to their electronic care records. Inform Prim Care 2005;13(1):55-60
13. Ross SE, Todd J, Moore LA, Beaty BL, Wittevrongel L, Lin CT. Expectations of patients and physicians regarding patient-Accessible medical records. J Med Internet Res 2005;7(2):e13] [10.2196/jmir.7.2.e13
14. Zulman DM, Nazi KM, Turvey CL, Wagner TH, Woods SS, An LC. Patient interest in sharing personal health record information: a web-based survey. Ann Intern Med 2011 Dec 20;155(12):805-810. [10.7326/0003-4819-155-12-201112200-00002
15. Bhavnani V, Fisher B, Winfield M, Seed P. How patients use access to their electronic GP record-A quantitative study. Fam Pract 2011 Apr;28(2):188-194] [10.1093/fampra/cmq092
16. Weitzman ER, Kaci L, Mandl KD. Acceptability of a personally controlled health record in a community-based setting: implications for policy and Design. J Med Internet Res 2009;11(2):e14] [10.2196/jmir.1187
17. Earnest MA, Ross SE, Wittevrongel L, Moore LA, Lin CT. Use of a patient-Accessible electronic medical record in a practice for congestive heart failure: patient and physician experiences. J Am Med Inform Assoc 2004;11(5):410-417] [10.1197/jamia.M1479
18. Yau GL, Williams AS, Brown JB. Family physicians' perspectives on personal health records: qualitative study. Can Fam Physician 2011 May;57(5):e178-e184
19. Huba N, Zhang Y. Designing patient-centered personal health records (PHRs): health care professionals' perspective on patient-generated data. J Med Syst 2012 Dec;36(6):3893-3905. [10.1007/s10916-012-9861-z
20. Oken MM, Creech RH, Tormey DC, Horton J, Davis TE, McFadDen ET, et al. Toxicity and response criteria of the Eastern Cooperative Oncology Group. Am J Clin Oncol 1982 Dec;5(6):649-655
21. Kitzinger J. Qualitative research. Introducing focus groups. BMJ 1995 Jul 29;311(7000):299-302]
22. Glaser J, LauDel G. Experteninterviews und qualitative Inhaltsanalyse: als Instrumente rekonstruierenDer Untersuchungen (German Edition). WiesbaDen: VS Verlag fuer Sozialwissenschaften; 2010
23. Mayring P. Qualitative Inhaltsanalyse: Grundlagen und Techniken. Weinheim: Beltz; 2010
24. Fernando B, Kalra D, Morrison Z, Byrne E, Sheikh A. Benefits and risks of structuring and/or coding the presenting patient history in the electronic health record: systematic review. BMJ Qual Saf 2012 Apr;21(4):337-346. [10.1136/bmjqs-2011-000450
25. Hassol A, Walker JM, KidDer D, Rokita K, Young D, Pierdon S, et al. Patient experiences and attituDes about access to a patient electronic health care record and linked web messaging. J Am Med Inform Assoc 2004;11(6):505-513] [10.1197/jamia.M1593
26. Ralston JD, Revere D, Robins LS, Goldberg HI. Patients' experience with a diabetes support programme based on an interactive electronic medical record: qualitative study. BMJ 2004 May 15;328(7449):1159] [10.1136/bmj.328.7449.1159
27. Pyper C, Amery J, Watson M, Crook C. Patients' experiences when accessing their on-line electronic patient records in primary care. Br J Gen Pract 2004 Jan;54(498):38-43
28. Nazi KM, Hogan TP, Wagner TH, McInnes DK, Smith BM, Haggstrom D, et al. Embracing a health services research perspective on personal health records: lessons learned from the VA My HealtheVet system. J Gen Intern Med 2010 Jan;25 Suppl 1:62-67] [10.1007/s11606-009-1114-6
29. Pai HH, Lau F, Barnett J, Jones S. Meeting the health information needs of prostate cancer patients using personal health records. Curr Oncol 2013 Dec;20(6):e561-e569] [10.3747/co.20.1584
30. Ralston JD, Carrell D, Reid R, AnDerson M, Moran M, Hereford J. Patient web services integrated with a shared medical record: patient use and satisfaction. J Am Med Inform Assoc 2007 Nov;14(6):798-806] [10.1197/jamia.M2302
31. Ahmadi M, Jeddi FR, Gohari MR, Sadoughi F. A review of the personal health records in selected countries and Iran. J Med Syst 2012 Apr;36(2):371-382. [10.1007/s10916-010-9482-3
32. Zhou YY, Garrido T, Chin HL, Wiesenthal AM, Liang LL. Patient access to an electronic health record with secure messaging: impact on primary care utilization. Am J Manag Care 2007 Jul;13(7):418-424
33. Lin CT, Wittevrongel L, Moore L, Beaty BL, Ross SE. An Internet-based patient-proviDer communication system: randomized controlled trial. J Med Internet Res 2005;7(4):e47] [10.2196/jmir.7.4.e47
34. Volk LA, Pizziferri L, Wald J, Bates DW. Patients Perceptions of a Web Portal Offering Clinic Messaging and Personal Health Information. 2005 Presented at: AMIA Annu Symp Proc:1147; 2005; Washington, DC
35. WaDe-Vuturo AE, Mayberry LS, Osborn CY. Secure messaging and diabetes management: experiences and perspectives of patient portal users. J Am Med Inform Assoc 2013 May 1;20(3):519-525] [10.1136/amiajnl-2012-001253
36. Hess R, Bryce CL, Paone S, Fischer G, McTigue KM, Olshansky E, et al. Exploring challenges and potentials of personal health records in diabetes self-management: implementation and initial assessment. Telemed J E Health 2007 Oct;13(5):509-517. [10.1089/tmj.2006.0089
37. Burke RP, Rossi AF, Wilner BR, Hannan RL, Zabinsky JA, White JA. Transforming patient and family access to medical information: utilisation patterns of a patient-Accessible electronic health record. Cardiol Young 2010 Oct;20(5):477-484. [10.1017/S1047951110000363
38. Hoerbst A, Kohl CD, Knaup P, Ammenwerth E. AttituDes and behaviors related to the introduction of electronic health records among Austrian and German citizens. Int J Med Inform 2010 Feb;79(2):81-89. [10.1016/j.ijmedinf.2009.11.002
39. Emani S, Yamin CK, Peters E, Karson AS, Lipsitz SR, Wald JS, et al. Patient perceptions of a personal health record: a test of the diffusion of innovation moDel. J Med Internet Res 2012;14(6):e150] [10.2196/jmir.2278
40. Kahn JS, Aulakh V, Bosworth A. What it takes: characteristics of the iDeal personal health record. Health Aff (Millwood) 2009 Mar;28(2):369-376] [10.1377/hlthaff.28.2.369
41. Zickmund SL, Hess R, Bryce CL, McTigue K, Olshansky E, Fitzgerald K, et al. Interest in the use of computerized patient portals: role of the proviDer-patient relationship. J Gen Intern Med 2008 Jan;23 Suppl 1:20-26] [10.1007/s11606-007-0273-6
42. Haggstrom DA, Saleem JJ, Russ AL, Jones J, Russell SA, Chumbler NR. Lessons learned from usability testing of the VA's personal health record. J Am Med Inform Assoc 2011 Dec;18 Suppl 1:i13-i17] [10.1136/amiajnl-2010-000082
43. Gaylin DS, Moiduddin A, Mohamoud S, LunDeen K, Kelly JA. Public attituDes about health information technology, and its relationship to health care quality, costs, and privacy. Health Serv Res 2011 Jun;46(3):920-938] [10.1111/j.1475-6773.2010.01233.x