Participation in everyday life and life satisfaction in persons with stroke and their caregivers 3-6 months after onset

Journal of Rehabilitation Medicine

Volumn 47, Issue 6, 2015, Pages 508-515

  Bergström, Aileen L ^a,b   Von Koch, Lena ^a,c   Andersson, Magnus ^c   Tham, Kerstin ^a   Eriksson, Gunilla ^a,b  

^a KAROLINSKA INSTITUTE   (Sweden)

^b UPPSALA UNIVERSITY   (Sweden)

^c KAROLINSKA UNIVERSITY HOSPITAL   (Sweden)

Author keywords

Dyads; Occupational gaps; Occupational therapy; Stroke

Indexed keywords

ADOLESCENT; ADULT; AGED; CAREGIVER; CLINICAL TRIAL; CROSS-SECTIONAL STUDY; DAILY LIFE ACTIVITY; FEMALE; HUMAN; MALE; MIDDLE AGED; MULTICENTER STUDY; PSYCHOLOGY; QUALITY OF LIFE; QUESTIONNAIRE; SATISFACTION; SOCIAL PARTICIPATION; STROKE; VERY ELDERLY; YOUNG ADULT;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; CROSS-SECTIONAL STUDIES; FEMALE; HUMANS; MALE; MIDDLE AGED; PERSONAL SATISFACTION; QUALITY OF LIFE; SOCIAL PARTICIPATION; STROKE; SURVEYS AND QUESTIONNAIRES; YOUNG ADULT;

EID: 84930065672     PISSN: 16501977     EISSN: 16512081     Source Type: Journal    
DOI: 10.2340/16501977-1964     Document Type: Article

References (42)

1. Mayo NE, Wood-Dauphinee S, Cote R, Durcan L, Carlton J. Activity, participation, and quality of life 6 months poststroke. Arch Phys Med Rehabil 2002; 83: 1035-1042.
2. The National Board of Health and Welfare (Socialstyrelsen). [Life situation two years after stroke-a follow up of stroke victims and their relatives 2004]. Available from: http://www.socialstyrelsen.se/publikationer 2004-123-40 (in Swedish).
3. Pearlin LI, Mullan JT, Semple SJ, Skaff MM. Caregiving and the stress process: an overview of concepts and their measures. The Gerontologist 1990; 30: 583-594.
4. Visser-Meily A, Post M, Riphagen I, Lindeman E. Measures used to assess burden among caregivers of stroke patients: a review. Clin Rehabil 2004; 18: 601-623.
5. Forsberg-Warleby G, Moller A, Blomstrand C. Life satisfaction in spouses of patients with stroke during the first year after stroke. J Rehabil Med 2004; 36: 4-11.
6. Heinemann AW. Measurement of participation in rehabilitation research. Arch Phys Med Rehabil 2010; 91 Suppl 9: S1-S4.
7. Levasseur M, Desrosiers J, Whiteneck G. Accomplishment level and satisfaction with social participation of older adults: association with quality of life and best correlates. Quality Life Res 2010; 19: 665-675.
8. Noonan VK, Kopec JA, Noreau L, Singer J, Chan A, Masse LC, et al. Comparing the content of participation instruments using the international classification of functioning, disability and health. Health Qual Life Outcomes 2009; 7: 93.
9. Mallinson T, Hammel J. Measurement of participation: intersecting person, task, and environment. Arch Phys Med Rehabil 2010; 91 Suppl 9: S29-S33.
10. Townsend E, Polatajko H, editors. Enabling Occupation II: advancing an occupational therapy vision for health, well-being and justice through occupation. Ottawa, Ontario: CAOT Publications ACE; 2007.
11. Bergstrom AL, Guidetti S, Tistad M, Tham K, von Koch L, Eriksson G. Perceived occupational gaps one year after stroke: an explorative study. J Rehabil Med 2012; 44: 36-42.
12. Fallahpour M, Tham K, Taghi Joghataei M, Eriksson G, Jonsson H. Occupational gaps in everyday life after stroke and the relation to aspects of functioning and perceived life satisfaction. Occup Ther J Res 2011; 31: 200-208.
13. Eriksson G, Asasnes M, Tistad M, Guidetti S, von Koch L. Occupational gaps in everyday life one year after stroke and the association with life satisfaction and impact of stroke. Top Stroke Rehabil 2012; 19: 244-255.
14. Pellerin C, Rochette A, Racine E. Social participation of relatives post-stroke: the role of rehabilitation and related ethical issues. Disabil Rehabil 2011; 33: 1055-1064.
15. Ekstam L, Tham K, Borell L. Couples' approaches to changes in everyday life during the first year after stroke. Scand J Occup Ther 2011; 18: 49-58.
16. van Nes F, Runge U, Jonsson H. One body, three hands and two minds: a case study of the intertwined occupations of an older couple after a stroke. J Occupat Sci 2009; 16: 194-202.
17. Laliberte-Rudman D, Hebert D, Reid D. Living in a restricted occupational world: the occupational experiences of stroke survivors who are wheelchair users and their caregivers. Can J Occupat Ther 2006; 73: 141-152.
18. Fugl-Meyer AR, Brännholm I-B, Fugl-Meyer K. Happiness and domain-specific life satisfaction in adult northern Swedes. Clin Rehabil 1991; 5: 25-33.
19. Low JTS, Payne S, Roderick P. The impact of stroke on informal carers: a literature review. Soc Sci Med 1999; 49: 711-725.
20. Eriksson G, Kottorp A, Borg J, Tham K. Relationship between occupational gaps in everyday life, depressive mood and life satisfaction after acquired brain injury J Rehabil Med 2009; 41: 187-194.
21. Bergstrom AL, Eriksson G, von Koch L, Tham K. Combined life satisfaction of persons with stroke and their caregivers: associations with caregiver burden and the impact of stroke. Health Qual Life Outcomes 2011; 9: 1.
22. Carlsson GE, Forsberg-Warleby G, Moller A, Blomstrand C. Comparison of life satisfaction within couples one year after a partner's stroke. J Rehabil Med 2007; 39: 219-224.
23. Eriksson G, Tham K, Fugl-Meyer AR. Couples' happiness and its relationship to functioning in everyday life after brain injury. Scand J Occup Ther 2005; 12: 40-48.
24. Visser-Meily A, Post M, Gorter JW, Berlekom SBV, Van Den Bos T, Lindeman E. Rehabilitation of stroke patients needs a family-centred approach. Disabil Rehabil 2006; 28: 1557-1561.
25. Bertilsson AS, Ranner M, von Koch L, Eriksson G, Johansson U, Ytterberg C, et al. A client-centred ADL intervention: three-month follow-up of a randomized controlled trial. Scand J Occup Ther 2014; 21: 377-391.
26. Folstein MF, Folstein SE, McHugh PR. "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res 1975; 12: 189-198.
27. Mahoney F, Barthel D. Functional evaluation: the Barthel Index. Maryland State Medical J 1965; 14: 61-65.
28. Goldstein LB, Bertels C, Davis JN. Interrater reliability of the NIH stroke scale. Arch Neurol 1989; 46: 660-662.
29. Govan L, Langhorne P, Weir CJ. Categorizing stroke prognosis using different stroke scales. Stroke 2009; 40: 3396-3399.
30. Eriksson G, Tham K, Borg J. Occupational gaps in everyday life 1-4 years after acquired brain injury. J Rehabil Med 2006; 38: 159-165.
31. Eriksson G, Tham K, Kottorp A. A cross-diagnostic validation of an instrument measuring participation in everyday occupations: the Occupational Gaps Questionnaire (OGQ). Scand J Occup Ther 2013; 20: 152-160.
32. Eriksson G. Occupational Gaps Questionnaire (OGQ) version 1.0/2013. Swedish Association of Occupational Therapists. Published by FSA (Förbundet Sveriges Arbetsterapeuter), Nacka, Sweden. ISBN: 978-91-86210-76-2. Available from: www.fsa.se/forlag.
33. Fugl-Meyer AR, Melin R, Fugl-Meyer KS. Life satisfaction in 18- to 64-year-old Swedes: in relation to gender, age, partner and immigrant status. J Rehabil Med 2002; 34: 239-246.
34. Duncan PW, Bode RK, Min Lai S, Perera S. Rasch analysis of a new stroke-specific outcome scale: the Stroke Impact Scale. Arch Phys Med Rehabil 2003; 84: 950-963.
35. Duncan PW, Wallace D, Lai SM, Johnson D, Embretson S, Laster LJ. The stroke impact scale version 2.0. Evaluation of reliability, validity, and sensitivity to change. Stroke 1999; 30: 2131-2140.
36. Elmstahl S, Malmberg B, Annerstedt L. Caregiver's burden of patients 3 years after stroke assessed by a novel caregiver burden scale. Arch Phys Med Rehabil 1996; 77: 177-182.
37. Altman D, editor. Practical statistics for medical research London: Chapman & Hall; 1995.
38. Achten D, Visser-Meily JM, Post MW, Schepers VP. Life satisfaction of couples 3 years after stroke. Disabil Rehabil 2012; 34: 1468-1472.
39. Thommessen B, Aarsland D, Braekhus A, Oksengaard AR, Engedal K, Laake K. The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease. Int J Geriatr Psychiatr 2002; 17: 78-84.
40. Bäckström B, Sundin K. The experience of being a middle-aged close relative of a person who has suffered a stroke - six months after discharge from a rehabilitation clinic. Scand J Caring Sci 2009; 24: 116-124.
41. Matuska K, Christiansen C. A proposed model of lifestyle balance. J Occupat Sci 2008; 15: 9-19.
42. Lai SM, Perera S, Duncan PW, Bode R. Physical and social functioning after stroke: comparison of the Stroke Impact Scale and Short Form-36. Stroke 2003; 34: 488-493.