Conversations about End of Life: Perspectives of Nursing Home Residents, Family, and Staff

Journal of Palliative Medicine

Volumn 18, Issue 5, 2015, Pages 421-428

  Towsley, Gail L ^a   Hirschman, Karen B ^b   Madden, Connie ^a  

^a UNIVERSITY OF UTAH   (United States)

^b UNIVERSITY OF PENNSYLVANIA SCHOOL OF NURSING   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE TO DEATH; ATTITUDE TO HEALTH; CLINICAL ARTICLE; CLINICAL EXAMINATION; CONTROLLED STUDY; CONVERSATION; FAMILY; FAMILY ATTITUDE; FEMALE; HEALTH PERSONNEL ATTITUDE; HUMAN; LIVING WILL; MALE; NURSING HOME PATIENT; NURSING HOME PERSONNEL; PATIENT ATTITUDE; PATIENT PREFERENCE; PERSONAL EXPERIENCE; QUALITATIVE RESEARCH; SEMI STRUCTURED INTERVIEW; SOCIAL WORK; TERMINAL CARE; COMMUNICATION DISORDER; HUMAN RELATION; INTERPERSONAL COMMUNICATION; INTERVIEW; MIDDLE AGED; NURSING HOME; PENNSYLVANIA; PSYCHOLOGY; VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; ATTITUDE TO DEATH; COMMUNICATION; COMMUNICATION BARRIERS; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; NURSING HOMES; PATIENT PREFERENCE; PENNSYLVANIA; PROFESSIONAL-FAMILY RELATIONS; PROFESSIONAL-PATIENT RELATIONS; QUALITATIVE RESEARCH; TERMINAL CARE;

EID: 84930000729     PISSN: 10966218     EISSN: 15577740     Source Type: Journal    
DOI: 10.1089/jpm.2014.0316     Document Type: Article

References (34)

1. U.S. Administration on Aging: A Profile of Older Americans: 2012. www.aoa.gov/AoAroot/Aging-Statistics/Profile/2012/6.aspx. (Last accessed August 17, 2014.)
2. Brock DB, Foley DJ: Demography and epidemiology of dying in the U.S. with emphasis on deaths of older persons. Hosp J 1998;13:49-60.
3. Levinson D: Medicare Nursing Home Resident Hospitalization Rates Merit Additional Monitoring. U.S. Office of Inspector General, 2013.
4. Teno JM: Now is the time to embrace nursing homes as a place of care for dying persons. J Palliat Med 2003;6:293-296.
5. Stillman D, Strumpf N, Capezuti E, Tuch H: Staff perceptions concerning barriers and facilitators to end-of-life care in the nursing home. Geriatr Nurs 2005;26:259-264.
6. WHO: WHO Definition of Palliative Care. World Health Organization, 2009. www.who.int/cancer/palliative/definition/en/. (Last accessed August 10, 2014.)
7. National Palliative Care Reseach Center: What is Palliative Care? 2014. www.npcrc.org/content/15/About-Palliative-Care.aspx. (Last accessed August 10, 2014.)
8. Temkin-Greener H, Mukamel DB: Advance care planning in a frail older population: Patient versus program influences. Research Aging 2005;27:659-691.
9. Nath SB, Hirschman KB, Lewis B, Strumpf NE: A place called LIFE: Exploring the advance care planning of African-American PACE enrollees. Soc Work Health Care 2008;47:277-292.
10. Fosse A, Schaufel MA, Ruths S, Malterud K: End-of-life expectations and experiences among nursing home patients and their relatives: A synthesis of qualitative studies. Patient Educ Couns 2014;97:3-9.
11. Ersek M, Wilson SA: The challenges and opportunities in providing end-of-life care in nursing homes. J Palliat Med 2003;6:45-57.
12. Shield RR, Wetle T, Teno J, et al.: Vigilant at the end of life: Family advocacy in the nursing home. J Palliat Med 2010;13:573-579.
13. Teno JM, Clarridge BR, Casey V, et al.: Family perspectives on end-of-life care at the last place of care. JAMA 2004;291:88-93.
14. Furman CD, Kelly SE, Knapp K, et al.: Eliciting goals of care in a nursing home. J Am Med Dir Assoc 2007;8:e35-e41.
15. Bradley EH, Blechner BB, Walker LC, Wetle TT: Institutional efforts to promote advance care planning in nursing homes: Challenges and opportunities. J Law Med Ethics 1997;25:150-159.
16. Hirschman HB, Abbott KM, Hanlon AL, et al.: What factors are associated with having an advance directive among older adults who are new to long term care services? J Am Med Dir Assoc 2012;13:82.e7-82.e11.
17. Resnick HE, Schuur JD, Heineman J, et al.: Advance directives in nursing home residents aged > or = 65 years: United States 2004. Am J Hosp Palliat Care 2008;25:476-482.
18. Teno JM, Gruneir A, Schwartz Z, et al.: Association between advance directives and quality of end-of-life care: A national study. J Am Geriatr Soc 2007;55:189-194.
19. Bradley EH, Peiris V, Wetle T: Discussions about end-of-life care in nursing homes. J Am Geriatr Soc 1998;46:1235-1241.
20. Reynolds KS, Hanson LC, DeVellis RF, et al.: Disparities in pain management between cognitively intact and cognitively impaired nursing home residents. J Pain Symptom Manage 2008;35:388-396.
21. Munn JC, Dobbs D, Meier A, et al.: The end-of-life experience in long-term care: Five themes identified from focus groups with residents, family members, and staff. Gerontologist 2008;48:485-494.
22. Stone L, Kinley J, Hockley J: Advance care planning in care homes: The experience of staff, residents, and family members. Int J Palliat Nurs 2013;19:550-557.
23. Hsieh HF, Shannon SE: Three approaches to qualitative content analysis. Qual Health Res 2005;15:1277-1288.
24. nd ed. Thousand Oaks, CA: Sage, 1994.
25. th ed. Thousand Oaks, CA: Sage, 2009.
26. Morse JM: Confusing categories and themes. Qual Health Res 2008;18:727-728.
27. Koch T: Establishing rigour in qualitative research: The decision trail. J Adv Nurs 2006;53:91-100.
28. nd ed. Thousand Oaks, CA: Sage, 2003.
29. Koren MJ: Person-centered care for nursing home residents: The culture-change movement. Health Aff (Millwood) 2010;29:312-317.
30. Shier V, Khodyakov D, Cohen L, et al.: What does the evidence really say about culture change in nursing homes? Gerontologist 2014;54:S6-S16.
31. Meier DE, Lim B, Carlson MD: Raising the standard: Palliative care in nursing homes. Health Aff (Millwood) 2010;29:136-140.
32. Happ MB, Capezuti E, Strumpf NE, et al.: Advance care planning and end-of-life care for hospitalized nursing home residents. J Am Geriatr Soc 2002;50:829-835.
33. Sudore RL, Fried TR: Redefining the "planning" in advance care planning: Preparing for end-of-life decision making. Ann Intern Med 2010;153:256-261.
34. Georgiou A, Marks A, Braithwaite J, Westbrook JI: Gaps, disconnections, and discontinuities: The role of information exchange in the delivery of quality long-term care. Gerontologist 2013;53:770-779.