Vigilant at the end of life: Family advocacy in the nursing home

Journal of Palliative Medicine

Volumn 13, Issue 5, 2010, Pages 573-579

  Shield, Renee R ^a   Wetle, Terrie ^a   Teno, Joan ^a   Miller, Susan C ^a   Welch, Lisa C ^b  

^a BROWN UNIVERSITY   (United States)

^b SOUTHERN ILLINOIS UNIVERSITY EDWARDSVILLE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

AGED; DYING; FAMILY ATTITUDE; FEMALE; GRIEF; HEALTH CARE DELIVERY; HEALTH CARE QUALITY; HUMAN; INTERVIEW; LENGTH OF STAY; MALE; NURSING HOME; PERCEPTION; REVIEW; TERMINALLY ILL PATIENT;

AGED; CHRONIC DISEASE; DECISION MAKING; FAMILY; FEMALE; HEALTH CARE SURVEYS; HOSPICE CARE; HUMANS; INSTITUTIONALIZATION; MALE; NURSING HOMES; PATIENT ADVOCACY; PROFESSIONAL-FAMILY RELATIONS; QUESTIONNAIRES;

EID: 77952795895     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/jpm.2009.0398     Document Type: Review

References (30)

1. Munn JC, Dobbs D, Meier A, Williams CS, Biola H, Zimmerman S: The end-of-life experience in long-term care: Five themes identified from focus groups with residents, family members, and staff. Gerontologist 2008;48: 485-494.
2. Singer PA, Bowman KW: Quality care at the end of life. BMJ 2002;324:1291-1292.
3. Teno JM, Clarridge BR, Casey V, Welch LC, Wetle T, Shield R, Mor V: Family perspectives on end-of-life care at the last place of care. JAMA 2004;291:88-93.
4. Travis SS, Bernard M, Dixon S, McAuley WJ, Loving G, McClanahan L: Obstacles to palliation and end-of-life care in a long-term care facility. Gerontologist 2003;42:342-349.
5. Ryan AA, Scullion HF: Family and staff perceptions of the role of families in nursing homes. J Adv Nurs 2000;32: 626-634.
6. Janzen W: Long-term care for older adults: The role of the family. J Gerontol Nurs 2001;27:36-43.
7. Levine C: Family caregivers, health care professionals, and policy makers: The diverse cultures of long-term care. In: Weiner AS, Ronch JL (eds): Culture Change in Long-Term Care. New York: Haworth Press, 2003, pp. 111-123.
8. Teno, JM, Casey VA, Welch L, Edgman-Levitan S: Patientfocused, family-centered end-of-life medical care: Views of the guidelines and bereaved family members. J Pain Sympt Manage 2001;22:738-751.
9. Welch LC, Miller SC, Martin EW, Nanda A: Referral and timing of referral to hospice care in nursing homes: The significant role of staff members. Gerontologist 2008;48: 477-484.
10. Furman CD, Kelly SE, Knapp K, Mowery RL, Miles T: Eliciting goals of care in a NH. J Am Med Dir Assoc 2007;8: E.35-E.41.
11. Gillick MR: Adapting advance medical planning for the nursing home. J Palliat Med 2004;7:357-361.
12. Wetle T, Shield R, Teno J, Miller SC, Welch L: Family perspectives on end-of-life care experiences in nursing homes. Gerontologist 2005;45:642-650.
13. Shield R, Wetle T, Teno J, Miller SC, Welch L: Physicians "missing in action:" Family perspectives on physician and staffing problems in end-of-life care in the nursing home. J Am Geriatr Soc 2005;53:1651-1657.
14. Crabtree B, Miller W (eds): Doing Qualitative Research, 2nd ed. London: Sage, 1999.
15. Curry L, Shield R, Wetle T (eds): Improving Aging and Public Health Research: Qualitative and Mixed Methods. Washington, D.C.: American Public Health Association and Gerontological Society of America, 2006.
16. Steinhauser KE, Barroso J: Using qualitative methods to explore key questions in palliative care. J Palliat Med 2009;12: 725-730.
17. Kayser-Jones J, Schell E, Lyons W, Kris AE, Chan J, Beard RL: Factors that influence end-of-life care in nursing homes: The physical environment, inadequate staffing, and lack of supervision. Gerontologist 2003;43(Spec no 2):76-84.
18. Kayser-Jones J, Beard RL, Sharpp TJ: Case study: Dying with a stage IV pressure ulcer. Am J Nurs 2009;109:40-48.
19. Christakis NA, Allison PD: Mortality after the hospitalization of a spouse. N Engl J Med 2006;354:719-730.
20. Williams SW, Williams CS, Zimmerman S, Munn J, Dobbs D, Sloane PD: Emotional and physical health of informal caregivers of residents at the end of life: The role of social support. J Gerontol Soc Sci 2008;63B:S171-S183.
21. Nelson ML, Schrader SL, Eidsness LM: "South Dakota's dying to know": Personal experiences with end-of-life care. J Palliat Med 2009;12:905-913.
22. Morrison SR: Suffering in silence: Addressing the needs of nursing home residents. J Palliat Med 2009;12:671-672.
23. Waldrop DP, Kirkendall AM: Comfort measures: A qualitative study of nursing home-based-end-of-life care. J Palliat Med 2009;12:719-724.
24. Hertzbert A, Ekman SL and Axelsson K: 'Relatives are a resource, but . . .': Registered nurses' views and experiences of relatives of residents in nursing homes. J Clin Nurs 2003;12:431-441.
25. Thomas WH: Evolution of Eden. In: Weiner AS, Ronch JL (eds): Culture Change in Long-Term Care. New York: Haworth Press, 2003, pp. 141-157.
26. Rosher RB, Robinson S: Impact of the Eden Alternative on family satisfaction. J Am Med Dir Assoc 2005;6:189-193.
27. Weiner AS, Ronch JL (eds): Culture Change in Long-Term Care. New York, Haworth Press, 2003.
28. Rabig J, Thomas W, Kane RA, Cutler JL, McAlilly S: Radical redesign of nursing homes: Applying the Greenhouse concept to Tupelo, Mississippi. Gerontologist 2006;46:533-539.
29. Miller, SC, Egan, KA: How can clinicians with diverse backgrounds and training collaborate to provide end-of-life care: THE NURSING HOME=HOSPICE PARTNERSHIP. 2006. www.chcr.brown.edu/nhhsp/RWJ-MONGRAPH- REVISED5-7-10-06.PDF
30. Miller SC: A model for successful nursing home-hospice partnerships. J Palliat Med 2010;13:525-533.