Unique characteristics of informal hospice cancer caregiving

Supportive Care in Cancer

Volumn 23, Issue 7, 2015, Pages 2121-2128

  Washington, Karla T ^a   Pike, Kenneth C ^b   Demiris, George ^b,c   Oliver, Debra Parker ^a  

^a University of Missouri   (United States)

^b UNIVERSITY OF WASHINGTON   (United States)

^c UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

Author keywords

Cancer; Caregiver; Family; Hospice

Indexed keywords

ADULT; AGE; ANXIETY; ARTICLE; BEREAVEMENT; CANCER DIAGNOSIS; CANCER PALLIATIVE THERAPY; CANCER PATIENT; CARDIOVASCULAR DISEASE; CAREGIVER; CAREGIVER BURDEN; CONTROLLED STUDY; DEMENTIA; DEMOGRAPHY; EMPLOYMENT STATUS; FEMALE; GENERALIZED ANXIETY DISORDER; HOSPICE CARE; HOSPICE PATIENT; HUMAN; MAJOR CLINICAL STUDY; MALE; MALIGNANT NEOPLASTIC DISEASE; PATIENT CARE; POTENTIAL DIFFERENCE; PRIORITY JOURNAL; PROBLEM SOLVING; PSYCHOMETRY; QUALITY OF LIFE; QUALITY OF LIFE INDEX; RANDOMIZED CONTROLLED TRIAL (TOPIC); SECONDARY ANALYSIS; SEX DIFFERENCE; AGED; ECONOMICS; HEALTH CARE COST; HOSPICE; MIDDLE AGED; NEOPLASMS; PROCEDURES; PSYCHOLOGY; RANDOMIZED CONTROLLED TRIAL; SOCIAL SUPPORT; STATISTICS AND NUMERICAL DATA; UNITED STATES; VERY ELDERLY; YOUNG ADULT;

ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; FEMALE; HEALTH EXPENDITURES; HOSPICE CARE; HOSPICES; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; QUALITY OF LIFE; SOCIAL SUPPORT; UNITED STATES; YOUNG ADULT;

EID: 84929961314     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-014-2570-z     Document Type: Article

References (32)

1. Centers for Medicare & Medicaid Services (n.d.) Medicare hospice data trends: 1998-2009. http://www.cms.gov/Medicare/Medicare-Fee-for-Service-Payment/Hospice/Medicare_Hospice_Data.html. Accessed 18 Apr 2014
2. National Hospice and Palliative Care Organization (2013) NHPCO facts and figures: hospice care in America
3. Teno JM, Weitzen S, Fennell ML, Mor V (2001) Dying trajectory in the last year of life: does cancer trajectory fit other diseases? J Palliat Med 4(4):457–464. doi:10.1089/109662101753381593
4. Davis J (2012) Examining disparities related to the use of hospice care: cancer vs. non-cancer diagnoses. Georgia State University
5. Steindal SA, Bredal IS, Sorbye LW, Lerdal A (2011) Pain control at the end of life: a comparative study of hospitalized cancer and noncancer patients. Scand J Caring Sci 25(4):771–779. doi:10.1111/j.1471-6712.2011.00892.x
6. Tranmer JE, Heyland D, Dudgeon D, Groll D, Squires-Graham M, Coulson K (2003) Measuring the symptom experience of seriously ill cancer and noncancer hospitalized patients near the end of life with the memorial symptom assessment scale. J Pain Symptom Manage 25(5):420–429
7. Currow DC, Smith J, Davidson PM, Newton PJ, Agar MR, Abernethy AP (2010) Do the trajectories of dyspnea differ in prevalence and intensity by diagnosis at the end of life? A consecutive cohort study. J Pain Symptom Manage 39(4):680–690. doi:10.1016/j.jpainsymman.2009.09.017
8. Stiel S, Matthies DM, Seuss D, Walsh D, Lindena G, Ostgathe C (2014) Symptoms and problem clusters in cancer and non-cancer patients in specialized palliative care—is there a difference? J Pain Symptom Manage. doi:10.1016/j.jpainsymman.2013.08.018
9. Steinhauser KE, Arnold RM, Olsen MK, Lindquist J, Hays J, Wood LL, Burton AM, Tulsky JA (2011) Comparing three life-limiting diseases: does diagnosis matter or is sick, sick? J Pain Symptom Manage 42(3):331–341. doi:10.1016/j.jpainsymman.2010.11.006
10. Harding R, Higginson I (2001) Working with ambivalence: informal caregivers of patients at the end of life. Support Care Cancer 9(8):642–645
11. Hudson P (2004) Positive aspects and challenges associated with caring for a dying relative at home. Int J Palliat Nurs 10(2):58–65, discussion 65
12. Chentsova-Dutton Y, Shucter S, Hutchin S, Strause L, Burns K, Zisook S (2000) The psychological and physical health of hospice caregivers. Ann Clin Psychiatry 12(1):19–27. doi:10.3109/10401230009147083
13. Parker Oliver D, Albright DL, Washington K, Wittenberg-Lyles E, Gage A, Mooney M, Demiris G (2013) Hospice caregiver depression: the evidence surrounding the greatest pain of all. J Soc Work End Life Palliat Care 9(4):256–271
14. Washington KT, Demiris G, Pike K, Kruse R, Parker Oliver D (2014) Anxiety among informal hospice caregivers: an exploratory study. Palliat Support Care
15. Wilder HM, Parker Oliver D, Demiris G, Washington K (2008) Informal hospice caregiving: the toll on quality of life. J Soc Work End Life Palliat Care 4(4):312–332
16. Girgis A, Abernethy AP, Currow DC (2014) Caring at the end of life: do cancer caregivers differ from other caregivers? BMJ Support Palliat Care. doi:10.1136/bmjspcare-2013-000495
17. Haley WE, LaMonde LA, Han B, Narramore S, Schonwetter R (2001) Family caregiving in hospice: effects on psychological and health functioning among spousal caregivers of hospice patients with lung cancer or dementia. Hosp J 15(4):1–18
18. Courtney K, Demiris G, Oliver DP, Porock D (2005) Conversion of the Caregiver Quality of Life Index to an interview instrument. Eur J Cancer Care (Engl) 14(5):463–464. doi:10.1111/j.1365-2354.2005.00612.x
19. Spitzer RL, Kroenke K, Williams JB, Lowe B (2006) A brief measure for assessing generalized anxiety disorder: the GAD-7. Arch Intern Med 166(10):1092–1097. doi:10.1001/archinte.166.10.1092
20. Heppner PP, Witty TE, Dixon WA (2004) Problem-solving appraisal and human adjustment: a review of 20 years of research using the problem solving inventory. Couns Psychol 32(3):344–428
21. Given CW, Given B, Stommel M, Collins C, King S, Franklin S (1992) The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments. Res Nurs Health 15(4):271–283
22. Albright DL, Oliver DP, Demiris G (2014) Reaction to caregiving by hospice caregivers upon enrollment. Am J Hosp Palliat Care. doi:10.1177/1049909114531327
23. Clark D, Ferguson C, Nelson C (2000) Macmillan Carers Schemes in England: results of a multicentre evaluation. Palliat Med 14(2):129–139
24. Hudson P, Quinn K, Kristjanson L, Thomas T, Braithwaite M, Fisher J, Cockayne M (2008) Evaluation of a psycho-educational group programme for family caregivers in home-based palliative care. Palliat Med 22(3):270–280. doi:10.1177/0269216307088187
25. McMillan SC, Small BJ, Weitzner M, Schonwetter R, Tittle M, Moody L, Haley WE (2006) Impact of coping skills intervention with family caregivers of hospice patients with cancer: a randomized clinical trial. Cancer 106(1):214–222
26. Demiris G, Parker Oliver D, Wittenberg-Lyles E, Washington K, Doorenbos A, Rue T, Berry D (2012) A noninferiority trial of a problem-solving intervention for hospice caregivers: in person versus videophone. J Palliat Med 15(6):653–660. doi:10.1089/jpm.2011.0488
27. Northouse L, Kershaw T, Mood D, Schafenacker A (2005) Effects of a family intervention on the quality of life of women with recurrent breast cancer and their family caregivers. Psychooncology 14(6):478–491. doi:10.1002/pon.871
28. Regan TW, Lambert SD, Girgis A, Kelly B, Kayser K, Turner J (2012) Do couple-based interventions make a difference for couples affected by cancer? A systematic review. BMC Cancer 12:279. doi:10.1186/1471-2407-12-279
29. Kim Y, Schulz R (2008) Family caregivers’ strains: comparative analysis of cancer caregiving with dementia, diabetes, and frail elderly caregiving. J Aging Health 20(5):483–503. doi:10.1177/0898264308317533
30. O’Connor DL (2007) Self-identifying as a caregiver: exploring the positioning process. J Aging Stud 21(2):165–174
31. Johnson KS (2013) Racial and ethnic disparities in palliative care. J Palliat Med 16(11):1329–1334. doi:10.1089/jpm.2013.9468
32. Washington KT, Bickel-Swenson D, Stephens N (2008) Barriers to hospice use among African Americans: a systematic review. Health Soc Work 33(4):267–274