Decision making at the end of life—cancer patients’ and their caregivers’ views on artificial nutrition and hydration

Supportive Care in Cancer

Volumn 22, Issue 12, 2014, Pages 3287-3299

  Bukki J ^a,b,c   Unterpaul, T ^b   Nubling G ^b   Jox, R J ^b,d   Lorenzl, S ^a,b  

^a PARACELSUS MEDICAL UNIVERSITY   (Austria)

^b LUDWIG MAXIMILIANS UNIVERSITY   (Germany)

^c Hospice Care DaSein   (Germany)

^d UNIVERSITY OF MUNICH   (Germany)

Author keywords

Advance care planning; Artificial nutrition and hydration; Caregivers; Decision making; Questionnaire

Indexed keywords

AGED; ATTITUDE; CANCER STAGING; CAREGIVER; CROSS-SECTIONAL STUDY; DECISION MAKING; FEMALE; FLUID THERAPY; GERMANY; HUMAN; MALE; MIDDLE AGED; NEOPLASMS; NUTRITIONAL SUPPORT; PARENTERAL NUTRITION; PATHOLOGY; PATIENT CARE; PATIENT PREFERENCE; PROCEDURES; PSYCHOLOGY; QUESTIONNAIRE; TERMINAL CARE;

ADVANCE CARE PLANNING; AGED; ATTITUDE; CAREGIVERS; CROSS-SECTIONAL STUDIES; DECISION MAKING; FEMALE; FLUID THERAPY; GERMANY; HUMANS; MALE; MIDDLE AGED; NEOPLASM STAGING; NEOPLASMS; NUTRITIONAL SUPPORT; PARENTERAL NUTRITION; PATIENT PREFERENCE; QUESTIONNAIRES; TERMINAL CARE;

EID: 84929939247     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-014-2337-6     Document Type: Article

References (21)

1. Domeisen Benedetti F, Ostgathe C, Clark J, Costantini M, Daud ML, Grossenbacher-Gschwend B et al (2013) International palliative care experts’ view on phenomena indicating the last hours and days of life. Support Care Cancer 21(6):1509–17
2. Raijmakers NJ, van Zuylen L, Costantini M, Caraceni A, Clark J, Lundquist G et al (2011) Artificial nutrition and hydration in the last week of life in cancer patients. a systematic literature review of practices and effects. Ann Oncol 22(7):1478–86
3. Prevost V, Grach MC (2012) Nutritional support and quality of life in cancer patients undergoing palliative care. Eur J Cancer Care Engl 21(5):581–90
4. Bruera E, Hui D, Dalal S, Torres-Vigil I, Trumble J, Roosth J et al (2013) Parenteral hydration in patients with advanced cancer: a multicenter, double-blind, placebo-controlled randomized trial. J Clin Oncol 31(1):111–8
5. Cohen MZ, Torres-Vigil I, Burbach BE, de la Rosa A, Bruera E (2012) The meaning of parenteral hydration to family caregivers and patients with advanced cancer receiving hospice care. J Pain Symptom Manag 43(5):855–65
6. Malia C, Bennett MI (2011) What influences patients’ decisions on artificial hydration at the end of life? A Q-methodology study. J Pain Symptom Manag 42(2):192–201
7. Morita T, Shima Y, Miyashita M, Kimura R, Adachi I (2004) Physician- and nurse-reported effects of intravenous hydration therapy on symptoms of terminally ill patients with cancer. J Palliat Med 7(5):683–93
8. Raijmakers NJ, Fradsham S, van Zuylen L, Mayland C, Ellershaw JE, van der Heide A (2011) Variation in attitudes towards artificial hydration at the end of life: a systematic literature review. Curr Opin Support Palliat Care 5(3):265–72
9. Chiu TY, Hu WY, Chuang RB, Cheng YR, Chen CY, Wakai S (2004) Terminal cancer patients’ wishes and influencing factors toward the provision of artificial nutrition and hydration in Taiwan. J Pain Symptom Manag 27(3):206–14
10. Morita T, Miyashita M, Shibagaki M, Hirai K, Ashiya T, Ishihara T et al (2006) Knowledge and beliefs about end-of-life care and the effects of specialized palliative care: a population-based survey in Japan. J Pain Symptom Manag 31(4):306–16
11. Van der Riet P, Brooks D, Ashby M (2006) Nutrition and hydration at the end of life: pilot study of a palliative care experience. J Law Med 14(2):182–98
12. Raijmakers NJ, van Zuylen L, Costantini M, Caraceni A, Clark JB, De Simone G et al (2012) Issues and needs in end-of-life decision making: an international modified Delphi study. Palliat Med 26(7):947–53
13. Jox RJ, Krebs M, Fegg M, Reiter-Theil S, Frey L, Eisenmenger W et al (2010) Limiting life-sustaining treatment in German intensive care units: a multiprofessional survey. J Crit Care 25(3):413–9
14. Idler E (1987) Religious involvement and the health of the elderly: some hypotheses and an initial test. Soc Forces 66(1):226–38
15. Zikmund-Fisher BJ, Sarr B, Fagerlin A, Ubel PA (2006) A matter of perspective: choosing for others differs from choosing for yourself in making treatment decisions. J Gen Intern Med 21(6):618–22
16. Kuehlmeyer K, Borasio GD, Jox RJ (2012) How family caregivers’ medical and moral assumptions influence decision making for patients in the vegetative state: a qualitative interview study. J Med Ethics 38(6):332–7
17. Jox RJ, Krebs M, Bickhardt J, Hessdorfer K, Roller S, Borasio GD (2008) How strictly should advance decisions be followed? the patients’ opinion. Palliat Med 22(5):675–6
18. Mercadante S, Ferrera P, Girelli D, Casuccio A (2005) Patients’ and relatives’ perceptions about intravenous and subcutaneous hydration. J Pain Symptom Manag 30(4):354–8
19. Rabkin J, Ogino M, Goetz R, McElhiney M, Marziliano A, Imai T et al (2013) Tracheostomy with invasive ventilation for ALS patients: neurologists’ roles in the US and Japan. Amyotroph Lateral Scler Frontotemporal Degener 14(2):116–23
20. German Medical Association principles of care of the dying [Grundsätze der Bundesärztekammer zur ärztlichen Sterbebegleitung]. Deutsches Ärzteblatt. 2004;101 (19):1298–9.
21. Del Rio MI, Shand B, Bonati P, Palma A, Maldonado A, Taboada P et al (2012) Hydration and nutrition at the end of life: a systematic review of emotional impact, perceptions, and decision-making among patients, family, and health care staff. Psychooncology 21(9):913–21