메뉴 건너뛰기




Volumn 14, Issue 1, 2015, Pages

End-of-life care research with bereaved informal caregivers - Analysis of recruitment strategy and participation rate from a multi-centre validation study Psychosocial

Author keywords

Assessment tool; Distress; Informal caregiver; Motivation; Palliative care; Participation rate; Quality of dying and death; Recruitment; Research participation; Validation; Willingness

Indexed keywords

ADULT; ARTICLE; BEREAVEMENT; CAREGIVER; CAREGIVER BURDEN; CLINICAL RESEARCH; DEATH; DYING; EMOTION; FAMILY ATTITUDE; FAMILY CAREGIVER RESEARCH PARTICIPATION; FEMALE; GERMANY; HUMAN; INTERVIEW; MALE; MEMORY; MOTIVATION; MULTICENTER STUDY (TOPIC); QUESTIONNAIRE; TERMINAL CARE; VALIDATION STUDY; AGE; AGED; CLINICAL TRIAL; HEALTH SERVICES RESEARCH; METHODOLOGY; MIDDLE AGED; MULTICENTER STUDY; ORGANIZATION AND MANAGEMENT; PALLIATIVE THERAPY; PATIENT SELECTION; PSYCHOLOGY; SEX DIFFERENCE; TIME FACTOR;

EID: 84928794297     PISSN: None     EISSN: 1472684X     Source Type: Journal    
DOI: 10.1186/s12904-015-0020-4     Document Type: Article
Times cited : (17)

References (24)
  • 1
    • 79956200356 scopus 로고    scopus 로고
    • Methodological challenges in supportive and palliative care cancer research
    • 21600378
    • Aktas A, Walsh D. Methodological challenges in supportive and palliative care cancer research. Semin Oncol. 2011;38(3):460-6.
    • (2011) Semin Oncol , vol.38 , Issue.3 , pp. 460-466
    • Aktas, A.1    Walsh, D.2
  • 2
    • 0035496596 scopus 로고    scopus 로고
    • The ethics and practicalities of consent in palliative care research: An overview
    • 1:STN:280:DC%2BD387ovVGntg%3D%3D 11923750
    • Rees E. The ethics and practicalities of consent in palliative care research: an overview. Int J Palliat Nurs. 2001;7(10):489-92.
    • (2001) Int J Palliat Nurs , vol.7 , Issue.10 , pp. 489-492
    • Rees, E.1
  • 4
    • 6344233888 scopus 로고    scopus 로고
    • Talking with terminally ill patients and their caregivers about death, dying, and bereavement: Is it stressful? Is it helpful?
    • 15477434
    • Emanuel EJ, Fairclough DL, Wolfe P, Emanuel LL. Talking with terminally ill patients and their caregivers about death, dying, and bereavement: is it stressful? Is it helpful? Arch Intern Med. 2004;164(18):1999-2004.
    • (2004) Arch Intern Med , vol.164 , Issue.18 , pp. 1999-2004
    • Emanuel, E.J.1    Fairclough, D.L.2    Wolfe, P.3    Emanuel, L.L.4
  • 5
    • 84865058134 scopus 로고    scopus 로고
    • Patient, caregiver, health professional and researcher views and experiences of participating in research at the end of life: A critical interpretive synthesis of the literature
    • 3489694 22900965
    • Gysels MH, Evans C, Higginson IJ. Patient, caregiver, health professional and researcher views and experiences of participating in research at the end of life: a critical interpretive synthesis of the literature. BMC Med Res Methodol. 2012;12:123.
    • (2012) BMC Med Res Methodol. , vol.12 , pp. 123
    • Gysels, M.H.1    Evans, C.2    Higginson, I.J.3
  • 6
    • 0032784936 scopus 로고    scopus 로고
    • Challenges in palliative care research; Recruitment, attrition and compliance: Experience from a randomized controlled trial
    • 1:STN:280:DC%2BD3c7isVehtg%3D%3D 10659099
    • Jordhoy MS, Kaasa S, Fayers P, Ovreness T, Underland G, Ahlner-Elmqvist M. Challenges in palliative care research; recruitment, attrition and compliance: experience from a randomized controlled trial. Palliat Med. 1999;13(4):299-310.
    • (1999) Palliat Med , vol.13 , Issue.4 , pp. 299-310
    • Jordhoy, M.S.1    Kaasa, S.2    Fayers, P.3    Ovreness, T.4    Underland, G.5    Ahlner-Elmqvist, M.6
  • 7
    • 84888388225 scopus 로고    scopus 로고
    • MORECare research methods guidance development: Recommendations for ethical issues in palliative and end-of-life care research
    • 23695828
    • Gysels M, Evans CJ, Lewis P, Speck P, Benalia H, Preston NJ, et al. MORECare research methods guidance development: recommendations for ethical issues in palliative and end-of-life care research. Palliat Med. 2013;27(10):908-17.
    • (2013) Palliat Med , vol.27 , Issue.10 , pp. 908-917
    • Gysels, M.1    Evans, C.J.2    Lewis, P.3    Speck, P.4    Benalia, H.5    Preston, N.J.6
  • 8
    • 0035668481 scopus 로고    scopus 로고
    • NHPCO task force statement on the ethics of hospice participation in research
    • 1:STN:280:DC%2BD38%2FnslGhsg%3D%3D 11798474
    • Casarett D, Ferrell B, Kirschling J, Levetown M, Merriman MP, Ramey M, et al. NHPCO task force statement on the ethics of hospice participation in research. J Palliat Med. 2001;4(4):441-9.
    • (2001) J Palliat Med , vol.4 , Issue.4 , pp. 441-449
    • Casarett, D.1    Ferrell, B.2    Kirschling, J.3    Levetown, M.4    Merriman, M.P.5    Ramey, M.6
  • 9
    • 77956457272 scopus 로고    scopus 로고
    • What do palliative care patients and their relatives think about research in palliative care?-A systematic review
    • 19705165
    • White C, Hardy J. What do palliative care patients and their relatives think about research in palliative care?-a systematic review. Support Care Cancer. 2010;18(8):905-11.
    • (2010) Support Care Cancer , vol.18 , Issue.8 , pp. 905-911
    • White, C.1    Hardy, J.2
  • 10
    • 10344252801 scopus 로고    scopus 로고
    • What is the risk of distress in palliative care survey research?
    • 15589084
    • Takesaka J, Crowley R, Casarett D. What is the risk of distress in palliative care survey research? J Pain Symptom Manage. 2004;28(6):593-8.
    • (2004) J Pain Symptom Manage , vol.28 , Issue.6 , pp. 593-598
    • Takesaka, J.1    Crowley, R.2    Casarett, D.3
  • 11
    • 0038476183 scopus 로고    scopus 로고
    • The experience of research participation for family caregivers of palliative care cancer patients
    • 12682574
    • Hudson P. The experience of research participation for family caregivers of palliative care cancer patients. Int J Palliat Nurs. 2003;9(3):120-3.
    • (2003) Int J Palliat Nurs , vol.9 , Issue.3 , pp. 120-123
    • Hudson, P.1
  • 12
    • 84928987753 scopus 로고    scopus 로고
    • Validierung des Fragebogens 'Qualitiyof Dying and Death' (QoDD) für Nahestehende von Palliativpatienten im deutschen Sprachraum
    • Kongress der Deutschen Gesellschaft für Palliativmedizin und 13. Deutscher Kongress für Versorgungsforschung.24. - 27. Juni, Düsseldorf
    • Heckel M, Bussmann S, Mai S, Stiel S, Weber M, Ostgathe C. Validierung des Fragebogens 'Qualitiyof Dying and Death' (QoDD) für Nahestehende von Palliativpatienten im deutschen Sprachraum. Z Palliativmed. 2014;15:134. 10. Kongress der Deutschen Gesellschaft für Palliativmedizin und 13. Deutscher Kongress für Versorgungsforschung.24. - 27. Juni, Düsseldorf.
    • (2014) Z Palliativmed , vol.15 , pp. 134
    • Heckel, M.1    Bussmann, S.2    Mai, S.3    Stiel, S.4    Weber, M.5    Ostgathe, C.6
  • 13
    • 0037317209 scopus 로고    scopus 로고
    • Surveys to assess satisfaction with end-of-life care: Does timing matter?
    • 12590028
    • Casarett DJ, Crowley R, Hirschman KB. Surveys to assess satisfaction with end-of-life care: does timing matter? J Pain Symptom Manage. 2003;25(2):128-32.
    • (2003) J Pain Symptom Manage , vol.25 , Issue.2 , pp. 128-132
    • Casarett, D.J.1    Crowley, R.2    Hirschman, K.B.3
  • 14
    • 0031018538 scopus 로고    scopus 로고
    • Perceptions by family members of the dying experience of older and seriously ill patients. SUPPORT Investigators. Study to understand prognoses and preferences for outcomes and risks of treatments
    • 1:STN:280:DyaK2s7ksFehsA%3D%3D 9005760
    • Lynn J, Teno JM, Phillips RS, Wu AW, Desbiens N, Harrold J, et al. Perceptions by family members of the dying experience of older and seriously ill patients. SUPPORT Investigators. Study to understand prognoses and preferences for outcomes and risks of treatments. Ann Intern Med. 1997;126(2):97-106.
    • (1997) Ann Intern Med. , vol.126 , Issue.2 , pp. 97-106
    • Lynn, J.1    Teno, J.M.2    Phillips, R.S.3    Wu, A.W.4    Desbiens, N.5    Harrold, J.6
  • 16
    • 22544445288 scopus 로고    scopus 로고
    • Validation and clinical application of the german version of the palliative care outcome scale
    • 16043007
    • Bausewein C, Fegg M, Radbruch L, Nauck F, van Mackensen S, Borasio GD, et al. Validation and clinical application of the german version of the palliative care outcome scale. J Pain Symptom Manage. 2005;30(1):51-62.
    • (2005) J Pain Symptom Manage , vol.30 , Issue.1 , pp. 51-62
    • Bausewein, C.1    Fegg, M.2    Radbruch, L.3    Nauck, F.4    Van Mackensen, S.5    Borasio, G.D.6
  • 17
    • 7244233031 scopus 로고    scopus 로고
    • Screening psychischer Störungen mit dem "gesundheitsfragebogen für Patienten (PHQ-D)". Ergebnisse der deutschen Validierungsstudie
    • Gräfe K, Zipfel S, Herzog W, Löwe B. Screening psychischer Störungen mit dem "Gesundheitsfragebogen für Patienten (PHQ-D)". Ergebnisse der deutschen Validierungsstudie. Diagnostica. 2004;50(4):171-81.
    • (2004) Diagnostica. , vol.50 , Issue.4 , pp. 171-181
    • Gräfe, K.1    Zipfel, S.2    Herzog, W.3    Löwe, B.4
  • 18
    • 78651365111 scopus 로고    scopus 로고
    • [Validation of the new version of the minimal documentation system (MIDOS) for patients in palliative care: The German version of the edmonton symptom assessment scale (ESAS)]
    • 1:STN:280:DC%2BC3M%2FjtVKhtA%3D%3D 20882300
    • Stiel S, Matthes ME, Bertram L, Ostgathe C, Elsner F, Radbruch L. [Validation of the new version of the minimal documentation system (MIDOS) for patients in palliative care: the German version of the edmonton symptom assessment scale (ESAS)]. Schmerz. 2010;24(6):596-604.
    • (2010) Schmerz , vol.24 , Issue.6 , pp. 596-604
    • Stiel, S.1    Matthes, M.E.2    Bertram, L.3    Ostgathe, C.4    Elsner, F.5    Radbruch, L.6
  • 19
    • 0036048246 scopus 로고    scopus 로고
    • A measure of the quality of dying and death. Initial validation using after-death interviews with family members
    • 12183092
    • Curtis JR, Patrick DL, Engelberg RA, Norris K, Asp C, Byock I. A measure of the quality of dying and death. Initial validation using after-death interviews with family members. J Pain Symptom Manage. 2002;24(1):17-31.
    • (2002) J Pain Symptom Manage. , vol.24 , Issue.1 , pp. 17-31
    • Curtis, J.R.1    Patrick, D.L.2    Engelberg, R.A.3    Norris, K.4    Asp, C.5    Byock, I.6
  • 20
    • 0032227022 scopus 로고    scopus 로고
    • Research with families in palliative care: Conceptual and methodological challenges
    • 1:STN:280:DyaK1M7hslOmtA%3D%3D
    • McClement SE, Woodgate RL. Research with families in palliative care: conceptual and methodological challenges. Eur J Cancer Care (Engl). 1998;7(4):247-54.
    • (1998) Eur J Cancer Care (Engl) , vol.7 , Issue.4 , pp. 247-254
    • McClement, S.E.1    Woodgate, R.L.2
  • 21
    • 40949095995 scopus 로고    scopus 로고
    • "i will do it if it will help others": Motivations among patients taking part in qualitative studies in palliative care
    • 18243642
    • Gysels M, Shipman C, Higginson IJ. "I will do it if it will help others": motivations among patients taking part in qualitative studies in palliative care. J Pain Symptom Manage. 2008;35(4):347-55.
    • (2008) J Pain Symptom Manage. , vol.35 , Issue.4 , pp. 347-355
    • Gysels, M.1    Shipman, C.2    Higginson, I.J.3
  • 23
    • 0032153294 scopus 로고    scopus 로고
    • Do research interviews cause distress or interfere in management? Experience from a study of cancer patients
    • 1:STN:280:DyaK1M%2FjslWltg%3D%3D 9819729
    • Davies EA, Hall SM, Clarke CR, Bannon MP, Hopkins AP. Do research interviews cause distress or interfere in management? Experience from a study of cancer patients. J R Coll Physicians Lond. 1998;32(5):406-11.
    • (1998) J R Coll Physicians Lond , vol.32 , Issue.5 , pp. 406-411
    • Davies, E.A.1    Hall, S.M.2    Clarke, C.R.3    Bannon, M.P.4    Hopkins, A.P.5
  • 24
    • 84872125826 scopus 로고    scopus 로고
    • Participant recruitment in sensitive surveys: A comparative trial of 'opt in' versus 'opt out' approaches
    • 3566917 23311340
    • Hunt KJ, Shlomo N, Addington-Hall J. Participant recruitment in sensitive surveys: a comparative trial of 'opt in' versus 'opt out' approaches. BMC Med Res Methodol. 2013;13:3.
    • (2013) BMC Med Res Methodol. , vol.13 , pp. 3
    • Hunt, K.J.1    Shlomo, N.2    Addington-Hall, J.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.