-
1
-
-
77955982602
-
Integrating biobanks: Addressing the practical and ethical issues to deliver a valuable tool for cancer research
-
Watson RWG, Kay EW, Smith D: Integrating biobanks: Addressing the practical and ethical issues to deliver a valuable tool for cancer research. Nat Rev Cancer 2010; 10: 646-651.
-
(2010)
Nat Rev Cancer
, vol.10
, pp. 646-651
-
-
Watson, R.W.G.1
Kay, E.W.2
Smith, D.3
-
2
-
-
79960288854
-
Towards a data sharing Code of Conduct for international genomic research
-
Knoppers BM, Harris JR, Tasse A, Budin-Ljosne I, Kaye J, Deschenes M, Zawati MH: Towards a data sharing Code of Conduct for international genomic research. Genome Med 2011; 3: 1-4.
-
(2011)
Genome Med
, vol.3
, pp. 1-4
-
-
Knoppers, B.M.1
Harris, J.R.2
Tasse, A.3
Budin-Ljosne, I.4
Kaye, J.5
Deschenes, M.6
Zawati, M.H.7
-
3
-
-
79851509146
-
Biobanking: The foundation of personalized medicine
-
Hewitt RE: Biobanking: The foundation of personalized medicine. Curr Opin Oncol 2011; 23: 112-119.
-
(2011)
Curr Opin Oncol
, vol.23
, pp. 112-119
-
-
Hewitt, R.E.1
-
4
-
-
84975744455
-
Neglected ethical issues in biobank management: Results from a US study
-
Cadigan RJ, Lassiter D, Haldeman K, Conlon I, Reavely E, Henderson GE: Neglected ethical issues in biobank management: results from a US study. Life Sci Soc Policy 2013; 9: 1.
-
(2013)
Life Sci Soc Policy
, vol.9
, pp. 1
-
-
Cadigan, R.J.1
Lassiter, D.2
Haldeman, K.3
Conlon, I.4
Reavely, E.5
Henderson, G.E.6
-
5
-
-
84901668893
-
A review of the key issues associated with the commercialization of biobanks
-
Caulfield T, Burningham S, Joly Y, Master Z, Shabani M, Borry P, Becker A, Burgess M, Calder K, Critchley C, Edwards K, Fullerton SM, Gottweis H, Hyde-Lay R, Illes J, Isasi R, Kato K, Kaye J, Knoppers B, Lynch J, McGuire A, Meslin E, Nicol D, O'Doherty K, Ogbogu U, Otlowski M, Pullman D, Ries N, Scott C, Sears M, Wallace H, Zawati MH: A review of the key issues associated with the commercialization of biobanks. J Law Biosci 2014; 1: 94-110.
-
(2014)
J Law Biosci
, vol.1
, pp. 94-110
-
-
Caulfield, T.1
Burningham, S.2
Joly, Y.3
Master, Z.4
Shabani, M.5
Borry, P.6
Becker, A.7
Burgess, M.8
Calder, K.9
Critchley, C.10
Edwards, K.11
Fullerton, S.M.12
Gottweis, H.13
Hyde-Lay, R.14
Illes, J.15
Isasi, R.16
Kato, K.17
Kaye, J.18
Knoppers, B.19
Lynch, J.20
McGuire, A.21
Meslin, E.22
Nicol, D.23
O'doherty, K.24
Ogbogu, U.25
Otlowski, M.26
Pullman, D.27
Ries, N.28
Scott, C.29
Sears, M.30
Wallace, H.31
Zawati, M.H.32
more..
-
6
-
-
84899430152
-
Industry involvement in publicly funded biobanks
-
Caulfield T, Borry P, Gottweis H: Industry involvement in publicly funded biobanks. Nat Rev Gen 2014; 5: 220.
-
(2014)
Nat Rev Gen
, vol.5
, pp. 220
-
-
Caulfield, T.1
Borry, P.2
Gottweis, H.3
-
7
-
-
2442506800
-
Governing UK Biobank: The importance of ensuring public trust
-
Tutton R, Kaye J, Hoeyer K: Governing UK Biobank: The importance of ensuring public trust. Trends Biotechnol 2004; 22: 284-285.
-
(2004)
Trends Biotechnol
, vol.22
, pp. 284-285
-
-
Tutton, R.1
Kaye, J.2
Hoeyer, K.3
-
8
-
-
41849095185
-
Research ethics recommendations for whole-genome research: Consensus statement
-
Caulfield T, McGuire AL, Cho M, Buchanan JA, Burgess MM, Danilczyk U, Diaz CM, Fryer-Edwards K, Green SK, Hodosh MA, Juengst ET, Kaye J, Kedes L, Knoppers BM, Lemmens T, Meslin EM, Murphy J, Nussbaum RL, Otlowski M, Pullman D, Ray PN, Sugarman J, Timmons M: Research ethics recommendations for whole-genome research: consensus statement. PLoS Biol 2008; 6: 430-435.
-
(2008)
PLoS Biol
, vol.6
, pp. 430-435
-
-
Caulfield, T.1
McGuire, A.L.2
Cho, M.3
Buchanan, J.A.4
Burgess, M.M.5
Danilczyk, U.6
Diaz, C.M.7
Fryer-Edwards, K.8
Green, S.K.9
Hodosh, M.A.10
Juengst, E.T.11
Kaye, J.12
Kedes, L.13
Knoppers, B.M.14
Lemmens, T.15
Meslin, E.M.16
Murphy, J.17
Nussbaum, R.L.18
Otlowski, M.19
Pullman, D.20
Ray, P.N.21
Sugarman, J.22
Timmons, M.23
more..
-
10
-
-
38149081397
-
DNA data sharing: Research participants' perspectives
-
McGuire AL, Hamilton JA, Lunstroth R, McCullough LB, Goldman A: DNA data sharing: research participants' perspectives. Genet Med 2008; 10: 46-53.
-
(2008)
Genet Med
, vol.10
, pp. 46-53
-
-
McGuire, A.L.1
Hamilton, J.A.2
Lunstroth, R.3
McCullough, L.B.4
Goldman, A.5
-
11
-
-
40449089389
-
Cross ownership and uses of human tissue: What are the opinions of surgical in-patients
-
Bryant RJ, Harrison RF, Start RD, Chetwood AS, Chesshire AM, Reed MW: Cross ownership and uses of human tissue: what are the opinions of surgical in-patients. J Clin Pathol 2008; 61: 322-326.
-
(2008)
J Clin Pathol
, vol.61
, pp. 322-326
-
-
Bryant, R.J.1
Harrison, R.F.2
Start, R.D.3
Chetwood, A.S.4
Chesshire, A.M.5
Reed, M.W.6
-
12
-
-
33646163023
-
Human tissue samples and ethics-attitudes of the general public in Sweden to biobank research
-
Nilstun T, Hermeren G: Human tissue samples and ethics-attitudes of the general public in Sweden to biobank research. Med Health Care Philos 2006; 9: 81-86.
-
(2006)
Med Health Care Philos
, vol.9
, pp. 81-86
-
-
Nilstun, T.1
Hermeren, G.2
-
13
-
-
84867497183
-
Biobanking, consent, and control: A survey of Albertans on key research ethics issues
-
Caulfield T, Rachul C, Nelson E: Biobanking, consent, and control: A survey of Albertans on key research ethics issues. Biopreserv Biobank 2012; 10: 433-438.
-
(2012)
Biopreserv Biobank
, vol.10
, pp. 433-438
-
-
Caulfield, T.1
Rachul, C.2
Nelson, E.3
-
14
-
-
33644829844
-
A well placed trust? Public perceptions of the governance of DNA databases
-
Levitt M, Weldon S: A well placed trust? Public perceptions of the governance of DNA databases. Crit Public Health 2005; 15: 311-321.
-
(2005)
Crit Public Health
, vol.15
, pp. 311-321
-
-
Levitt, M.1
Weldon, S.2
-
15
-
-
80755139422
-
To share or not to share: A randomized trial of consent for data sharing in genome research
-
McGuire AL, Oliver JM, Slashinski MJ, Graves JL, Wang T, Kelly PA, Fisher W, Lau CC, Goss J, Okcu M, Treadwell-Deering D, Goldman AM, Noebels JL, Hilsenbeck SG: To share or not to share: A randomized trial of consent for data sharing in genome research. Genet Med 2011; 13: 948-955.
-
(2011)
Genet Med
, vol.13
, pp. 948-955
-
-
McGuire, A.L.1
Oliver, J.M.2
Slashinski, M.J.3
Graves, J.L.4
Wang, T.5
Kelly, P.A.6
Fisher, W.7
Lau, C.C.8
Goss, J.9
Okcu, M.10
Treadwell-Deering, D.11
Goldman, A.M.12
Noebels, J.L.13
Hilsenbeck, S.G.14
-
16
-
-
77955662068
-
Genomic research and wide data sharing: Views of prospective participants
-
Trinidad SB, Fullerton SM, Bares JM, Jarvik GP, Larson EB, Burke W: Genomic research and wide data sharing: views of prospective participants. Genet Med 2010; 12: 486-495.
-
(2010)
Genet Med
, vol.12
, pp. 486-495
-
-
Trinidad, S.B.1
Fullerton, S.M.2
Bares, J.M.3
Jarvik, G.P.4
Larson, E.B.5
Burke, W.6
-
17
-
-
77955660006
-
Public and biobank participant attitudes toward genetic research participation and data sharing
-
Lemke AA, Wolf WA, Hebert-Beirne J, Smith ME: Public and biobank participant attitudes toward genetic research participation and data sharing. Public Health Genomics 2010; 13: 368-377.
-
(2010)
Public Health Genomics
, vol.13
, pp. 368-377
-
-
Lemke, A.A.1
Wolf, W.A.2
Hebert-Beirne, J.3
Smith, M.E.4
-
18
-
-
84928619546
-
Citizen expectations of 'academic entrepreneurship' in health research: Public science, practical benefit
-
Epub ahead of print
-
Miller FA, Painter-Main M, Axler R, Lehoux P, Giacomini M, Slater B: Citizen expectations of 'academic entrepreneurship' in health research: public science, practical benefit. Health Expect 2014, Epub ahead of print.
-
(2014)
Health Expect
-
-
Miller, F.A.1
Painter-Main, M.2
Axler, R.3
Lehoux, P.4
Giacomini, M.5
Slater, B.6
-
19
-
-
84874694607
-
Cancer patient perceptions on the ethical and legal issues related to biobanking
-
Master Z, Claudio JO, Rachul C, Wang JCY, Minden MD, Caulfield T: Cancer patient perceptions on the ethical and legal issues related to biobanking. BMC Med Genomics 2013; 6: 8-18.
-
(2013)
BMC Med Genomics
, vol.6
, pp. 8-18
-
-
Master, Z.1
Claudio, J.O.2
Rachul, C.3
Wang, J.C.Y.4
Minden, M.D.5
Caulfield, T.6
-
20
-
-
44449086398
-
Public opinion and trust in scientists: The role of the research context, and the perceived motivation of stem cell researchers
-
Critchley C: Public opinion and trust in scientists: The role of the research context, and the perceived motivation of stem cell researchers. Public Underst Sci 2008; 17: 309-327.
-
(2008)
Public Underst Sci
, vol.17
, pp. 309-327
-
-
Critchley, C.1
-
21
-
-
79956362136
-
Understanding the impact of commercialization on public support for science: Is it about the funding source or the organization conducting research
-
Critchley CR, Nicol D: Understanding the impact of commercialization on public support for science: is it about the funding source or the organization conducting research. Public Underst Sci 2011; 20: 347-366.
-
(2011)
Public Underst Sci
, vol.20
, pp. 347-366
-
-
Critchley, C.R.1
Nicol, D.2
-
22
-
-
79951525783
-
-
American Association for Public Opinion Research, Lenexa, American Association for Public Opinion Research,(accessed August 8, 2014), ed 7
-
American Association for Public Opinion Research: Standard Definitions: Final Dispositions of Case Codes and Outcome Rates for Surveys, ed 7. Lenexa, American Association for Public Opinion Research, 2011. http://aapor.org/Content/NavigationMenu/AboutAAPOR/StandardsampEthics/StandardDefinitions/StandardDefinitions2011. pdf (accessed August 8, 2014).
-
(2011)
Standard Definitions: Final Dispositions of Case Codes and Outcome Rates for Surveys
-
-
-
23
-
-
84950933409
-
Post-stratification: A modeler's perspective
-
Little RJA: Post-stratification: A modeler's perspective. J Am Statist Assoc 1993; 88: 1001-1012.
-
(1993)
J Am Statist Assoc
, vol.88
, pp. 1001-1012
-
-
Little, R.J.A.1
-
24
-
-
84922614105
-
-
Australian Bureau of Statistics,(accessed November 25, 2014)
-
Australian Bureau of Statistics: Population by age and sex, regions of Australia, 2011 (cat. No. 3235.0). http://www.abs.gov.au/AUSSTATS/abs @ .nsf/DetailsPage/3235. 02011?OpenDocument (accessed November 25, 2014).
-
Population by Age and Sex, Regions of Australia, 2011 (Cat No. 3235.0)
-
-
-
26
-
-
0034555721
-
Three likelihoodbased methods for mean and covariance structure analysis with non-normal missing data
-
Yuan KH, Bentler PM: Three likelihoodbased methods for mean and covariance structure analysis with non-normal missing data. Sociol Methodol 2000; 30: 165-200.
-
(2000)
Sociol Methodol
, vol.30
, pp. 165-200
-
-
Yuan, K.H.1
Bentler, P.M.2
-
29
-
-
84871368144
-
Networked research infrastructures and their governance: The case of biobanking
-
Meijer I, Molas-Gallart J, Mattsson P: Networked research infrastructures and their governance: The case of biobanking. Sci Public Pol 2012; 39: 491-499.
-
(2012)
Sci Public Pol
, vol.39
, pp. 491-499
-
-
Meijer, I.1
Molas-Gallart, J.2
Mattsson, P.3
-
30
-
-
84862245951
-
Issues with tissues: Perspective of tissue bank donors and the public towards biobanks and related genetic research
-
Stranger ME (ed), Hobart, Centre for Law and Genetics, Uni Tas
-
Fleming J: Issues with tissues: perspective of tissue bank donors and the public towards biobanks and related genetic research; in Stranger ME (ed): Human Biotechnology and Public Trust: Trends, Perceptions and Regulation. Hobart, Centre for Law and Genetics, Uni Tas, 2007, pp 184-201.
-
(2007)
Human Biotechnology and Public Trust: Trends, Perceptions and Regulation
, pp. 184-201
-
-
Fleming, J.1
-
31
-
-
33748207767
-
Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think
-
Kettis-Lindblad A, Ring L, Viberth E, Hansson MG: Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think? Eur J Public Health 2005; 16: 433.
-
(2005)
Eur J Public Health
, vol.16
, pp. 433
-
-
Kettis-Lindblad, A.1
Ring, L.2
Viberth, E.3
Hansson, M.G.4
-
33
-
-
0032192915
-
The primacy model: A new model of immediate serial recall
-
Page MPA, Norris D: The primacy model: A new model of immediate serial recall. Psychol Rev 1998; 105: 761-781.
-
(1998)
Psychol Rev
, vol.105
, pp. 761-781
-
-
Page, M.P.A.1
Norris, D.2
|