Policy recommendations for rare disease centres of expertise

Evaluation and Program Planning

Volumn 52, Issue , 2015, Pages 78-84

  Syed, Ahmed M ^a,b   Camp, Rob ^a   Mischorr Boch, Christina ^c   Houÿez, Francois ^a   Aro, Arja R ^c  

^a Europ Org for Rare Dis (EURORDIS)   (France)

^b NATIONAL HEALTH SERVICE   (United Kingdom)

^c UNIVERSITY OF SOUTHERN DENMARK   (Denmark)

Author keywords

Centre of expertise; Delphi technique; European reference network; Health policy; Rare disease

Indexed keywords

DELPHI ANALYSIS; DISEASE INCIDENCE; DISEASE PREVALENCE; EUROPEAN UNION; HEALTH POLICY; POLICY APPROACH; POLICY DEVELOPMENT; POLICY IMPLEMENTATION; PUBLIC HEALTH; SERVICE PROVISION; STANDARD (REFERENCE);

DENMARK; UNITED KINGDOM;

CAREGIVER; DELPHI STUDY; DENMARK; GREAT BRITAIN; HEALTH CARE POLICY; HEALTH CARE QUALITY; HEALTH PERSONNEL ATTITUDE; HEALTH SERVICES RESEARCH; HUMAN; ORGANIZATION AND MANAGEMENT; PATIENT PARTICIPATION; PROCEDURES; PSYCHOLOGY; QUESTIONNAIRE; RARE DISEASE; STANDARDS;

ATTITUDE OF HEALTH PERSONNEL; CAREGIVERS; DELPHI TECHNIQUE; DENMARK; GREAT BRITAIN; HEALTH POLICY; HEALTH SERVICES RESEARCH; HUMANS; PATIENT PARTICIPATION; QUALITY ASSURANCE, HEALTH CARE; RARE DISEASES; SURVEYS AND QUESTIONNAIRES;

EID: 84928613058     PISSN: 01497189     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.evalprogplan.2015.03.006     Document Type: Article

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