The impact of parent advocacy groups, the Internet, and social networking on rare diseases: The IDEA League and IDEA League United Kingdom example

Epilepsia

Volumn 52, Issue SUPPL. 2, 2011, Pages 102-104

  Black, Angela P ^a   Baker, Marie ^b  

^a IDEA League (International Dravet Syndrome Epilepsy Action League)   (United States)

^b IDEA League   (United Kingdom)

Author keywords

Dravet syndrome; Epilepsy; Internet; Nonprofit; Rare diseases; SMEI; Support groups

Indexed keywords

ARTICLE; HEALTH CARE POLICY; HUMAN; INTERNET; MEDICAL EDUCATION; MEDICOLEGAL ASPECT; MYOCLONUS EPILEPSY; PHYSICIAN; PRIORITY JOURNAL; RARE DISEASE; SOCIAL NETWORK; UNITED KINGDOM;

EPILEPSIES, MYOCLONIC; GREAT BRITAIN; HUMANS; INTERNET; PARENT-CHILD RELATIONS; PATIENT ADVOCACY; RARE DISEASES; SOCIAL SUPPORT;

EID: 79953681954     PISSN: 00139580     EISSN: 15281167     Source Type: Journal    
DOI: 10.1111/j.1528-1167.2011.03013.x     Document Type: Article

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