Public health and palliative care in 2015

Clinics in Geriatric Medicine

Volumn 31, Issue 2, 2015, Pages 253-263

  Dzingina, Mendwas D ^a   Higginson, Irene J ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

Cost effectiveness; End of life; Palliative care; Public health; Quality adjusted life year

Indexed keywords

CLINICAL EFFECTIVENESS; COST EFFECTIVENESS ANALYSIS; COST UTILITY ANALYSIS; DEMENTIA; EDUCATION PROGRAM; HEALTH CARE DISPARITY; HEALTH CARE NEED; HEALTH CARE POLICY; HUMAN; LIFE EXPECTANCY; NON COMMUNICABLE DISEASE; PALLIATIVE THERAPY; POVERTY; PUBLIC HEALTH; QUALITY ADJUSTED LIFE YEAR; QUALITY OF LIFE; REVIEW; TERMINAL CARE; TERMINAL DISEASE; VULNERABLE POPULATION; AGED; ECONOMICS; ELDERLY CARE; GERIATRIC ASSESSMENT; HEALTH SERVICE; HEALTH STATUS INDICATOR; ORGANIZATION AND MANAGEMENT; PROCEDURES;

AGED; GERIATRIC ASSESSMENT; HEALTH SERVICES FOR THE AGED; HEALTH SERVICES NEEDS AND DEMAND; HEALTH STATUS INDICATORS; HUMANS; PALLIATIVE CARE; PUBLIC HEALTH; QUALITY-ADJUSTED LIFE YEARS;

EID: 84928590205     PISSN: 07490690     EISSN: 18798853     Source Type: Journal    
DOI: 10.1016/j.cger.2015.01.002     Document Type: Review

References (69)

1. WHO. Strengthening of palliative care as a component of integrated treatment within the continuum of care. 134th session: document EB134/28. 2014. Available at: Accessed September 01, 2014. http://apps.who.int/gb/e/e_eb134.html.
2. WHO. First ever global atlas identifies unmet need for palliative care. 2014. Available at: Accessed September 01, 2014. http://www.who.int/mediacentre/news/releases/2014/palliative-care-20140128/en/.
3. Hearn J., Higginson I.J. Outcome measures in palliative care for advanced cancer patients: a review. JPublic Health Med 1997, 19:193-199.
4. Hall S., Petkova H., Tsouros A.D., et al. Palliative care for older people: better practices 2011, World Health Organization, Copenhagen (Denmark).
5. Kaasa S., Loge J.H. Quality of life in palliative care: principles and practice. Palliat Med 2003, 17:11-20.
6. WHO. Sixty-Seventh World Health Assembly. Strengthening of palliative care as a component of integrated treatment throughout the life course (documentA67/31). World Health Organization; 2014. Available at: Accessed September 01, 2014. http://apps.who.int/gb/e/e_wha67.html.
7. Gomes B., Calanzani N., Curiale V., et al. Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers. Cochrane Database Syst Rev 2013, (6). CD007760.
8. Higginson I.J., Evans C.J. What is the evidence that palliative care teams improve outcomes for cancer patients and their families?. Cancer J 2010, 16:423-435.
9. Wilkes E. Dying now. Lancet 1984, 323:950-952.
10. Stjernswärd J., Colleau S.M., Ventafridda V. The World Health Organization cancer pain and palliative care program past, present, and future. JPain Symptom Manage 1996, 12:65-72.
11. Gomez-Batiste X., Martinez-Munoz M., Blay C., et al. Identifying needs and improving palliative care of chronically ill patients: a community-oriented, population-based, public-health approach. Curr Opin Support Palliat Care 2012, 6:371-378.
12. United Nations DoEaSA, Population Division (2012). Changing levels and trends in Mortality: the role of patterns of death by cause. United Nations publication, ST/ESA/SER.A/318, 2012. Available at: Accessed August 01, 2014. http://www.un.org/en/development/desa/population/publications/mortality/changingLevelsAndTrends.shtml.
13. Davies E., Higginson I.J. Better palliative care for older people 2004, World Health Organizaton, Copenhagen (Denmark).
14. Davies E., Higginson I.J. Palliative care: the solid facts 2004, World Health Organization, Copenhagen (Denmark).
15. Evans C.J., Ho Y., Daveson B.A., et al. Place and cause of death in centenarians: a population-based observational study in England, 2001 to 2010. PLoS Med 2014, 11:e1001653.
16. Omran A.R. The epidemiologic transition: a theory of the epidemiology of population change. Milbank Q 2005, 83:731-757.
17. Kelley A., Meier D. Palliative care-a shifting paradigm. NEngl J Med 2010, 363:781-782.
18. Morrison R.S., Meier D.E. Geriatric palliative care 2003, Oxford University Press, New York.
19. Meier D.E. Focusing together on the needs of the sickest 5%, who drive half of all healthcare spending. JAm Geriatr Soc 2014, 62:1970-1972.
20. Davies E., Higginson I.J. Better Palliative Care for Older People 2004, World Health Organization Europe, Copenhagen, Denmark, Available at:, Accessed August 01, 2014. http://www.palliatief.nl/Service/Zoeken.aspx?q=publications.
21. Murtagh F.E., Bausewein C., Verne J., et al. How many people need palliative care? A study developing and comparing methods for population-based estimates. Palliat Med 2014, 28:49-58.
22. Higginson I.J. Palliative and terminal care. Health care needs assessment 1997, 1-28. Radcliffe Medical Press, Oxford (England). A.R. Stevens, J. Gabbay (Eds.).
23. Rosenwax L.K., McNamara B., Blackmore A.M., et al. Estimating the size of a potential palliative care population. Palliat Med 2005, 19:556-562.
24. Gao W., Ho Y.K., Verne J., et al. Changing patterns in place of cancer death in England: a population-based study. PLoS Med 2013, 10:e1001410.
25. Decker S.L., Higginson I.J. Atale of two cities: factors affecting place of cancer death in London and New York. Eur J Public Health 2007, 17:285-290.
26. Higginson I.J., Jarman B., Astin P., et al. Do social factors affect where patients die: an analysis of 10 years of cancer deaths in England. JPublic Health Med 1999, 21:22-28.
27. Sims A., Radford J., Doran K., et al. Social class variation in place of cancer death. Palliat Med 1997, 1:369-373.
28. Tudor Hart J. The inverse care law. Lancet 1971, 297:405-412.
29. Koffman J., Burke G., Dias A., et al. Demographic factors and awareness of palliative care and related services. Palliat Med 2007, 21:145-153.
30. Lock A., Higginson I. Patterns and predictors of place of cancer death for the oldest old. BMC Palliat Care 2005, 4:6.
31. Burt J., Raine R. The effect of age on referral to and use of specialist palliative care services in adult cancer patients: a systematic review. Age Ageing 2006, 35:469-476.
32. Gomes B., Higginson I.J., Calanzani N., et al. Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain. Ann Oncol 2012, 23:2006-2015.
33. Cohen J., Bilsen J., Addington-Hall J., et al. Population-based study of dying in hospital in six European countries. Palliat Med 2008, 22:702-710.
34. Hunt K.J., Shlomo N., Addington-Hall J., et al. End-of-life care and preferences for place of death among the oldest old: results of a population-based survey using VOICES-Short Form. Palliat Med 2014, 17:176-182.
35. Comas-Herrera A., Wittenberg R., Pickard L., et al. Cognitive impairment in older people: future demand for long-term care services and the associated costs. Int J Geriatr Psychiatry 2007, 22:1037-1045.
36. Ferri C.P., Prince M., Brayne C., et al. Global prevalence of dementia: a Delphi consensus study. Lancet 2005, 366:2112-2117.
37. McCarthy M., Addington-Hall J., Altmann D. The experience of dying with dementia: a retrospective study. Int J Geriatr Psychiatry 1997, 12:404-409.
38. Sampson E.L., Ritchie C.W., Lai R., et al. Asystematic review of the scientific evidence for the efficacy of a palliative care approach in advanced dementia. Int Psychogeriatr 2005, 17:31-40.
39. Institute of Medicine The future of public health 1998, National Academy Press, Washinghton, DC.
40. Szreter S. The importance of social intervention in Britain's mortality decline c.1850-1914: a re-interpretation of the role of public health. Soc Hist Med 1988, 1:1-38.
41. Sallnow L.K., Kumar S., Kellehear A. International perspectives on public health and palliative care 2012, Routledge, Milton Park; Oxfordhire (United Kingdom).
42. Humphreys C. Tuberculosis, poverty and the first 'hospices' in Ireland. European Journal of Palliative Care 2003, 10:164-167.
43. Daveson B., de Wolf-Linder S., Witt J., et al. Results of a transparent expert consultation on patient and public involvement in palliative care. Palliat Med 2014, in press.
44. Paiva C.E., Faria C.B., Nascimento M.S., et al. Effectiveness of a palliative care outpatient programme in improving cancer-related symptoms among ambulatory Brazilian patients. Eur J Cancer Care (Engl) 2012, 21:124-130.
45. Harding R., List S., Epiphaniou E., et al. How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Palliat Med 2012, 26:7-22.
46. Gomez-Batiste X., Porta-Sales J., Espinosa-Rojas J., et al. Effectiveness of palliative care services in symptom control of patients with advanced terminal cancer: a Spanish, multicenter, prospective, quasi-experimental, pre-post study. JPain Symptom Manage 2010, 40:652-660.
47. Higginson I.J., Finlay I.G., Goodwin D.M., et al. Is there evidence that palliative care teams alter end-of-life experiences of patients and their caregivers?. JPain Symptom Manage 2003, 25:150-168.
48. Finlay I.G., Higginson I.J., Goodwin D.M., et al. Palliative care in hospital, hospice, at home: results from a systematic review. Ann Oncol 2002, 13(Suppl 4):257-264.
49. Higginson I.J., McCrone P., Hart S.R., et al. Is short-term palliative care cost-effective in multiple sclerosis? A randomized phase II trial. JPain Symptom Manage 2009, 38:816-826.
50. Teno J.M., Casarett D., Spence C., et al. It is "too late" or is it? Bereaved family member perceptions of hospice referral when their family member was on hospice for seven days or less. JPain Symptom Manage 2012, 43:732-738.
51. Teno J.M., Gozalo P.L., Lee I.C., et al. Does hospice improve quality of care for persons dying from dementia?. JAm Geriatr Soc 2011, 59:1531-1536.
52. Costantini M., Romoli V., Leo S.D., et al. Liverpool care pathway for patients with cancer in hospital: a cluster randomised trial. Lancet 2014, 383:226-237.
53. Normand C. Economics and evaluation of palliative care. Palliat Med 1996, 10:3-4.
54. Earnshaw J., Lewis G. NICE guide to the methods of technology appraisal: pharmaceutical industry perspective. Pharmacoeconomics 2008, 26:725-727.
55. Drummond M.F., Sculpher M.J., Torrance G.W., et al. Methods for the economic evaluation of health care programmes 2005, Oxford University Press, Oxford, UK. 3rd edition.
56. Smith S., Brick A., O'Hara S., et al. Evidence on the cost and cost-effectiveness of palliative care: a literature review. Palliat Med 2014, 28:130-150.
57. Murtagh F.E.M., Groeneveld E.I., Kaloki Y.E., et al. Capturing activity, costs, and outcomes: The challenges to be overcome for successful economic evaluation in palliative care. Progress in Palliative Care 2013, 21(4):232-235.
58. Gordon R., Eagar K., Currow D., et al. Current funding and financing issues in the Australian hospice and palliative care sector. JPain Symptom Manage 2009, 38:68-74.
59. Palmer K.S., Agoritsas T., Martin D., et al. Activity-based funding of hospitals and its impact on mortality, readmission, discharge destination, severity of illness, and volume of care: a systematic review and meta-analysis. PLoS One 2014, 9:e109975.
60. NHS-England Developing a new approach to palliative care funding: A first draft for discussion 2014, Leeds, UK, Available at:, Accessed August 01, 2014. http://www.england.nhs.uk/2014/10/23/palliative-care/.
61. Gomes B., Harding R., Foley K.M., et al. Optimal approaches to the health economics of palliative care: report of an international think tank. JPain Symptom Manage 2009, 38:4-10.
62. Normand C. Measuring outcomes in palliative care: limitations of QALYs and the road to PalYs. JPain Symptom Manage 2009, 38:27-31.
63. Round J. Is a QALY still a QALY at the end of life?. JHealth Econ 2012, 31:521-527.
64. Hughes J. Palliative care and the QALY problem. Health Care Anal 2005, 13:289-301.
65. Coast J., Smith R.D., Lorgelly P. Welfarism, extra-welfarism and capability: the spread of ideas in health economics. Soc Sci Med 2008, 67:1190-1198.
66. Gusi N., Olivares P.R., Rajendram R. The EQ-5D health-related quality of life questionnaire. Handbook of disease burdens and quality of life measures 2010, 87-99. Springer, New York. V. Preedy, R. Watson (Eds.).
67. Marra C.A., Woolcott J.C., Kopec J.A., et al. Acomparison of generic, indirect utility measures (the HUI2, HUI3, SF-6D, and the EQ-5D) and disease-specific instruments (the RAQoL and the HAQ) in rheumatoid arthritis. Soc Sci Med 2005, 60:1571-1582.
68. Hearn J., Higginson I.J. Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Palliative Care Core Audit Project Advisory Group. Qual Health Care 1999, 8:219-227.
69. Albers G., Echteld M.A., de Vet H.C., et al. Evaluation of quality-of-life measures for use in palliative care: a systematic review. Palliat Med 2010, 24:17-37.