End-of-life care and preferences for place of death among the oldest old: Results of a population-based survey using voices-short form

Journal of Palliative Medicine

Volumn 17, Issue 2, 2014, Pages 176-182

  Hunt, Katherine J ^a   Shlomo, Natalie ^b   Addington Hall, Julia ^a  

^a UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

^b UNIVERSITY OF MANCHESTER   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ATTITUDE TO DEATH; BEREAVEMENT; CAUSE OF DEATH; DEATH CERTIFICATE; DEMOGRAPHY; FEMALE; HUMAN; MALE; PATIENT PREFERENCE; PILOT STUDY; QUESTIONNAIRE; TERMINAL CARE; VERY ELDERLY;

AGED, 80 AND OVER; ATTITUDE TO DEATH; BEREAVEMENT; CAUSE OF DEATH; DEATH CERTIFICATES; FEMALE; HUMANS; MALE; PATIENT PREFERENCE; PILOT PROJECTS; QUESTIONNAIRES; RESIDENCE CHARACTERISTICS; TERMINAL CARE;

EID: 84894142252     PISSN: 10966218     EISSN: 15577740     Source Type: Journal    
DOI: 10.1089/jpm.2013.0385     Document Type: Article

References (37)

1. National Institute on Aging: Why population aging matters: A global perspective. U. S. Department of Health and Human Services, 2007.
2. Taekema DG, Gussekloo J, Westendorp RG, de Craen AJ, Maier AB: Predicting survival in oldest old people. Am J Med 2012;125:1188-1194.
3. Age UK: The rise of the 4th generation. Age UK, 2013.
4. Hunt KJ, Walsh BM, Voegeli D: Inflammation and aging: Implications for practice. Biol Res Nurs 2010;11:253-260.
5. Visser G, Klinkenberg M, Broese van Groenou MI, Willems DL, Knipscheer CPM, Deeg DJH: The end of life: Informal care for dying older people and its relationship to place of death. Palliat Med 2004;18:468-477.
6. Rhodes P, Shaw S: Informal care and terminal illness. Health Soc Care Community 1999;7:39-50.
7. Burns E: Palliative and end of life care for older people, good practice guides. British Geriatrics Society, London, 2010.
8. Burt J, Raine R: The effect of age on referral to and use of specialist palliative care services in adult cancer patients: A systematic review. Age Ageing 2006;35:469-476.
9. Burge FI, Lawson BJ, Johnston GM, Grunfeld E: A population based study of age inequalities in access to palliative care among cancer patients. Med Care 2008;46:1203-1211.
10. Maddison AR, Asada Y, Uruquart R: Inequity in access to cancer care: A review of the Canadian literature. Cancer Causes Control 2001;22:359-366.
11. Department of Health: End of Life Care Strategy: Promoting High Quality Care for All Adults at the End of Life. London: Her Majesty's Stationery Office, 2008.
12. National End of Life Care Programme: Preferred Priorities for Care (PPC): A tool for Discussion and Recording EoLC Wishes. 2008.
13. Catt S, Blanchard M, Addington-Hall J, Zis M, Blizard B, King M: The development of a questionnaire to assess the attitudes of older people to end-of-life issues (AEOLI). Palliat Med 2005;19:397-401.
14. Addington-Hall JM, Hunt KJ: Non-cancer patients as an underserved group. In: Cohen J, Deliens L (eds): A Public Health Perspective on End of Life Care. Oxford: Oxford University Press, 2012.
15. Davies K, Collerton JC, Jagger C, Bond S, Barker SAH, Edwards J, Hughes J, Hunt J, Robinson L: Engaging the oldest old in research: Lessons from the Newcastle 85+ study. BMC Geriatr 2010;10:64.
16. Hunt KJ, Shlomo N, Richardson A, Addington-Hall JM: VOICES redesign and testing to inform a national end of life care survey. Southampton: University of Southampton, 2011.
17. Hunt KJ, Shlomo N, Addington-Hall JM: Participant recruitment in sensitive surveys: A comparative trial of 'opt in' versus 'opt out' approaches. BMC Med Res Methodol 2013;11:3.
18. Gott M, Seymour J, Bellamy G, Clark D, Ahmedzai S: Older people's views about home as a place of care at the end of life. Palliat Med 2004;18:460-467.
19. Burt J, Shipman C, Richardson A, Ream E, Addington-Hall J: The experiences of older adults in the community dying from cancer and non-cancer causes: A national survey of bereaved relatives. Age Ageing 2010;39:86-91.
20. Lawton J: The Dying Process. London: Routledge, 2000.
21. Shega JW, Hougham GW, Stocking CB, Cox-Hayley D, Sachs GA: Patients dying with dementia: Experience at the end of life and impact of hospice care. J Pain Symptom Manage 2008;5:499-507.
22. Sachs GA, Shega JW, Cox-Hayley D: Barriers to excellent end-of-life care for patients with dementia. J Gen Intern Med 2004;19:1057-1063.
23. Ahmad S, O'Mahoney MS: Where older people die: A retrospective population-based study. Q J Med 2005;98:865-870.
24. Grande GE, Addington-Hall JM, Todd CJ: Place of death and access to home care services: Are certain patient groups at a disadvantage? Soc Sci Med 1998;47:565-579.
25. Hunt KJ, Shlomo N, Richardson A, Addington-Hall JM: Place of death and achieving end of life preferences in England: Results of a VOICES post-bereavement survey. Palliat Med 2013. [E-pub ahead of print.]
26. Gomes B, Calanzani N, Higginson IJ: Local Preferences and Place of Death in Regions within England, 2010. London: Cicely Saunders International, 2011.
27. National End of Life Care Intelligence Network: Variations in Place of Death in England: Inequalities or Appropriate Consequences of Age, Gender and Cause of Death? London: National End of Life Care Intelligence Network, 2010.
28. Hunt KJ, Walsh BM, Roberts H, Voegeli D: Reducing avoidable hospital admission in older people: Health status, frailty and predicting risk of ill-defined conditions diagnoses in older people admitted with collapse. Arch Gerontol Geriatr 2013;57:172-176.
29. Kafetz K: What happens when elderly people die? J Royal Soc Med 2002;95:536-538.
30. Goldstein NE, Morrison S: The intersection between geriatrics and palliative care: A call for a new research agenda. J Amer Ger Soc 2005;53:1593-1598.
31. Pautex S, Curiale V, Pfisterer M, Rexach L, Ribbe M, Van Den Noordgate N: A common definition of geriatric palliative medicine. JAGS 2010;58:790-809.
32. Brazil K, Howell D, Bedard M, Krueger P, Heidebrecht C: Preferences for place of care and place of death among informal caregivers of the terminally ill. Pall Med 2005;19:492-499.
33. Addington-Hall JM, McPherson CJ: After-death interviews with surrogates/bereaved family members: Some issues of validity. J Pain Symptom Manage 2001;22:784-790.
34. Morgan K, Clarke D: To what extent is dementia underreported on British death certificates? Int J Geriatr Psychiatry 1995;10:987-990.
35. Joray S, Wietlisbach V, Bula CJ: Cognitive impairment in medical inpatients: Detection and associated six-month outcomes. Am J Geriatr Psychiatry 2004;12:639-647.
36. Sampson EL, Gould V, Lee D, Blanchard MR: Differences in care received by patients with and without dementia who died during acute hospital admission: A retrospective case note study. Age Ageing 2006;35:187-189.
37. Harris L: Continuing care: The disadvantaged dying. Nursing Times 1990;86:26-29.