Health care transition for youth with special health care needs

Journal of Adolescent Health

Volumn 51, Issue 3, 2012, Pages 213-219

  Bloom, Sheila R ^a   Kuhlthau, Karen ^a,b   Van Cleave, Jeanne ^a,b   Knapp, Alixandra A ^a   Newacheck, Paul ^c   Perrin, James M ^a,b  

^a MASSACHUSETTS GENERAL HOSPITAL   (United States)

^b HARVARD MEDICAL SCHOOL   (United States)

^c UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Special health care needs; Systematic review; Transition of care; Youth

Indexed keywords

ACADEMIC ACHIEVEMENT; ADOLESCENT HEALTH; CHILD CARE; EMPLOYMENT; HEALTH CARE ACCESS; HEALTH CARE NEED; HEALTH INSURANCE; HEALTH SURVEY; HUMAN; MEDICAL LITERATURE; PATIENT CARE; PATIENT SATISFACTION; PRIORITY JOURNAL; QUALITY OF LIFE; REVIEW; SOCIOLOGY; SYSTEMATIC REVIEW; TREATMENT OUTCOME;

ADOLESCENT; CHRONIC DISEASE; HUMANS; TRANSITION TO ADULT CARE; YOUNG ADULT;

EID: 84865220019     PISSN: 1054139X     EISSN: 18791972     Source Type: Journal    
DOI: 10.1016/j.jadohealth.2012.01.007     Document Type: Review

References (35)

1. J.M. Perrin, S.R. Bloom, S.L. Gortmaker The increase of childhood chronic conditions in the United States JAMA 297 2007 2755 2759 (Pubitemid 47001102)
2. American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians American Society of Internal Medicine A consensus statement on health care transitions for young adults with special health care needs Pediatrics 110 2002 1304 1306
3. P.R. Magrab, H.E. Millar Surgeon General's conference growing up and getting medical care: Youth with special health care needs A summary of conference proceedings 1989 National Center for Networking Community Based Services, Georgetown University, Child Development Center Washington, DC http://profiles.nlm.nih.gov/NN/B/C/Z/T/-/nnbczt.pdf Accessed December 28, 2009
4. U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau The National Survey of Children with special health care needs chartbook 20052006 Rockville, MD: U.S. Department of Health and Human Services http://mchb.hrsa.gov/cshcn05/MCO/intro. htm Accessed December 28, 2009
5. D.S. Rosen, R.W. Blum, M. Britto Transition to adult health care for adolescents and young adults with chronic conditions: Position paper of the Society for Adolescent Medicine J Adolesc Health 33 2003 309 311
6. D.S. Lotstein, M. McPherson, B. Strickland, P.W. Newacheck Transition planning for youth with special health care needs: Results from the national survey of Children with Special Health Care Needs Pediatrics 115 2005 1562 1568 (Pubitemid 43843164)
7. D.S. Lotstein, R. Ghandour, A. Cash Planning for health care transitions: Results from the 20052006 national survey of children with special health care needs Pediatrics 123 2009 e145 e152
8. S.L. Gortmaker, J.M. Perrin, M. Weitzman An unexpected success story: Transition to adulthood in youth with chronic physical health conditions J Res Adolesc 3 1993 317 336
9. K.B. Blomquist Health and independence of young adults with disabilities: Two years later Orthop Nurs 26 2007 296 309
10. G.R. Maslow, A. Haydon, A.L. McRee Growing up with a chronic illness: Social success, educational/vocational distress J Adolesc Health 49 2011 206 212
11. R. Bussing, H. Aro Youth with chronic conditions and their transition to adulthood Findings from a Finnish cohort study Arch Pediatr Adolesc Med 150 1996 181 186 (Pubitemid 26044982)
12. K. van Naarden Braun, M. Yeargin-Allsopp, D. Lollar A multi-dimensional approach to the transition of children with developmental disabilities into young adulthood: The acquisition of adult social roles Disabil Rehabil 28 2006 915 928 (Pubitemid 44138066)
13. D. Salkever Activity status, life satisfaction and perceived productivity for young adults with developmental disabilities J Rehabil 66 2000 4 13
14. M.P. Boyle, Z. Farukhi, M.L. Nosky Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views Pediatr Pulmonol 32 2001 428 436 (Pubitemid 33121653)
15. N. Bent, A. Tennant, T. Swift Team approach versus ad hoc health services for young people with physical disabilities: A retrospective cohort study J Lancet 360 2002 1280 1286 (Pubitemid 35284618)
16. D.J. Holmes-Walker, A.C. Llewellyn, K. Farrell A transition care programme which improves diabetes control and reduces hospital admission rates in young adults with type 1 diabetes aged 1525 years Diabet Med 24 2007 764 769 (Pubitemid 47012129)
17. S. Kipps, T. Bahu, K. Ong Current methods of transfer of young people with type 1 diabetes to adult services Diabet Med 19 2002 649 654 (Pubitemid 34985165)
18. F.P. Busse, P. Hiermann, A. Galler Evaluation of patients' opinion and metabolic control after transfer of young adults with type 1 diabetes from a pediatric diabetes clinic to adult care Horm Res 67 2007 132 138 (Pubitemid 46355586)
19. J. Salmi, T. Huupponen, H. Oksa Metabolic control in adolescent insulin-dependent diabetics referred from pediatric to adult clinic Ann Clin Res 18 1986 84 87 (Pubitemid 16034973)
20. G. Steinkamp, G. Ullrich, C. Mller Transition of adult patients with cystic fibrosis from paediatric to adult care: The patients' perspective before and after start-up of an adult clinic Eur J Med Res 6 2001 85 92
21. S.Z. Nasr, C. Campbell, W. Howatt Transition program from pediatric to adult care for cystic fibrosis patients J Adolesc Health 13 1992 682 685 (Pubitemid 23014597)
22. G.J. Reid, M.J. Irvine, B.W. McCrindle Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects Pediatrics 113 2004 e197 e205
23. J. Reiss, R. Gibson Health care transition: Destinations unknown Pediatrics 110 2002 1307 1314 (Pubitemid 35425172)
24. J. Reiss, R.W. Gibson At what cost? Arch Pediatr Adolesc Med 160 2006 1079 1080 (Pubitemid 44520640)
25. D.S. Lotstein, A.A. Kuo, B. Strickland, F. Tait The transition to adult health care for youth with special health care needs: Do racial and ethnic disparities exist? Pediatrics 126 Suppl 3 2010 S129 S136
26. S.H. Mennito, J.K. Clark Transition medicine: A review of current theory and practice South Med J 104 2010 339 342
27. American Academy of Pediatrics, American Academy of Family Physicians and American College of Physicians, Transitions Clinical Report Authoring Group Supporting the health care transition from adolescence to adulthood in the medical home Pediatrics 128 2011 182 190
28. J.E. McDonagh, K.L. Shaw, T.R. Southwood Growing up and moving on in rheumatology: Development and preliminary evaluation of a transitional care programme for a multicentre cohort of adolescents with juvenile idiopathic arthritis Child Health Care 10 2006 22 42
29. P.H. White Access to health care: Health insurance considerations for young adults with special health care needs/disabilities Pediatrics 110 2002 1328 1335 (Pubitemid 35425175)
30. D.G. Olsen, N.L. Swigonski Transition to adulthood: The important role of the pediatrician Pediatrics 113 2004 e159 e162
31. M.J. Park, S.H. Adams, C.E. Irwin Health care services and the transition to young adulthood: Challenges and opportunities Acad Pediatr 11 2011 115 122
32. L.E. Bell, S.M. Bartosh, C.L. Davis Adolescent transition to adult care in solid organ transplantation: A consensus conference report Am J Transplant 8 2008 2230 2242
33. J.G. Reiss, R.W. Gibson, L.R. Walker Health care transition: Youth, family, and provider perspectives Pediatrics 115 2005 112 130
34. N.G. Peter, C.M. Forke, K.R. Ginsburg, D.F. Schwartz Transition from pediatric to adult care: Internists' perspectives Pediatrics 123 2009 417 423
35. R.E.K. Stein, J.M. Perrin, L.I. Iezzoni Health care: Access and medical support for youth and young adults with chronic health conditions and disabilities D. Lollar, Launching Into Adulthood 2010 Paul H Brookes Publishing Baltimore, MD 77 102