Perceived caring needs in patient-partner dyads affected by heart failure: A qualitative study

Journal of Clinical Nursing

Volumn 23, Issue 19-20, 2014, Pages 2928-2938

  Liljeroos, Maria ^a,b   Ågren, Susanna ^a,c   Jaarsma, Tiny ^a   Strömberg, Anna ^a,c  

^a LINKÖPING UNIVERSITY   (Sweden)

^b Sormland County Council   (Sweden)

^c Local Health Care Services in Central Östergötland   (Sweden)

Author keywords

Family; Focus groups, qualitative study; Heart failure; Partner; Psychosocial nursing

Indexed keywords

AGED; CAREGIVER; CLINICAL TRIAL; FAMILY SIZE; FEMALE; HEART FAILURE; HUMAN; INFORMATION PROCESSING; MALE; MIDDLE AGED; MULTICENTER STUDY; NURSING; NURSING PROCESS; PSYCHOLOGY; QUALITATIVE RESEARCH; SOCIAL SUPPORT; SWEDEN; VERY ELDERLY;

AGED; AGED, 80 AND OVER; CAREGIVERS; FAMILY CHARACTERISTICS; FEMALE; FOCUS GROUPS; HEART FAILURE; HUMANS; MALE; MIDDLE AGED; NURSING PROCESS; QUALITATIVE RESEARCH; SOCIAL SUPPORT; SWEDEN;

EID: 84927800093     PISSN: 09621067     EISSN: 13652702     Source Type: Journal    
DOI: 10.1111/jocn.12588     Document Type: Article

References (38)

1. Agren S, Evangelista LS, Hjelm C & Stromberg A (2012) Dyads affected by chronic heart failure: a randomized study evaluating effects of education and psychosocial support to patients with heart failure and their partners. Journal of Cardiac Failure 18, 359-366.
2. Aldred H, Gott M & Gariballa S (2005) Advanced heart failure: impact on older patients and informal carers. Journal of Advanced Nursing 49, 116-124.
3. Bekelman DB, Havranek EP, Becker DM, Kutner JS, Peterson PN, Wittstein IS, Gottlieb SH, Yamashita TE, Fairclough DL & Dy SM (2007) Symptoms, depression, and quality of life in patients with heart failure. Journal of Cardiac Failure 13, 643-648.
4. Berry C & McMurray J (1999) A review of quality-of-life evaluations in patients with congestive heart failure. Pharmacoeconomics 16, 247-271.
5. Bishop M (2005) Quality of life and psychosocial adaptation to chronic illness and disability: preliminary analysis of a conceptual and theoretical synthesis. Rehabilitation Counseling Bulletin 48, 219-231.
6. Bosworth HB, Steinhauser KE, Orr M, Lindquist JH, Grambow SC & Oddone EZ (2004) Congestive heart failure patients' perceptions of quality of life: the integration of physical and psychosocial factors. Aging & Mental Health 8, 83-91.
7. Burton AM, Sautter JM, Tulsky JA, Lindquist JH, Hays JC, Olsen MK, Zimmerman SI & Steinhauser KE (2012) Burden and well-being among a diverse sample of cancer, congestive heart failure, and chronic obstructive pulmonary disease caregivers. Journal of Pain and Symptom Management 44, 410-420.
8. Campbell RL, Banner R, Konick-McMahan J & Naylor MD (1998) Discharge planning and home follow-up of the elderly patient with heart failure. Nursing Clinics of North America 33, 497-513.
9. Caregiving NAf (2009) Caregiving in the U.S. 2009, http://www.aarp.org/relationships/caregiving/info-12-2009/caregiving_09.html (accessed 20 October 2012).
10. Chang BH, Jones D, Hendricks A, Boehmer U, Locastro JS & Slawsky M (2004) Relaxation response for Veterans Affairs patients with congestive heart failure: results from a qualitative study within a clinical trial. Preventive Cardiology 7, 64-70.
11. Chesla CA (2010) Do family interventions improve health? Journal of Family Nursing 16, 355-377.
12. Clark AM, Hartling L, Vandermeer B & McAlister FA (2005) Meta-analysis: secondary prevention programs for patients with coronary artery disease. Annals of Internal Medicine 143, 659-672.
13. Cook WL (2001) Interpersonal influence in family systems: a social relations model analysis. Child Development 72, 1179-1197.
14. Daugherty J, Saarmann L, Riegel B, Sornborger K & Moser D (2002) Can we talk? Developing a social support nursing intervention for couples. Clinical Nurse Specialist 16, 211-218.
15. Dinesen B, Nohr C, Andersen SK, Sejersen H & Toft E (2008) Under surveillance, yet looked after: telehomecare as viewed by patients and their spouse/partners. European Journal of Cardiovascular Nursing 7, 239-246.
16. Graneheim UH & Lundman B (2004) Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today 24, 105-112.
17. Hartmann M, Bazner E, Wild B, Eisler I & Herzog W (2010) Effects of interventions involving the family in the treatment of adult patients with chronic physical diseases: a meta-analysis. Psychotherapy and Psychosomatics 79, 136-148.
18. Jaarsma T, Halfens R, Abu-Saad HH, Dracup K, Stappers J & van Ree J (1999) Quality of life in older patients with systolic and diastolic heart failure. European Journal of Heart Failure 1, 151-160.
19. Jeon YH, Kraus SG, Jowsey T & Glasgow NJ (2010) The experience of living with chronic heart failure: a narrative review of qualitative studies. BMC Health Services Research 10, 77.
20. Kenny DA, Kashy DA & Cook WL (2006) Dyadic Data Analysis. Guilford Press, New York.
21. Krueger RA & Casey MA (2009) Focus Groups: A Practical Guide for Applied Research. Sage Publications, Thousand Oaks, CA.
22. Lamura G, Mnich E, Nolan M, Wojszel B, Krevers B, Mestheneos L & Dohner H (2008) Family carers' experiences using support services in Europe: empirical evidence from the EUROFAMCARE study. Gerontologist 48, 752-771.
23. Lofvenmark C, Saboonchi F, Edner M, Billing E & Mattiasson AC (2013) Evaluation of an educational programme for family members of patients living with heart failure: a randomised controlled trial. Journal of Clinical Nursing 22, 115-126.
24. Lowson E, Hanratty B, Holmes L, Addington-Hall J, Grande G, Payne S & Seymour J (2013) From 'conductor' to 'second fiddle': older adult care recipients' perspectives on transitions in family caring at hospital admission. International Journal of Nursing Studies 50, 1197-1205.
25. Mahoney JS (2001) An ethnographic approach to understanding the illness experiences of patients with congestive heart failure and their family members. Heart and Lung 30, 429-436.
26. Martensson J, Dracup K & Fridlund B (2001) Decisive situations influencing spouses' support of patients with heart failure: a critical incident technique analysis. Heart and Lung 30, 341-350.
27. Martire LM, Lustig AP, Schulz R, Miller GE & Helgeson VS (2004) Is it beneficial to involve a family member? A meta-analysis of psychosocial interventions for chronic illness. Health Psychology 23, 599-611.
28. McCubbin MA (1989) Family stress and family strengths: a comparison of single- and two-parent families with handicapped children. Research in Nursing & Health 12, 101-110.
29. McMurray JJ, Adamopoulos S, Anker SD, Auricchio A, Bohm M, Dickstein K, Falk V, Filippatos G, Fonseca C, Gomez-Sanchez MA, Jaarsma T, Kober L, Lip GY, Maggioni AP, Parkhomenko A, Pieske BM, Popescu BA, Ronnevik PK, Rutten FH, Schwitter J, Seferovic P, Stepinska J, Trindade PT, Voors AA, Zannad F, Zeiher A, Bax JJ, Baumgartner H, Ceconi C, Dean V, Deaton C, Fagard R, Funck-Brentano C, Hasdai D, Hoes A, Kirchhof P, Knuuti J, Kolh P, McDonagh T, Moulin C, Reiner Z, Sechtem U, Sirnes PA, Tendera M, Torbicki A, Vahanian A, Windecker S, Bonet LA, Avraamides P, Ben Lamin HA, Brignole M, Coca A, Cowburn P, Dargie H, Elliott P, Flachskampf FA, Guida GF, Hardman S, Iung B, Merkely B, Mueller C, Nanas JN, Nielsen OW, Orn S, Parissis JT & Ponikowski P (2012) ESC guidelines for the diagnosis and treatment of acute and chronic heart failure 2012: the Task Force for the Diagnosis and Treatment of Acute and Chronic Heart Failure 2012 of the European Society of Cardiology. Developed in collaboration with the Heart Failure Association (HFA) of the ESC. European Journal of Heart Failure 14, 803-869.
30. Molloy GJ, Johnston DW & Witham MD (2005) Family caregiving and congestive heart failure. Review and analysis. European Journal of Heart Failure 7, 592-603.
31. Ohman M & Soderberg S (2004) The experiences of close relatives living with a person with serious chronic illness. Qualitative Health Research 14, 396-410.
32. Pattenden JF, Roberts H & Lewin RJ (2007) Living with heart failure; patient and carer perspectives. European Journal of Cardiovascular Nursing 6, 273-279.
33. Pressler SJ, Gradus-Pizlo I, Chubinski SD, Smith G, Wheeler S, Wu J & Sloan R (2009) Family caregiver outcomes in heart failure. American Journal of Critical Care 18, 149-159.
34. Rabow MW, Hauser JM & Adams J (2004) Supporting family caregivers at the end of life: "they don't know what they don't know". JAMA 291, 483-491.
35. Rees J, O'Boyle C & MacDonagh R (2001) Quality of life: impact of chronic illness on the partner. Journal of the Royal Society of Medicine 94, 563-566.
36. Retrum JH, Nowels CT & Bekelman DB (2013) Patient and caregiver congruence: the importance of dyads in heart failure care. Journal of Cardiovascular Nursing 28, 129-136.
37. Rosland AM, Heisler M, Choi HJ, Silveira MJ & Piette JD (2010) Family influences on self-management among functionally independent adults with diabetes or heart failure: do family members hinder as much as they help? Chronic Illness 6, 22-33.
38. Schou M, Gustafsson F, Videbaek L, Tuxen C, Keller N, Handberg J, Sejr Knudsen A, Espersen G, Markenvard J, Egstrup K, Ulriksen H & Hildebrandt PR (2013) Extended heart failure clinic follow-up in low-risk patients: a randomized clinical trial (NorthStar). European Heart Journal 34, 432-442.