Using a national archive of patient experience narratives to promote local patient-centered quality improvement: An ethnographic process evaluation of ‘accelerated’ experience-based co-design

Journal of Health Services Research and Policy

Volumn 19, Issue 4, 2014, Pages 200-207

  Locock, Louise ^a,b   Robert, Glenn ^c   Boaz, Annette ^d   Vougioukalou, Sonia ^e   Shuldham, Caroline ^f   Fielden, Jonathan ^g   Ziebland, Sue ^a   Gager, Melanie ^h   Tollyfield, Ruth ^f   Pearcey, John ^f  

^a UNIVERSITY OF OXFORD   (United Kingdom)

^b NIHR OXFORD BIOMEDICAL RESEARCH CENTRE   (United Kingdom)

^c KING'S COLLEGE LONDON   (United Kingdom)

^d ST GEORGE'S UNIVERSITY OF LONDON   (United Kingdom)

^e CARDIFF UNIVERSITY   (United Kingdom)

^f ROYAL BROMPTON AND HAREFIELD NHS FOUNDATION TRUST   (United Kingdom)

^g UNIVERSITY COLLEGE LONDON HOSPITALS   (United Kingdom)

^h ROYAL BERKSHIRE NHS FOUNDATION TRUST   (United Kingdom)

Author keywords

Experience based co design; Narrative; Patient experience; Quality improvement

Indexed keywords

ACTION RESEARCH; ARTICLE; COST MINIMIZATION ANALYSIS; ETHNOGRAPHIC RESEARCH; EVALUATION STUDY; EXPERIENCE BASED CO DESIGN; HEALTH CARE QUALITY; HUMAN; INFORMATION CENTER; INTENSIVE CARE; LUNG CANCER; MEDICAL STAFF; NARRATIVE; PARTICIPATORY RESEARCH; PATIENT CARE; PATIENT EXPERIENCE NARRATIVE; PRIORITY JOURNAL; TOTAL QUALITY MANAGEMENT; CULTURAL ANTHROPOLOGY; GREAT BRITAIN; HEALTH CARE PERSONNEL; INTERVIEW; LITERATURE; ORGANIZATION AND MANAGEMENT; PROCEDURES; STANDARDS;

ANTHROPOLOGY, CULTURAL; GREAT BRITAIN; HEALTH PERSONNEL; HUMANS; INTERVIEWS AS TOPIC; PATIENT-CENTERED CARE; PERSONAL NARRATIVES AS TOPIC; QUALITY IMPROVEMENT;

EID: 84926465140     PISSN: 13558196     EISSN: 17581060     Source Type: Journal    
DOI: 10.1177/1355819614531565     Document Type: Article

References (39)

1. Garratt A, Solheim E and Danielsen K. National and cross-national surveys of patient experiences: a structured review. Oslo: Norwegian Knowledge Centre for the Health Services, 2008.
2. Gerteis M, Edgman-Levitan S, Daley J, et al. Through the patients’ eyes: understanding and promoting patient-centered care. San Francisco, CA: Jossey-Bass, 1993.
3. Institute of Medicine. Crossing the quality chasm: a new health system for the 21stcentury. Washington, DC: National Academy Press, 2001.
4. Robert G and Cornwell J. Rethinking policy approaches to measuring and improving patient experience. J Health Serv Res Policy 2013; 18: 67–67.
5. Doyle C, Lennox L and Bell D. A systematic review of evidence on the links between patient experience and clinical safety and effectiveness. BMJ Open 2013; 3: e001570.
6. Matthew P, Manary MSE, Boulding W, et al. The patient experience and health outcomes. N Engl J Med 2013; 368: 201–201.
7. Greaves F, Pape UJ, King D, et al. Associations between Internet-based patient ratings and conventional surveys of patient experience in the English NHS: an observational study. BMJ Qual Saf 2012; 21: 600–600.
8. Meterko M, Wright S, Lin H, et al. Mortality among patients with acute myocardial infarction: the influences of patient-centered care and evidence-based medicine. Health Serv Res 2010; 45(5 Pt 1): 1188–1188.
9. Jha AK, Orav EJ, Zheng J, et al. Patients’ perception of hospital care in the United States. N Engl J Med 2008; 359: 1921–1921.
10. Murff HJ, France DJ, Blackford J, et al. Relationship between patient complaints and surgical complications. Qual Saf Health Care 2006; 15: 13–13.
11. Raleigh VS, Hussey D, Seccombe I, et al. Do associations between staff and inpatient feedback have the potential for improving patient experience? An analysis of surveys in NHS acute trusts in England. Qual Saf Health Care 2009; 18: 347–347.
12. Edgcumbe DP. Patients’ perceptions of hospital cleanliness are correlated with rates of meticillin-resistant Staphylococcus aureus bacteraemia. J Hosp Infect 2009; 71: 99–99.
13. Charmel PA and Frampton SB. Building the business case for patient-centered care. Healthc Financ Manage 2008; 62: 80–80.
14. Commonwealth Fund. International Health Policy Survey. New York: Commonwealth Fund, 2010.
15. The Mid Staffordshire NHS Foundation Trust Inquiry. Report of the Mid Staffordshire NHS Foundation Trust Public Inquiry. London: HMSO, 2013.
16. Dr Foster Intelligence. Intelligent Board 2010 – patient experience. London: Dr Foster Intelligence, 2010.
17. Cleary PD, Edgman-Levitan S, Roberts M, et al. Patients evaluate their hospital care: a national survey. Health Affairs 1991; 10: 254–254.
18. Department of Health. What matters: what matters to our patients, public and staff. London: Department of Health, 2007.
19. Sizmur S and Redding D. Core domains for measuring inpatients’ experience of care. Oxford: Picker Institute, 2009.
20. Coulter A, Fitzpatrick R and Cornwell J. The point of care: measures of patients’ experience in hospital: purpose, methods and uses. London: King’s Fund, 2009.
21. Foot C and Cornwell J. Improving patients’ experiences: an analysis of the evidence to inform future policy development. London: Internal Report to the Department of Health, 2010.
22. Tsianakas V, Maben J, Wiseman T, et al. Using patients’ experiences to identify priorities for quality improvement in breast cancer care: patient narratives, surveys or both? BMC Health Serv Res 2012; 12: 271.
23. DeCourcy A, West E and Barron D. The National Adult Inpatient Survey conducted in the English National Health Service from 2002 to 2009: how have the data been used and what do we know as a result? BMC Health Serv Res 2012; 12: 71.
24. Green MC and Brock TC. The role of transportation in the persuasiveness of public narratives. J Pers Soc Psychol 2000; 79: 701–701.
25. Greenhalgh T, Russell J and Swinglehurst D. Narrative methods in quality improvement research. Qual Saf Health Care 2005; 14: 443–443.
26. Bate P and Robert G. Bringing user experience to healthcare improvement: the concepts, methods and practices of experience-based design. Oxford: Radcliffe Publ, 2007.
27. Farr M. Evaluation report of the Patient Centred Care Project. London: Kung’s Fund, 2011.
28. Piper D and Iedema R. Emergency Department Co- Design Program 1 Stage 2 Evaluation Report. Sydney: Centre for Health Communication (UTS) and NSW Health, 2010.
29. Iedema R, Merrick E, Piper D, et al. Emergency Department Co-design Stage 1 Evaluation – report to Health Services Performance Improvement Branch, NSW Health. Sydney: Centre for Health Communication, University of Technology, Sydney, 2008.
30. Donetto S, Tsianakas V and Robert G. Using Experiencebased Co-design to improve the quality of healthcare: mapping where we are now and establishing future directions. London: King’s College London, 2014.
31. Green J and Thorogood N. Qualitative methods for health research. London: Sage, 2004.
32. Ritchie J and Spencer L. Qualitative data analysis for applied policy research. In: Bryman A and Burgess R (eds) Analysing qualitative data. London: Routledge, 1993, pp.173–194.
33. Moore C and Buchanan D. Sweat the small stuff: a case study of small-scale change processes and consequences in acute care. Health Serv Manage Res 2013; 26: 9–9.
34. Locock L, Robert G, Boaz A, et al. Testing accelerated experience-based co-design: a qualitative study of using a national archive of patient experience narrative interviews to promote rapid patient-centred service improvement. Health Serv Deliv Res, (In press).
35. Iedema R, Merrick E, Piper D, et al. Codesigning as a discursive practice in emergency health services: the architecture of deliberation. J Appl Behav Sci 2010; 46: 73–73.
36. Davies H, Powell A and Rushmer R. Why don’t clinicians engage with quality improvement? J Health Serv Res Policy 2007; 12: 129–129.
37. Jagosh J, Macaulay AC, Pluye P, et al. Uncovering the benefits of participatory research: implications of a realist review for health research and practice. Milbank Quart 2012; 90: 311–311.
38. Lasker RD, Weiss ES and Miller R. Partnership synergy: a practical framework for studying and strengthening the collaborative advantage. Milbank Quart 2001; 79: 179–179.
39. Maben J, Peccei R, Adams M, et al. Patients’ experiences of care and the influence of staff motivation, affect and wellbeing. Final report, 2012.