메뉴 건너뛰기




Volumn 12, Issue 2, 2014, Pages 64-86

Family involvement in decision making for people with dementia in residential aged care: A systematic review of quantitative literature

Author keywords

Decision making; Dementia; Family; Quantitative; Residential aged care; Systematic review

Indexed keywords

AGED; BIBLIOGRAPHIC DATABASE; DECISION MAKING; DEMENTIA; EVALUATION STUDY; FAMILY; FEMALE; HEALTH PERSONNEL ATTITUDE; HOME FOR THE AGED; HUMAN; HUMAN RELATION; LIVING WILL; MALE; META ANALYSIS; NURSING HOME; ORGANIZATION AND MANAGEMENT; PROXY; PSYCHOLOGY; STANDARDS; STATISTICS AND NUMERICAL DATA;

EID: 84925545783     PISSN: 17441595     EISSN: 17441609     Source Type: Journal    
DOI: 10.1097/XEB.0000000000000003     Document Type: Article
Times cited : (21)

References (52)
  • 1
    • 34548258114 scopus 로고    scopus 로고
    • Factors associated with constructive staff family relationships in the care of older adults in the institutional setting
    • Haesler E, Bauer M, Nay R. Factors associated with constructive staff family relationships in the care of older adults in the institutional setting. Int J Evid Based Healthc 2006; 4: 288-336.
    • (2006) Int J Evid Based Healthc , vol.4 , pp. 288-336
    • Haesler, E.1    Bauer, M.2    Nay, R.3
  • 2
    • 44949087577 scopus 로고    scopus 로고
    • Meeting the demographic challenges ahead: toward culture change in an ageing New Zealand
    • Miller EA, Booth M, Mor V. Meeting the demographic challenges ahead: toward culture change in an ageing New Zealand. Aust N Z Health Policy 2008; 5: 5.
    • (2008) Aust N Z Health Policy , vol.5 , pp. 5
    • Miller, E.A.1    Booth, M.2    Mor, V.3
  • 3
    • 17144426148 scopus 로고    scopus 로고
    • Patient participation on a ward for frail older people
    • Tutton E. Patient participation on a ward for frail older people. J Adv Nurs 2005; 50: 143-52.
    • (2005) J Adv Nurs , vol.50 , pp. 143-152
    • Tutton, E.1
  • 5
    • 0039260367 scopus 로고    scopus 로고
    • Aged Care Standards and Accreditation Agency Ltd. Accreditation standards. Available from www.accreditation. org.au.
    • Accreditation standards
  • 7
    • 84926455621 scopus 로고    scopus 로고
    • Care Quality Commission. Standards for care homes. Available from http://www.cqc.org.uk/sites/default/files/media/ documents/standards_to_expect_carehome.pdf.
    • Standards for care homes
  • 8
    • 84926492285 scopus 로고    scopus 로고
    • Social Services and Public Safety
    • Belfast: DHSSPS
    • Department of Health, Social Services and Public Safety. Residential care homes minimum standards. Belfast: DHSSPS; 2011.
    • (2011) Residential care homes minimum standards
  • 9
    • 84926431304 scopus 로고    scopus 로고
    • Social Services and Public Safety
    • Belfast: DHSSPS
    • Department of Health, Social Services and Public Safety. Nursing homes minimum standards. Belfast: DHSSPS; 2008.
    • (2008) Nursing homes minimum standards
  • 11
    • 39149112682 scopus 로고    scopus 로고
    • NHMRC endorsed ed. Canberra: Australian Government National Health and Medical Research Council
    • Australian Government National Health and Medical Research Council . Guidelines for a palliative approach in residential aged care facilities. NHMRC endorsed ed. Canberra: Australian Government National Health and Medical Research Council; 2006. Available from http:// www.nhmrc.gov.au/publications/synopses/ac12to14syn. htm.
    • (2006) Guidelines for a palliative approach in residential aged care facilities
  • 12
    • 0034085312 scopus 로고    scopus 로고
    • Decisions to treat or not to treat pneumonia in demented psychogeriatric nursing home patients: development of a guideline
    • van der Steen J, Muller M, Ooms M, et al. Decisions to treat or not to treat pneumonia in demented psychogeriatric nursing home patients: development of a guideline. J Med Ethics 2000; 26: 114-20.
    • (2000) J Med Ethics , vol.26 , pp. 114-120
    • van der Steen, J.1    Muller, M.2    Ooms, M.3
  • 13
    • 0001467940 scopus 로고
    • Nursing home residents, families and decision making: towards an understanding of progressive surrogacy
    • High DM, Rowles GD. Nursing home residents, families and decision making: towards an understanding of progressive surrogacy. J Aging Stud 1995; 9: 101-17.
    • (1995) J Aging Stud , vol.9 , pp. 101-117
    • High, D.M.1    Rowles, G.D.2
  • 14
    • 65549088529 scopus 로고    scopus 로고
    • Family decisionmaking in advanced dementia: narrative and ethics
    • Elliott BA, Gessert CE, Peden-McAlpine C. Family decisionmaking in advanced dementia: narrative and ethics. Scand J Caring Sci 2009; 23: 251-8.
    • (2009) Scand J Caring Sci , vol.23 , pp. 251-258
    • Elliott, B.A.1    Gessert, C.E.2    Peden-McAlpine, C.3
  • 15
    • 85046618405 scopus 로고    scopus 로고
    • Family involvement in decision making for people with dementia in residential aged care: a systematic review of quantitative and qualitative evidence
    • Petriwskyj AM, Parker D, Robinson A, et al. Family involvement in decision making for people with dementia in residential aged care: a systematic review of quantitative and qualitative evidence. JBI Library Syst Rev 2013; 11: 131-282.
    • (2013) JBI Library Syst Rev , vol.11 , pp. 131-282
    • Petriwskyj, A.M.1    Parker, D.2    Robinson, A.3
  • 16
    • 34248529889 scopus 로고    scopus 로고
    • Family participation in care plan meetings: promoting a collaborative organisational culture in nursing homes
    • Dijkstra A. Family participation in care plan meetings: promoting a collaborative organisational culture in nursing homes. J Gerontol Nurs 2007; 33: 22-9.
    • (2007) J Gerontol Nurs , vol.33 , pp. 22-29
    • Dijkstra, A.1
  • 19
    • 62949180322 scopus 로고    scopus 로고
    • Processes of decision making and end-of-life care for patients with dementia in group homes in Japan
    • Nakanishi M, Honda T. Processes of decision making and end-of-life care for patients with dementia in group homes in Japan. Arch Gerontol Geriatr 2009; 48: 296-9.
    • (2009) Arch Gerontol Geriatr , vol.48 , pp. 296-299
    • Nakanishi, M.1    Honda, T.2
  • 20
    • 81755181902 scopus 로고    scopus 로고
    • Improving decisionmaking for feeding options in advanced dementia: a randomised, controlled trial
    • Hanson LC, Carey TS, Caprio AJ, et al. Improving decisionmaking for feeding options in advanced dementia: a randomised, controlled trial. J Am Geriatr Soc 2011; 59: 2009-16.
    • (2011) J Am Geriatr Soc , vol.59 , pp. 2009-2016
    • Hanson, L.C.1    Carey, T.S.2    Caprio, A.J.3
  • 21
    • 67649823536 scopus 로고    scopus 로고
    • Healthcare proxies of nursing home residents with advance dementia: decisions they confront and their satisfaction with decision-making
    • Givens JL, Kiely DK, Carey K, Mitchell SL. Healthcare proxies of nursing home residents with advance dementia: decisions they confront and their satisfaction with decision-making. J Am Geriatr Soc 2009; 57: 1149-55.
    • (2009) J Am Geriatr Soc , vol.57 , pp. 1149-1155
    • Givens, J.L.1    Kiely, D.K.2    Carey, K.3    Mitchell, S.L.4
  • 22
    • 38949128353 scopus 로고    scopus 로고
    • Treatment decisions regarding hospitalisation and surgery for nursing home residents with advanced dementia: the CareAD Study
    • Maust DT, Blass DM, Black BS, Rabins PV. Treatment decisions regarding hospitalisation and surgery for nursing home residents with advanced dementia: the CareAD Study. Int Psychogeriatr 2008; 20: 406-18.
    • (2008) Int Psychogeriatr , vol.20 , pp. 406-418
    • Maust, D.T.1    Blass, D.M.2    Black, B.S.3    Rabins, P.V.4
  • 23
    • 4444334343 scopus 로고    scopus 로고
    • Forgoing artificial nutrition and hydration in nursing home patients with dementia: patients, decision making, and participants
    • Pasman HRW, Onwuteaka-Philipsen BD, Ooms ME, et al. Forgoing artificial nutrition and hydration in nursing home patients with dementia: patients, decision making, and participants. Alzheimer Dis Assoc Disord 2004; 18: 154-62.
    • (2004) Alzheimer Dis Assoc Disord , vol.18 , pp. 154-162
    • Pasman, H.R.W.1    Onwuteaka-Philipsen, B.D.2    Ooms, M.E.3
  • 24
    • 79958793763 scopus 로고    scopus 로고
    • Advance directives for euthanasia in dementia: how do they affect resident care in Dutch nursing homes? Experiences of physicians and relatives
    • de Boer ME, Droes R-M, Jonker C, et al. Advance directives for euthanasia in dementia: how do they affect resident care in Dutch nursing homes? Experiences of physicians and relatives. J Am Geriatr Soc 2011; 59: 989-96.
    • (2011) J Am Geriatr Soc , vol.59 , pp. 989-996
    • de Boer, M.E.1    Droes, R.-M.2    Jonker, C.3
  • 25
    • 0026793474 scopus 로고
    • Surrogate decisionmaker preferences for medical care of severely demented nursing home patients
    • Cogen R, Patterson B, Chavin S, et al. Surrogate decisionmaker preferences for medical care of severely demented nursing home patients. Arch Intern Med 1992; 152: 1885-8.
    • (1992) Arch Intern Med , vol.152 , pp. 1885-1888
    • Cogen, R.1    Patterson, B.2    Chavin, S.3
  • 26
    • 79956024915 scopus 로고    scopus 로고
    • Decision-making and outcomes of feeding tube insertion: a five-state study
    • Teno JM, Mitchell SL, Kuo SK, et al. Decision-making and outcomes of feeding tube insertion: a five-state study. J Am Geriatr Soc 2011; 59: 881-6.
    • (2011) J Am Geriatr Soc , vol.59 , pp. 881-886
    • Teno, J.M.1    Mitchell, S.L.2    Kuo, S.K.3
  • 27
    • 34247352523 scopus 로고    scopus 로고
    • The attitudes of Chinese family caregivers of older people with dementia towards life sustaining treatments
    • Kwok T, Twinn S, Yan E. The attitudes of Chinese family caregivers of older people with dementia towards life sustaining treatments. J Adv Nurs 2007; 58: 256-62.
    • (2007) J Adv Nurs , vol.58 , pp. 256-262
    • Kwok, T.1    Twinn, S.2    Yan, E.3
  • 28
    • 0035058713 scopus 로고    scopus 로고
    • Surrogate decision makers' attitudes towards tube feeding in the nursing home
    • Somogyi-Zalud E, Likourezos A, Chichin E, Olson E. Surrogate decision makers' attitudes towards tube feeding in the nursing home. Arch Gerontol Geriatr 2001; 32: 101-11.
    • (2001) Arch Gerontol Geriatr , vol.32 , pp. 101-111
    • Somogyi-Zalud, E.1    Likourezos, A.2    Chichin, E.3    Olson, E.4
  • 29
    • 84855170695 scopus 로고    scopus 로고
    • Reasons to prescribe antipsychotics for the behavioral symptoms of dementia: a survey in Dutch nursing homes among physicians, nurses, and family caregivers
    • e1-6
    • Cornegé-Blokland E, Kleijer BC, Hertogh CMPM, van Marum RJ. Reasons to prescribe antipsychotics for the behavioral symptoms of dementia: a survey in Dutch nursing homes among physicians, nurses, and family caregivers. J Am Med Dir Assoc 2012; 13: 80.e1-6.
    • (2012) J Am Med Dir Assoc , vol.13 , pp. 80
    • Cornegé-Blokland, E.1    Kleijer, B.C.2    Hertogh, C.M.P.M.3    van Marum, R.J.4
  • 30
    • 33646756583 scopus 로고    scopus 로고
    • Attitudes of physicians, nurses and relatives towards endof-life decisions concerning nursing home patients with dementia
    • Rurup ML, Onwuteaka-Philipsen BD, Pasman HR, Ribbe MW. Attitudes of physicians, nurses and relatives towards endof-life decisions concerning nursing home patients with dementia. Patient Educ Couns 2006; 61: 372-80.
    • (2006) Patient Educ Couns , vol.61 , pp. 372-380
    • Rurup, M.L.1    Onwuteaka-Philipsen, B.D.2    Pasman, H.R.3    Ribbe, M.W.4
  • 31
    • 65649096493 scopus 로고    scopus 로고
    • Surrogate decision makers' understanding of dementia patients' prior wishes for end-of-life care
    • Black BS, Fogarty LA, Phillips H, et al. Surrogate decision makers' understanding of dementia patients' prior wishes for end-of-life care. J Aging Health 2009; 21: 627-50.
    • (2009) J Aging Health , vol.21 , pp. 627-650
    • Black, B.S.1    Fogarty, L.A.2    Phillips, H.3
  • 32
    • 33745284956 scopus 로고    scopus 로고
    • A survey of end-of-life care in care homes: issues of definition and practice
    • Froggatt K, Payne S. A survey of end-of-life care in care homes: issues of definition and practice. Health Soc Care Community 2006; 14: 341-8.
    • (2006) Health Soc Care Community , vol.14 , pp. 341-348
    • Froggatt, K.1    Payne, S.2
  • 33
    • 27344449903 scopus 로고    scopus 로고
    • A psycho-educational intervention for family caregivers of patients receiving palliative care: a randomized controlled trial
    • Hudson P, Aranda S, Hayman-White K. A psycho-educational intervention for family caregivers of patients receiving palliative care: a randomized controlled trial. J Pain Symptom Manage 2005; 30: 329-41.
    • (2005) J Pain Symptom Manage , vol.30 , pp. 329-341
    • Hudson, P.1    Aranda, S.2    Hayman-White, K.3
  • 34
    • 0042351189 scopus 로고    scopus 로고
    • Enhancing partnerships with relatives in care settings
    • Dewar B, Tocher R, Watson W. Enhancing partnerships with relatives in care settings. Nurs Stand 2003; 17: 33-9.
    • (2003) Nurs Stand , vol.17 , pp. 33-39
    • Dewar, B.1    Tocher, R.2    Watson, W.3
  • 35
    • 0034131862 scopus 로고    scopus 로고
    • Families and hospitalised elders: a typology of family care actions
    • Li H, Stewart BJ, Imle MA, et al. Families and hospitalised elders: a typology of family care actions. Res Nurs Health 2000; 23: 3-16.
    • (2000) Res Nurs Health , vol.23 , pp. 3-16
    • Li, H.1    Stewart, B.J.2    Imle, M.A.3
  • 37
    • 0034535112 scopus 로고    scopus 로고
    • Caregiver involvement following institutionalization
    • Gaugler JE, Leitsch SA, Zarit S, Pearlin L. Caregiver involvement following institutionalization. Res Aging 2000; 22: 337-59.
    • (2000) Res Aging , vol.22 , pp. 337-359
    • Gaugler, J.E.1    Leitsch, S.A.2    Zarit, S.3    Pearlin, L.4
  • 38
    • 35148841435 scopus 로고    scopus 로고
    • The importance of family relationships with nursing facility staff for family caregiver burden and depression
    • Chen CK, Sabir M, Zimmerman S, et al. The importance of family relationships with nursing facility staff for family caregiver burden and depression. J Gerontol B Psychol Sci Soc Sci 2007; 62: 253-60.
    • (2007) J Gerontol B Psychol Sci Soc Sci , vol.62 , pp. 253-260
    • Chen, C.K.1    Sabir, M.2    Zimmerman, S.3
  • 39
    • 0038284119 scopus 로고    scopus 로고
    • A cooperative communication intervention for nursing home staff and family members of residents
    • Pillemer K, Suitor J, Henderson C, et al. A cooperative communication intervention for nursing home staff and family members of residents. Gerontologist 2003; 43 (Suppl 2): 96-106.
    • (2003) Gerontologist , vol.43 , pp. 96-106
    • Pillemer, K.1    Suitor, J.2    Henderson, C.3
  • 40
    • 33645102917 scopus 로고    scopus 로고
    • Collaboration and control: nurses' constructions of the role of family in nursing home care
    • Bauer M. Collaboration and control: nurses' constructions of the role of family in nursing home care. J Adv Nurs 2006; 54: 45-52.
    • (2006) J Adv Nurs , vol.54 , pp. 45-52
    • Bauer, M.1
  • 41
    • 67549099656 scopus 로고    scopus 로고
    • Staff perceptions of staff-family interactions in nursing homes
    • Utley-Smith Q, Colón-Emeric C, Lekan-Rutledge D, et al. Staff perceptions of staff-family interactions in nursing homes. J Aging Stud 2009; 23: 168-77.
    • (2009) J Aging Stud , vol.23 , pp. 168-177
    • Utley-Smith, Q.1    Colón-Emeric, C.2    Lekan-Rutledge, D.3
  • 42
    • 84926492283 scopus 로고    scopus 로고
    • Staff-family relationships in residential aged care facilities: the views of residents' family members and care staff
    • Bauer M, Fetherstonhaugh D, Tarzia L, Chenco C. Staff-family relationships in residential aged care facilities: the views of residents' family members and care staff. J Appl Gerontol 2013.
    • (2013) J Appl Gerontol
    • Bauer, M.1    Fetherstonhaugh, D.2    Tarzia, L.3    Chenco, C.4
  • 44
    • 77958110151 scopus 로고    scopus 로고
    • The communication challenges faced in adopting a palliative care approach in advanced dementia
    • Johnson A, Chang E, Daly J, et al. The communication challenges faced in adopting a palliative care approach in advanced dementia. Int J Nurs Pract 2009; 15: 467-74.
    • (2009) Int J Nurs Pract , vol.15 , pp. 467-474
    • Johnson, A.1    Chang, E.2    Daly, J.3
  • 45
    • 77953637648 scopus 로고    scopus 로고
    • Challenges to improving end of life care of people with advanced dementia in the UK
    • Thune-Boyle ICV, Sampson E, Jones L, et al. Challenges to improving end of life care of people with advanced dementia in the UK. Dementia 2010; 9: 259-84.
    • (2010) Dementia , vol.9 , pp. 259-284
    • Thune-Boyle, I.C.V.1    Sampson, E.2    Jones, L.3
  • 46
    • 34948899792 scopus 로고    scopus 로고
    • Communication strategies and cultural issues in the delivery of bad news
    • Barclay J, Blackhall L, Tulsky J. Communication strategies and cultural issues in the delivery of bad news. J Palliat Med 2007; 10: 958-77.
    • (2007) J Palliat Med , vol.10 , pp. 958-977
    • Barclay, J.1    Blackhall, L.2    Tulsky, J.3
  • 47
    • 34748875343 scopus 로고    scopus 로고
    • Clinical practice guidelines for communicating prognosis and end-of-life issues with adults in the advanced stages of a life-limiting illness, and their caregivers
    • Clayton J, Hancock K, Butow P, et al. Clinical practice guidelines for communicating prognosis and end-of-life issues with adults in the advanced stages of a life-limiting illness, and their caregivers. Med J Aust 2007; 186: S77-107.
    • (2007) Med J Aust , vol.186 , pp. S77-S107
    • Clayton, J.1    Hancock, K.2    Butow, P.3
  • 48
    • 0141888346 scopus 로고    scopus 로고
    • Seeing the person behind the patient: enhancing the care of older people using a biographical approach
    • Clarke A, Hanson E, Ross H. Seeing the person behind the patient: enhancing the care of older people using a biographical approach. J Clin Nurs 2003; 12: 697-706.
    • (2003) J Clin Nurs , vol.12 , pp. 697-706
    • Clarke, A.1    Hanson, E.2    Ross, H.3
  • 49
    • 77955955695 scopus 로고    scopus 로고
    • Life stories and biography: a means of connecting family and staff to people with dementia
    • Kellett U, Moyle W, McAllister M, et al. Life stories and biography: a means of connecting family and staff to people with dementia. J Clin Nurs 2010; 19: 1707-15.
    • (2010) J Clin Nurs , vol.19 , pp. 1707-1715
    • Kellett, U.1    Moyle, W.2    McAllister, M.3
  • 50
    • 0032877671 scopus 로고    scopus 로고
    • Expanding the discourse of care: family constructed biographies of nursing home residents
    • Caron W, Hepburn K, Luptak M, et al. Expanding the discourse of care: family constructed biographies of nursing home residents. Fam Syst Health 1999; 17: 323-35.
    • (1999) Fam Syst Health , vol.17 , pp. 323-335
    • Caron, W.1    Hepburn, K.2    Luptak, M.3
  • 51
    • 80052989527 scopus 로고    scopus 로고
    • Understanding discrepancy in perceptions of values: individuals with mild to moderate dementia and their family caregivers
    • Reamy AM, Kim K, Zarit SH, Whitlatch CJ. Understanding discrepancy in perceptions of values: individuals with mild to moderate dementia and their family caregivers. Gerontologist 2011; 51: 473-83.
    • (2011) Gerontologist , vol.51 , pp. 473-483
    • Reamy, A.M.1    Kim, K.2    Zarit, S.H.3    Whitlatch, C.J.4


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.