“Was it a Mistake to Tell Others That You are Infected with HIV?”: Factors Associated with Regret Following HIV Disclosure Among People Living with HIV in Five Countries (Mali, Morocco, Democratic Republic of the Congo, Ecuador and Romania). Results from a Community-Based Research

AIDS and Behavior

Volumn 19, Issue 2, 2015, Pages 311-321

  Henry, Emilie ^a   Bernier, Adeline ^a   Lazar, Florin ^b   Matamba, Gaspard ^c   Loukid, Mohamed ^d   Bonifaz, Cesar ^e   Diop, Samba ^f   Otis, Joanne ^g   Préau, Marie ^h  

^a Coalition Internationale Sida ^*  (France)

^b UNIVERSITY OF BUCHAREST   (Romania)

^c ACS/AMO CONGO   (Congo)

^d CADI AYYAD UNIVERSITY   (Morocco)

^e Kimirina ^*  (Ecuador)

^f and Technologies of Bamako   (Mali)

^g UNIVERSITÉ DU QUÉBEC À MONTRÉAL   (Canada)

^h University of Lyon Lyon 2 GREPS   (France)

Author keywords

Discrimination; HIV serostatus disclosure; Regret; Self esteem; Third party disclosure

Indexed keywords

ADULT; COMMUNITY-BASED PARTICIPATORY RESEARCH; CROSS-CULTURAL COMPARISON; CROSS-SECTIONAL STUDIES; DEMOCRATIC REPUBLIC OF THE CONGO; ECUADOR; EMOTIONS; ETHNOLOGY; FEMALE; HIV SEROPOSITIVITY; HUMANS; INTERPERSONAL RELATIONS; MALE; MALI; MIDDLE AGED; MOROCCO; PSYCHOLOGY; QUESTIONNAIRES; ROMANIA; SELF CONCEPT; SELF DISCLOSURE; SELF EFFICACY; SOCIAL ISOLATION; SOCIOECONOMIC FACTORS; TRUTH DISCLOSURE; YOUNG ADULT;

ADULT; COMMUNITY-BASED PARTICIPATORY RESEARCH; CROSS-CULTURAL COMPARISON; CROSS-SECTIONAL STUDIES; DEMOCRATIC REPUBLIC OF THE CONGO; ECUADOR; EMOTIONS; FEMALE; HIV SEROPOSITIVITY; HUMANS; INTERPERSONAL RELATIONS; MALE; MALI; MIDDLE AGED; MOROCCO; QUESTIONNAIRES; ROMANIA; SELF CONCEPT; SELF DISCLOSURE; SELF EFFICACY; SOCIAL ISOLATION; SOCIOECONOMIC FACTORS; TRUTH DISCLOSURE; YOUNG ADULT;

EID: 84925496290     PISSN: 10907165     EISSN: 15733254     Source Type: Journal    
DOI: 10.1007/s10461-014-0976-8     Document Type: Article

References (70)

1. Deribe K, Woldemichael K, Wondafrash M, Haile A, Amberbir A. Disclosure experience and associated factors among HIV positive men and women clinical service users in southwest Ethiopia. BMC Public Health. 2008;8:81.
2. Elford J, Ibrahim F, Bukutu C, Anderson J. Disclosure of HIV status: the role of ethnicity among people living with HIV in London. J Acquir Immune Defic Syndr. 2008;47(4):514–21.
3. Babcock JH. Involving family and significant others in acute care. In: Aronstein DM, Thompson BJ, editors. HIV and social work. Binghamton: Harrington; 1998. p. 101–8.
4. Hays RB, McKusick L, Pollack L, Hilliard R, Hoff C, Coates TJ. Disclosing HIV seropositivity to significant others. AIDS. 1993;7(3):425–31.
5. Kalichman SC. Understanding AIDS: a guide for mental health professionals. Washington, DC: Am Psychol Assoc; 1995.
6. Black BP, Miles MS. Calculating the risks and benefits of disclosure in African American women who have HIV. J Obstet Gynecol Neonatal Nurs. 2002;31(6):688–97.
7. Serovich JM. A test of two HIV disclosure theories. AIDS Educ Prev. 2001;13(4):355–64.
8. Serovich JM, Lim JY, Mason TL. A retest of two HIV disclosure theories: the women’s story. Health Soc Work. 2008;33(1):23–31.
9. Valle M, Levy J. Weighing the consequences: self-disclosure of HIV-positive status among African American injection drug users. Health Educ Behav. 2009;36(1):155–66.
10. Hutton VE, Misajon R, Collins FE. Subjective wellbeing and “felt” stigma when living with HIV. Qual Life Res. 2013;22(1):65–73.
11. Medley A, Garcia-Moreno C, McGill S, Maman S. Rates, barriers and outcomes of HIV serostatus disclosure among women in developing countries: implications for prevention of mother-to-child transmission programmes. Bull World Health Organ. 2004;82(4):299–307.
12. Spire B, Carrieri P, Sopha P, et al. Adherence to antiretroviral therapy in patients enrolled in a comprehensive care program in Cambodia: a 24-month follow-up assessment. Antivir Ther. 2008;13(5):697–703.
13. Waddell EN, Messeri PA. Social support, disclosure, and use of antiretroviral therapy. AIDS Behav. 2006;10(3):263–72.
14. Holt R, Court P, Vedhara K, Nott KH, Holmes J, Snow MH. The role of disclosure in coping with HIV infection. AIDS Care. 1998;10(1):49–60.
15. Kalichman SC, DiMarco M, Austin J, Luke W, DiFonzo K. Stress, social support, and HIV-status disclosure to family and friends among HIV-positive men and women. J Behav Med. 2003;26(4):315–32.
16. Bogart LM, Landrine H, Galvan FH, Wagner GJ, Klein DJ. Perceived discrimination and physical health among HIV-positive Black and Latino men who have sex with men. AIDS Behav. 2013;17(4):1431–41.
17. Marks G, Burris S, Peterman TA. Reducing sexual transmission of HIV from those who know they are infected: the need for personal and collective responsibility. AIDS. 1999;13(3):297–306.
18. Olley BO, Seedat S, Stein DJ. Self-disclosure of HIV serostatus in recently diagnosed patients with HIV in South Africa. Afr J Reprod Health. 2004;8(2):71–6.
19. Loubiere S, Peretti-Watel P, Boyer S, Blanche J, Abega SC, Spire B. HIV disclosure and unsafe sex among HIV-infected women in Cameroon: Results from the ANRS-EVAL study. Soc Sci Med. 2009;69(6):885–91.
20. Marks G, Crepaz N. HIV-positive men’s sexual practices in the context of self-disclosure of HIV status. J Acquir Immune Defic Syndr. 2001;27(1):79–85.
21. Sullivan KM. Male self-disclosure of HIV-positive serostatus to sex partners: a review of the literature. J Assoc Nurses AIDS Care. 2005;16(6):33–47.
22. Chaudoir SR, Fisher JD, Simoni JM. Understanding HIV disclosure: a review and application of the disclosure processes model. Soc Sci Med. 2011;72(10):1618–29.
23. Serovich JM, McDowell TL, Grafsky EL. Women’s report of regret of hiv disclosure to family, friends and sex partners. AIDS Behav. 2008;12(2):227–31.
24. Serovich JM, Mason TL, Bautista D, Toviessi P. Gay men’s report of regret of HIV disclosure to family, friends, and sex partners. AIDS Educ Prev. 2006;18(2):132–8.
25. Serovich JM, Grafsky EL, Reed S. Comparing regret of disclosing HIV versus sexual orientation information by MSM. AIDS Care. 2010;22(9):1052–9.
26. Murphy DA, Roberts KJ, Hoffman D. Regrets and advice from mothers who have disclosed their HIV+ serostatus to their young children. J Child Fam Stud. 2003;12(3):307–18.
27. Henry E., Verde L., Cissé M et al: Linking research and intervention: a community research program on serostatus disclosure in five countries: Mali, Morocco, DRC, Ecuador and Romania. XIX International AIDS Conference, Washington, 2012 [abstract MOPE398].
28. Lazăr F, Verde L, Henry E, et al. Satisfaction with sexual life in people living with HIV in Romania, together with associated individual and social factors. AIDS Care. 2014;26(Suppl 1):S65–9.
29. Mosavel M, Simon C, van Stade D, Buchbinder M. Community-based participatory research (CBPR) in South Africa: engaging multiple constituents to shape the research question. Soc Sci Med. 2005;61(12):2577–87.
30. Israel BA, Schulz AJ, Parker EA, Becker AB. Review of community-based research: assessing partnership approaches to improve public health. Annu Rev Public Health. 1998;19:173–202.
31. Loukid M, Abadie A, Henry E, et al. Factors associated with HIV status disclosure to one’s steady sexual partner in PLHIV in Morocco. J Community Health. 2014;39(1):50–9.
32. Gadermann AM, Guhn M, Zumbo BD. Estimating ordinal reliability for Likert-type and ordinal item response data: a conceptual, empirical, and practical guide. Pract Assess Res Eval. 2012;17(3). http://pareonline.net/pdf/v17n3.pdf. Accessed 5 April 2014.
33. Moss-Morris R, Weinman J, Petrie KJ, Horne R, Cameron LD, Buick D. The revised illness perception questionnaire (IPQ-R). Psychol Health. 2002;17:1–16.
34. Rosenberg M. Society and the adolescent self-image. Princeton: Princeton University Press; 1965.
35. Martinot D. Connaissance de soi et estime de soi: ingrédients pour la réussite scolaire. Rev Sci Educ. 2001;27(3):483–502.
36. Schwarzer R, Jerusalem M. Generalized self-efficacy scale. In: Weinman J, Wright S, Johnston M, editors. Measures in health psychology: a user’s portfolio. Causal and control beliefs. Windsor: NFER-NELSON; 1995. p. 35–7.
37. Hosmer DW, Lemeshow S. Applied logistic regression. New-York: Wiley; 2000.
38. Dima AL, Stutterheim SE, Lyimo R, de Bruin M. Advancing methodology in the study of HIV status disclosure: the importance of considering disclosure target and intent. Soc Sci Med. 2014;108:166–74.
39. Connell RW. Gender and power: society, the person and sexual politics. Palo Alto: Stanford University Press; 1987.
40. Gupta GR. Gender, sexuality, and HIV/AIDS: the what, the why, and the how. 2001. pp. 6–12. http://www.popline.org/node/179021#sthash.V80qnnNF.dpuf. Accessed 25 March 2014.
41. Weiss E, Whelan D, Gupta GR. Gender, sexuality and HIV: making a difference in the lives of young women in developing countries. Sex Relatsh Ther. 2000;15(3):233–45.
42. Gupta GR. How men’s power over women fuels the HIV epidemic. BMJ. 2002;324(7331):183–4.
43. Blanc AK. The effect of power in sexual relationships on sexual and reproductive health: an examination of the evidence. Stud Fam Plann. 2001;32(3):189–213.
44. Obermeyer CM, Baijal P, Pegurri E. Facilitating HIV disclosure across diverse settings: a review. Am J Public Health. 2011;101(6):1011–23.
45. Grodensky CA, Golin CE, Jones C, et al. “I Should Know Better”: the roles of relationships, spirituality, disclosure, stigma, and shame for older women living with HIV seeking support in the South. J Assoc Nurses AIDS Care. 2014;. doi:10.1016/j.jana.2014.01.005.
46. Lowther K, Selman L, Harding R, Higginson IJ. Experience of persistent psychological symptoms and perceived stigma among people with HIV on antiretroviral therapy (ART): a systematic review. Int J Nurs Stud. 2014;51(8):1171–89.
47. Florom-Smith AL, De Santis JP. Exploring the concept of HIV-related stigma. Nurs Forum. 2012;47(3):153–65.
48. Colbert AM, Kim KH, Sereika SM, Erlen JA. An examination of the relationships among gender, health status, social support, and HIV-related stigma. J Assoc Nurses AIDS Care. 2010;21(4):302–13.
49. Asiedu GB, Myers-Bowman KS. Gender differences in the experiences of HIV/AIDS-related stigma: a qualitative study in Ghana. Health Care Women Int. 2014;35(7–9):703–27.
50. Beaulieu M, Otis J, Blais M, et al. A model of quality of life of women living with HIV. J HIV AIDS Soc Serv. 2012;11(3):210–32.
51. Zamudio-Haas S, Mudekunye-Mahaka I, Lambdin BH, Dunbar MS. If, when and how to tell: a qualitative study of HIV disclosure among young women in Zimbabwe. Reprod Health Matters. 2012;20(39 Suppl):18–26.
52. King EB, Botsford WE. Managing pregnancy disclosures: understanding and overcoming the challenges of expectant motherhood at work. Hum Resour Manag Rev. 2009;19(4):314–23.
53. Ezegwui HU, Nwogu-Ikojo EE, Enwereji JO, Dim CC. HIV serostatus disclosure pattern among pregnant women in Enugu, Nigeria. J Biosoc Sci. 2009;41(6):789–98.
54. Orne-Gliemann J, Tchendjou P, Miric M et al. Conseil prénatal pour le VIH orienté vers le couple dans quatre pays à faible et moyenne prévalences: acceptabilité et faisabilité. In: Desclaux A, Msellati P, Sow K. Les femmes à l’épreuve du VIH dans les pays du Sud, Genre et accès universel à la prise en charge. Paris: ANRS, Collection Sciences Sociales et Sida; 2011.
55. Steward WT, Herek GM, Ramakrishna J, et al. HIV-related stigma: adapting a theoretical framework for use in India. Soc Sci Med. 2008;67(8):1225–35.
56. Gaskins SW, Payne Foster P, Sowell RL, Lewis TL, Gardner A, Parton JM. Making decisions: the process of HIV disclosure for rural African American men. Am J Mens Health. 2012;6(6):442–52.
57. Liu Y, Canada K, Shi K, Corrigan P. HIV-related stigma acting as predictors of unemployment of people living with HIV/AIDS. AIDS Care. 2012;24(1):129–35.
58. Bashir S. HIV/AIDS stigma at the workplace: exploratory findings from Pakistan. SAHARA J. 2011;8(3):156–61.
59. Dray-Spira R, Lert F. VESPA Study Group. Living and working with HIV in France in 2003: results from the ANRS-EN12-VESPA Study. AIDS. 2007;21(Suppl 1):S29–36.
60. Rodkjaer L, Sodemann M, Ostergaard L, Lomborg K. Disclosure decisions: HIV-positive persons coping with disease-related stressors. Qual Health Res. 2011;21(9):1249–59.
61. Bury M. Chronic illness as biographical disruption. Sociol Health Illn. 1982;4(2):167–82.
62. Bury M. The sociology of chronic illness: a review of research and prospects. Sociol Health Illn. 1991;13(4):451–68.
63. Charmaz K. Struggling for a self: identity levels of the chronically ill. In: Roth JA, Conrad P, editors. Research in the sociology of health care: Vol. 6. The experience and management of chronic illness. Greenwich, CT: JAI Press; 1987. pp. 283–321.
64. Galletly CL, Pinkerton SD, DiFranceisco W. A quantitative study of Michigan’s criminal HIV exposure law. AIDS Care. 2012;24(2):174–9.
65. Fuhrer R, Rouillon F. La version française de l’échelle CES-D (Center for Epidemiologic Studies-Depression Scale) Description et traduction de l’échelle d’auto-évaluation. Psychiatr Psychobiol. 1989;4:163–6.
66. Bates I, Fenton C, Gruber J, et al. Vulnerability to malaria, tuberculosis, and HIV/AIDS infection and disease. Part 1: determinants operating at individual and household level. Lancet Infect Dis. 2004;4(5):267–77.
67. Booysen Fle R, Summerton J. Poverty, risky sexual behaviour, and vulnerability to HIV infection: evidence from South Africa. J Health Popul Nutr. 2002;20(4):285–8.
68. Ncama BP. Acceptance and disclosure of HIV status through an integrated community/home-based care program in South Africa. Int Nurs Rev. 2007;54(4):391–7.
69. Otis J, Yattassaye A, Henry E, et al. Effects of an empowerment program on the ability of women living with HIV in Mali to manage decisions regarding whether or not to disclose HIV status. XIX International AIDS Conference. Washington, 2012 [abstract MOPE502].
70. ARCAD-SIDA, Coalition PLUS. Gundo-So: la chambre des confidences/Une expérience communautaire sur la question du partage du statut sérologique chez les femmes vivant avec le VIH au Mali. http://www.coalitionplus.org/wordpress/wp-content/uploads/2014/12/Brochure_Gundo-So_finale.pdf. Accessed 3 Dec 2014.