Psychosocial impact of pediatric living-donor kidney and liver transplantation on recipients, donors, and the family: A systematic review

Transplant International

Volumn 28, Issue 3, 2015, Pages 270-280

  Thys, Kristof ^a   Schwering, Karl Leo ^b   Siebelink, Marion ^c   Dobbels, Fabienne ^a   Borry, Pascal ^a   Schotsmans, Paul ^a   Aujoulat, Isabelle ^d  

^a UNIVERSITY OF LEUVEN   (Belgium)

^b University Paris Diderot   (France)

^c UNIVERSITY MEDICAL CENTER GRONINGEN   (Netherlands)

^d UNIVERSITÉ CATHOLIQUE DE LOUVAIN   (Belgium)

Author keywords

family; kidney transplantation; liver transplantation; living donor transplantation; psychosocial impact; systematic review

Indexed keywords

ANXIETY; BODY IMAGE; COPING BEHAVIOR; DEPRESSION; EMPOWERMENT; FAMILY; GRAFT RECIPIENT; GUILT; HUMAN; KIDNEY TRANSPLANTATION; LIVER TRANSPLANTATION; LIVING DONOR; PEDIATRICS; POSTOPERATIVE PAIN; PRIORITY JOURNAL; REVIEW; SELF ESTEEM; SOCIAL PSYCHOLOGY; SYSTEMATIC REVIEW; ATTITUDE TO HEALTH; CHILD; LIVER RESECTION; NEPHRECTOMY; PSYCHOLOGY; QUALITY OF LIFE; QUESTIONNAIRE;

ATTITUDE TO HEALTH; CHILD; FAMILY; HEPATECTOMY; HUMANS; KIDNEY TRANSPLANTATION; LIVER TRANSPLANTATION; LIVING DONORS; NEPHRECTOMY; QUALITY OF LIFE; SURVEYS AND QUESTIONNAIRES; TRANSPLANT RECIPIENTS;

EID: 84925348211     PISSN: 09340874     EISSN: 14322277     Source Type: Journal    
DOI: 10.1111/tri.12481     Document Type: Review

References (47)

1. Austin M, Feurer I, Chari R, Gorden D, Wright J, Pincon C,. Survival after pediatric liver transplantation. Why does living donation offer an advantage? Arch Surg 2005; 140: 465.
2. Cransberg K, Smits JMA, Offner G, Nauta J, Persijn GG,. Kidney transplantation without prior dialysis in children: the eurotransplant experience. Am J Transplant 2006; 6: 1858.
3. McKiernan PJ,. Long-term care following paediatric liver transplantation. Arch Dis Child Educ Pract Ed 2011; 96: 82.
4. Burra P, De Bona M,. Quality of life following organ transplantation. Transpl Int 2007; 20: 397.
5. Simons LE, Anglin G, Warshaw BL, Mahle WT, Vincent RN, Blount RL,. Understanding the pathway between the transplant experience and health-related quality of life outcomes in adolescents. Pediatr Transplant 2008; 12: 187.
6. Tong A, Morton R, Howard K, Craig JC,. Adolescent experiences following organ transplantation: a systematic review of qualitative studies. J Pediatr 2009; 155: 542.
7. Gerson AC, Furth SL, Neu AM, Fivush BA,. Assessing associations between medication adherence and potentially modifiable psychosocial variables in pediatric kidney transplant recipients and their families. Pediatr Transplant 2004; 8: 543.
8. Mauss M,. Essai sur le don. Forme et raison de l'échange dans les sociétés archaïques. In: Sociologie et anthropologie. Paris: Les Presses universitaires de France, 1968 (4th ed.); 482 pp.
9. Zeiler K, Guntram L, Lennerling A,. Moral tales of parental living kidney donation: a parenthood moral imperative and its relevance for decision making. Med Health Care Philos 2010; 13: 225.
10. Franklin PM, Crombie AK,. Live related renal transplantation: psychological, social, and cultural issues. Transplantation 2003; 76: 1247.
11. Schwering K-L, Aujoulat I,. Gift dynamics and identity construction within the family. In:, Weimar W, Bos M, Busschbach J, eds. Organ Transplantation, Ethical, Legal and Psychosocial Aspects. Lengerich: Pabst Science Publishers, 2014: 181.
12. Tong A, Chapman JR, Wong G, Kanellis J, McCarthy G, Craig JC,. The motivations and experiences of living kidney donors: a thematic synthesis. Am J Kidney Dis 2012; 60: 15.
13. Chen PX, Yan LN,. Health-related quality of life in living liver donors after transplantation. Hepatobiliary Pancreat Dis Int 2011; 10: 356.
14. Gill P, Lowes L,. Gift exchange and organ donation: donor and recipient experiences of live related kidney transplantation. Int J Nurs Stud 2008; 45: 1607.
15. Crombie AK, Franklin PM,. Family issues implicit in living donation. Mortality 2006; 11: 196.
16. Aujoulat I, Schwering KL, Reding R,. Living-related donation: a challenge to adolescent transplant recipients who transit from parental care to self-managed care. Child Care Health Dev 2012; 38: 146.
17. Aujoulat I, Janssen M, Libion F, et al,. Internalizing motivation to self-care: a multifaceted challenge for young liver transplant recipients. Qual Health Res 2014; 24: 357.
18. Fennell RS, Tucker C, Pedersen T,. Demographic and medical predictors of medication compliance among ethnically different pediatric renal transplant patients. Pediatr Transplant 2001; 5: 343.
19. Moher D, Liberati A, Tetzlaff J, Altman DG,. Preferred reporting items for systematic reviews and meta-analyses: the prisma statement. BMJ 2009; 339: b2535.
20. Kmet L, Lee R, Cook L,. Standard Quality Assessment Criteria for Evaluating Primary Research Papers from a Variety of Fields. Alberta Heritage Foundation for Medical Research, 2004. Available at http://www.ihe.ca/documents/HTA-FR13.pdf (last accessed 4 April 2014).
21. Duerinckx N, Timmerman L, Van Gogh J, et al,. Predonation psychosocial evaluation of living kidney and liver donor candidates: a systematic literature review. Transpl Int 2014; 27: 2.
22. Fukunishi I, Sugawara Y, Takayama T, Makuuchi M, Kawarasaki H, Surman OS,. Psychiatric disorders before and after living-related transplantation. Psychosomatics 2001; 42: 337.
23. Fukunishi I, Sugawara Y, Takayama T, et al,. Maladjustment behaviors in pediatric living- related transplantation. Transplant Proc 2002; 34: 2767.
24. Berney-Martinet S, Key F, Bell L, Lépine S, Clermont MJ, Fombonne E,. Psychological profile of adolescents with a kidney transplant. Pediatr Transplant 2009; 13: 701.
25. El-Husseini A, Hassan R, Sobh M, Ghoneim M,. The effects of gender on health-related quality of life in pediatric live-donor kidney transplantation: a single-center experience in a developing country. Pediatr Transplant 2010; 14: 188.
26. Kärrfelt HME, Lindblad FIE, Crafoord J, Berg UB,. Renal transplantation: long-term adaptation and the children's own reflections. Pediatr Transplant 2003; 7: 69.
27. Brandão de Carvalho Lira AL, Vilaní Cavalcante Guedes M, Venícios de Oliveira Lopes M,. Adolescente Renal Crõnico: Alteraciones Físicas, Sociales y Emocionales Pos-Trasplante. Rev Soc Esp Enferm Nefrol 2005; 8: 260.
28. Tisza VB, Dorsett P, Morse J,. Psychological implications of renal transplantation. J Am Acad Child Psychiatry 1976; 15: 709.
29. Schulz K, Hofmann C, Sander K, Edsen S, Burdelski M, Rogiers X,. Comparison of quality of life and family stress in families of children with living-related liver transplants versus families of children who received a cadaveric liver. Transplant Proc 2001; 33: 1496.
30. Starkman MN,. Psychological problems resulting from renal transplantation. Gen Hosp Psychiatry 1980; 2: 289.
31. Goldman LS,. Liver transplantation using living donors. Preliminary Donor Psychiatric Outcomes. Psychosomatics 1993; 34: 235.
32. Gökçe S, Durmaz Ö, Peykerli Gürsu G, et al,. Assessment of living donors with respect to pre- and posttransplant psychosocial properties and posttransplant family functioning in pediatric liver transplantation. Turk J Gastroenterol 2011; 22: 36.
33. Kärrfelt HM, Berg UB, Lindblad FIE, Tydén GE,. To be or not to be a living donor: questionnaire to parents of children who have undergone renal transplantation. Transplantation 1998; 65: 915.
34. Kärrfelt HM, Berg UB, Lindblad FI,. Renal transplantation in children: psychological and donation-related aspects from the parental perspective. Pediatr Transplant 2000; 4: 305.
35. Nasr AS, Rehm RS,. Parental live liver donation: a transformational experience. Prog Transplant 2014; 24: 69.
36. Kroencke S, Wilms C, Broering D, Rogiers X, Schulz K,. Psychosocial aspects of pediatric living donor. Liver Transpl 2006; 12: 1661.
37. Kroencke S, Nashan B, Lutz F, Erim Y, Schulz KH,. Donor quality of life up to two years after living donor liver transplantation: a prospective study. Transplantation 2014; 97: 582.
38. Bliss A, Stuber ML,. Giving life for the second time: a preliminary study of parental partial liver donation for pediatric transplantation. Fam Syst Health 1999; 17: 217.
39. Crowley-Matoka M, Siegler M, Cronin DC,. Long-term quality of life issues among adult-to-pediatric living liver donors: a qualitative exploration. Am J Transplant 2004; 4: 744.
40. Forsberg A, Nilsson M, Krantz M, Olausson M,. The essence of living parental liver donation: donors' lived experiences of donation to their children. Pediatr Transplant 2004; 8: 372.
41. Neuhaus TJ, Wartmann M, Weber M, Landolt MA, Laube GF, Kemper MJ,. Psychosocial impact of living-related kidney transplantation on donors and partners. Pediatr Nephrol 2005; 20: 205.
42. Baines LS, Beattie TJ, Murphy AV, Jindal RM,. Relationship between donors and pediatric recipients of kidney transplants: a psychosocial study. Transplant Proc 2001; 33: 1897.
43. Wise BV,. In their own words: the lived experience of pediatric liver transplantation. Qual Health Res 2002; 12: 74.
44. Yoshino M, Yoshino H, Kusano A, Mizuta K, Kawarasaki H,. The influence of living donor liver transplantation on families with or without siblings. Pediatr Transplant 2007; 11: 624.
45. Goetzmann L, Irani S, Moser KS, et al,. Psychological processing of transplantation in lung recipients: a quantitative study of organ integration and the relationship to the donor. Br J Health Psychol 2009; 14: 667.
46. Taylor B, De Vocht H,. Interviewing separately or as couples? Considerations of authenticity of method. Qual Health Res 2011; 21: 1576.
47. Scheper-Hughes N,. The tyranny of the gift: sacrificial violence in living donor transplants. Am J Transplant 2007; 7: 507.