Personal and environmental factors to consider when aiming to improve participation in physical activity in children with Spina Bifida: A qualitative study

BMC Neurology

Volumn 15, Issue 1, 2015, Pages

  Bloemen, Manon A T ^a,b   Verschuren, Olaf ^c   van Mechelen, Claudia ^a   Borst, Hanneke E ^a   de Leeuw, Arina J ^a   van der Hoef, Marsha ^a   de Groot, Janke F ^a,b  

^a UNIVERSITY OF APPLIED SCIENCES UTRECHT   (Netherlands)

^b UNIVERSITY MEDICAL CENTER UTRECHT   (Netherlands)

^c UNIVERSITY MEDICAL CENTER UTRECHT   (Netherlands)

Author keywords

Barriers; Facilitators; Physical activity; Spina bifida; Youth

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CLINICAL ARTICLE; COMPETENCE; ENVIRONMENTAL FACTOR; FEMALE; HUMAN; INFORMATION PROCESSING; LIFESTYLE; MALE; PHYSICAL ACTIVITY; QUALITATIVE RESEARCH; SELF CARE; SELF CONCEPT; SEMI STRUCTURED INTERVIEW; SKILL; SOCIAL INTERACTION; SOCIAL PARTICIPATION; SPECIAL EDUCATION; SPINAL DYSRAPHISM; SPORT; DISABLED PERSON; EXERCISE; MIDDLE AGED; PARENT; PATHOPHYSIOLOGY; PHYSIOLOGY; PRESCHOOL CHILD;

ADOLESCENT; ADULT; CHILD; CHILD, PRESCHOOL; DISABLED PERSONS; EXERCISE; FEMALE; FOCUS GROUPS; HUMANS; LIFE STYLE; MALE; MIDDLE AGED; PARENTS; SPINAL DYSRAPHISM;

EID: 84924912572     PISSN: None     EISSN: 14712377     Source Type: Journal    
DOI: 10.1186/s12883-015-0265-9     Document Type: Article

References (45)

1. Annual Report 2011 with Data for 2009. International Clearinghouse for Birth Defects Surveillance and Research. [http://www.icbdsr.org/filebank/documents/ar2005/Report2011.pdf]
2. Singh DK. Families of Children with Spina Bifida: A Review. J Dev Phys Disabil. 2003;15(1):37-54.
3. Bowman RM, McLone DG, Grant JA, Tomita T, Ito J. Spina bifida outcome: a 25-year prospective. Pediatr Neurosurg. 2001;34(3):114-20.
4. Mitchell LE, Adzick NS, Melchionne J, Pasquariello PS, Sutton LN, Whitehead AS. Spina bifida. Lancet. 2004;364:1885-95.
5. Simeonsson RJ, McMillen JS, Huntington GS. Secondary conditions in children with disabilities: spina bifida as a case example. Ment Retard Dev Disabil Res Rev. 2002;8(3):198-205.
6. Bouchard C, Shephard RJ, Stephens T. Physical activity, fitness and health the model and key concepts. In: Anonymous, editor. Physical activity, fitness, and health consensus statement. Champaign, IL: Human Kinetics; 1994.
7. Telama R. Tracking of physical activity from childhood to adulthood: a review. Obes Facts. 2009;2(3):187-95.
8. Schoenmakers MA, de Groot JF, Gorter JW, Hillaert JL, Helders PJ, Takken T. Muscle strength, aerobic capacity and physical activity in independent ambulating children with lumbosacral spina bifida. Disabil Rehabil. 2009;31(4):259-66.
9. Buffart LM, Roebroeck ME, Rol M, Stam HJ, van den Berg-Emons RJ, Transition Research Group South-West Netherlands. Triad of physical activity, aerobic fitness and obesity in adolescents and young adults with myelomeningocele. J Rehabil Med. 2008;40(1):70-5.
10. van den Berg-Emons RJ, Bussmann JB, Stam HJ. Accelerometry-based activity spectrum in persons with chronic physical conditions. Arch Phys Med Rehabil. 2010;91(12):1856-61.
11. van Brussel M, van der Net J, Hulzebos E, Helders PJ, Takken T. The Utrecht approach to exercise in chronic childhood conditions: the decade in review. Pediatr Phys Ther. 2011;23(1):2-14.
12. Short KR, Frimberger D. A review of the potential for cardiometabolic dysfunction in youth with spina bifida and the role for physical activity and structured exercise. Int J Pediatr. 2012;2012:11.
13. Buffart LM, van den Berg-Emons RJ, Burdorf A, Janssen WG, Stam HJ, Roebroeck ME. Cardiovascular disease risk factors and the relationships with physical activity, aerobic fitness, and body fat in adolescents and young adults with myelomeningocele. Arch Phys Med Rehabil. 2008;89(11):2167-73.
14. Verschuren O, Ketelaar M, Gorter JW, Helders PJ, Uiterwaal CS, Takken T. Exercise training program in children and adolescents with cerebral palsy: a randomized controlled trial. Arch Pediatr Adolesc Med. 2007;161(11):1075-81.
15. Liusuwan RA, Widman LM, Abresch RT, Johnson AJ, McDonald CM. Behavioral intervention, exercise, and nutrition education to improve health and fitness (BENEfit) in adolescents with mobility impairment due to spinal cord dysfunction. J Spinal Cord Med. 2007;30 Suppl 1:S119-26.
16. Andrade CK, Kramer J, Garber M, Longmuir P. Changes in self-concept, cardiovascular endurance and muscular strength of children with spina bifida aged 8 to 13 years in response to a 10-week physical-activity programme: a pilot study. Child Care Health Dev. 1991;17(3):183-96.
17. de Groot JF, Takken T, van Brussel M, Gooskens R, Schoenmakers M, Versteeg C, et al. Randomized controlled study of home-based treadmill training for ambulatory children with spina bifida. Neurorehabil Neural Repair. 2011;25(7):597-606.
18. Shields N, Synnot AJ, Barr M. Perceived barriers and facilitators to physical activity for children with disability: a systematic review. Br J Sports Med. 2012;46(14):989-97.
19. Trost SG, Sallis JF, Pate RR, Russel R, Freedson PS, Taylor WC, et al. Evaluating a model of parental influence on youth physical activity. Am J Prev Med. 2003;25(4):277-82.
20. Erkelenz N, Kobel S, Kettner S, Drenowatz C, Steinacker JM. Parental Activity as Influence on Children's BMI Percentiles and Physical Activity. J Sports Sci Med. 2014;13(3):645-50.
21. Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77-101.
22. Creswell J. Research Design: Qualitative, Quantatative and Mixed Methods Approaches. 2nd ed. Thousand Oaks, California: Sage Publications; 2003.
23. Spratling R, Coke S, Minick P. Qualitative data collection with children. Appl Nurs Res. 2012;25(1):47-53.
24. Massey OT. A proposed model for the analysis and interpretation of focus groups in evaluation research. Eval Program Plann. 2011;34(1):21-8.
25. Baarda DB, De-Goede MPP, Teunissen J. Basisboek Kwalitatief Onderzoek. Handleiding voor het opzetten en uitvoeren van kwalitatief onderzoek. secondth ed. Groningen/Houten, the Netherlands: Wolters-Noordhoff; 2005.
26. Robson C. Real World Research, A Resource for Social Scientists and Practitioner-Researchers. 2nd ed. Oxford, UK: Blackwell Publishing; 2002.
27. Caspersen ID, Habekost T. Selective and sustained attention in children with spina bifida myelomeningocele. Child Neuropsychol. 2013;19(1):55-77.
28. Rose BM, Holmbeck GN. Attention and executive functions in adolescents with spina bifida. J Pediatr Psychol. 2007;32(8):983-94.
29. Caspersen CJ, Powell KE, Christenson GM. Physical activity, exercise, and physical fitness: definitions and distinctions for health-related research. Public Health Rep. 1985;100(2):126-31.
30. Patton M. Designing Qualitative Studies, Purposeful Sampling. In: Anonymous, editor. Qualitative evaluation and research methods. Beverly Hills, CA: Sage, 1990. p. 169-86.
31. van der Ploeg HP, van der Beek AJ, van der Woude LH, van Mechelen W. Physical activity for people with a disability: a conceptual model. Sports Med. 2004;34(10):639-49.
32. Verschuren O, Wiart L, Hermans D, Ketelaar M. Identification of facilitators and barriers to physical activity in children and adolescents with cerebral palsy. J Pediatr. 2012;161(3):488-94.
33. Netwerk Kwalitatief Onderzoek AMC - UvA. Richtlijnen voor kwaliteitsborging in gezondheids(zorg)onderzoek: Kwalitatief Onderzoek. 2002.
34. Letts L, Wilkins S, Law M, Stewart D, Bosch J, Westmorland M. Guidelines for critical review form - Qualitative studies (version 2.0), McMaster University Occupational Therapy Evidence-Based Practice Research Group. 2007.
35. Kuckartz U. MAXQDA 2007 reference manual. (J. Poppe, Transl.). Marburg: VERBI Software; 2007.
36. Schoenmakers MA, Gulmans VA, Gooskens RH, Helders PJ. Spina bifida at the sacral level: more than minor gait disturbances. Clin Rehabil. 2004;18(2):178-85.
37. Oliveira A, Jácome C, Marques A. Physical fitness and exercise training on individuals with Spina Bifida: a systematic review. Res Dev Disabil. 2014;35(5):1119-36.
38. Crytzer T, Dicianno B, Kapoor R. Physical activity, exercise, and health-related measures of fitness in adults with spina bifida: a review of the literature. PM R. 2013;5(12):1051-62.
39. Bloemen MA, Backx FJ, Takken T, Wittink H, Benner J, Mollema J, de Groot JF. Factors associated with physical activity in children and adolescents with a physical disability: a systematic review. Dev Med Child Neurol; (in press).
40. Buffart L, Westendorp T, van den Berg-Emons R, Stam HJ, Roebroeck ME. Perceived barriers to and facilitators of physical activity in young adults with childhood-onset physical disabilities. J Rehabil Med. 2009;41(11):881-5.
41. Americans with Disabilities Act. [http://www.ada.gov/]
42. Murphy NA, Carbone PS, American Academy of Pediatrics Council on Children With Disabilities. Promoting the participation of children with disabilities in sports, recreation, and physical activities. Pediatrics. 2008;121(5):1057-61.
43. Van Wely L, Dallmeijer AJ, Balemans AC, Zhou C, Becher JG, Bjornson KF. Walking activity of children with cerebral palsy and children developing typically: a comparison between the Netherlands and the United States. Disabil Rehabil. 2014;36(25):2136-42.
44. Council on Community Pediatrics. Providing care for immigrant, migrant, and border children. Pediatrics. 2013;131(6):e2028-2034.
45. Hoopman R, Terwee CB, Muller MJ, Ory FG, Aaronson NK. Methodological challenges in quality of life research among Turkish and Moroccan ethnic minority cancer patients: translation, recruitment and ethical issues. Ethn Health. 2009;14(3):237-53.